Liabilities / Assets
61st percentile
Higher debt load relative to assets than 61% of similar nonprofits.
990 • Fiscal year 2021 • EIN 04-3085718
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
61st percentile
Higher debt load relative to assets than 61% of similar nonprofits.
Liabilities / Revenue
67th percentile
Higher debt load relative to revenue than 67% of similar nonprofits.
Net Margin
21st percentile
Higher net margin than 21% of similar nonprofits.
Top Officer Pay
83rd percentile
Higher top officer pay than 83% of similar nonprofits.
Top officer pay equals 10.1% of source-year revenue.
Asset Growth
43rd percentile
Faster asset growth than 43% of similar nonprofits.
Revenue Growth
8th percentile
Faster revenue growth than 8% of similar nonprofits.
Assets
Up$2,217,158
Up $128,341 (+6.1%) from 2020
Net Assets
Up$1,908,045
Up $14,092 (+0.7%) from 2020
Liabilities
Up$309,113
Up $114,249 (+59%) from 2020
Revenue
Down$1,394,232
Down $814,610 (-37%) from 2020
Expenses
Down$1,431,405
Down $590,756 (-29%) from 2020
Net Income
Down-$37,173
Down $223,854 (-120%) from 2020
To promote awareness of, support patients, families and caregivers affected by, and raise funds for, research of amyotrophic lateral sclerosis.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $1,019,636 | $1,102,851 | ▲ $83,215 |
| Savings and Temporary Cash Investments | $876,200 | $894,287 | ▲ $18,087 |
| Land, Buildings, and Equipment, Net | $139,142 | $163,316 | ▲ $24,174 |
| Cash and Non-Interest-Bearing Accounts | $42,485 | $21,946 | ▼ $20,539 |
| Accounts Receivable | - | $20,919 | - |
| Prepaid Expenses and Deferred Charges | $11,354 | $13,839 | ▲ $2,485 |
| Total Assets | $2,088,817 | $2,217,158 | ▲ $128,341 |
| Liabilities | |||
| Other Liabilities | $92,177 | $232,090 | ▲ $139,913 |
| Accounts Payable and Accrued Expenses | $90,187 | $59,523 | ▼ $30,664 |
| Deferred Revenue | $12,500 | $17,500 | ▲ $5,000 |
| Total Liabilities | $194,864 | $309,113 | ▲ $114,249 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $1,687,313 | $1,681,783 | ▼ $5,530 |
| Net Assets With Donor Restrictions | $206,640 | $226,262 | ▲ $19,622 |
| Total Net Assets Fund Balance | $1,893,953 | $1,908,045 | ▲ $14,092 |
| Total Liabilities and Net Assets / Fund Balance | $2,088,817 | $2,217,158 | ▲ $128,341 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $159,174 | $257,277 | $416,451 |
| Leasehold Improvements | $4,142 | $378 | $4,520 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| John E Hedstrom Jd | Executive Director | FT | $140,000 | $812 | $140,812 |
| Name | Title |
|---|---|
| Kris Moussette | Director (chair Until 12/1/20) |
| Gary Scheid | Chair (vice Chair Until 12/1/20) |
| Debra Bulkeley | Vice Chair (sec. Until 12/1/20) |
| Brad Prenney | Director |
| Doreen Ho Md | Director |
| Kelley Warner | Director |
| Kimsu Marder Rn Ccm | Director |
| Tyler Kowalski | Director |
| Tara Dandrea | Director (until 12/1/20) |
| Steve Kowalski | Secretary (Director Until 12/1/20) |
| Robert Bloomberg | Treasurer |
| Contribution Type | Contribution Count | Reported Amount | Valuation Method |
|---|---|---|---|
| Other Non Cash Contri Table | 10 | $72,000 | Fair Market Value (FMV) |
| Total Noncash Contributions | 10 | $72,000 | - |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $899,494 |
| Other Expenses | $511,800 |
| Total Fundraising Expense | $181,819 |
| Grants and Similar Amounts Paid | $20,111 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $495,499 | $70,081 | $78,394 | $643,974 |
| Payments to Affiliates | $123,349 | $10,477 | $24,800 | $158,626 |
| Current Officers, Directors, Trustees, and Key Employees | $70,406 | $42,244 | $28,162 | $140,812 |
