Civic Intelligence

Choroideremia Research Foundation Inc.

990 • Fiscal year 2015 • EIN 04-3511754

Jul 01, 2014 to Jun 30, 2015 • Filed on Mar 28, 2016

Organization Profilewww.choroideremia.org
23 E Brundreth StreetSpringfield, MA 01109-2110

(413) 781-2274

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

13th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Liabilities / Revenue

13th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Net Margin

94th percentile

59%

Higher net margin than 94% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Top Officer Pay

35th percentile

$0

Higher top officer pay than 35% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Asset Growth

91st percentile

53%

Faster asset growth than 91% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2014 to 2015

Revenue Growth

92nd percentile

74%

Faster revenue growth than 92% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2014 to 2015

Balance Sheet
Liabilities / Assets13th percentile

Assets

Up

$1,352,717

Up $467,771 (+53%) from 2014

Net Assets

Up

$1,352,717

Up $467,771 (+53%) from 2014

Liabilities

Flat

$0

Flat from 2014

Revenue And Expenses
Liabilities / Revenue13th percentileNet Margin94th percentile

Revenue

Up

$660,465

Up $280,332 (+74%) from 2014

Expenses

Down

$273,805

Down $62,995 (-19%) from 2014

Net Income

Up

$386,660

Up $343,327 (+792%) from 2014

Historical Trend

Balance Sheet Trend

Asset Growth91st percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2011: $499,883Liabilities 2011: $0Net Assets 2011: $499,8832011Assets 2012: $607,728Liabilities 2012: $0Net Assets 2012: $607,7282012Assets 2013: $841,613Liabilities 2013: $0Net Assets 2013: $841,6132013Assets 2014: $884,946Liabilities 2014: $0Net Assets 2014: $884,9462014Assets 2015: $1,352,717Liabilities 2015: $0Net Assets 2015: $1,352,7172015Assets 2016: $574,293Liabilities 2016: $0Net Assets 2016: $574,2932016Assets 2017: $700,829Liabilities 2017: $0Net Assets 2017: $700,8292017Assets 2018: $833,614Liabilities 2018: $0Net Assets 2018: $833,6142018Assets 2019: $894,174Liabilities 2019: $0Net Assets 2019: $894,1742019Assets 2020: $807,483Liabilities 2020: $0Net Assets 2020: $807,4832020Assets 2021: $905,807Liabilities 2021: $0Net Assets 2021: $905,8072021Assets 2022: $985,906Liabilities 2022: $0Net Assets 2022: $985,9062022Assets 2023: $801,239Liabilities 2023: $0Net Assets 2023: $801,2392023Assets 2024: $810,811Liabilities 2024: $0Net Assets 2024: $810,8112024Assets 2025: $956,687Liabilities 2025: $0Net Assets 2025: $956,6872025

Highlighted filing

2015

Assets$1,352,717
Liabilities$0
Net Assets$1,352,717
Open 2015 Filing

Operations Trend

Revenue Growth92nd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$2.0M$1.0M$0-$1.0MExpenses 2011: $165,5112011Expenses 2012: $315,7382012Revenue 2013: $520,283Expenses 2013: $286,399Net Income 2013: $233,8842013Revenue 2014: $380,133Expenses 2014: $336,800Net Income 2014: $43,3332014Revenue 2015: $660,465Expenses 2015: $273,805Net Income 2015: $386,6602015Revenue 2016: $567,427Expenses 2016: $1,295,961Net Income 2016: -$728,5342016Revenue 2017: $443,909Expenses 2017: $326,629Net Income 2017: $117,2802017Revenue 2018: $531,038Expenses 2018: $435,765Net Income 2018: $95,2732018Revenue 2019: $416,063Expenses 2019: $399,240Net Income 2019: $16,8232019Revenue 2020: $597,064Expenses 2020: $640,929Net Income 2020: -$43,8652020Revenue 2021: $672,399Expenses 2021: $574,049Net Income 2021: $98,3502021Revenue 2022: $664,881Expenses 2022: $584,677Net Income 2022: $80,2042022Revenue 2023: $560,892Expenses 2023: $745,500Net Income 2023: -$184,6082023Revenue 2024: $699,069Expenses 2024: $689,478Net Income 2024: $9,5912024Revenue 2025: $964,837Expenses 2025: $819,056Net Income 2025: $145,7812025

