Civic Intelligence

Clinical Data Interchange Standards Consortium Inc.

990 • Fiscal year 2019 • EIN 04-3503931

Jan 01, 2019 to Dec 31, 2019 • Filed on Jul 20, 2020

Organization ProfileWWW.CDISC.ORG

View Organization Page

401 West 15th Street No 800Austin, TX 78701

(512) 363-5826

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

47th percentile

0.18x

Higher debt load relative to assets than 47% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2019

Liabilities / Revenue

35th percentile

0.12x

Higher debt load relative to revenue than 35% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2019

Net Margin

72nd percentile

13%

Higher net margin than 72% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2019

Top Officer Pay

86th percentile

$387,327

Higher top officer pay than 86% of similar nonprofits.

Top officer pay equals 3.7% of source-year revenue.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2019

Asset Growth

90th percentile

33%

Faster asset growth than 90% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2018 to 2019

Revenue Growth

74th percentile

15%

Faster revenue growth than 74% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets47th percentile

Assets

Up

$7,185,485

Up $1,786,701 (+33%) from 2018

Net Assets

Up

$5,925,109

Up $1,362,206 (+30%) from 2018

Liabilities

Up

$1,260,376

Up $424,495 (+51%) from 2018

Revenue And Expenses
Liabilities / Revenue35th percentileNet Margin72nd percentile

Revenue

Up

$10,389,051

Up $1,350,601 (+15%) from 2018

Expenses

Up

$9,026,845

Up $1,399,498 (+18%) from 2018

Net Income

Down

$1,362,206

Down $48,897 (-3.5%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth90th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$8.0M$6.0M$4.0M$2.0M$0Assets 2010: $1,366,591Liabilities 2010: $5,401Net Assets 2010: $1,361,1902010Assets 2011: $2,055,583Liabilities 2011: $3,719Net Assets 2011: $2,051,8642011Assets 2012: $2,168,711Liabilities 2012: $4,457Net Assets 2012: $2,164,2542012Assets 2013: $2,332,483Liabilities 2013: $4,585Net Assets 2013: $2,327,8982013Assets 2014: $2,862,553Liabilities 2014: $15,756Net Assets 2014: $2,846,7972014Assets 2015: $2,912,916Liabilities 2015: $32,394Net Assets 2015: $2,880,5222015Assets 2016: $3,702,425Liabilities 2016: $711,448Net Assets 2016: $2,990,9772016Assets 2017: $4,081,115Liabilities 2017: $929,315Net Assets 2017: $3,151,8002017Assets 2018: $5,398,784Liabilities 2018: $835,881Net Assets 2018: $4,562,9032018Assets 2019: $7,185,485Liabilities 2019: $1,260,376Net Assets 2019: $5,925,1092019Assets 2020: $6,518,601Liabilities 2020: $1,251,779Net Assets 2020: $5,266,8222020Assets 2021: $6,322,350Liabilities 2021: $1,247,585Net Assets 2021: $5,074,7652021Assets 2022: $5,085,701Liabilities 2022: $1,515,408Net Assets 2022: $3,570,2932022Assets 2023: $3,979,569Liabilities 2023: $2,300,927Net Assets 2023: $1,678,6422023Assets 2024: $3,169,764Liabilities 2024: $1,777,156Net Assets 2024: $1,392,6082024

