Civic Intelligence

Clinical Data Interchange Standards Consortium Inc.

990 • Fiscal year 2023 • EIN 04-3503931

Jan 01, 2023 to Dec 31, 2023 • Filed on Aug 13, 2024

Organization ProfileWWW.CDISC.ORG

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401 West 15th Street 520Austin, TX 78701

(512) 363-5826

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

83rd percentile

0.58x

Higher debt load relative to assets than 83% of similar nonprofits.

2023 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2023

Liabilities / Revenue

58th percentile

0.25x

Higher debt load relative to revenue than 58% of similar nonprofits.

2023 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2023

Net Margin

15th percentile

-20%

Higher net margin than 15% of similar nonprofits.

2023 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2023

Top Officer Pay

94th percentile

$472,306

Higher top officer pay than 94% of similar nonprofits.

Top officer pay equals 5.1% of source-year revenue.

2023 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2023

Asset Growth

4th percentile

-22%

Faster asset growth than 4% of similar nonprofits.

2023 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2022 to 2023

Revenue Growth

64th percentile

15%

Faster revenue growth than 64% of similar nonprofits.

2023 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2022 to 2023

Balance Sheet
Liabilities / Assets83rd percentile

Assets

Down

$3,979,569

Down $1,106,132 (-22%) from 2022

Net Assets

Down

$1,678,642

Down $1,891,651 (-53%) from 2022

Liabilities

Up

$2,300,927

Up $785,519 (+52%) from 2022

Revenue And Expenses
Liabilities / Revenue58th percentileNet Margin15th percentile

Revenue

Up

$9,333,128

Up $1,227,585 (+15%) from 2022

Expenses

Up

$11,224,779

Up $1,614,764 (+17%) from 2022

Net Income

Down

-$1,891,651

Down $387,179 (-26%) from 2022

Historical Trend

Balance Sheet Trend

Asset Growth4th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$8.0M$6.0M$4.0M$2.0M$0Assets 2010: $1,366,591Liabilities 2010: $5,401Net Assets 2010: $1,361,1902010Assets 2011: $2,055,583Liabilities 2011: $3,719Net Assets 2011: $2,051,8642011Assets 2012: $2,168,711Liabilities 2012: $4,457Net Assets 2012: $2,164,2542012Assets 2013: $2,332,483Liabilities 2013: $4,585Net Assets 2013: $2,327,8982013Assets 2014: $2,862,553Liabilities 2014: $15,756Net Assets 2014: $2,846,7972014Assets 2015: $2,912,916Liabilities 2015: $32,394Net Assets 2015: $2,880,5222015Assets 2016: $3,702,425Liabilities 2016: $711,448Net Assets 2016: $2,990,9772016Assets 2017: $4,081,115Liabilities 2017: $929,315Net Assets 2017: $3,151,8002017Assets 2018: $5,398,784Liabilities 2018: $835,881Net Assets 2018: $4,562,9032018Assets 2019: $7,185,485Liabilities 2019: $1,260,376Net Assets 2019: $5,925,1092019Assets 2020: $6,518,601Liabilities 2020: $1,251,779Net Assets 2020: $5,266,8222020Assets 2021: $6,322,350Liabilities 2021: $1,247,585Net Assets 2021: $5,074,7652021Assets 2022: $5,085,701Liabilities 2022: $1,515,408Net Assets 2022: $3,570,2932022Assets 2023: $3,979,569Liabilities 2023: $2,300,927Net Assets 2023: $1,678,6422023Assets 2024: $3,169,764Liabilities 2024: $1,777,156Net Assets 2024: $1,392,6082024

Highlighted filing

2023

Assets$3,979,569
Liabilities$2,300,927
Net Assets$1,678,642
Open 2023 Filing

Operations Trend

Revenue Growth64th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$15M$10M$5.0M$0-$5.0MExpenses 2010: $3,218,9392010Expenses 2011: $3,043,0262011Expenses 2012: $3,957,3282012Revenue 2013: $4,653,383Expenses 2013: $4,489,739Net Income 2013: $163,6442013Revenue 2014: $5,651,627Expenses 2014: $5,132,728Net Income 2014: $518,8992014Revenue 2015: $6,508,337Expenses 2015: $6,411,391Net Income 2015: $96,9462015Revenue 2016: $7,016,614Expenses 2016: $6,883,736Net Income 2016: $132,8782016Revenue 2017: $7,310,693Expenses 2017: $7,149,870Net Income 2017: $160,8232017Revenue 2018: $9,038,450Expenses 2018: $7,627,347Net Income 2018: $1,411,1032018Revenue 2019: $10,389,051Expenses 2019: $9,026,845Net Income 2019: $1,362,2062019Revenue 2020: $6,961,045Expenses 2020: $7,619,332Net Income 2020: -$658,2872020Revenue 2021: $7,747,958Expenses 2021: $7,940,015Net Income 2021: -$192,0572021Revenue 2022: $8,105,543Expenses 2022: $9,610,015Net Income 2022: -$1,504,4722022Revenue 2023: $9,333,128Expenses 2023: $11,224,779Net Income 2023: -$1,891,6512023Revenue 2024: $9,205,905Expenses 2024: $9,491,939Net Income 2024: -$286,0342024

