Civic Intelligence

Batten Disease Support and Research Assoc

990EZ • Fiscal year 2022 • EIN 04-3551431

Jan 01, 2022 to Dec 31, 2022 • Filed on May 05, 2023

Organization ProfileWWW.BATTENDISEASERESEARCH.ORG
265 American Legion HighwayWestport, MA 02790

(508) 636-6375

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

58th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Liabilities / Revenue

58th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Net Margin

99th percentile

99%

Higher net margin than 99% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Top Officer Pay

78th percentile

$0

Higher top officer pay than 78% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Asset Growth

90th percentile

86%

Faster asset growth than 90% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Annualized from 2021 to 2022

Revenue Growth

75th percentile

57%

Faster revenue growth than 75% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets58th percentile

Assets

Up

$54,591

Up $25,173 (+86%) from 2021

Net Assets

Up

$54,591

Up $25,173 (+86%) from 2021

Liabilities

Flat

$0

Flat from 2021

Revenue And Expenses
Liabilities / Revenue58th percentileNet Margin99th percentile

Revenue

Up

$25,354

Up $9,221 (+57%) from 2021

Expenses

Down

$181

Down $40,002 (-100%) from 2021

Net Income

Up

$25,173

Up $49,223 (+205%) from 2021

Historical Trend

Balance Sheet Trend

Asset Growth90th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$100K$50K$0Assets 2013: $43,832Liabilities 2013: $02013Assets 2014: $45,785Liabilities 2014: $0Net Assets 2014: $45,7852014Assets 2015: $27,576Liabilities 2015: $0Net Assets 2015: $27,5762015Assets 2016: $7,343Liabilities 2016: $0Net Assets 2016: $7,3432016Assets 2017: $42,756Liabilities 2017: $0Net Assets 2017: $42,7562017Assets 2018: $80,079Liabilities 2018: $0Net Assets 2018: $80,0792018Assets 2019: $52,403Liabilities 2019: $0Net Assets 2019: $52,4032019Assets 2020: $53,468Liabilities 2020: $0Net Assets 2020: $53,4682020Assets 2021: $29,418Liabilities 2021: $0Net Assets 2021: $29,4182021Assets 2022: $54,591Liabilities 2022: $0Net Assets 2022: $54,5912022Assets 2023: $39,029Liabilities 2023: $0Net Assets 2023: $39,0292023Assets 2024: $49,857Liabilities 2024: $0Net Assets 2024: $49,8572024

Highlighted filing

2022

Assets$54,591
Liabilities$0
Net Assets$54,591
Open 2022 Filing

Operations Trend

Revenue Growth75th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$100K$50K$0-$50KRevenue 2013: $68,717Expenses 2013: $65,640Net Income 2013: $3,0772013Revenue 2014: $52,132Expenses 2014: $50,179Net Income 2014: $1,9532014Revenue 2015: $44,791Expenses 2015: $63,000Net Income 2015: -$18,2092015Revenue 2016: $25,629Expenses 2016: $50,108Net Income 2016: -$24,4792016Revenue 2017: $35,507Expenses 2017: $94Net Income 2017: $35,4132017Revenue 2018: $37,393Expenses 2018: $70Net Income 2018: $37,3232018Revenue 2019: $37,553Expenses 2019: $65,229Net Income 2019: -$27,6762019Revenue 2020: $1,229Expenses 2020: $164Net Income 2020: $1,0652020Revenue 2021: $16,133Expenses 2021: $40,183Net Income 2021: -$24,0502021Revenue 2022: $25,354Expenses 2022: $181Net Income 2022: $25,1732022Revenue 2023: $24,615Expenses 2023: $40,177Net Income 2023: -$15,5622023Revenue 2024: $10,8282024

Highlighted filing

2022

Revenue$25,354
Expenses$181
Net Income$25,173
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
May 5, 2023
Return Version
2022v5.0
Gross Receipts
$40,033
Mission and Program Overview

Mission

To raise funds and promote research

To raise funds and promote reserach

Program Services

DescriptionGrantsExpenses
TO RAISE FUNDS FOR THE SUPPORT OF THE ORGANIZATIOH AND TO PROMOTE RESEARCH ON BATTEN DISEASE--
TO MAXIMIZE THE OPPORTUNITIES OF PERSONS WITH BATTEN DISEASE THROUGH MEDICAL, EDUCATION, VOICATIONAL, HABITATIONAL, FINANACIAL MEANS--
TO COOPERATE AND ASSIST WITH A REGISTRY OF INDIVIDUALS WITH BATTEN DISEASE AND THEIR FAMILIES ON STATE, NATIONAL AND INTERNATIONAL LEVELS--
Compensation and Service Providers
Top Officer Pay78th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
MAURICE ST GELAISPresidentPT$0--
ELAINE LEBEAUTreasurer-$0--
JEAN MARIE ST GELAISVice PresidentPT$0--
Fundraising, Events, and Gaming