Highlighted filing

2019

Assets$7,185,485
Liabilities$1,260,376
Net Assets$5,925,109
Open 2019 Filing

Operations Trend

Revenue Growth74th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$15M$10M$5.0M$0-$5.0MExpenses 2010: $3,218,9392010Expenses 2011: $3,043,0262011Expenses 2012: $3,957,3282012Revenue 2013: $4,653,383Expenses 2013: $4,489,739Net Income 2013: $163,6442013Revenue 2014: $5,651,627Expenses 2014: $5,132,728Net Income 2014: $518,8992014Revenue 2015: $6,508,337Expenses 2015: $6,411,391Net Income 2015: $96,9462015Revenue 2016: $7,016,614Expenses 2016: $6,883,736Net Income 2016: $132,8782016Revenue 2017: $7,310,693Expenses 2017: $7,149,870Net Income 2017: $160,8232017Revenue 2018: $9,038,450Expenses 2018: $7,627,347Net Income 2018: $1,411,1032018Revenue 2019: $10,389,051Expenses 2019: $9,026,845Net Income 2019: $1,362,2062019Revenue 2020: $6,961,045Expenses 2020: $7,619,332Net Income 2020: -$658,2872020Revenue 2021: $7,747,958Expenses 2021: $7,940,015Net Income 2021: -$192,0572021Revenue 2022: $8,105,543Expenses 2022: $9,610,015Net Income 2022: -$1,504,4722022Revenue 2023: $9,333,128Expenses 2023: $11,224,779Net Income 2023: -$1,891,6512023Revenue 2024: $9,205,905Expenses 2024: $9,491,939Net Income 2024: -$286,0342024

Highlighted filing

2019

Revenue$10,389,051
Expenses$9,026,845
Net Income$1,362,206
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Jul 20, 2020
Return Version
2019v5.1
Gross Receipts
$10,389,051
Mission and Program Overview

Mission

To develop and support global, platform-independent data standards that enable information system interoperability to improve medical research and related areas of healthcare.

The cdisc mission is to develop and support global, platform-independent data standards that enable information system interoperability to improve medical research and related areas of healthcare.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$3,312,713$5,094,457▲ $1,781,744
Investments in Publicly Traded Securities-$816,396-
Cash and Non-Interest-Bearing Accounts$676,662$750,926▲ $74,264
Accounts Receivable$436,335$344,204▼ $92,131
Prepaid Expenses and Deferred Charges$131,371$135,076▲ $3,705
Land, Buildings, and Equipment, Net$41,265$44,426▲ $3,161
Total Assets$5,398,784$7,185,485▲ $1,786,701
Other Assets Total$800,438$0▼ $800,438
Liabilities
Deferred Revenue$564,348$717,172▲ $152,824
Accounts Payable and Accrued Expenses$271,533$543,204▲ $271,671
Total Liabilities$835,881$1,260,376▲ $424,495
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$3,415,093$4,244,607▲ $829,514
Net Assets With Donor Restrictions$1,147,810$1,680,502▲ $532,692
Total Net Assets Fund Balance$4,562,903$5,925,109▲ $1,362,206
Total Liabilities and Net Assets / Fund Balance$5,398,784$7,185,485▲ $1,786,701

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$44,426$78,449$122,875
Other Land Buildings$0$40,000$40,000
Leasehold Improvements$0$5,121$5,121
Compensation and Service Providers
Top Officer Pay86th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
David R BobbittPresident & CEOFT$299,159$88,168$387,327
Marine LaurentTreasurer & COOFT$194,000$66,582$260,582
Rhonda FacileVP, Development OpportunitiesFT$168,907$74,758$243,665
Samuel HumeVP, Data ScienceFT$166,415$74,925$241,340
Peter Van ReuselChief Standards OfficerFT$204,055$26,519$230,574
Sheila LeamanVP, Membership & EventsFT$159,479$55,628$215,107
Mike HamidiHead of Data ScienceFT$155,000$24,924$179,924
Elizabeth NietoHead of Standards DevelopmentFT$120,000$35,365$155,365

Board Members and Trustees

NameTitle
Douglas PeddicordChair
Jonathan ZungChair Elect
Stephen PykeImmediate Past Chair
Chris DeckerDirector
David EvansDirector
David HardisonDirector
Joyce SensmeierDirector
Margaret KeeganDirector
Masanori FukushimaDirector
Nevine ZariffaDirector
Pam HowardDirector
Steve RosenbergDirector
Hiroshi MasumotoDirector (as of 1/1/19)
Pandu KulkarniDirector (as of 1/1/19)
Zhengqing LiDirector (as of 1/1/19)

