Civic Intelligence

Clinical Data Interchange Standards Consortium Inc.

990 • Fiscal year 2022 • EIN 04-3503931

Jan 01, 2022 to Dec 31, 2022 • Filed on Sep 19, 2023

Refreshing map…

401 West 15th Street 520Austin, TX 78701

(512) 363-5826

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

68th percentile

0.30x

Higher debt load relative to assets than 68% of similar nonprofits.

2022 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2022

Liabilities / Revenue

54th percentile

0.19x

Higher debt load relative to revenue than 54% of similar nonprofits.

2022 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2022

Net Margin

14th percentile

-19%

Higher net margin than 14% of similar nonprofits.

2022 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2022

Top Officer Pay

95th percentile

$524,972

Higher top officer pay than 95% of similar nonprofits.

Top officer pay equals 6.5% of source-year revenue.

2022 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2022

Asset Growth

6th percentile

-20%

Faster asset growth than 6% of similar nonprofits.

2022 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2021 to 2022

Revenue Growth

50th percentile

4.6%

Faster revenue growth than 50% of similar nonprofits.

2022 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2021 to 2022

Assets

Down

$5,085,701

Down $1,236,649 (-20%) from 2021

Net Assets

Down

$3,570,293

Down $1,504,472 (-30%) from 2021

Liabilities

Up

$1,515,408

Up $267,823 (+21%) from 2021

Revenue

Up

$8,105,543

Up $357,585 (+4.6%) from 2021

Expenses

Up

$9,610,015

Up $1,670,000 (+21%) from 2021

Net Income

Down

-$1,504,472

Down $1,312,415 (-683%) from 2021

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$8.0M$6.0M$4.0M$2.0M$0Assets 2010: $1,366,591Liabilities 2010: $5,401Net Assets 2010: $1,361,1902010Assets 2011: $2,055,583Liabilities 2011: $3,719Net Assets 2011: $2,051,8642011Assets 2012: $2,168,711Liabilities 2012: $4,457Net Assets 2012: $2,164,2542012Assets 2013: $2,332,483Liabilities 2013: $4,585Net Assets 2013: $2,327,8982013Assets 2014: $2,862,553Liabilities 2014: $15,756Net Assets 2014: $2,846,7972014Assets 2015: $2,912,916Liabilities 2015: $32,394Net Assets 2015: $2,880,5222015Assets 2016: $3,702,425Liabilities 2016: $711,448Net Assets 2016: $2,990,9772016Assets 2017: $4,081,115Liabilities 2017: $929,315Net Assets 2017: $3,151,8002017Assets 2018: $5,398,784Liabilities 2018: $835,881Net Assets 2018: $4,562,9032018Assets 2019: $7,185,485Liabilities 2019: $1,260,376Net Assets 2019: $5,925,1092019Assets 2020: $6,518,601Liabilities 2020: $1,251,779Net Assets 2020: $5,266,8222020Assets 2021: $6,322,350Liabilities 2021: $1,247,585Net Assets 2021: $5,074,7652021Assets 2022: $5,085,701Liabilities 2022: $1,515,408Net Assets 2022: $3,570,2932022Assets 2023: $3,979,569Liabilities 2023: $2,300,927Net Assets 2023: $1,678,6422023Assets 2024: $3,169,764Liabilities 2024: $1,777,156Net Assets 2024: $1,392,6082024