| Payroll Taxes | $56,101 | $11,119 | $10,555 | $77,775 |
| Occupancy | $52,532 | $9,024 | $9,346 | $70,902 |
| Depreciation Depletion | $47,823 | $1,427 | $1,427 | $50,677 |
| Information Technology | $30,415 | $5,225 | $5,412 | $41,052 |
| Other Employee Benefits | $26,820 | $5,152 | $4,961 | $36,933 |
| Fees for Services Accounting | $12,900 | $10,320 | $2,580 | $25,800 |
| Grants to Domestic Individuals | $20,111 | - | - | $20,111 |
| Office Expenses | $11,770 | $1,450 | $1,352 | $14,572 |
| Travel | $4,972 | $543 | $668 | $6,183 |
| Fees for Services Other | $2,745 | $2,196 | $549 | $5,490 |
| Insurance | $3,915 | $713 | $711 | $5,339 |
| Advertising | $1,551 | $282 | $987 | $2,820 |
| Conferences and Meetings | $1,438 | $378 | $464 | $2,280 |
| Other Expenses | $1,323 | $227 | $235 | $1,785 |
| Total Functional Expenses | $1,074,426 | $175,160 | $181,819 | $1,431,405 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $1,459,475 |
| Expenses per Audited Statements | $1,431,405 |
| Total Expenses per Form 990 | $1,431,405 |
| Expenses Not Reported on Form 990 | $28,070 |
| Expenses Not Reported on Financial Statements | $0 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $28,070 |
| Fundraising Gross Income | $28,070 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Walk to Defeat Als | $338,127 | $16,214 | $16,214 | $0 |
| Ride to Defeat Als | $177,061 | $11,027 | $11,027 | $0 |
| Total Events | $607,637 | $28,070 | $28,070 | $0 |
| Liability | Amount |
|---|---|
| Refundable Advances | $166,370 |
| Note Payable to National | $37,520 |
| Amounts Due to National | $28,200 |
“Members include those with voting power on the board of directors.”
“Members govern actions through board meetings. At these meeting significant decisions are discussed, debated and voted upon.”
“President and finance manager review along with the board treasurer. The board treasurer makes a formal report to the board of directors fielding all questions and concerns. Board approval is required prior to filing.”
“The board of directors review and approve policies on an annual basis.”
“The organization's board of directors determines the compensation of the executive director. At the current time, there are no other key executives.”
“The financial statements and conflict of interest policy are available upon request.”
“Loss on disposal of property and equipment -17,500.”
“The organization has a committee that assumes responsibility for oversight of the audit of its finanicial statements and the selection of its independent accountant. This process has not changed during the year.”
“The organization is a nonprofit corporation as described in section 501(c)(3) of the internal revenue code and is exempt from federal and state income taxes on trade or business profits generated by activities related to the organization's exempt function. The organization may be subject to federal and state income taxes for profits generated from trade or business activities unrelated to the organization's exempt function. As of january 31, 2021, management believes that the organization has not generated any unrelated business taxable income. The organization assesses the recording of uncertain tax positions by evaluating the minimum recognition threshold and measurement requirements a tax position must meet before being recognized as a benefit in the financial statements. The organization's policy is to recognize interest and penalties accrued on any uncertain tax positions as a component of income tax expense, if any, in its statements of activities.”
“Loss on disposal of property and equipment -17,500.”
“Direct fundraising expenses -28,070.”