Highest Paid Contractors

ContractorServicesLocationCompensation
Dicore Group LLCStandards Development Consulting Service12 WILKESHIRE BLVD, Randolph, NJ 07869, Uk$175,400
Eclipse Database Consultants LimitedStandards Development Consulting Service46 LARSON LN, Bomoseen, VT 05732$166,477
Stephen J KopkoStandards Development Consulting Service-$110,460
Revenue and Support

Revenue Composition

Contributions and Grants
$6,130,091
Program Service Revenue
$4,184,781
Investment Income
$74,179
Other Revenue
$0
All Other Contributions
$3,058,386
Change in Net Assets
$1,362,206

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table1$38,914Cost
Total Noncash Contributions1$38,914-

Audited Revenue Reconciliation

Revenue per Audited Statements
$10,389,051
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$619,110
Total Revenue per Audited Statements
$11,008,161
Total Revenue per Form 990
$10,389,051
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$4,956,160
Other Expenses$4,070,685
Total Fundraising Expense$299,412
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$2,364,330$416,815$211,023$2,992,168
Fees for Services Other$1,709,360$70,811-$1,780,171
Current Officers, Directors, Trustees, and Key Employees$359,959$583,184-$943,143
Other Employee Benefits$382,252$163,791$35,260$581,303
Travel$330,136$38,330$2,319$370,785
Payroll Taxes$206,098$66,553$15,743$288,394
Information Technology$150,646$81,540$919$233,105
Occupancy$89,239$54,179$13,289$156,707
Pension Plan Contributions$144,566$6,586-$151,152
All Other Expenses-$95,369-$95,369
Other Expenses$177,650$88,911$18,029$88,911
Office Expenses$15,553$48,191$1,221$64,965
Fees for Services Legal-$55,701-$55,701
Fees for Services Accounting-$41,617-$41,617
Conferences and Meetings-$31,447-$31,447
Depreciation Depletion$14,975$6,559$1,609$23,143
Total Functional Expenses$6,844,422$1,883,011$299,412$9,026,845

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$9,645,955
Expenses per Audited Statements$9,026,845
Total Expenses per Form 990$9,026,845
Expenses Not Reported on Form 990$619,110
Expenses Not Reported on Financial Statements$0
International Activity

International Summary

Offices
0
Employees
27
Spending
$1,006,519

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
EuropeProgram ServiceTa Project Management06$570,937
EuropeProgram ServiceInterchange02$171,847
East Asia and the PacificProgram ServiceInterchange01$158,510
EuropeProgram ServiceTraining09$90,682
East Asia and the PacificProgram ServiceTraining09$14,543
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 7A

“The company's platinum members have a seat on the company's advisory council, which gets to elect one board member every year.”

Form 990, Part VI, Section B, Line 11B

“The 990 is reviewed and approved by the finance committee.”

Form 990, Part VI, Section B, Line 12C

“All new board members benefit from an onboarding training, which touches on their various roles and responsibilities. This includes reviewing the concept of fiduciary duties and the requirement that they disclose any potential conflicts of interest that they may have. All board members, officers, and key employees are requested to review the ethics and conflict of interest policy at least annually. To ensure this actually takes place, they are required to sign every year an acknowledgment that they have read it and agree to comply with its provisions. In addition, upon joining they must disclose any conflict of interest that they may have. Every year thereafter, they are required to update that disclosure.”

Form 990, Part VI, Section B, Line 15

“The base compensation for the ceo is determined based on third-party industry surveys, similar organizations' 990 data, and past compensation of the ceo. The compensation is reviewed every year. An increase may be recommended by the executive committee (tasked with overseeing executive compensation), based on the organization's performance and market information. The annual bonus amount is determined taking into account criteria used across the organization. The executive committee makes a recommendation regarding the final bonus amount. Both the annual increase (if any) of the base compensation and the annual bonus are approved by the board.”

Form 990, Part VI, Section C, Line 19

“All policies and governing documents are available on the cdisc website.”

