Civic Intelligence

Choroideremia Research Foundation Inc.

990 • Fiscal year 2017 • EIN 04-3511754

Jul 01, 2016 to Jun 30, 2017 • Filed on Jan 23, 2018

Organization Profilewww.choroideremia.org
23 E Brundreth StreetSpringfield, MA 01109-2110

(413) 781-2274

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

26th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2017 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2017

Liabilities / Revenue

26th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2017 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2017

Net Margin

82nd percentile

26%

Higher net margin than 82% of similar nonprofits.

2017 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2017

Top Officer Pay

49th percentile

$0

Higher top officer pay than 49% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2017 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2017

Asset Growth

79th percentile

22%

Faster asset growth than 79% of similar nonprofits.

2017 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2016 to 2017

Revenue Growth

13th percentile

-22%

Faster revenue growth than 13% of similar nonprofits.

2017 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / Assets26th percentile

Assets

Up

$700,829

Up $126,536 (+22%) from 2016

Net Assets

Up

$700,829

Up $126,536 (+22%) from 2016

Liabilities

Flat

$0

Flat from 2016

Revenue And Expenses
Liabilities / Revenue26th percentileNet Margin82nd percentile

Revenue

Down

$443,909

Down $123,518 (-22%) from 2016

Expenses

Down

$326,629

Down $969,332 (-75%) from 2016

Net Income

Up

$117,280

Up $845,814 (+116%) from 2016

Historical Trend

Balance Sheet Trend

Asset Growth79th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2011: $499,883Liabilities 2011: $0Net Assets 2011: $499,8832011Assets 2012: $607,728Liabilities 2012: $0Net Assets 2012: $607,7282012Assets 2013: $841,613Liabilities 2013: $0Net Assets 2013: $841,6132013Assets 2014: $884,946Liabilities 2014: $0Net Assets 2014: $884,9462014Assets 2015: $1,352,717Liabilities 2015: $0Net Assets 2015: $1,352,7172015Assets 2016: $574,293Liabilities 2016: $0Net Assets 2016: $574,2932016Assets 2017: $700,829Liabilities 2017: $0Net Assets 2017: $700,8292017Assets 2018: $833,614Liabilities 2018: $0Net Assets 2018: $833,6142018Assets 2019: $894,174Liabilities 2019: $0Net Assets 2019: $894,1742019Assets 2020: $807,483Liabilities 2020: $0Net Assets 2020: $807,4832020Assets 2021: $905,807Liabilities 2021: $0Net Assets 2021: $905,8072021Assets 2022: $985,906Liabilities 2022: $0Net Assets 2022: $985,9062022Assets 2023: $801,239Liabilities 2023: $0Net Assets 2023: $801,2392023Assets 2024: $810,811Liabilities 2024: $0Net Assets 2024: $810,8112024Assets 2025: $956,687Liabilities 2025: $0Net Assets 2025: $956,6872025

Highlighted filing

2017

Assets$700,829
Liabilities$0
Net Assets$700,829
Open 2017 Filing

Operations Trend

Revenue Growth13th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$2.0M$1.0M$0-$1.0MExpenses 2011: $165,5112011Expenses 2012: $315,7382012Revenue 2013: $520,283Expenses 2013: $286,399Net Income 2013: $233,8842013Revenue 2014: $380,133Expenses 2014: $336,800Net Income 2014: $43,3332014Revenue 2015: $660,465Expenses 2015: $273,805Net Income 2015: $386,6602015Revenue 2016: $567,427Expenses 2016: $1,295,961Net Income 2016: -$728,5342016Revenue 2017: $443,909Expenses 2017: $326,629Net Income 2017: $117,2802017Revenue 2018: $531,038Expenses 2018: $435,765Net Income 2018: $95,2732018Revenue 2019: $416,063Expenses 2019: $399,240Net Income 2019: $16,8232019Revenue 2020: $597,064Expenses 2020: $640,929Net Income 2020: -$43,8652020Revenue 2021: $672,399Expenses 2021: $574,049Net Income 2021: $98,3502021Revenue 2022: $664,881Expenses 2022: $584,677Net Income 2022: $80,2042022Revenue 2023: $560,892Expenses 2023: $745,500Net Income 2023: -$184,6082023Revenue 2024: $699,069Expenses 2024: $689,478Net Income 2024: $9,5912024Revenue 2025: $964,837Expenses 2025: $819,056Net Income 2025: $145,7812025

Highlighted filing

2017

Revenue$443,909
Expenses$326,629
Net Income$117,280
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2016 to Jun 30, 2017
Signed
Jan 23, 2018
Return Version
2016v3.0
Gross Receipts
$443,909
Mission and Program Overview

Mission

To raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a hereditary retinal-degenerative disease that causes blindness; to educate people affected by the disease and the public.