Highlighted filing

2023

Revenue$9,333,128
Expenses$11,224,779
Net Income-$1,891,651
Open 2023 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2023 to Dec 31, 2023
Signed
Aug 13, 2024
Return Version
2023v5.1
Gross Receipts
$9,333,128
Mission and Program Overview

Mission

To develop and support global, platform-independent data standards that enable information system interoperability to improve medical research and related areas of healthcare.

The cdisc mission is to develop and support global, platform-independent data standards that enable information system interoperability to improve medical research and related areas of healthcare.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$491,040$1,219,676▲ $728,636
Savings and Temporary Cash Investments$2,340,943$1,163,483▼ $1,177,460
Investments in Publicly Traded Securities$827,150$845,349▲ $18,199
Accounts Receivable$494,864$505,090▲ $10,226
Prepaid Expenses and Deferred Charges$212,697$130,625▼ $82,072
Pledges and Grants Receivable$656,782$62,590▼ $594,192
Land, Buildings, and Equipment, Net$62,225$52,756▼ $9,469
Total Assets$5,085,701$3,979,569▼ $1,106,132
Liabilities
Deferred Revenue$886,724$1,332,739▲ $446,015
Accounts Payable and Accrued Expenses$578,684$868,188▲ $289,504
Other Liabilities$50,000$100,000▲ $50,000
Total Liabilities$1,515,408$2,300,927▲ $785,519
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$3,466,220$1,678,642▼ $1,787,578
Net Assets With Donor Restrictions$104,073$0▼ $104,073
Total Net Assets Fund Balance$3,570,293$1,678,642▼ $1,891,651
Total Liabilities and Net Assets / Fund Balance$5,085,701$3,979,569▼ $1,106,132

Asset Categories

AssetBook ValueDepreciationBasis
Leasehold Improvements$49,883$115,929$165,812
Other Land Buildings$0$40,000$40,000
Equipment$2,873$5,121$7,994
Compensation and Service Providers
Top Officer Pay94th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
David E EvansPresident & CEOFT$354,835$117,471$472,306
Peter Van ReuselChief Standards OfficerFT$255,361$47,387$302,748
Sheila LeamanVP Global RelationsFT$200,070$80,575$280,645
Rhonda FacileVP, Development & PartnershipsFT$200,070$77,733$277,803
Sam HumeVP Data ScienceFT$190,970$79,122$270,092
Bess Leroy NietoHead of Standards DevelopmentFT$161,385$43,892$205,277
Charles ShadleHead of Data Science OperationsFT$172,211$32,000$204,211
Amy PalmerHead of Standards DevelopmentFT$159,093$38,965$198,058
Christine ConnollyHead of Standards ProjectsFT$161,385$30,901$192,286

Board Members and Trustees

NameTitle
Erik PulkstenisChair
Chris DeckerChair-elect
Pam HowardPast-chair
Brooke HinksonDirector
Christina ReithDirector
David HardisonDirector
Dominic LabriolaDirector
Hiroshi MasumotoDirector
Jonathan ChaineyDirector
Karen CurranDirector
Lisa LinDirector
Mihoko OkadaDirector
Pandu KulkarniDirector
RHONA O'DONNELLDirector
Wenjun BaoDirector

Highest Paid Contractors

ContractorServicesLocationCompensation
Data4knowledge ApsStandards Development Consulting Service221 RAYMOND BLVD, Parsippany, NJ 07054, Da$314,631
Eclipse Database ConsultantsStandards Development Consulting Service4903 CLOVER PINE DRIVE, Greenville, IN 47124, Uk$197,588
Lex Jansen Conslting LLCStandards Development Consulting Service1 BOYTONS ACRE SAFFRON WALDEN, Essex, Uk$165,130
Pour Over ProductionsStandards Development Consulting Service-$141,213
Accurate SystemsStandards Development Consulting Service-$131,581
Revenue and Support

Revenue Composition

Contributions and Grants
$4,791,339
Program Service Revenue
$4,513,613
Investment Income
$28,176
Other Revenue
$0
All Other Contributions
$1,389,737
Change in Net Assets
$-1,891,651