Highlighted filing

2022

Assets$5,085,701
Liabilities$1,515,408
Net Assets$3,570,293

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$15M$10M$5.0M$0-$5.0MExpenses 2010: $3,218,9392010Expenses 2011: $3,043,0262011Expenses 2012: $3,957,3282012Revenue 2013: $4,653,383Expenses 2013: $4,489,739Net Income 2013: $163,6442013Revenue 2014: $5,651,627Expenses 2014: $5,132,728Net Income 2014: $518,8992014Revenue 2015: $6,508,337Expenses 2015: $6,411,391Net Income 2015: $96,9462015Revenue 2016: $7,016,614Expenses 2016: $6,883,736Net Income 2016: $132,8782016Revenue 2017: $7,310,693Expenses 2017: $7,149,870Net Income 2017: $160,8232017Revenue 2018: $9,038,450Expenses 2018: $7,627,347Net Income 2018: $1,411,1032018Revenue 2019: $10,389,051Expenses 2019: $9,026,845Net Income 2019: $1,362,2062019Revenue 2020: $6,961,045Expenses 2020: $7,619,332Net Income 2020: -$658,2872020Revenue 2021: $7,747,958Expenses 2021: $7,940,015Net Income 2021: -$192,0572021Revenue 2022: $8,105,543Expenses 2022: $9,610,015Net Income 2022: -$1,504,4722022Revenue 2023: $9,333,128Expenses 2023: $11,224,779Net Income 2023: -$1,891,6512023Revenue 2024: $9,205,905Expenses 2024: $9,491,939Net Income 2024: -$286,0342024

Highlighted filing

2022

Revenue$8,105,543
Expenses$9,610,015
Net Income-$1,504,472
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
Sep 19, 2023
Return Version
2022v5.0
Gross Receipts
$8,105,543
Mission and Program Overview

Mission

To develop and support global, platform-independent data standards that enable information system interoperability to improve medical research and related areas of healthcare.

The cdisc mission is to develop and support global, platform-independent data standards that enable information system interoperability to improve medical research and related areas of healthcare.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$4,122,493$2,340,943▼ $1,781,550
Investments in Publicly Traded Securities$822,130$827,150▲ $5,020
Pledges and Grants Receivable$496,633$656,782▲ $160,149
Accounts Receivable$237,488$494,864▲ $257,376
Cash and Non-Interest-Bearing Accounts$483,317$491,040▲ $7,723
Prepaid Expenses and Deferred Charges$120,451$212,697▲ $92,246
Land, Buildings, and Equipment, Net$39,838$62,225▲ $22,387
Total Assets$6,322,350$5,085,701▼ $1,236,649
Liabilities
Deferred Revenue$746,433$886,724▲ $140,291
Accounts Payable and Accrued Expenses$501,152$578,684▲ $77,532
Other Liabilities$0$50,000▲ $50,000
Total Liabilities$1,247,585$1,515,408▲ $267,823
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$4,891,639$3,466,220▼ $1,425,419
Net Assets With Donor Restrictions$183,126$104,073▼ $79,053
Total Net Assets Fund Balance$5,074,765$3,570,293▼ $1,504,472
Total Liabilities and Net Assets / Fund Balance$6,322,350$5,085,701▼ $1,236,649

Asset Categories

AssetBook ValueDepreciationBasis
Leasehold Improvements$59,352$112,354$171,706
Other Land Buildings$0$40,000$40,000
Equipment$2,873$5,121$7,994
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
David EvansPresident & CEOFT$345,719$179,253$524,972
Peter Van ReuselChief Standards OfficerFT$252,667$47,886$300,553
Rhonda Yvonne FacileVP, Development & PartnershipsFT$190,000$84,238$274,238
Samuel HumeVP, Data ScienceFT$192,930$80,596$273,526
Sheila LeamanVP, Global RelationsFT$201,539$71,735$273,274
Beth Leroy NietoHead of Standards DevelopmentFT$153,700$49,875$203,575
Amy PalmerHead of Standards DevelopmentFT$153,700$47,290$200,990
Anthony ChowHead of Data ScienceFT$153,700$39,816$193,516
Charles ShadleHead of Data Science OperationsFT$153,700$38,809$192,509

Board Members and Trustees

NameTitle
Pam HowardChair
Erik PulkstenisChair-elect
Margaret KeeganPast-chair
Brooke HinksonDirector
Chris DeckerDirector
Christina ReithDirector
David HardisonDirector
Hiroshi MasumotoDirector
Karen CurranDirector
Lisa LinDirector
Mihoko OkadaDirector
Pandu KulkarniDirector
Steve RosenbergDirector
Wenjun BaoDirector

