Civic Intelligence

Amyotrophic Lateral Sclerosis Assn

EIN 04-3085718 • 501(c)3 • Westborough, MA

View Organization Page

Profile

To promote awareness of, support patients, families and caregivers affected by, and raise funds for, research of amyotrophic lateral sclerosis.

200 Friberg Pkwy 1000Westborough, MA 01581

www.als-ma.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

57th percentile

0.11x

Higher debt load relative to assets than 57% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2022

Liabilities / Revenue

59th percentile

0.13x

Higher debt load relative to revenue than 59% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2022

Net Margin

84th percentile

36%

Higher net margin than 84% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2022

Top Officer Pay

80th percentile

$140,451

Higher top officer pay than 80% of similar nonprofits.

Top officer pay equals 5.0% of source-year revenue.

501(c)3 • $1M-$5M nonprofits • Source year 2022

Asset Growth

90th percentile

49%

Faster asset growth than 90% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Revenue Growth

91st percentile

101%

Faster revenue growth than 91% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets57th percentile

Assets

Up

$3,303,462

Up $1,086,304 (+49%) from 2021

Liabilities

Up

$351,482

Up $42,369 (+14%) from 2021

Net Assets

Up

$2,951,980

Up $1,043,935 (+55%) from 2021

Operations
Liabilities / Revenue59th percentileNet Margin84th percentile

Revenue

Up

$2,795,826

Up $1,401,594 (+101%) from 2021

Expenses

Up

$1,790,411

Up $359,006 (+25%) from 2021

Net Income

Up

$1,005,415

Up $1,042,588 (+2805%) from 2021

Trend Graphs

Balance Sheet Trend

Asset Growth90th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$4.0M$2.0M$0-$2.0MAssets 2010: $159,477Liabilities 2010: $695,014Net Assets 2010: -$535,5372010Assets 2011: $123,254Liabilities 2011: $837,832Net Assets 2011: -$714,5782011Assets 2012: $205,844Liabilities 2012: $967,594Net Assets 2012: -$761,7502012Assets 2013: $233,995Liabilities 2013: $363,925Net Assets 2013: -$129,9302013Assets 2014: $315,954Liabilities 2014: $386,793Net Assets 2014: -$70,8392014Assets 2015: $1,273,334Liabilities 2015: $320,939Net Assets 2015: $952,3952015Assets 2016: $1,412,004Liabilities 2016: $307,436Net Assets 2016: $1,104,5682016Assets 2017: $1,485,634Liabilities 2017: $236,820Net Assets 2017: $1,248,8142017Assets 2018: $1,695,768Liabilities 2018: $244,813Net Assets 2018: $1,450,9552018Assets 2019: $1,854,720Liabilities 2019: $207,685Net Assets 2019: $1,647,0352019Assets 2020: $2,088,817Liabilities 2020: $194,864Net Assets 2020: $1,893,9532020Assets 2021: $2,217,158Liabilities 2021: $309,113Net Assets 2021: $1,908,0452021Assets 2022: $3,303,462Liabilities 2022: $351,482Net Assets 2022: $2,951,9802022

Highlighted filing

2022

Assets$3,303,462
Liabilities$351,482
Net Assets$2,951,980
Open 2022 Filing

Operations Trend

Revenue Growth91st percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MExpenses 2010: $1,620,4862010Expenses 2011: $1,432,1782011Expenses 2012: $853,6342012Revenue 2013: $824,729Expenses 2013: $776,719Net Income 2013: $48,0102013Revenue 2014: $942,086Expenses 2014: $883,215Net Income 2014: $58,8712014Revenue 2015: $2,852,571Expenses 2015: $1,826,606Net Income 2015: $1,025,9652015Revenue 2016: $1,244,665Expenses 2016: $1,048,868Net Income 2016: $195,7972016Revenue 2017: $1,392,113Expenses 2017: $1,290,654Net Income 2017: $101,4592017Revenue 2018: $2,270,715Expenses 2018: $2,151,080Net Income 2018: $119,6352018Revenue 2019: $2,071,656Expenses 2019: $1,824,081Net Income 2019: $247,5752019Revenue 2020: $2,208,842Expenses 2020: $2,022,161Net Income 2020: $186,6812020Revenue 2021: $1,394,232Expenses 2021: $1,431,405Net Income 2021: -$37,1732021Revenue 2022: $2,795,826Expenses 2022: $1,790,411Net Income 2022: $1,005,4152022