Audited Revenue Reconciliation

Revenue per Audited Statements
$9,333,128
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$853,740
Total Revenue per Audited Statements
$10,186,868
Total Revenue per Form 990
$9,333,128
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$7,106,100
Other Expenses$4,118,679
Total Fundraising Expense$790,477
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$3,727,272$800,024$169,465$4,696,761
Fees for Services Other$1,774,410$195,150$211,520$2,181,080
Current Officers, Directors, Trustees, and Key Employees$562,179$472,306$266,361$1,300,846
Other Employee Benefits$280,007$170,263$48,100$498,370
Payroll Taxes$301,210$86,924$30,253$418,387
Information Technology$149,483$53,042$19,288$221,813
Pension Plan Contributions$179,491$12,245-$191,736
Travel$156,753$7,540$1,931$166,224
Occupancy$70,956$44,076$20,022$135,054
Fees for Services Accounting-$65,905-$65,905
Office Expenses$4,249$57,798$1,715$63,762
Depreciation Depletion$21,472$6,886$2,771$31,129
Other Expenses$106,750$19,185$13,919$19,185
All Other Expenses-$14,737-$14,737
Conferences and Meetings-$14,058-$14,058
Fees for Services Legal-$2,500-$2,500
Total Functional Expenses$8,381,080$2,053,222$790,477$11,224,779

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$12,078,519
Expenses per Audited Statements$11,224,779
Total Expenses per Form 990$11,224,779
Expenses Not Reported on Form 990$853,740
Expenses Not Reported on Financial Statements$0
International Activity

International Summary

Offices
0
Employees
32
Spending
$1,582,632

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
EuropeProgram ServiceStandards Development08$1,072,415
EuropeProgram ServiceInterchange00$158,068
EuropeProgram ServiceTraining09$88,489
EuropeProgram ServiceProject Management01$86,745
East Asia and the PacificProgram ServiceInterchange00$79,758
North AmericaProgram ServiceStandards Development01$57,288
East Asia and the PacificProgram ServiceTraining013$24,147
EuropeProgram ServiceFinance & Accounting00$15,722
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Deferred Compensation$100,000
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 7A

“The company's platinum members have a seat on the company's advisory council, which gets to elect one board member every year.”

Form 990, Part VI, Section B, Line 11B

“The 990 is reviewed by the financial oversight committee and made available to the board of directors for review before the return is filed.”

Form 990, Part VI, Section B, Line 12C

“All new board members benefit from an onboarding training, which touches on their various roles and responsibilities. This includes reviewing the concept of fiduciary duties and the requirement that they disclose any potential conflicts of interest that they may have. All board members, officers, and key employees are requested to review the ethics and conflict of interest policy at least annually. To ensure this actually takes place, they are required to sign every year an acknowledgment that they have read it and agree to comply with its provisions. In addition, upon joining they must disclose any conflict of interest that they may have. Every year thereafter, they are required to update that disclosure.”

Form 990, Part VI, Section B, Line 15

“The base compensation for the ceo is determined based on third-party industry surveys, similar organizations' 990 data, and past compensation of the ceo. The compensation is reviewed every year. An increase may be recommended by the executive committee (tasked with overseeing executive compensation), based on the organization's performance and market information. The annual bonus amount is determined taking into account criteria used across the organization. The executive committee makes a recommendation regarding the final bonus amount. Both the annual increase (if any) of the base compensation and the annual bonus are approved by the board.”

Form 990, Part VI, Section C, Line 19

“All policies and governing documents are available on the cdisc website.”

Filing and Contact Details

Filer

Filer Name
Clinical Data Interchange Standards
EIN
04-3503931
Phone
5123635826
Address
401 WEST 15TH STREET 520, AUSTIN, TX 78701

Signing Officer

Name
Chris Decker
Title
Current CEO
Phone
5123635826
Signed
2024-08-13
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Chris Decker
Formed
2000
Legal Domicile
Ma
Voting Board Members
15
Independent Board Members
15
Employees
46
Volunteers
15

Preparer

Firm
Aafcpas Inc
Address
50 WASHINGTON STREET, WESTBOROUGH, MA 01581
Preparer
Caitlin Limoges CPA
Phone
5083669100
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“Data standard consulting: program service expenses 1,739,594. Management and general expenses 185,033. Fundraising expenses 0. Total expenses 1,924,627. Payroll services: program service expenses 34,816. Management and general expenses 10,117. Fundraising expenses 211,520. Total expenses 256,453.”

FORM 990, PART XII, LINE 2C:

“The organization has not changed its process for oversight of the audit of its financial statements and selection of an independent accountant.”

