Civic Intelligence

Batten Disease Support and Research Assoc

990EZ • Fiscal year 2021 • EIN 04-3551431

Jan 01, 2021 to Dec 31, 2021 • Filed on Mar 18, 2022

Organization ProfileWWW.BATTENDISEASERESEARCH.ORG
265 American Legion HighwayWestport, MA 02790

(508) 636-6375

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

56th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2021 filings • 501(c)3 • <$500k nonprofits • Source year 2021

Liabilities / Revenue

56th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2021 filings • 501(c)3 • <$500k nonprofits • Source year 2021

Net Margin

6th percentile

-149%

Higher net margin than 6% of similar nonprofits.

2021 filings • 501(c)3 • <$500k nonprofits • Source year 2021

Top Officer Pay

77th percentile

$0

Higher top officer pay than 77% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2021 filings • 501(c)3 • <$500k nonprofits • Source year 2021

Asset Growth

9th percentile

-45%

Faster asset growth than 9% of similar nonprofits.

2021 filings • 501(c)3 • <$500k nonprofits • Annualized from 2020 to 2021

Revenue Growth

98th percentile

1213%

Faster revenue growth than 98% of similar nonprofits.

2021 filings • 501(c)3 • <$500k nonprofits • Annualized from 2020 to 2021

Balance Sheet
Liabilities / Assets56th percentile

Assets

Down

$29,418

Down $24,050 (-45%) from 2020

Net Assets

Down

$29,418

Down $24,050 (-45%) from 2020

Liabilities

Flat

$0

Flat from 2020

Revenue And Expenses
Liabilities / Revenue56th percentileNet Margin6th percentile

Revenue

Up

$16,133

Up $14,904 (+1213%) from 2020

Expenses

Up

$40,183

Up $40,019 (+24402%) from 2020

Net Income

Down

-$24,050

Down $25,115 (-2358%) from 2020

Historical Trend

Balance Sheet Trend

Asset Growth9th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$100K$50K$0Assets 2013: $43,832Liabilities 2013: $02013Assets 2014: $45,785Liabilities 2014: $0Net Assets 2014: $45,7852014Assets 2015: $27,576Liabilities 2015: $0Net Assets 2015: $27,5762015Assets 2016: $7,343Liabilities 2016: $0Net Assets 2016: $7,3432016Assets 2017: $42,756Liabilities 2017: $0Net Assets 2017: $42,7562017Assets 2018: $80,079Liabilities 2018: $0Net Assets 2018: $80,0792018Assets 2019: $52,403Liabilities 2019: $0Net Assets 2019: $52,4032019Assets 2020: $53,468Liabilities 2020: $0Net Assets 2020: $53,4682020Assets 2021: $29,418Liabilities 2021: $0Net Assets 2021: $29,4182021Assets 2022: $54,591Liabilities 2022: $0Net Assets 2022: $54,5912022Assets 2023: $39,029Liabilities 2023: $0Net Assets 2023: $39,0292023Assets 2024: $49,857Liabilities 2024: $0Net Assets 2024: $49,8572024

Highlighted filing

2021

Assets$29,418
Liabilities$0
Net Assets$29,418
Open 2021 Filing

Operations Trend

Revenue Growth98th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$100K$50K$0-$50KRevenue 2013: $68,717Expenses 2013: $65,640Net Income 2013: $3,0772013Revenue 2014: $52,132Expenses 2014: $50,179Net Income 2014: $1,9532014Revenue 2015: $44,791Expenses 2015: $63,000Net Income 2015: -$18,2092015Revenue 2016: $25,629Expenses 2016: $50,108Net Income 2016: -$24,4792016Revenue 2017: $35,507Expenses 2017: $94Net Income 2017: $35,4132017Revenue 2018: $37,393Expenses 2018: $70Net Income 2018: $37,3232018Revenue 2019: $37,553Expenses 2019: $65,229Net Income 2019: -$27,6762019Revenue 2020: $1,229Expenses 2020: $164Net Income 2020: $1,0652020Revenue 2021: $16,133Expenses 2021: $40,183Net Income 2021: -$24,0502021Revenue 2022: $25,354Expenses 2022: $181Net Income 2022: $25,1732022Revenue 2023: $24,615Expenses 2023: $40,177Net Income 2023: -$15,5622023Revenue 2024: $10,8282024

Highlighted filing

2021

Revenue$16,133
Expenses$40,183
Net Income-$24,050
Open 2021 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2021 to Dec 31, 2021
Signed
Mar 18, 2022
Return Version
2021v4.1
Gross Receipts
$33,118
Mission and Program Overview