“Direct fundraising expenses 28,070.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 90187 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 59523 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 20919 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | TO PROMOTE AWARENESS OF, SUPPORT PATIENTS, FAMILIES AND CAREGIVERS AFFECTED BY, AND RAISE FUNDS FOR, RESEARCH OF AMYOTROPHIC LATERAL SCLEROSIS. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 987 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 282 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 1551 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 2820 |
| IRS990/AllOtherContributionsAmt | 0 | 614225 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | THE ORGANIZATION |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 7812558884 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 685 CANTON STREET NO 103 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | NORWOOD |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | MA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 02062 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 42485 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 21946 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 28162 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 42244 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 70406 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 140812 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 464 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 378 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 1438 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 2280 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 579567 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1368792 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 20111 |
| IRS990/CYInvestmentIncomeAmt | 0 | 25440 |
| IRS990/CYOtherExpensesAmt | 0 | 511800 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -37173 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 899494 |
| IRS990/CYTotalExpensesAmt | 0 | 1431405 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 181819 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 1394232 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 1 |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 12500 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 17500 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 1427 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 1427 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 47823 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 50677 |
| IRS990/Desc | 0 | PATIENT SUPPORT COORDINATE SUPPORT GROUPS AND PROVIDE TELEPHONE SUPPORT FOR FAMILIES AND CAREGIVERS. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DoingBusinessAsName/BusinessNameLine1Txt | 0 | THE ALS ASSOCIATION MASSACHUSETTS CHAPTER |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 206640 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 226262 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 1 |
| IRS990/EmployeeCnt | 0 | 15 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 202182 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 2580 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 10320 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 12900 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 25800 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 549 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 2196 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 2745 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 5490 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 812 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | TARA DANDREA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | TYLER KOWALSKI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | BRAD PRENNEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | KIMSU MARDER RN CCM |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | KELLEY WARNER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | DOREEN HO MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | KRIS MOUSSETTE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | GARY SCHEID |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | ROBERT BLOOMBERG |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | STEVE KOWALSKI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | DEBRA BULKELEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | JOHN E HEDSTROM JD |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 140000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | DIRECTOR (UNTIL 12/1/20) |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR (CHAIR UNTIL 12/1/20) |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | CHAIR (VICE CHAIR UNTIL 12/1/20) |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | SECRETARY (DIR. UNTIL 12/1/20) |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | VICE CHAIR (SEC. UNTIL 12/1/20) |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | EXECUTIVE DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 1999 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 579567 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 28070 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 28070 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 10 |
| IRS990/GovernmentGrantsAmt | 0 | 175000 |
| IRS990/GrantAmt | 0 | 20111 |
| IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt | 0 | 20111 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 20111 |
| IRS990/GrantsToIndividualsInd | 0 | 1 |
| IRS990/GrantsToOrganizationsInd | 0 | 0 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 1422302 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 10 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 5412 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 5225 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 30415 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 41052 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 711 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 713 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 3915 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 5339 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 25440 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 25440 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 1019636 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 1102851 |
| IRS990/IRPDocumentCnt | 0 | 6 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 257655 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 139142 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 163316 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 420971 |
| IRS990/LegalDomicileStateCd | 0 | MA |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 1 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | TO PROMOTE AWARENESS OF, SUPPORT PATIENTS, FAMILIES AND CAREGIVERS AFFECTED BY, AND RAISE FUNDS FOR, RESEARCH OF AMYOTROPHIC LATERAL SCLEROSIS. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1893953 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1908045 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 68765 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 1687313 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 1681783 |
| IRS990/NoncashContributionsAmt | 0 | 72000 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 9346 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 9024 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 52532 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 70902 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 1352 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 1450 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 11770 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 14572 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | -17500 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 4961 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 5152 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 26820 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 36933 |
