Civic Intelligence

Choroideremia Research Foundation Inc.

EIN 04-3511754 • 501(c)3 • Springfield, MA

Pub. 78 Eligible

Profile

To raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a hereditary retinal-degenerative disease that causes blindness; to educate people affected by the disease and the public.

23 E Brundreth StreetSpringfield, MA 01109

www.curechm.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

33rd percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $500k-$1M nonprofits • Source year 2025

Liabilities / Revenue

35th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $500k-$1M nonprofits • Source year 2025

Net Margin

68th percentile

15%

Higher net margin than 68% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2025

Top Officer Pay

88th percentile

$107,780

Higher top officer pay than 88% of similar nonprofits.

Top officer pay equals 11.2% of source-year revenue.

501(c)3 • $500k-$1M nonprofits • Source year 2025

Asset Growth

74th percentile

18%

Faster asset growth than 74% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2024 to 2025

Revenue Growth

78th percentile

38%

Faster revenue growth than 78% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2024 to 2025

Balance Sheet
Liabilities / Assets33rd percentile

Assets

Up

$956,687

Up $145,876 (+18%) from 2024

Liabilities

Flat

$0

Flat from 2024

Net Assets

Up

$956,687

Up $145,876 (+18%) from 2024

Operations
Liabilities / Revenue35th percentileNet Margin68th percentile

Revenue

Up

$964,837

Up $265,768 (+38%) from 2024

Expenses

Up

$819,056

Up $129,578 (+19%) from 2024

Net Income

Up

$145,781

Up $136,190 (+1420%) from 2024

Trend Graphs

Balance Sheet Trend

Asset Growth74th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$1.5M$1.0M$500K$0Assets 2011: $499,883Liabilities 2011: $0Net Assets 2011: $499,8832011Assets 2012: $607,728Liabilities 2012: $0Net Assets 2012: $607,7282012Assets 2013: $841,613Liabilities 2013: $0Net Assets 2013: $841,6132013Assets 2014: $884,946Liabilities 2014: $0Net Assets 2014: $884,9462014Assets 2015: $1,352,717Liabilities 2015: $0Net Assets 2015: $1,352,7172015Assets 2016: $574,293Liabilities 2016: $0Net Assets 2016: $574,2932016Assets 2017: $700,829Liabilities 2017: $0Net Assets 2017: $700,8292017Assets 2018: $833,614Liabilities 2018: $0Net Assets 2018: $833,6142018Assets 2019: $894,174Liabilities 2019: $0Net Assets 2019: $894,1742019Assets 2020: $807,483Liabilities 2020: $0Net Assets 2020: $807,4832020Assets 2021: $905,807Liabilities 2021: $0Net Assets 2021: $905,8072021Assets 2022: $985,906Liabilities 2022: $0Net Assets 2022: $985,9062022Assets 2023: $801,239Liabilities 2023: $0Net Assets 2023: $801,2392023Assets 2024: $810,811Liabilities 2024: $0Net Assets 2024: $810,8112024Assets 2025: $956,687Liabilities 2025: $0Net Assets 2025: $956,6872025

Highlighted filing

2025

Assets$956,687
Liabilities$0
Net Assets$956,687
Open 2025 Filing

Operations Trend

Revenue Growth78th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$2.0M$1.0M$0-$1.0MExpenses 2011: $165,5112011Expenses 2012: $315,7382012Revenue 2013: $520,283Expenses 2013: $286,399Net Income 2013: $233,8842013Revenue 2014: $380,133Expenses 2014: $336,800Net Income 2014: $43,3332014Revenue 2015: $660,465Expenses 2015: $273,805Net Income 2015: $386,6602015Revenue 2016: $567,427Expenses 2016: $1,295,961Net Income 2016: -$728,5342016Revenue 2017: $443,909Expenses 2017: $326,629Net Income 2017: $117,2802017Revenue 2018: $531,038Expenses 2018: $435,765Net Income 2018: $95,2732018Revenue 2019: $416,063Expenses 2019: $399,240Net Income 2019: $16,8232019Revenue 2020: $597,064Expenses 2020: $640,929Net Income 2020: -$43,8652020Revenue 2021: $672,399Expenses 2021: $574,049Net Income 2021: $98,3502021Revenue 2022: $664,881Expenses 2022: $584,677Net Income 2022: $80,2042022Revenue 2023: $560,892Expenses 2023: $745,500Net Income 2023: -$184,6082023Revenue 2024: $699,069Expenses 2024: $689,478Net Income 2024: $9,5912024Revenue 2025: $964,837Expenses 2025: $819,056Net Income 2025: $145,7812025