Mission

To raise funds and promote research

Program Services

DescriptionGrantsExpenses
TO RAISE FUNDS FOR THE SUPPORT OF THE ORGANIZATION AND TO PROMOTE RESEARCH ON BATTEN DISEASE--
TO MAXIMIZE THE OPPORTUNITIES OF PERSONS WITH BATTENDISEASE THROUGH MEDICAL,EDUCTIONAL,VOCATIONAL,HABITATIONAL,FINANCIAL MEANS IN ORDER TO INSURE PERSONS LEAD LIVES AS NORMAL--
TO COOPERATE AND ASSIST WITH A REGISTRY OF INDIVIDUALS WITH BATTEN DISEASE AND THEIR FAMILIES ON STATE, NATIONAL AND INTERNATIONAL LEVELS--
Compensation and Service Providers
Top Officer Pay77th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
MAURICE ST GELAISPresidentPT$0--
ELAINE LEBEAUTreasurerPT$0--
RAYMOND ST GELAISClerk-$0--
JEAN MARIE ST GELAISVice PresidentPT$0--
ROBIN BECKDirectorPT$0--
KATHLEEN M BECKDirectorPT$0--
LAURIE ABELDirector-$0--
Fundraising, Events, and Gaming

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Golf Tournam$19,430$19,430$16,985$2,445
Total Events$19,430$19,430$16,985$2,445
Filing and Contact Details

Filer

Filer Name
Batten Disease Research
EIN
04-3551431
Address
265 AMERICAN LEGION HIGHWAY, WESTPORT, MA 02790

Signing Officer

Name
Maurice R St Gelais
Title
President
Phone
5086366375
Signed
2022-03-18
Discuss with paid preparer
Yes

Preparer

Firm
MJ Tax and Business Services LLC
Address
55 Alden Rd, Fairhaven, MA 02719
Preparer
Elaine LeBeau
Phone
5089931140
Supplemental Narrative

Additional Explanations

List of grants and similar amounts paid Part I line 10

“Activity payments to affliliate grantee massachusetts general hospital street 165 cambridge st city, state, zip boston, ma 02114relationship none amount 40,000”