Highlighted filing

2015

Revenue$660,465
Expenses$273,805
Net Income$386,660
Open 2015 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2014 to Jun 30, 2015
Signed
Mar 28, 2016
Return Version
2014v6.0
Gross Receipts
$710,465
Mission and Program Overview

Mission

To raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a hereditary retinal-degenerative disease that causes blindness; to educate people affected by the disease and the public.

To raise funds to hasten medical research for a cure or treatment of Choroideremia as well as promote greater understanding of this inherited degenerative eye condition to those affected, the medical and research communities, and the public at large.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$883,153$1,221,997▲ $338,844
Investments Program Related-$129,581-
Land, Buildings, and Equipment, Net$1,793$1,139▼ $654
Total Assets$884,946$1,352,717▲ $467,771
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Unrestricted Net Assets$884,946$1,352,717▲ $467,771
Total Net Assets Fund Balance$884,946$1,352,717▲ $467,771
Total Liabilities and Net Assets / Fund Balance$884,946$1,352,717▲ $467,771

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$1,139$1,056$2,195
Investment Program Related Org$129,581--
Compensation and Service Providers
Top Officer Pay35th percentile

Board Members and Trustees

NameTitle
Christopher Moen MdPresident
Cecile Du ColombierDirector
Derry WalshDirector
Garry DeanDirector
Ian Macdonald MdDirector
Janet RowleyDirector
John OsterDirector
John TrottDirector
Kate Hillier-EdwardsDirector
Lisa VolkerDirector
Marion ScottDirector
Mark DevoeDirector
Mark Huyser-wierengaDirector
Mike McCarthyDirector
Neal BenchDirector
Nick TuftnellDirector
Rhonda TimkoDirector
Thomas DriscollDirector
Tracy GalvinDirector
Beth Foss1st VP
Jeff Beneli2nd VP
Daniel BorenSecretary
Lin OggTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$610,469
Program Service Revenue
$0
Investment Income
$49,996
Other Revenue
$0
All Other Contributions
$610,469
Change in Net Assets
$386,660

Audited Revenue Reconciliation

Revenue per Audited Statements
$660,465
Revenue Not Reported on Form 990
$81,111
Total Revenue per Audited Statements
$741,576
Total Revenue per Form 990
$660,465
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$164,471
Grants and Similar Amounts Paid$109,334
Total Fundraising Expense$65,920
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Foreign Grants$109,334--$109,334
Advertising$4,242-$21,725$25,967
Information Technology-$13,428-$13,428
All Other Expenses$10,095--$10,095
Other Expenses$7,697$74$44,195$7,771
Fees for Services Legal-$3,125-$3,125
Office Expenses-$2,655-$2,655
Travel$1,056--$1,056
Depreciation Depletion$654--$654
Insurance-$279-$279
Total Functional Expenses$171,794$36,091$65,920$273,805

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$273,805
Total Expenses per Audited Statements$273,805
Total Expenses per Form 990$273,805
International Activity

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Federal income taxes-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Audit committee
Yes
Backup withholding compliance
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11

“The board members are provided with a copy of the 990 for review before approval”

Filing and Contact Details

Filer

Filer Name
Choroideremia Research Foundation Inc
EIN
04-3511754
Phone
4137812274
Address
23 E BRUNDRETH STREET, SPRINGFIELD, MA 01109-2110