Highest Paid Contractors

ContractorServicesLocationCompensation
Lex Jansen Conslting LLCStandards Development Consulting Service221 RAYMOND BLVD, Parsippany, NJ 07054, Uk$188,715
Eclipse Database ConsultantsStandards Development Consulting Service4903 CLOVER PINE DRIVE, Greenville, IN 47124$183,391
Pour Over ProductionsStandards Development Consulting Service37 FERRY LANE, Phoenixville, PA 19460$148,440
Linda Lander Consulting CompanyStandards Development Consulting Service609 FOXFIELDS ROAD, Bryn Mawr, PA 19010$113,500
Planning Data Systems INCStandards Development Consulting Service-$104,800
Revenue and Support

Revenue Composition

Contributions and Grants
$4,130,952
Program Service Revenue
$3,935,285
Investment Income
$39,306
Other Revenue
$0
All Other Contributions
$679,672
Change in Net Assets
$-1,504,472

Audited Revenue Reconciliation

Revenue per Audited Statements
$8,105,543
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$813,600
Total Revenue per Audited Statements
$8,919,143
Total Revenue per Form 990
$8,105,543
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$6,108,543
Other Expenses$3,501,472
Total Fundraising Expense$614,646
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$2,965,751$681,283$309,480$3,956,514
Fees for Services Other$1,659,126$161,522$160,340$1,980,988
Current Officers, Directors, Trustees, and Key Employees$979,392$366,619-$1,346,011
Other Employee Benefits$215,385$135,427$63,835$414,647
Payroll Taxes$198,517$51,938$19,557$270,012
Information Technology$174,518$52,635$20,548$247,701
Occupancy$83,012$51,960$23,778$158,750
Pension Plan Contributions$120,741$618-$121,359
Travel$97,575$16,825$182$114,582
Fees for Services Accounting-$76,513-$76,513
Office Expenses$5,137$50,730$1,557$57,424
Other Expenses$157,126$36,830$13,106$36,830
Depreciation Depletion$19,217$5,795$2,263$27,275
All Other Expenses-$17,460-$17,460
Conferences and Meetings-$8,854-$8,854
Fees for Services Legal-$3,750-$3,750
Total Functional Expenses$7,237,195$1,758,174$614,646$9,610,015

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$10,423,615
Expenses per Audited Statements$9,610,015
Total Expenses per Form 990$9,610,015
Expenses Not Reported on Form 990$813,600
Expenses Not Reported on Financial Statements$0
International Activity

International Summary

Offices
0
Employees
25
Spending
$1,012,149

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
EuropeProgram ServiceStandards Development06$620,274
EuropeProgram ServiceProject Management01$182,638
EuropeProgram ServiceInterchange00$75,256
North AmericaProgram ServiceStandards Development01$61,250
EuropeProgram ServicesTraining07$42,969
East Asia and the PacificProgram ServiceTraining010$22,926
East Asia and the PacificProgram ServiceInterchange00$6,836
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Deferred Compensation$50,000
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 7A

The company's platinum members have a seat on the company's advisory council, which gets to elect one board member every year.

Form 990, Part VI, Section B, Line 11B

The 990 is reviewed by the financial oversight committee and made available to the board of directors for review before the return is filed.

Form 990, Part VI, Section B, Line 12C

All new board members benefit from an onboarding training, which touches on their various roles and responsibilities. This includes reviewing the concept of fiduciary duties and the requirement that they disclose any potential conflicts of interest that they may have. All board members, officers, and key employees are requested to review the ethics and conflict of interest policy at least annually. To ensure this actually takes place, they are required to sign every year an acknowledgment that they have read it and agree to comply with its provisions. In addition, upon joining they must disclose any conflict of interest that they may have. Every year thereafter, they are required to update that disclosure.

Form 990, Part VI, Section B, Line 15

The base compensation for the ceo is determined based on third-party industry surveys, similar organizations' 990 data, and past compensation of the ceo. The compensation is reviewed every year. An increase may be recommended by the executive committee (tasked with overseeing executive compensation), based on the organization's performance and market information. The annual bonus amount is determined taking into account criteria used across the organization. The executive committee makes a recommendation regarding the final bonus amount. Both the annual increase (if any) of the base compensation and the annual bonus are approved by the board.