Highlighted filing

2025

Revenue$964,837
Expenses$819,056
Net Income$145,781
Open 2025 Filing

Filings

Most recent year

2025 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$956,687
Liabilities
$0
Net assets
$956,687
Revenue
$964,837
Expenses
$819,056
Net income
$145,781
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$0.96$0.00$0.96$0.96$0.82$0.15
2024Detailed filing. Detailed filing data is available for this year.$0.81$0.00$0.81$0.70$0.69$0.01
2023Detailed filing. Detailed filing data is available for this year.$0.80$0.00$0.80$0.56$0.75$0.18
2022Detailed filing. Detailed filing data is available for this year.$0.99$0.00$0.99$0.66$0.58$0.08
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.91$0.00$0.91$0.67$0.57$0.10
2020Detailed filing. Detailed filing data is available for this year.$0.81$0.00$0.81$0.60$0.64$0.04
2019Detailed filing. Detailed filing data is available for this year.$0.89$0.00$0.89$0.42$0.40$0.02
2018Detailed filing. Detailed filing data is available for this year.$0.83$0.00$0.83$0.53$0.44$0.10
2017Detailed filing. Detailed filing data is available for this year.$0.70$0.00$0.70$0.44$0.33$0.12
2016Detailed filing. Detailed filing data is available for this year.$0.57$0.00$0.57$0.57$1.30$0.73
2015Detailed filing. Detailed filing data is available for this year.$1.35$0.00$1.35$0.66$0.27$0.39
2014Detailed filing. Detailed filing data is available for this year.$0.88$0.00$0.88$0.38$0.34$0.04
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.84$0.00$0.84$0.52$0.29$0.23
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.61$0.00$0.61$0.32
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.50$0.00$0.50$0.17
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jul 1, 2024 to Jun 30, 2025
Signed
Mar 7, 2026
Return Version
2024v5.2
Gross Receipts
$964,837
Mission and Program Overview

Mission

To raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a hereditary retinal-degenerative disease that causes blindness to educate people affected by the disease and the public.

To raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a hereditary retinal-degenerative disease that causes blindness; to educate people affected by the disease and the public.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments Program Related$767,024$820,192▲ $53,168
Cash and Non-Interest-Bearing Accounts$42,390$135,313▲ $92,923
Land, Buildings, and Equipment, Net$1,397$1,182▼ $215
Savings and Temporary Cash Investments-$0-
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments in Publicly Traded Securities-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Prepaid Expenses and Deferred Charges-$0-
Total Assets$810,811$956,687▲ $145,876
Other Assets Total-$0-
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets With Donor Restrictions$429,010$591,890▲ $162,880
Net Assets Without Donor Restrictions$381,801$364,797▼ $17,004
Total Net Assets Fund Balance$810,811$956,687▲ $145,876
Total Liabilities and Net Assets / Fund Balance$810,811$956,687▲ $145,876

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$1,182$2,517$3,699

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2024$372,010$54,693▲ $19,066-$445,769
2023$332,606$20,517▲ $18,887-$372,010
2022$300,307$32,000▲ $6,947-$332,606
2021$249,838$40,042▲ $10,427-$300,307
2020-$250,000▼ $162-$249,838
Compensation and Service Providers
Top Officer Pay88th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Kathi WagnerExecutive DirectorFT$107,780$107,780