Signing Officer

Name
Eric Hartman
Title
Executive Director
Signed
2016-03-28
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Christopher Moen MD
Formed
2000
Legal Domicile
Ma
Voting Board Members
20
Independent Board Members
20
Employees
0

Preparer

Firm
NICHOLAS LaPIER CPA PC
Address
71 PARK AVE ST PO BOX 324, W SPRINGFIELD, MA 01090-0324
Preparer
NICHOLAS LaPIER
Phone
4137320200
Supplemental Narrative

Additional Explanations

Form 990, Part XII, Line 2C

“Coordination of the audit is by the director, executive director, and treasurer, the finance committee and the board of directors are actively involved as well”

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IRS990/Form990PartVIISectionAGrp/TitleTxt13Director
IRS990/Form990PartVIISectionAGrp/TitleTxt14Director
IRS990/Form990PartVIISectionAGrp/TitleTxt15Director
IRS990/Form990PartVIISectionAGrp/TitleTxt16Director
IRS990/Form990PartVIISectionAGrp/TitleTxt17Director
IRS990/Form990PartVIISectionAGrp/TitleTxt181ST VP
IRS990/Form990PartVIISectionAGrp/TitleTxt19President
IRS990/Form990PartVIISectionAGrp/TitleTxt202ND VP
IRS990/Form990PartVIISectionAGrp/TitleTxt21TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt22SECRETARY
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IRS990/FormationYr02000
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IRS990/FundraisingActivitiesInd0false
IRS990/GainOrLossGrp/SecuritiesAmt048905
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt020
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IRS990/GrantsToDomesticOrgsGrp/TotalAmt00
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IRS990/GrantsToOrganizationsInd0false
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt098905
IRS990/GrossReceiptsAmt0710465
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
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IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt013428
IRS990/InformationTechnologyGrp/TotalAmt013428
IRS990/InsuranceGrp/ManagementAndGeneralAmt0279
IRS990/InsuranceGrp/TotalAmt0279
IRS990/InterestGrp/TotalAmt00
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt01091
IRS990/InvestmentInJointVentureInd0false
IRS990/InvestmentsProgramRelatedGrp/EOYAmt0129581
IRS990/InvestTaxExemptBondsInd0false
IRS990/IRPDocumentCnt04
IRS990/IRPDocumentW2GCnt00
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IRS990/LandBldgEquipBasisNetGrp/EOYAmt01139
IRS990/LandBldgEquipCostOrOtherBssAmt02195
IRS990/LegalDomicileStateCd0MA
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt050000
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingCashInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0TO RAISE FUNDS TO HASTEN MEDICAL RESEARCH FOR CURE OR TREATMENT OF CHOROIDEREMIA
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0true
IRS990/NetAssetsOrFundBalancesBOYAmt0884946
IRS990/NetAssetsOrFundBalancesEOYAmt01352717
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt048905
IRS990/NetUnrlzdGainsLossesInvstAmt081111
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NondeductibleContributionsInd0false
IRS990/OccupancyGrp/TotalAmt00
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt02655
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IRS990/OfficerMailingAddressInd0false
IRS990/OnBehalfOfIssuerInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherEmployeeBenefitsGrp/TotalAmt00
IRS990/OtherExpensesGrp/Desc0CONTRACTED PERSONNEL
IRS990/OtherExpensesGrp/Desc1Symposium
IRS990/OtherExpensesGrp/Desc2CONFERENCES
IRS990/OtherExpensesGrp/Desc3BANK CHARGES
IRS990/OtherExpensesGrp/FundraisingAmt044195
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt016530
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt174
IRS990/OtherExpensesGrp/ProgramServicesAmt016530
IRS990/OtherExpensesGrp/ProgramServicesAmt122186
IRS990/OtherExpensesGrp/ProgramServicesAmt27697
IRS990/OtherExpensesGrp/TotalAmt033060
IRS990/OtherExpensesGrp/TotalAmt144195
IRS990/OtherExpensesGrp/TotalAmt222186
IRS990/OtherExpensesGrp/TotalAmt37771
IRS990/OtherSalariesAndWagesGrp/TotalAmt00
IRS990/PartialLiquidationInd0false
IRS990/PaymentsToAffiliatesGrp/TotalAmt00
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/TotalAmt00
IRS990/PensionPlanContributionsGrp/TotalAmt00
IRS990/PoliciesReferenceChaptersInd0false
IRS990/PoliticalCampaignActyInd0false
IRS990/PrincipalOfficerNm0Christopher Moen MD
IRS990/ProfessionalFundraisingInd0false
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0378872
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt0235083
IRS990/PYInvestmentIncomeAmt01261
IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt00
IRS990/PYOtherExpensesAmt0101717
IRS990/PYRevenuesLessExpensesAmt043333
IRS990/PYTotalExpensesAmt0336800
IRS990/PYTotalRevenueAmt0380133
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReconcilationRevenueExpnssAmt0386660
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0true
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0true
IRS990/RoyaltiesGrp/TotalAmt00
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0609921
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0378650
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0517572
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0409738
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0486586
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt02402467
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt049996
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt01261
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt02068
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt0911
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt0619
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt054855
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt049996
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt01261
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt02068
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt0911
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt0619
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt054855
IRS990ScheduleA/InvestmentIncomeCYPct00.02230
IRS990ScheduleA/InvestmentIncomePYPct00.00240
IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt00
IRS990ScheduleA/OtherIncome509Grp/TotalAmt00
IRS990ScheduleA/Post1975UBTIGrp/TotalAmt00
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.00000
IRS990ScheduleA/PublicSupportCY509Pct00.82210
IRS990ScheduleA/PublicSupportPY509Pct00.83640
IRS990ScheduleA/PublicSupportTotal170Amt00
IRS990ScheduleA/PublicSupportTotal509Amt02020059
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearAmt053301
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus1YearAmt057097
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus2YearsAmt097256
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus3YearsAmt056000
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus4YearsAmt0118754
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt0382408
IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearAmt053301
IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus1YearAmt057097
IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus2YearsAmt097256
IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus3YearsAmt056000
IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus4YearsAmt0118754
IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt0382408
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X