Form 990, Part VI, Section C, Line 19

All policies and governing documents are available on the cdisc website.

Filing and Contact Details

Filer

Filer Name
Clinical Data Interchange Standards
EIN
04-3503931
Phone
5123635826
Address
401 WEST 15TH STREET 520, AUSTIN, TX 78701

Signing Officer

Name
David Evans
Title
CEO
Phone
5123635826
Signed
2023-09-19
Discuss with paid preparer
Yes

Organization Details

Principal Officer
David Evans
Formed
2000
Legal Domicile
Ma
Voting Board Members
14
Independent Board Members
14
Employees
47
Volunteers
950

Preparer

Firm
Aafcpas Inc
Address
50 WASHINGTON STREET, WESTBOROUGH, MA 01581
Preparer
Caitlin Limoges CPA
Phone
5083669100
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

Data standard consulting: program service expenses 1,569,751. Management and general expenses 151,679. Fundraising expenses 0. Total expenses 1,721,430. Payroll services: program service expenses 89,375. Management and general expenses 9,843. Fundraising expenses 160,340. Total expenses 259,558.

FORM 990, PART XII, LINE 2C:

The organization has not changed its process for oversight of the audit of its financial statements and selection of an independent accountant.

Financial Statement Notes

PART X, LINE 2:

Cdisc accounts for uncertainty in income taxes in accordance with asc topic, income taxes. This standard clarifies the accounting for uncertainty in tax positions and prescribes a recognition threshold and measurement attribute for the consolidated financial statements regarding a tax position taken or expected to be taken in a tax return. Cdisc has determined that there are no uncertain tax positions which qualify for either recognition or disclosure in the consolidated financial statements at december 31, 2022. Cdisc's information returns are subject to examination by the federal and state jurisdictions.