To raise funds to hasten medical research for a cure or treatment of Choroideremia as well as promote greater understanding of this inherited degenerative eye condition to those affected, the medical and research communities, and the public at large.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$517,307$636,138▲ $118,831
Investments Program Related$54,965$64,221▲ $9,256
Prepaid Expenses and Deferred Charges$1,292--
Land, Buildings, and Equipment, Net$729$470▼ $259
Total Assets$574,293$700,829▲ $126,536
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Unrestricted Net Assets$574,293$700,829▲ $126,536
Total Net Assets Fund Balance$574,293$700,829▲ $126,536
Total Liabilities and Net Assets / Fund Balance$574,293$700,829▲ $126,536

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$470$1,725$2,195
Investment Program Related Org$64,221--
Compensation and Service Providers
Top Officer Pay49th percentile

Board Members and Trustees

NameTitle
Christopher Moen MdPresident
Janet RowleyDirector
Jodi MclaughlinDirector
John OsterDirector
John TrottDirector
Kate Hiller-edwardsDirector
Lisa VolkerDirector
Marion ScottDirector
Mark Huyser-wierengaDirector
Michael MccarthyDirector
Michael MullenDirector
Micheal LaengsfeldDirector
Neal BenchDirector
Tracy GalvinDirector
Beth Foss1st VP
Jeff Benelli2nd VP
Daniel BorenSecretary
Thomas DriscollTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$440,903
Program Service Revenue
$0
Investment Income
$445
Other Revenue
$2,561
All Other Contributions
$440,903
Change in Net Assets
$117,280

Audited Revenue Reconciliation

Revenue per Audited Statements
$443,909
Revenue Not Reported on Form 990
$9,256
Total Revenue per Audited Statements
$453,165
Total Revenue per Form 990
$443,909
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$298,023
Total Fundraising Expense$98,558
Grants and Similar Amounts Paid$28,606
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Foreign Grants$28,606--$28,606
Conferences and Meetings-$20,337-$20,337
All Other Expenses-$3,215$4,050$7,265
Travel$3,201-$3,200$6,401
Fees for Services Accounting$6,000--$6,000
Information Technology--$2,444$2,444
Office Expenses-$1,954$200$2,154
Fees for Services Legal-$2,055-$2,055
Other Expenses$125,934$35,290$1,500$1,500
Insurance-$1,089-$1,089
Advertising$131-$522$653
Depreciation Depletion-$259-$259
Total Functional Expenses$163,872$64,199$98,558$326,629

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$326,629
Total Expenses per Audited Statements$326,629
Total Expenses per Form 990$326,629
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Schepens Eye ResearchBoston, MA-For Choroderemia Research$25,000

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Federal income taxes-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11

“The board members are provided with a copy of the 990 for review before approval”

Filing and Contact Details

Filer

Filer Name
Choroideremia Research Foundation Inc
EIN
04-3511754
Phone
4137812274
Address
23 E BRUNDRETH STREET, SPRINGFIELD, MA 01109-2110

Signing Officer

Name
Tara Cassidy-driscoll
Title
Treasurer
Signed
2018-01-23
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Beth Foss
Formed
2000
Legal Domicile
Ma
Voting Board Members
19
Independent Board Members
19
Employees
0

Preparer

Firm
NICHOLAS LaPIER CPA PC
Address
71 PARK AVE PO BOX 324, W SPRINGFIELD, MA 01090
Preparer
Nicholas Lapier
Phone
4137320200
Supplemental Narrative

Additional Explanations

Form 990, Part XII, Line 2C

“Coordination of the audit is by the director, executive director, and treasurer, the finance committee and the board of directors are actively involved as well”