| IRS990/OtherExpensesGrp/Desc | 0 | FAMILY ASSISTANCE |
| IRS990/OtherExpensesGrp/Desc | 1 | FEES |
| IRS990/OtherExpensesGrp/Desc | 2 | REPAIRS AND MAINTENANCE |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 9825 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 1391 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 235 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 2807 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 1495 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 227 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 102967 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 7789 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 1323 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 115599 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 10675 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 1785 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 92177 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 232090 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 78394 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 70081 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 495499 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 643974 |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PaymentsToAffiliatesGrp/FundraisingAmt | 0 | 24800 |
| IRS990/PaymentsToAffiliatesGrp/ManagementAndGeneralAmt | 0 | 10477 |
| IRS990/PaymentsToAffiliatesGrp/ProgramServicesAmt | 0 | 123349 |
| IRS990/PaymentsToAffiliatesGrp/TotalAmt | 0 | 158626 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 10555 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 11119 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 56101 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 77775 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 11354 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 13839 |
| IRS990/PrincipalOfficerNm | 0 | JOHN E HEDSTROM JD |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | EDUCATION AND AWARENESS PROVIDE NEWSLETTERS TO HUNDREDS OF FAMILIES OF ALS PATIENTS, HOLD SEMINARS ANNUALLY WITH KEY RESEARCHERS AND ALS PATIENT FAMILIES. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 209868 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | THE CHAPTER'S PUBLIC POLICY AND ADVOCACY WORK PROMOTES ALS AWARENESS AND EDUCATION AMONG ELECTED AND APPOINTED OFFICIALS, HEALTHCARE PROFESSIONALS AND GENERAL PUBLIC AT THE FEDERAL AND STATE LEVEL. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 199445 |
| IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt | 0 | 462931 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 2173903 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 27869 |
| IRS990/PYInvestmentIncomeAmt | 0 | 34939 |
| IRS990/PYOtherExpensesAmt | 0 | 1133278 |
| IRS990/PYOtherRevenueAmt | 0 | 0 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 186681 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 861014 |
| IRS990/PYTotalExpensesAmt | 0 | 2022161 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 2208842 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -37173 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 1 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 1 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 876200 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 894287 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 1368792 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 2173903 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 2046418 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 2252640 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1378091 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 9219844 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 25440 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 34939 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 25238 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 18075 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 14022 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 117714 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.98740 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.98880 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 9219844 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 1368792 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 2173903 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 2046418 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 2252640 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1378091 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 9219844 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 9337558 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/EquipmentGrp/BookValueAmt | 0 | 159174 |
| IRS990ScheduleD/EquipmentGrp/DepreciationAmt | 0 | 257277 |
| IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt | 0 | 416451 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 28070 |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 1431405 |
| IRS990ScheduleD/FootnoteTextInd | 0 | X |
| IRS990ScheduleD/LeaseholdImprovementsGrp/BookValueAmt | 0 | 4142 |
| IRS990ScheduleD/LeaseholdImprovementsGrp/DepreciationAmt | 0 | 378 |
| IRS990ScheduleD/LeaseholdImprovementsGrp/OtherCostOrOtherBasisAmt | 0 | 4520 |
| IRS990ScheduleD/NetUnrealizedGainsInvstAmt | 0 | 68765 |
| IRS990ScheduleD/OtherExpensesIncludedAmt | 0 | 28070 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 0 | 37520 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 1 | 28200 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 2 | 166370 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 0 | NOTE PAYABLE TO NATIONAL |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 1 | AMOUNTS DUE TO NATIONAL |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 2 | REFUNDABLE ADVANCES |
| IRS990ScheduleD/OtherRevenueAmt | 0 | -17500 |
| IRS990ScheduleD/OtherRevenuesNotIncludedAmt | 0 | -28070 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 51265 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | -28070 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 1422302 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | THE ORGANIZATION IS A NONPROFIT CORPORATION AS DESCRIBED IN SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND IS EXEMPT FROM FEDERAL AND STATE INCOME TAXES ON TRADE OR BUSINESS PROFITS GENERATED BY ACTIVITIES RELATED TO THE ORGANIZATION'S EXEMPT FUNCTION. THE ORGANIZATION MAY BE SUBJECT TO FEDERAL AND STATE INCOME TAXES FOR PROFITS GENERATED FROM TRADE OR BUSINESS ACTIVITIES UNRELATED TO THE ORGANIZATION'S EXEMPT FUNCTION. AS OF JANUARY 31, 2021, MANAGEMENT BELIEVES THAT THE ORGANIZATION HAS NOT GENERATED ANY UNRELATED BUSINESS TAXABLE INCOME. THE ORGANIZATION ASSESSES THE RECORDING OF UNCERTAIN TAX POSITIONS BY EVALUATING THE MINIMUM RECOGNITION THRESHOLD AND MEASUREMENT REQUIREMENTS A TAX POSITION MUST MEET BEFORE BEING RECOGNIZED AS A BENEFIT IN THE FINANCIAL STATEMENTS. THE ORGANIZATION'S POLICY IS TO RECOGNIZE INTEREST AND PENALTIES ACCRUED ON ANY UNCERTAIN TAX POSITIONS AS A COMPONENT OF INCOME TAX EXPENSE, IF ANY, IN ITS STATEMENTS OF ACTIVITIES. |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 1 | LOSS ON DISPOSAL OF PROPERTY AND EQUIPMENT -17,500. |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 2 | DIRECT FUNDRAISING EXPENSES -28,070. |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 3 | DIRECT FUNDRAISING EXPENSES 28,070. |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART X, LINE 2: |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | PART XI, LINE 2D - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | PART XI, LINE 4B - OTHER ADJUSTMENTS: |
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Displayed year
2021 • Form 990Detailed filing. Detailed filing data is available for this year.