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IRS990/ActivityOrMissionDesc0THE CDISC MISSION IS TO DEVELOP AND SUPPORT GLOBAL, PLATFORM-INDEPENDENT DATA STANDARDS THAT ENABLE INFORMATION SYSTEM INTEROPERABILITY TO IMPROVE MEDICAL RESEARCH AND RELATED AREAS OF HEALTHCARE.
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IRS990/Desc0TECHNICAL - TO DATE, CDISC HAS DEVELOPED THERAPEUTIC AREA STANDARDS FOR OVER 44 DISEASE AREAS AND WE CONTINUE TO UPDATE AND EXPAND THESE STANDARDS WHEN POSSIBLE. IN 2022, CDISC CONTINUES TO DEVELOP SIGNIFICANT NEW VERSIONS OF THE CDISC FOUNDATIONAL STANDARDS (SEND, CDASH, SDTM, SDTMIG, ADAM, CONTROLLED TERMINOLOGY AND DATA EXCHANGE STANDARDS). THE TRIAL MASTER FILE REFERENCE MODEL (TMF RM) STANDARD HAS BECAME PART OF THE CDISC SUITE OF STANDARDS.CDISC RELEASED SEVERAL UPDATES TO THE CDISC LIBRARY TO ADD NEW FEATURES AS WELL AS NEW VERSIONS OF THE STANDARDS. CDISC CORE RULE ENGINE AND RULE EDITOR SOFTWARE HAS RELEASED AS OPEN SOURCE AND THE TEAM CONTINUES TO MAKE PROGRESS. FOR THE CDISC THE DIGITAL DATA FLOW PROJECT WE REALEASED A REFERENCE ARCHITECTURE AS A STANDARD AND ARE WORKING ON VERSION 3. CDISC CONTINUES TO RUN NUMEROUS HACKATHONS AND WORKSHOPS TO PROMOTE, SUPPORT, AND SOMETIMES SPONSOR OPEN-SOURCE SOFTWARE FOCUSED ON IMPLEMENTING OR DEVELOPING THE CDISC STANDARDS TO DRIVE INNOVATION.
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IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt132.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt142.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt152.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt162.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt172.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt182.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt192.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt202.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt212.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt222.00
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd0X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd1X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd2X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd3X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd13X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OfficerInd5X
IRS990/Form990PartVIISectionAGrp/OfficerInd6X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt0114253
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt249928
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt345196
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt450306
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt535375
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt632790
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt726258
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt825541
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt170
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt180
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt190
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt200
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt210
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt220
IRS990/Form990PartVIISectionAGrp/PersonNm0DAVID EVANS
IRS990/Form990PartVIISectionAGrp/PersonNm1PETER VAN REUSEL
IRS990/Form990PartVIISectionAGrp/PersonNm2RHONDA YVONNE FACILE
IRS990/Form990PartVIISectionAGrp/PersonNm3SAMUEL HUME
IRS990/Form990PartVIISectionAGrp/PersonNm4SHEILA LEAMAN
IRS990/Form990PartVIISectionAGrp/PersonNm5BETH LEROY NIETO
IRS990/Form990PartVIISectionAGrp/PersonNm6AMY PALMER
IRS990/Form990PartVIISectionAGrp/PersonNm7ANTHONY CHOW
IRS990/Form990PartVIISectionAGrp/PersonNm8CHARLES SHADLE
IRS990/Form990PartVIISectionAGrp/PersonNm9PAM HOWARD
IRS990/Form990PartVIISectionAGrp/PersonNm10ERIK PULKSTENIS
IRS990/Form990PartVIISectionAGrp/PersonNm11MARGARET KEEGAN
IRS990/Form990PartVIISectionAGrp/PersonNm12DAVID HARDISON
IRS990/Form990PartVIISectionAGrp/PersonNm13STEVE ROSENBERG
IRS990/Form990PartVIISectionAGrp/PersonNm14CHRIS DECKER
IRS990/Form990PartVIISectionAGrp/PersonNm15PANDU KULKARNI
IRS990/Form990PartVIISectionAGrp/PersonNm16BROOKE HINKSON
IRS990/Form990PartVIISectionAGrp/PersonNm17HIROSHI MASUMOTO
IRS990/Form990PartVIISectionAGrp/PersonNm18WENJUN BAO
IRS990/Form990PartVIISectionAGrp/PersonNm19MIHOKO OKADA
IRS990/Form990PartVIISectionAGrp/PersonNm20CHRISTINA REITH
IRS990/Form990PartVIISectionAGrp/PersonNm21KAREN CURRAN
IRS990/Form990PartVIISectionAGrp/PersonNm22LISA LIN
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt0410719
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1300553
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt2224310
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt3228330
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt4222968
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt5168200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt6168200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt7167258
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt8166968
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt220
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt220
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT & CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt1CHIEF STANDARDS OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt2VP, DEVELOPMENT & PARTNERSHIPS
IRS990/Form990PartVIISectionAGrp/TitleTxt3VP, DATA SCIENCE
IRS990/Form990PartVIISectionAGrp/TitleTxt4VP, GLOBAL RELATIONS
IRS990/Form990PartVIISectionAGrp/TitleTxt5HEAD OF STANDARDS DEVELOPMENT
IRS990/Form990PartVIISectionAGrp/TitleTxt6HEAD OF STANDARDS DEVELOPMENT
IRS990/Form990PartVIISectionAGrp/TitleTxt7HEAD OF DATA SCIENCE
IRS990/Form990PartVIISectionAGrp/TitleTxt8HEAD OF DATA SCIENCE OPERATIONS
IRS990/Form990PartVIISectionAGrp/TitleTxt9CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt10CHAIR-ELECT
IRS990/Form990PartVIISectionAGrp/TitleTxt11PAST-CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt19DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt21DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt22DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02000
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/ConsolidatedBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd00
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt014
IRS990/GovernmentGrantsAmt0458716
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt08105543
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd00
IRS990/IndependentVotingMemberCnt014
IRS990/IndivRcvdGreaterThan100KCnt011
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartIXInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt020548
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt052635
IRS990/InformationTechnologyGrp/ProgramServicesAmt0174518
IRS990/InformationTechnologyGrp/TotalAmt0247701
IRS990/InvestmentIncomeGrp/ExclusionAmt039306
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt039306
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt0822130
IRS990/InvestmentsPubTradedSecGrp/EOYAmt0827150
IRS990/IRPDocumentCnt034
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0157475
IRS990/LandBldgEquipBasisNetGrp/BOYAmt039838
IRS990/LandBldgEquipBasisNetGrp/EOYAmt062225
IRS990/LandBldgEquipCostOrOtherBssAmt0219700
IRS990/LegalDomicileStateCd0MA
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembershipDuesAmt02992564
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO DEVELOP AND SUPPORT GLOBAL, PLATFORM-INDEPENDENT DATA STANDARDS THAT ENABLE INFORMATION SYSTEM INTEROPERABILITY TO IMPROVE MEDICAL RESEARCH AND RELATED AREAS OF HEALTHCARE.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt05074765
IRS990/NetAssetsOrFundBalancesEOYAmt03570293
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt04891639
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt03466220
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt023778
IRS990/OccupancyGrp/ManagementAndGeneralAmt051960
IRS990/OccupancyGrp/ProgramServicesAmt083012
IRS990/OccupancyGrp/TotalAmt0158750
IRS990/OfficeExpensesGrp/FundraisingAmt01557
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt050730
IRS990/OfficeExpensesGrp/ProgramServicesAmt05137
IRS990/OfficeExpensesGrp/TotalAmt057424
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt063835
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt0135427
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0215385
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0414647
IRS990/OtherExpensesGrp/Desc0INSTRUCTION
IRS990/OtherExpensesGrp/Desc1EVENTS
IRS990/OtherExpensesGrp/Desc2MISCELLANEOUS
IRS990/OtherExpensesGrp/Desc3TRAININGS
IRS990/OtherExpensesGrp/FundraisingAmt013106
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt08342
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt131073
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt236830
IRS990/OtherExpensesGrp/ProgramServicesAmt0288753
IRS990/OtherExpensesGrp/ProgramServicesAmt1272945
IRS990/OtherExpensesGrp/ProgramServicesAmt2157126
IRS990/OtherExpensesGrp/TotalAmt0288753
IRS990/OtherExpensesGrp/TotalAmt1281287
IRS990/OtherExpensesGrp/TotalAmt2201305
IRS990/OtherExpensesGrp/TotalAmt336830
IRS990/OtherLiabilitiesGrp/BOYAmt00
IRS990/OtherLiabilitiesGrp/EOYAmt050000
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0309480
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0681283
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt02965751
IRS990/OtherSalariesAndWagesGrp/TotalAmt03956514
IRS990/OtherWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt019557
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt051938
IRS990/PayrollTaxesGrp/ProgramServicesAmt0198517
IRS990/PayrollTaxesGrp/TotalAmt0270012
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt0618
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt0120741
IRS990/PensionPlanContributionsGrp/TotalAmt0121359
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0496633
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0656782
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt0120451
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0212697
IRS990/PrincipalOfficerNm0DAVID EVANS