Board Members and Trustees

NameTitle
Neal BenchPresident
John TrottVice President
Michael MullenVice President
Aurelie HarpDirector
Bob HillierDirector
Brian CounterDirector
Dr John-Ross RizzoDirector
Jason McKinneyDirector
Jon SaloisDirector
Mary PorterDirector
Michael LaengsfeldDirector
Naama Goldman-EinhornDirector
Rachel OsterDirector
Sarah ThompsonDirector
Tara Cassidy-DriscollDirector
Thomas DriscollDirector
Yamil Rosete-RodriguezDirector
Brian MayerSecretary
Kayla SchillerTreasurer
Liza ZumstegTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$932,115
Program Service Revenue
$0
Investment Income
$30,908
Other Revenue
$1,814
All Other Contributions
$932,115
Change in Net Assets
$145,781

Audited Revenue Reconciliation

Revenue per Audited Statements
$964,837
Revenue Not Reported on Form 990
$95
Total Revenue per Audited Statements
$964,932
Total Revenue per Form 990
$964,837
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$418,922
Other Expenses$200,225
Salaries, Compensation, and Employee Benefits$199,909
Total Fundraising Expense$89,049
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$214,946--$214,946
Foreign Grants$203,976--$203,976
Conferences and Meetings$101,042--$101,042
Current Officers, Directors, Trustees, and Key Employees$60,349$21,289$18,642$100,280
Other Salaries and Wages$51,175$18,052$15,804$85,031
Office Expenses$3,417$10,070$2,291$15,778
Payroll Taxes$8,785$3,100$2,713$14,598
Information Technology$5,893$4,063$4,062$14,018
Fees for Services Accounting-$13,273-$13,273
Other Expenses$2,708$955$837$4,500
All Other Expenses$2,991$761$664$4,416
Insurance$1,572$555$485$2,612
Fees for Services Legal-$250-$250
Depreciation Depletion$129$46$40$215
Total Functional Expenses$656,983$73,024$89,049$819,056

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$819,056
Total Expenses per Audited Statements$819,056
Total Expenses per Form 990$819,056
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of WisconsonMadison, WI-General Support$100,000
University of PennsylvanniaPhiladelphia, PA-General Support$59,310
University of VirginiaCharlottesville, VA-General Support$30,636
University of MichiganAnn Arbor, MI-General Support$25,000

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
Yes
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Tara Cassidy-Driscoll is the mother of Thomas Driscoll, both are Board Members.”

Form 990, Part VI, Section B, Line 11B

“The board members are provided with a copy of the 990 for review before approval.”

Form 990, Part VI, Section B, Line 15A

“The board of directors approves compensation for the executive director.”

Form 990, Part VI, Section C, Line 19

“Governing documents, conflict of interest policies, and financial statements are available upon request by writing kathi wagner, executive director at [email protected] or by phone at 800-210-0233.”

Filing and Contact Details

Filer

Filer Name
Choroideremia Research Foundation Inc
EIN
04-3511754
Phone
8002100233
Address
23 E BRUNDRETH STREET, SPRINGFIELD, MA 01109

Signing Officer

Name
Kathi Wagner
Title
Executive Director
Signed
2026-03-07
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Kathi Wagner
Formed
2000
Legal Domicile
Ma
Voting Board Members
20
Independent Board Members
20
Employees
6
Volunteers
200

Preparer

Firm
LaPier Dillon & Associates PC
Address
333 Elm St, W Springfield, MA 01089
Preparer
Nicholas LaPier
Phone
4137320200
Supplemental Narrative

Additional Explanations

Form 990, Part XII, Line 2C

“Coordination of the audit is overseen by the director, executive director, and treasurer. The finance committee and the board of directors are also actively involved in the process.”

Schedule F, Part II Grants to Organizations Outside the United States

“Australia - University of Melbourne - $25,000Canada - The Hospital for Sick Children - $19,567United Kingdom - University of Oxford - $34,764Israel - Hadassah-Hebrew University Medical Center - $124,645”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/PersonNm9Liza Zumsteg
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