Filing and Contact Details

Filer

Filer Name
Clinical Data Interchange Standards
EIN
04-3503931
Phone
5123635826
Address
401 WEST 15TH STREET NO 800, AUSTIN, TX 78701

Signing Officer

Name
Marine Laurent
Title
Chief Operations Officer
Phone
5123635826
Signed
2020-07-20
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Marine Laurent
Formed
2000
Legal Domicile
Ma
Voting Board Members
15
Independent Board Members
15
Employees
42
Volunteers
2,347

Preparer

Firm
Aafcpas Inc
Address
50 WASHINGTON STREET, WESTBOROUGH, MA 01581
Preparer
Charles J Webb CPA
Phone
5083669100
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“Data standard consulting: program service expenses 1,709,360. Management and general expenses 29,413. Fundraising expenses 0. Total expenses 1,738,773. Payroll services: program service expenses 0. Management and general expenses 41,398. Fundraising expenses 0. Total expenses 41,398.”

FORM 990, PART XII, LINE 2C:

“The organization has not changed its process for oversight of the audit of its financial statements and selection of an independent accountant.”

Financial Statement Notes

PART X, LINE 2:

“Cdisc accounts for uncertainty in income taxes in accordance with asc topic, income taxes. This standard clarifies the accounting for uncertainty in tax positions and prescribes a recognition threshold and measurement attribute for the consolidated financial statements regarding a tax position taken or expected to be taken in a tax return. Cdisc has determined that there are no uncertain tax positions which qualify for either recognition or disclosure in the consolidated financial statements at december 31, 2019. Cdisc's information returns are subject to examination by the federal and state jurisdictions.”