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.17$1.78$1.39$9.21$9.49$0.29
2023Detailed filing. Detailed filing data is available for this year.$3.98$2.30$1.68$9.33$11.2$1.89
2022Detailed filing. Detailed filing data is available for this year.$5.09$1.52$3.57$8.11$9.61$1.50
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.32$1.25$5.07$7.75$7.94$0.19
2020Facts available. Structured filing facts are available, but richer extracted sections are limited.$6.52$1.25$5.27$6.96$7.62$0.66
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.19$1.26$5.93$10.4$9.03$1.36
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.40$0.84$4.56$9.04$7.63$1.41
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.08$0.93$3.15$7.31$7.15$0.16
2016Detailed filing. Detailed filing data is available for this year.$3.70$0.71$2.99$7.02$6.88$0.13
2015Detailed filing. Detailed filing data is available for this year.$2.91$0.03$2.88$6.51$6.41$0.10
2014Import issue. A filing source exists for this year, but detailed import did not complete cleanly.$2.86$0.02$2.85$5.65$5.13$0.52
2013Detailed filing. Detailed filing data is available for this year.$2.33$0.00$2.33$4.65$4.49$0.16
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.17$0.00$2.16$3.96
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.06$0.00$2.05$3.04
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.37$0.01$1.36$3.22