Financial Statement Notes

PART X, LINE 2:

“Cdisc accounts for uncertainty in income taxes in accordance with asc topic, income taxes. This standard clarifies the accounting for uncertainty in tax positions and prescribes a recognition threshold and measurement attribute for the consolidated financial statements regarding a tax position taken or expected to be taken in a tax return. Cdisc has determined that there are no uncertain tax positions which qualify for either recognition or disclosure in the consolidated financial statements at december 31, 2023. Cdisc's information returns are subject to examination by the federal and state jurisdictions.”

Raw XML AppendixShowing 400 of 955 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0THE CDISC MISSION IS TO DEVELOP AND SUPPORT GLOBAL, PLATFORM-INDEPENDENT DATA STANDARDS THAT ENABLE INFORMATION SYSTEM INTEROPERABILITY TO IMPROVE MEDICAL RESEARCH AND RELATED AREAS OF HEALTHCARE.
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IRS990/Desc0TECHNICAL - TO DATE, CDISC HAS DEVELOPED THERAPEUTIC AREA STANDARDS FOR OVER 44 DISEASE AREAS AND WE CONTINUE TO UPDATE AND EXPAND THESE STANDARDS WHEN POSSIBLE. IN 2023, CDISC CONTINUES TO DEVELOP SIGNIFICANT NEW VERSIONS OF THE CDISC FOUNDATIONAL STANDARDS (SEND, CDASH, SDTM, SDTMIG, ADAM, CONTROLLED TERMINOLOGY AND DATA EXCHANGE STANDARDS). THE TRIAL MASTER FILE REFERENCE MODEL (TMF RM) STANDARD HAS BECAME PART OF THE CDISC SUITE OF STANDARDS.CDISC RELEASED SEVERAL UPDATES TO THE CDISC LIBRARY TO ADD NEW FEATURES AS WELL AS NEW VERSIONS OF THE STANDARDS. CDISC CORE RULE ENGINE AND RULE EDITOR SOFTWARE HAS RELEASED AS OPEN SOURCE AND THE TEAM CONTINUES TO MAKE PROGRESS. FOR THE CDISC THE DIGITAL DATA FLOW PROJECT WE REALEASED A REFERENCE ARCHITECTURE AS A STANDARD AND ARE WORKING ON VERSION 3. CDISC CONTINUES TO RUN NUMEROUS HACKATHONS AND WORKSHOPS TO PROMOTE, SUPPORT, AND SOMETIMES SPONSOR OPEN-SOURCE SOFTWARE FOCUSED ON IMPLEMENTING OR DEVELOPING THE CDISC STANDARDS TO DRIVE INNOVATION.
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IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15PRESIDENT & CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt16VP, DEVELOPMENT & PARTNERSHIPS
IRS990/Form990PartVIISectionAGrp/TitleTxt17VP GLOBAL RELATIONS
IRS990/Form990PartVIISectionAGrp/TitleTxt18VP DATA SCIENCE
IRS990/Form990PartVIISectionAGrp/TitleTxt19CHIEF STANDARDS OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt20HEAD OF DATA SCIENCE OPERATIONS
IRS990/Form990PartVIISectionAGrp/TitleTxt21HEAD OF STANDARDS DEVELOPMENT
IRS990/Form990PartVIISectionAGrp/TitleTxt22HEAD OF STANDARDS DEVELOPMENT
IRS990/Form990PartVIISectionAGrp/TitleTxt23HEAD OF STANDARDS PROJECTS
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Document Assets

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Filings

Displayed year

2023 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$3,979,569
Liabilities
$2,300,927
Net assets
$1,678,642
Revenue
$9,333,128
Expenses
$11,224,779
Net income
-$1,891,651
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.17$1.78$1.39$9.21$9.49$0.29
2023Detailed filing. Detailed filing data is available for this year.$3.98$2.30$1.68$9.33$11.2$1.89
2022Detailed filing. Detailed filing data is available for this year.$5.09$1.52$3.57$8.11$9.61$1.50
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.32$1.25$5.07$7.75$7.94$0.19
2020Facts available. Structured filing facts are available, but richer extracted sections are limited.$6.52$1.25$5.27$6.96$7.62$0.66
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.19$1.26$5.93$10.4$9.03$1.36
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.40$0.84$4.56$9.04$7.63$1.41
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.08$0.93$3.15$7.31$7.15$0.16
2016Detailed filing. Detailed filing data is available for this year.$3.70$0.71$2.99$7.02$6.88$0.13
2015Detailed filing. Detailed filing data is available for this year.$2.91$0.03$2.88$6.51$6.41$0.10
2014Import issue. A filing source exists for this year, but detailed import did not complete cleanly.$2.86$0.02$2.85$5.65$5.13$0.52
2013Detailed filing. Detailed filing data is available for this year.$2.33$0.00$2.33$4.65$4.49$0.16
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.17$0.00$2.16$3.96
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.06$0.00$2.05$3.04
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.37$0.01$1.36$3.22
Peer Organizations

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