Raw XML AppendixShowing 400 of 914 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0THE CDISC MISSION IS TO DEVELOP AND SUPPORT GLOBAL, PLATFORM-INDEPENDENT DATA STANDARDS THAT ENABLE INFORMATION SYSTEM INTEROPERABILITY TO IMPROVE MEDICAL RESEARCH AND RELATED AREAS OF HEALTHCARE.
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IRS990/Desc0TECHNICAL - TO DATE, CDISC HAS DEVELOPED THERAPEUTIC AREA STANDARDS FOR OVER 30 DISEASES. IN 2019, CDISC PUBLISHED NEW USER GUIDES FOR THE FOLLOWING AREAS: HIV, CLOSTRIDIUM DIFFICILE, LUNG CANCER, AND TRADITIONAL CHINESE MEDICINE. THE CDISC LIBRARY API V2.0 WAS RELEASED IN EARLY 2019 AND IS CURRENTLY BEING ACCESSED BY OVER 150 MEMBER ORGANIZATIONS. THE API FACILITATES THE IMPLEMENTATION OF CDISC STANDARDS AND FURTHER AUTOMATES CLINICAL RESEARCH PROCESS. ADDITIONALLY, A NEW LIBRARY USER INTERFACE HAS BEEN DEVELOPED WHICH ALLOWS FOR INTERACTIVE BROWSING AND DOWNLOADING OF CDISC METADATA.
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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd13X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd14X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd15X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd16X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd17X
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IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1035715
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1132249
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt170
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1827454
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1929274
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2023924
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2125864
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2236378
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IRS990/Form990PartVIISectionAGrp/PersonNm1STEPHEN PYKE
IRS990/Form990PartVIISectionAGrp/PersonNm2DOUGLAS PEDDICORD
IRS990/Form990PartVIISectionAGrp/PersonNm3JOYCE SENSMEIER
IRS990/Form990PartVIISectionAGrp/PersonNm4NEVINE ZARIFFA
IRS990/Form990PartVIISectionAGrp/PersonNm5JONATHAN ZUNG
IRS990/Form990PartVIISectionAGrp/PersonNm6MARGARET KEEGAN
IRS990/Form990PartVIISectionAGrp/PersonNm7DAVID EVANS
IRS990/Form990PartVIISectionAGrp/PersonNm8MASANORI FUKUSHIMA
IRS990/Form990PartVIISectionAGrp/PersonNm9STEVE ROSENBERG
IRS990/Form990PartVIISectionAGrp/PersonNm10DAVID R BOBBITT
IRS990/Form990PartVIISectionAGrp/PersonNm11MARINE LAURENT
IRS990/Form990PartVIISectionAGrp/PersonNm12PETER VAN REUSEL
IRS990/Form990PartVIISectionAGrp/PersonNm13CHRIS DECKER
IRS990/Form990PartVIISectionAGrp/PersonNm14PAM HOWARD
IRS990/Form990PartVIISectionAGrp/PersonNm15PANDU KULKARNI
IRS990/Form990PartVIISectionAGrp/PersonNm16ZHENGQING LI
IRS990/Form990PartVIISectionAGrp/PersonNm17HIROSHI MASUMOTO
IRS990/Form990PartVIISectionAGrp/PersonNm18RHONDA FACILE
IRS990/Form990PartVIISectionAGrp/PersonNm19SHEILA LEAMAN
IRS990/Form990PartVIISectionAGrp/PersonNm20MIKE HAMIDI
IRS990/Form990PartVIISectionAGrp/PersonNm21ELIZABETH NIETO
IRS990/Form990PartVIISectionAGrp/PersonNm22SAMUEL HUME
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10351612
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt11228333
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt12230574
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt18216211
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt19185833
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20156000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt21129501
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt22204962
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt220
IRS990/Form990PartVIISectionAGrp/TitleTxt0DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1IMMEDIATE PAST CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt2CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5CHAIR ELECT
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10PRESIDENT & CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt11TREASURER & COO
IRS990/Form990PartVIISectionAGrp/TitleTxt12CHIEF STANDARDS OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR (AS OF 1/1/19)
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR (AS OF 1/1/19)
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR (AS OF 1/1/19)
IRS990/Form990PartVIISectionAGrp/TitleTxt18VP, DEVELOPMENT OPPORTUNITIES
IRS990/Form990PartVIISectionAGrp/TitleTxt19VP, MEMBERSHIP & EVENTS
IRS990/Form990PartVIISectionAGrp/TitleTxt20HEAD OF DATA SCIENCE
IRS990/Form990PartVIISectionAGrp/TitleTxt21HEAD OF STANDARDS DEVELOPMENT
IRS990/Form990PartVIISectionAGrp/TitleTxt22VP, DATA SCIENCE
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02000
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/ConsolidatedBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd00
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt015
IRS990/GovernmentGrantsAmt0628130
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt010389051
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd00
IRS990/IndependentVotingMemberCnt015
IRS990/IndivRcvdGreaterThan100KCnt011
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartIXInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt0919
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt081540
IRS990/InformationTechnologyGrp/ProgramServicesAmt0150646
IRS990/InformationTechnologyGrp/TotalAmt0233105
IRS990/InvestmentIncomeGrp/ExclusionAmt074179
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt074179
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/EOYAmt0816396
IRS990/IRPDocumentCnt037
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0123570
IRS990/LandBldgEquipBasisNetGrp/BOYAmt041265
IRS990/LandBldgEquipBasisNetGrp/EOYAmt044426
IRS990/LandBldgEquipCostOrOtherBssAmt0167996
IRS990/LegalDomicileStateCd0MA
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembershipDuesAmt02443575
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO DEVELOP AND SUPPORT GLOBAL, PLATFORM-INDEPENDENT DATA STANDARDS THAT ENABLE INFORMATION SYSTEM INTEROPERABILITY TO IMPROVE MEDICAL RESEARCH AND RELATED AREAS OF HEALTHCARE.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt04562903
IRS990/NetAssetsOrFundBalancesEOYAmt05925109
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt03415093
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt04244607
IRS990/NoncashContributionsAmt038914
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt013289
IRS990/OccupancyGrp/ManagementAndGeneralAmt054179
IRS990/OccupancyGrp/ProgramServicesAmt089239
IRS990/OccupancyGrp/TotalAmt0156707
IRS990/OfficeExpensesGrp/FundraisingAmt01221
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt048191
IRS990/OfficeExpensesGrp/ProgramServicesAmt015553
IRS990/OfficeExpensesGrp/TotalAmt064965
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt0800438
IRS990/OtherAssetsTotalGrp/EOYAmt00
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt035260
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt0163791
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0382252
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0581303
IRS990/OtherExpensesGrp/Desc0EVENTS
IRS990/OtherExpensesGrp/Desc1INSTRUCTION
IRS990/OtherExpensesGrp/Desc2MISCELLANEOUS
IRS990/OtherExpensesGrp/Desc3BANK SERVICE FEES
IRS990/OtherExpensesGrp/FundraisingAmt018029
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt033427
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt188911
IRS990/OtherExpensesGrp/ProgramServicesAmt0562739
IRS990/OtherExpensesGrp/ProgramServicesAmt1336919
IRS990/OtherExpensesGrp/ProgramServicesAmt2177650
IRS990/OtherExpensesGrp/TotalAmt0562739
IRS990/OtherExpensesGrp/TotalAmt1336919
IRS990/OtherExpensesGrp/TotalAmt2229106
IRS990/OtherExpensesGrp/TotalAmt388911
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0211023
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0416815
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt02364330
IRS990/OtherSalariesAndWagesGrp/TotalAmt02992168
IRS990/OtherWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt015743
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt066553
IRS990/PayrollTaxesGrp/ProgramServicesAmt0206098
IRS990/PayrollTaxesGrp/TotalAmt0288394
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt06586
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt0144566
IRS990/PensionPlanContributionsGrp/TotalAmt0151152
IRS990/PoliticalCampaignActyInd00
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IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0135076
IRS990/PrincipalOfficerNm0MARINE LAURENT
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/BusinessCd1900099
IRS990/ProgramServiceRevenueGrp/BusinessCd2900099
IRS990/ProgramServiceRevenueGrp/BusinessCd3900099
IRS990/ProgramServiceRevenueGrp/BusinessCd4900099
IRS990/ProgramServiceRevenueGrp/Desc0P'SHIP & COLLABORATION
IRS990/ProgramServiceRevenueGrp/Desc1EDUCATION COURSES
IRS990/ProgramServiceRevenueGrp/Desc2EVENTS
IRS990/ProgramServiceRevenueGrp/Desc3TECHNICAL PROJECTS
IRS990/ProgramServiceRevenueGrp/Desc4ODM DATA COLLECTION
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt01629050
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt11531193
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt2961781
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt334357
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt428400
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt01629050
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt11531193