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Golf Tournam$19,140$19,140$14,666$4,474
Total Events$19,140$19,140$14,666$4,474
Filing and Contact Details

Filer

Filer Name
Batten Disease Research
EIN
04-3551431
Address
265 AMERICAN LEGION HIGHWAY, WESTPORT, MA 02790

Signing Officer

Name
Maurice St Gelais
Title
President
Phone
5085093400
Signed
2023-05-05
Discuss with paid preparer
Yes

Preparer

Firm
Affordable Payroll
Address
128 Spruceville Rd, MILAN, NH 03588
Preparer
Elaine LeBeau
Phone
5085020410
Supplemental Narrative

Additional Explanations

List of grants and similar amounts paid Part I line 10

“Activity payments to affiliates grantee massachusetts general hospital street 165 cambridge st city, state, zip boston, ma 02114relationship none”

Raw XML Appendix148 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990EZ/ActivitiesNotPreviouslyRptInd0false
IRS990EZ/BooksInCareOfDetail/PersonNm0MAURICE ST GELAIS
IRS990EZ/BooksInCareOfDetail/PhoneNum05086366375
IRS990EZ/BooksInCareOfDetail/USAddress/AddressLine1Txt0265 AMERICAN LEGION HIGHWAY
IRS990EZ/BooksInCareOfDetail/USAddress/CityNm0WESTPORT
IRS990EZ/BooksInCareOfDetail/USAddress/StateAbbreviationCd0MA
IRS990EZ/BooksInCareOfDetail/USAddress/ZIPCd002790
IRS990EZ/CashSavingsAndInvestmentsGrp/BOYAmt029418
IRS990EZ/CashSavingsAndInvestmentsGrp/EOYAmt054591
IRS990EZ/ChgMadeToOrgnzngDocNotRptInd0false
IRS990EZ/ContributionsGiftsGrantsEtcAmt020876
IRS990EZ/DonorAdvisedFndsInd0false
IRS990EZ/EngagedInExcessBenefitTransInd0false
IRS990EZ/ExcessOrDeficitForYearAmt025173
IRS990EZ/FiledScheduleAInd0true
IRS990EZ/ForeignFinancialAccountInd0false
IRS990EZ/ForeignOfficeInd0false
IRS990EZ/Form1120PolFiledInd0false
IRS990EZ/Form990TotalAssetsGrp/BOYAmt029418
IRS990EZ/Form990TotalAssetsGrp/EOYAmt054591
IRS990EZ/FundraisingGrossIncomeAmt019140
IRS990EZ/GrossReceiptsAmt040033
IRS990EZ/InvestmentIncomeAmt017
IRS990EZ/LandAndBuildingsGrp/BOYAmt00
IRS990EZ/LandAndBuildingsGrp/EOYAmt00
IRS990EZ/LobbyingActivitiesInd0false
IRS990EZ/MadeLoansToFromOfficersInd0false
IRS990EZ/MethodOfAccountingCashInd0X
IRS990EZ/NetAssetsOrFundBalancesBOYAmt029418
IRS990EZ/NetAssetsOrFundBalancesEOYAmt054591
IRS990EZ/NetAssetsOrFundBalancesGrp/BOYAmt029418
IRS990EZ/NetAssetsOrFundBalancesGrp/EOYAmt054591
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt010.00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt13.00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt25.00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt10
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt20
IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt10
IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt20
IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt10
IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt20
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm0MAURICE ST GELAIS
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm1ELAINE LEBEAU
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm2JEAN MARIE ST GELAIS
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt0PRESIDENT
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt1TREASURER
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt2VICE PRESIDENT
IRS990EZ/OperateHospitalInd0false
IRS990EZ/Organization501c3Ind0X
IRS990EZ/OrganizationDissolvedEtcInd0false
IRS990EZ/OrganizationHadUBIInd0false
IRS990EZ/OtherAssetsTotalDetail/BOYAmt00
IRS990EZ/OtherAssetsTotalDetail/EOYAmt00
IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt0NONE
IRS990EZ/PartVIOfCompOfHghstPdEmplTxt0NONE
IRS990EZ/PoliticalCampaignActyInd0false
IRS990EZ/PrimaryExemptPurposeTxt0TO RAISE FUNDS AND PROMOTE RESERACH
IRS990EZ/PrintingPublicationsPostageAmt0181
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt0TO RAISE FUNDS FOR THE SUPPORT OF THE ORGANIZATIOH AND TO PROMOTE RESEARCH ON BATTEN DISEASE
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt1TO MAXIMIZE THE OPPORTUNITIES OF PERSONS WITH BATTEN DISEASE THROUGH MEDICAL, EDUCATION, VOICATIONAL, HABITATIONAL, FINANACIAL MEANS
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt2TO COOPERATE AND ASSIST WITH A REGISTRY OF INDIVIDUALS WITH BATTEN DISEASE AND THEIR FAMILIES ON STATE, NATIONAL AND INTERNATIONAL LEVELS
IRS990EZ/ProhibitedTaxShelterTransInd0false
IRS990EZ/RelatedOrganizationCtrlEntInd0false
IRS990EZ/ScheduleBNotRequiredInd0X
IRS990EZ/SchoolOperatingInd0false
IRS990EZ/SpecialEventsDirectExpensesAmt014679
IRS990EZ/SpecialEventsNetIncomeLossAmt04461
IRS990EZ/SubjectToProxyTaxInd0false
IRS990EZ/SumOfTotalLiabilitiesGrp/BOYAmt00
IRS990EZ/SumOfTotalLiabilitiesGrp/EOYAmt00
IRS990EZ/TanningServicesProvidedInd0false
IRS990EZ/TotalExpensesAmt0181
IRS990EZ/TotalProgramServiceExpensesAmt00
IRS990EZ/TotalRevenueAmt025354
IRS990EZ/TransactionWithControlEntInd0false
IRS990EZ/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990EZ/TypeOfOrganizationCorpInd0X
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt020876
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt013669
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt01203
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt038893
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt035456
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt0110097
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt017
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt019
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt026
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt027
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt030
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0119
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.99890
IRS990ScheduleA/PublicSupportPY170Pct00.99910
IRS990ScheduleA/PublicSupportTotal170Amt0110097
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt020876
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt013669
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt01203
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt038893
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt035456
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt0110097
IRS990ScheduleA/TotalSupportAmt0110216
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt014666
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0GOLF TOURNAM
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt019140
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt019140
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt019140
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt019140
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt04474
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt014666
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt014666
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0ACTIVITY PAYMENTS TO AFFILIATES GRANTEE MASSACHUSETTS GENERAL HOSPITAL STREET 165 CAMBRIDGE ST CITY, STATE, ZIP BOSTON, MA 02114RELATIONSHIP NONE
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0List of grants and similar amounts paid Part I line 10
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/AuthenticationAssuranceLevelCd0AAL2
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/IdentityAssuranceLevelCd0IAL1
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/OOBSecurityVerificationCd011
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/TrustedCustomerCd00
ReturnHeader/BuildTS02023-04-26 12:10:37Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0MAURICE ST GELAIS
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0PRESIDENT
ReturnHeader/BusinessOfficerGrp/PhoneNum05085093400
ReturnHeader/BusinessOfficerGrp/SignatureDt02023-05-05
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0BATTEN DISEASE RESEARCH
ReturnHeader/Filer/BusinessNameControlTxt0BATT
ReturnHeader/Filer/EIN0043551431
ReturnHeader/Filer/USAddress/AddressLine1Txt0265 AMERICAN LEGION HIGHWAY
ReturnHeader/Filer/USAddress/CityNm0WESTPORT
ReturnHeader/Filer/USAddress/StateAbbreviationCd0MA
ReturnHeader/Filer/USAddress/ZIPCd002790
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0833357904
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0Affordable Payroll
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt0128 Spruceville Rd
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0MILAN
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0NH
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd003588
ReturnHeader/PreparerPersonGrp/PhoneNum05085020410
ReturnHeader/PreparerPersonGrp/PreparationDt02023-05-09
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0Elaine LeBeau
ReturnHeader/ReturnTs02023-05-09T09:23:41-04:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonFirstNm0MAURICE
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonLastNm0ST GELAIS
ReturnHeader/TaxPeriodBeginDt02022-01-01
ReturnHeader/TaxPeriodEndDt02022-12-31
ReturnHeader/TaxYr02022