Document Assets

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Filings

Displayed year

2015 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,352,717
Liabilities
$0
Net assets
$1,352,717
Revenue
$660,465
Expenses
$273,805
Net income
$386,660
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$0.96$0.00$0.96$0.96$0.82$0.15
2024Detailed filing. Detailed filing data is available for this year.$0.81$0.00$0.81$0.70$0.69$0.01
2023Detailed filing. Detailed filing data is available for this year.$0.80$0.00$0.80$0.56$0.75$0.18
2022Detailed filing. Detailed filing data is available for this year.$0.99$0.00$0.99$0.66$0.58$0.08
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.91$0.00$0.91$0.67$0.57$0.10
2020Detailed filing. Detailed filing data is available for this year.$0.81$0.00$0.81$0.60$0.64$0.04
2019Detailed filing. Detailed filing data is available for this year.$0.89$0.00$0.89$0.42$0.40$0.02
2018Detailed filing. Detailed filing data is available for this year.$0.83$0.00$0.83$0.53$0.44$0.10
2017Detailed filing. Detailed filing data is available for this year.$0.70$0.00$0.70$0.44$0.33$0.12
2016Detailed filing. Detailed filing data is available for this year.$0.57$0.00$0.57$0.57$1.30$0.73
2015Detailed filing. Detailed filing data is available for this year.$1.35$0.00$1.35$0.66$0.27$0.39
2014Detailed filing. Detailed filing data is available for this year.$0.88$0.00$0.88$0.38$0.34$0.04
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.84$0.00$0.84$0.52$0.29$0.23
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.61$0.00$0.61$0.32
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.50$0.00$0.50$0.17