Raw XML AppendixShowing 400 of 524 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0false
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0To raise funds to hasten medical research for a cure or treatment of Choroideremia as well as promote greater understanding of this inherited degenerative eye condition to those affected, the medical and research communities, and the public at large.
IRS990/AdvertisingGrp/FundraisingAmt0522
IRS990/AdvertisingGrp/ProgramServicesAmt0131
IRS990/AdvertisingGrp/TotalAmt0653
IRS990/AllOtherContributionsAmt0440903
IRS990/AllOtherExpensesGrp/FundraisingAmt04050
IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt03215
IRS990/AllOtherExpensesGrp/TotalAmt07265
IRS990/AuditCommitteeInd0true
IRS990/BackupWthldComplianceInd0true
IRS990/BenefitsToMembersGrp/TotalAmt00
IRS990/BooksInCareOfDetail/PersonNm0Tara Cassidy-Driscoll
IRS990/BooksInCareOfDetail/PhoneNum07812548906
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt0232 Humphrey St
IRS990/BooksInCareOfDetail/USAddress/CityNm0Swampscott
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0MA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd001907
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOfficerEntInd0false
IRS990/BusinessRlnWithOrgMemInd0false
IRS990/CashNonInterestBearingGrp/BOYAmt0517307
IRS990/CashNonInterestBearingGrp/EOYAmt0636138
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CollectionsOfArtInd0false
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt00
IRS990/CompDisqualPersonsGrp/TotalAmt00
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0false
IRS990/CompensationProcessOtherInd0false
IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt020337
IRS990/ConferencesMeetingsGrp/TotalAmt020337
IRS990/ConflictOfInterestPolicyInd0false
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0440903
IRS990/CYGrantsAndSimilarPaidAmt028606
IRS990/CYInvestmentIncomeAmt0445
IRS990/CYOtherExpensesAmt0298023
IRS990/CYOtherRevenueAmt02561
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0117280
IRS990/CYSalariesCompEmpBnftPaidAmt00
IRS990/CYTotalExpensesAmt0326629
IRS990/CYTotalFundraisingExpenseAmt098558
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0443909
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0false
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt0259
IRS990/DepreciationDepletionGrp/TotalAmt0259
IRS990/Desc0TO PROVIDE GRANTS FOR CHOROIDEREMIA RESEARCH
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DocumentRetentionPolicyInd0false
IRS990/DonorAdvisedFundInd0false
IRS990/ElectionOfBoardMembersInd0false
IRS990/EmployeeCnt00
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/EscrowAccountInd0false
IRS990/ExpenseAmt0163872
IRS990/FamilyOrBusinessRlnInd0false
IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt06000
IRS990/FeesForServicesAccountingGrp/TotalAmt06000
IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt02055
IRS990/FeesForServicesLegalGrp/TotalAmt02055
IRS990/FeesForServicesLobbyingGrp/TotalAmt00
IRS990/FeesForServicesManagementGrp/TotalAmt00
IRS990/FeesForServicesOtherGrp/TotalAmt00
IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt00
IRS990/ForeignActivitiesInd0true
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignGrantsGrp/ProgramServicesAmt028606
IRS990/ForeignGrantsGrp/TotalAmt028606
IRS990/ForeignOfficeInd0true
IRS990/Form8282PropertyDisposedOfInd0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt0001.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1001.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt2001.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt3001.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt4001.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt5001.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt6001.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt7001.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt8001.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt9001.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt10001.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt11001.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt12001.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt13001.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt14001.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt15001.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt16001.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt17001.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd13X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd14X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd15X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd16X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd17X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt170
IRS990/Form990PartVIISectionAGrp/PersonNm0BETH FOSS
IRS990/Form990PartVIISectionAGrp/PersonNm1CHRISTOPHER MOEN MD
IRS990/Form990PartVIISectionAGrp/PersonNm2JEFF BENELLI
IRS990/Form990PartVIISectionAGrp/PersonNm3DANIEL BOREN
IRS990/Form990PartVIISectionAGrp/PersonNm4MARK HUYSER-WIERENGA
IRS990/Form990PartVIISectionAGrp/PersonNm5THOMAS DRISCOLL
IRS990/Form990PartVIISectionAGrp/PersonNm6JOHN OSTER
IRS990/Form990PartVIISectionAGrp/PersonNm7MARION SCOTT
IRS990/Form990PartVIISectionAGrp/PersonNm8LISA VOLKER
IRS990/Form990PartVIISectionAGrp/PersonNm9JANET ROWLEY
IRS990/Form990PartVIISectionAGrp/PersonNm10NEAL BENCH
IRS990/Form990PartVIISectionAGrp/PersonNm11TRACY GALVIN
IRS990/Form990PartVIISectionAGrp/PersonNm12KATE HILLER-EDWARDS
IRS990/Form990PartVIISectionAGrp/PersonNm13MICHAEL MCCARTHY
IRS990/Form990PartVIISectionAGrp/PersonNm14JOHN TROTT
IRS990/Form990PartVIISectionAGrp/PersonNm15MICHEAL LAENGSFELD
IRS990/Form990PartVIISectionAGrp/PersonNm16JODI MCLAUGHLIN
IRS990/Form990PartVIISectionAGrp/PersonNm17MICHAEL MULLEN
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/TitleTxt01ST VP
IRS990/Form990PartVIISectionAGrp/TitleTxt1PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt22ND VP
IRS990/Form990PartVIISectionAGrp/TitleTxt3SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd0true
IRS990/FormationYr02000
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd0true
IRS990/FundraisingActivitiesInd0false
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt019
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt00
IRS990/GrantsToDomesticOrgsGrp/TotalAmt00
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0true
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt0443909
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
IRS990/IndependentAuditFinclStmtInd0true
IRS990/IndependentVotingMemberCnt019
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt02444
IRS990/InformationTechnologyGrp/TotalAmt02444
IRS990/InsuranceGrp/ManagementAndGeneralAmt01089
IRS990/InsuranceGrp/TotalAmt01089
IRS990/InterestGrp/TotalAmt00