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2022 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$54,591
Liabilities
$0
Net assets
$54,591
Revenue
$25,354
Expenses
$181
Net income
$25,173
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$49.9$0.00$49.9$10.8
2023Detailed filing. Detailed filing data is available for this year.$39.0$0.00$39.0$24.6$40.2$15.6
2022Detailed filing. Detailed filing data is available for this year.$54.6$0.00$54.6$25.4$0.18$25.2
2021Detailed filing. Detailed filing data is available for this year.$29.4$0.00$29.4$16.1$40.2$24.1
2020Detailed filing. Detailed filing data is available for this year.$53.5$0.00$53.5$1.23$0.16$1.07
2019Detailed filing. Detailed filing data is available for this year.$52.4$0.00$52.4$37.6$65.2$27.7
2018Detailed filing. Detailed filing data is available for this year.$80.1$0.00$80.1$37.4$0.07$37.3
2017Detailed filing. Detailed filing data is available for this year.$42.8$0.00$42.8$35.5$0.09$35.4
2016Detailed filing. Detailed filing data is available for this year.$7.34$0.00$7.34$25.6$50.1$24.5
2015Detailed filing. Detailed filing data is available for this year.$27.6$0.00$27.6$44.8$63.0$18.2
2014Detailed filing. Detailed filing data is available for this year.$45.8$0.00$45.8$52.1$50.2$1.95
2013Summary only. Only limited summary data is available for this year.$43.8$0.00$68.7$65.6$3.08
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2022 filings • 501(c)3 • <$500k nonprofits