Raw XML Appendix178 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
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IRS990EZ/BooksInCareOfDetail/USAddress/CityNm0WESTPORT
IRS990EZ/BooksInCareOfDetail/USAddress/StateAbbreviationCd0MA
IRS990EZ/BooksInCareOfDetail/USAddress/ZIPCd002790
IRS990EZ/CashSavingsAndInvestmentsGrp/BOYAmt053468
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IRS990EZ/LobbyingActivitiesInd0false
IRS990EZ/MadeLoansToFromOfficersInd0false
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IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt60
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm0MAURICE ST GELAIS
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm1ELAINE LEBEAU
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm2RAYMOND ST GELAIS
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm3JEAN MARIE ST GELAIS
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm4ROBIN BECK
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm5KATHLEEN M BECK
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm6LAURIE ABEL
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt0PRESIDENT
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt1TREASURER
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt2CLERK
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt3VICE PRESIDENT
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt4DIRECTOR
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt5DIRECTOR
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt6DIRECTOR
IRS990EZ/OperateHospitalInd0false
IRS990EZ/Organization501c3Ind0X
IRS990EZ/OrganizationDissolvedEtcInd0false
IRS990EZ/OrganizationHadUBIInd0false
IRS990EZ/OtherAssetsTotalDetail/BOYAmt00
IRS990EZ/OtherAssetsTotalDetail/EOYAmt00
IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt0NONE
IRS990EZ/PartVIOfCompOfHghstPdEmplTxt0NONE
IRS990EZ/PoliticalCampaignActyInd0false
IRS990EZ/PrimaryExemptPurposeTxt0TO RAISE FUNDS AND PROMOTE RESEARCH
IRS990EZ/PrintingPublicationsPostageAmt0183
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt0TO RAISE FUNDS FOR THE SUPPORT OF THE ORGANIZATION AND TO PROMOTE RESEARCH ON BATTEN DISEASE
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt1TO MAXIMIZE THE OPPORTUNITIES OF PERSONS WITH BATTENDISEASE THROUGH MEDICAL,EDUCTIONAL,VOCATIONAL,HABITATIONAL,FINANCIAL MEANS IN ORDER TO INSURE PERSONS LEAD LIVES AS NORMAL
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt2TO COOPERATE AND ASSIST WITH A REGISTRY OF INDIVIDUALS WITH BATTEN DISEASE AND THEIR FAMILIES ON STATE, NATIONAL AND INTERNATIONAL LEVELS
IRS990EZ/ProhibitedTaxShelterTransInd0false
IRS990EZ/RelatedOrganizationCtrlEntInd0false
IRS990EZ/ScheduleBNotRequiredInd0X
IRS990EZ/SchoolOperatingInd0false
IRS990EZ/SpecialEventsDirectExpensesAmt016985
IRS990EZ/SpecialEventsNetIncomeLossAmt02445
IRS990EZ/StatesWhereCopyOfReturnIsFldCd0MA
IRS990EZ/SubjectToProxyTaxInd0false
IRS990EZ/SumOfTotalLiabilitiesGrp/BOYAmt00
IRS990EZ/SumOfTotalLiabilitiesGrp/EOYAmt00
IRS990EZ/TanningServicesProvidedInd0false
IRS990EZ/TotalExpensesAmt040183
IRS990EZ/TotalProgramServiceExpensesAmt00
IRS990EZ/TotalRevenueAmt016133
IRS990EZ/TransactionWithControlEntInd0false
IRS990EZ/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990EZ/TypeOfOrganizationCorpInd0X
IRS990EZ/WebsiteAddressTxt0WWW.BATTENDISEASERESEARCH.ORG
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt013669
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt01203
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt038893
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt035456
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt035355
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt0124576
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt019
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt026
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt027
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt030
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt011
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0113
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt084103
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.79850
IRS990ScheduleA/PublicSupportPY170Pct00.82060
IRS990ScheduleA/PublicSupportTotal170Amt099564
IRS990ScheduleA/SubstantialContributorsTotAmt025012
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt013669
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt01203
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt038893
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt035456
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt035355
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt0124576
IRS990ScheduleA/TotalSupportAmt0124689
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt016985
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0GOLF TOURNAM
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt019430
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt019430
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt019430
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt019430
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt02445
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt016985
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt016985
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0ACTIVITY PAYMENTS TO AFFLILIATE GRANTEE MASSACHUSETTS GENERAL HOSPITAL STREET 165 CAMBRIDGE ST CITY, STATE, ZIP BOSTON, MA 02114RELATIONSHIP NONE AMOUNT 40,000
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0List of grants and similar amounts paid Part I line 10
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/AuthenticationAssuranceLevelCd0AAL2
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/IdentityAssuranceLevelCd0IAL1
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/OOBSecurityVerificationCd011
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/TrustedCustomerCd00
ReturnHeader/BuildTS02022-09-23 18:48:47Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0MAURICE R ST GELAIS
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0PRESIDENT
ReturnHeader/BusinessOfficerGrp/PhoneNum05086366375
ReturnHeader/BusinessOfficerGrp/SignatureDt02022-03-18
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0BATTEN DISEASE RESEARCH
ReturnHeader/Filer/BusinessNameControlTxt0BATT
ReturnHeader/Filer/EIN0043551431
ReturnHeader/Filer/USAddress/AddressLine1Txt0265 AMERICAN LEGION HIGHWAY
ReturnHeader/Filer/USAddress/CityNm0WESTPORT
ReturnHeader/Filer/USAddress/StateAbbreviationCd0MA
ReturnHeader/Filer/USAddress/ZIPCd002790
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0474323493
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0MJ Tax and Business Services LLC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt055 Alden Rd
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0Fairhaven
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0MA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd002719
ReturnHeader/PreparerPersonGrp/PhoneNum05089931140
ReturnHeader/PreparerPersonGrp/PreparationDt02022-03-18
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0Elaine LeBeau
ReturnHeader/ReturnTs02022-03-18T17:56:50-04:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonFirstNm0MAURICE
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonLastNm0ST GELAIS
ReturnHeader/TaxPeriodBeginDt02021-01-01
ReturnHeader/TaxPeriodEndDt02021-12-31
ReturnHeader/TaxYr02021

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2021 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$29,418
Liabilities
$0
Net assets
$29,418
Revenue
$16,133
Expenses
$40,183
Net income
-$24,050
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$49.9$0.00$49.9$10.8
2023Detailed filing. Detailed filing data is available for this year.$39.0$0.00$39.0$24.6$40.2$15.6
2022Detailed filing. Detailed filing data is available for this year.$54.6$0.00$54.6$25.4$0.18$25.2
2021Detailed filing. Detailed filing data is available for this year.$29.4$0.00$29.4$16.1$40.2$24.1
2020Detailed filing. Detailed filing data is available for this year.$53.5$0.00$53.5$1.23$0.16$1.07
2019Detailed filing. Detailed filing data is available for this year.$52.4$0.00$52.4$37.6$65.2$27.7
2018Detailed filing. Detailed filing data is available for this year.$80.1$0.00$80.1$37.4$0.07$37.3
2017Detailed filing. Detailed filing data is available for this year.$42.8$0.00$42.8$35.5$0.09$35.4
2016Detailed filing. Detailed filing data is available for this year.$7.34$0.00$7.34$25.6$50.1$24.5
2015Detailed filing. Detailed filing data is available for this year.$27.6$0.00$27.6$44.8$63.0$18.2
2014Detailed filing. Detailed filing data is available for this year.$45.8$0.00$45.8$52.1$50.2$1.95
2013Summary only. Only limited summary data is available for this year.$43.8$0.00$68.7$65.6$3.08
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2021 filings • 501(c)3 • <$500k nonprofits