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0445
IRS990/InvestmentInJointVentureInd0false
IRS990/InvestmentsProgramRelatedGrp/BOYAmt054965
IRS990/InvestmentsProgramRelatedGrp/EOYAmt064221
IRS990/InvestTaxExemptBondsInd0false
IRS990/IRPDocumentCnt06
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt01725
IRS990/LandBldgEquipBasisNetGrp/BOYAmt0729
IRS990/LandBldgEquipBasisNetGrp/EOYAmt0470
IRS990/LandBldgEquipCostOrOtherBssAmt02195
IRS990/LegalDomicileStateCd0MA
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingCashInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0TO RAISE FUNDS TO HASTEN MEDICAL RESEARCH FOR CURE OR TREATMENT OF CHOROIDEREMIA
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0true
IRS990/NetAssetsOrFundBalancesBOYAmt0574293
IRS990/NetAssetsOrFundBalancesEOYAmt0700829
IRS990/NetUnrlzdGainsLossesInvstAmt09256
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NondeductibleContributionsInd0false
IRS990/OccupancyGrp/TotalAmt00
IRS990/OfficeExpensesGrp/FundraisingAmt0200
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt01954
IRS990/OfficeExpensesGrp/TotalAmt02154
IRS990/OfficerMailingAddressInd0false
IRS990/OnBehalfOfIssuerInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherEmployeeBenefitsGrp/TotalAmt00
IRS990/OtherExpensesGrp/Desc0CONTRACTED PERSONNEL
IRS990/OtherExpensesGrp/Desc1RESEARCH GRANTS
IRS990/OtherExpensesGrp/Desc2FUNDRAISING EXPENSES
IRS990/OtherExpensesGrp/Desc3DONATIONS
IRS990/OtherExpensesGrp/FundraisingAmt024000
IRS990/OtherExpensesGrp/FundraisingAmt162642
IRS990/OtherExpensesGrp/FundraisingAmt21500
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt035290
IRS990/OtherExpensesGrp/ProgramServicesAmt0125934
IRS990/OtherExpensesGrp/TotalAmt059290
IRS990/OtherExpensesGrp/TotalAmt1125934
IRS990/OtherExpensesGrp/TotalAmt262642
IRS990/OtherExpensesGrp/TotalAmt31500
IRS990/OtherRevenueMiscGrp/Desc0MISC
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt02561
IRS990/OtherRevenueTotalAmt02561
IRS990/OtherSalariesAndWagesGrp/TotalAmt00
IRS990/PartialLiquidationInd0false
IRS990/PaymentsToAffiliatesGrp/TotalAmt00
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/TotalAmt00
IRS990/PensionPlanContributionsGrp/TotalAmt00
IRS990/PoliciesReferenceChaptersInd0false
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt01292
IRS990/PrincipalOfficerNm0BETH FOSS
IRS990/ProfessionalFundraisingInd0false
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0554350
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt01057113
IRS990/PYInvestmentIncomeAmt013077
IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt00
IRS990/PYOtherExpensesAmt0238848
IRS990/PYRevenuesLessExpensesAmt0-728534
IRS990/PYTotalExpensesAmt01295961
IRS990/PYTotalRevenueAmt0567427
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReconcilationRevenueExpnssAmt0117280
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0true
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0true
IRS990/RoyaltiesGrp/TotalAmt00
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0440903
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0554350
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0609921
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0378650
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0517572
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt02501396
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt0445
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt013077
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt049996
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt01261
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt02068
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt066847
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt0445
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt013077
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt049996
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt01261
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt02068
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt066847
IRS990ScheduleA/InvestmentIncomeCYPct00.02600
IRS990ScheduleA/InvestmentIncomePYPct00.02650
IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt00
IRS990ScheduleA/OtherIncome509Grp/TotalAmt00
IRS990ScheduleA/Post1975UBTIGrp/TotalAmt00
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.00000
IRS990ScheduleA/PublicSupportCY509Pct00.82380
IRS990ScheduleA/PublicSupportPY509Pct00.84690
IRS990ScheduleA/PublicSupportTotal170Amt00
IRS990ScheduleA/PublicSupportTotal509Amt02115652
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearAmt0120600
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus1YearAmt057490
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus2YearsAmt053301
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus3YearsAmt057097
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus4YearsAmt097256
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt0385744
IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearAmt0120600
IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus1YearAmt057490
IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus2YearsAmt053301
IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus3YearsAmt057097
IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus4YearsAmt097256
IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt0385744
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0440903
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0554350
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0609921
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0378650
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0517572
IRS990ScheduleA/Total509Grp/TotalAmt02501396
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0441348
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0567427
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0659917
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0379911
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt0519640
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt02568243
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleD/EquipmentGrp/BookValueAmt0470
IRS990ScheduleD/EquipmentGrp/DepreciationAmt01725
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt02195
IRS990ScheduleD/ExpensesSubtotalAmt0326629
IRS990ScheduleD/InclEscrowCustodialAcctLiabInd0false
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt064221
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc0Investments
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd0F
IRS990ScheduleD/NetUnrealizedGainsInvstAmt09256
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0Federal income taxes
IRS990ScheduleD/OtherSecuritiesGrp/Desc0Financial derivatives and other financial products
IRS990ScheduleD/OtherSecuritiesGrp/Desc1Closely-held equity interests
IRS990ScheduleD/RevenueNotReportedAmt09256