Document Assets

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Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$7,185,485
Liabilities
$1,260,376
Net assets
$5,925,109
Revenue
$10,389,051
Expenses
$9,026,845
Net income
$1,362,206
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.17$1.78$1.39$9.21$9.49$0.29
2023Detailed filing. Detailed filing data is available for this year.$3.98$2.30$1.68$9.33$11.2$1.89
2022Detailed filing. Detailed filing data is available for this year.$5.09$1.52$3.57$8.11$9.61$1.50
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.32$1.25$5.07$7.75$7.94$0.19
2020Facts available. Structured filing facts are available, but richer extracted sections are limited.$6.52$1.25$5.27$6.96$7.62$0.66
2019Detailed filing. Detailed filing data is available for this year.$7.19$1.26$5.93$10.4$9.03$1.36
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.40$0.84$4.56$9.04$7.63$1.41
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.08$0.93$3.15$7.31$7.15$0.16
2016Detailed filing. Detailed filing data is available for this year.$3.70$0.71$2.99$7.02$6.88$0.13
2015Detailed filing. Detailed filing data is available for this year.$2.91$0.03$2.88$6.51$6.41$0.10
2014Import issue. A filing source exists for this year, but detailed import did not complete cleanly.$2.86$0.02$2.85$5.65$5.13$0.52
2013Detailed filing. Detailed filing data is available for this year.$2.33$0.00$2.33$4.65$4.49$0.16
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.17$0.00$2.16$3.96
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.06$0.00$2.05$3.04
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.37$0.01$1.36$3.22