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2017 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$700,829
Liabilities
$0
Net assets
$700,829
Revenue
$443,909
Expenses
$326,629
Net income
$117,280
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$0.96$0.00$0.96$0.96$0.82$0.15
2024Detailed filing. Detailed filing data is available for this year.$0.81$0.00$0.81$0.70$0.69$0.01
2023Detailed filing. Detailed filing data is available for this year.$0.80$0.00$0.80$0.56$0.75$0.18
2022Detailed filing. Detailed filing data is available for this year.$0.99$0.00$0.99$0.66$0.58$0.08
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.91$0.00$0.91$0.67$0.57$0.10
2020Detailed filing. Detailed filing data is available for this year.$0.81$0.00$0.81$0.60$0.64$0.04
2019Detailed filing. Detailed filing data is available for this year.$0.89$0.00$0.89$0.42$0.40$0.02
2018Detailed filing. Detailed filing data is available for this year.$0.83$0.00$0.83$0.53$0.44$0.10
2017Detailed filing. Detailed filing data is available for this year.$0.70$0.00$0.70$0.44$0.33$0.12
2016Detailed filing. Detailed filing data is available for this year.$0.57$0.00$0.57$0.57$1.30$0.73
2015Detailed filing. Detailed filing data is available for this year.$1.35$0.00$1.35$0.66$0.27$0.39
2014Detailed filing. Detailed filing data is available for this year.$0.88$0.00$0.88$0.38$0.34$0.04
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.84$0.00$0.84$0.52$0.29$0.23
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.61$0.00$0.61$0.32
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.50$0.00$0.50$0.17