Highlighted filing

2022

Revenue$2,795,826
Expenses$1,790,411
Net Income$1,005,415
Open 2022 Filing

Filings

Most recent year

2022 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$3,303,462
Liabilities
$351,482
Net assets
$2,951,980
Revenue
$2,795,826
Expenses
$1,790,411
Net income
$1,005,415
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2022Detailed filing. Detailed filing data is available for this year.$3.30$0.35$2.95$2.80$1.79$1.01
2021Detailed filing. Detailed filing data is available for this year.$2.22$0.31$1.91$1.39$1.43$0.04
2020Detailed filing. Detailed filing data is available for this year.$2.09$0.19$1.89$2.21$2.02$0.19
2019Detailed filing. Detailed filing data is available for this year.$1.85$0.21$1.65$2.07$1.82$0.25
2018Detailed filing. Detailed filing data is available for this year.$1.70$0.24$1.45$2.27$2.15$0.12
2017Detailed filing. Detailed filing data is available for this year.$1.49$0.24$1.25$1.39$1.29$0.10
2016Detailed filing. Detailed filing data is available for this year.$1.41$0.31$1.10$1.24$1.05$0.20
2015Detailed filing. Detailed filing data is available for this year.$1.27$0.32$0.95$2.85$1.83$1.03
2014Detailed filing. Detailed filing data is available for this year.$0.32$0.39$0.07$0.94$0.88$0.06
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.23$0.36$0.13$0.82$0.78$0.05
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.21$0.97$0.76$0.85
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.12$0.84$0.71$1.43
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.16$0.70$0.54$1.62
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Feb 1, 2021 to Jan 31, 2022
Signed
Dec 15, 2022
Return Version
2021v4.2
Gross Receipts
$2,873,939
Mission and Program Overview

Mission

To promote awareness of, support patients, families and caregivers affected by, and raise funds for, research of amyotrophic lateral sclerosis.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$894,287$1,478,670▲ $584,383
Investments in Publicly Traded Securities$1,102,851$1,169,490▲ $66,639
Land, Buildings, and Equipment, Net$163,316$294,933▲ $131,617
Accounts Receivable$20,919$288,905▲ $267,986
Cash and Non-Interest-Bearing Accounts$21,946$43,650▲ $21,704
Prepaid Expenses and Deferred Charges$13,839$25,970▲ $12,131
Total Assets$2,217,158$3,303,462▲ $1,086,304
Other Assets Total$0$1,844▲ $1,844
Liabilities
Other Liabilities$232,090$203,803▼ $28,287
Accounts Payable and Accrued Expenses$59,523$147,679▲ $88,156
Deferred Revenue$17,500$0▼ $17,500
Total Liabilities$309,113$351,482▲ $42,369
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,681,783$2,951,980▲ $1,270,197
Net Assets With Donor Restrictions$226,262$0▼ $226,262
Total Net Assets Fund Balance$1,908,045$2,951,980▲ $1,043,935
Total Liabilities and Net Assets / Fund Balance$2,217,158$3,303,462▲ $1,086,304

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$204,586$322,030$526,616
Leasehold Improvements$90,347$494$90,841
Compensation and Service Providers
Top Officer Pay80th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
John E Hedstrom JdExecutive DirectorFT$140,000$451$140,451

Board Members and Trustees

NameTitle
Gary ScheidChair
Debra BulkeleyVice Chair
Brad PrenneyDirector
Kimsu Marder Rn CcmDirector
Kris MoussetteDirector
Tyler KowalskiDirector
Doreen Ho MdDirector (until 5/1/2021)
Steve KowalskiSecretary
Kelley WarnerTreasurer (since 6/28/21)
Robert BloombergTreasurer (until 6/28/21)
Revenue and Support

Revenue Composition

Contributions and Grants
$2,758,041
Program Service Revenue
$0
Investment Income
$37,785
Other Revenue
$0
All Other Contributions
$1,452,652
Change in Net Assets
$1,005,415

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table9$92,650Fair Market Value (FMV)
Total Noncash Contributions9$92,650-

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,873,939
Revenue Not Reported on Financial Statements
$-78,113
Revenue Not Reported on Form 990
$38,520
Other Revenue Adjustments
$-78,113
Total Revenue per Audited Statements
$2,912,459
Total Revenue per Form 990
$2,795,826
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$939,485
Other Expenses$824,092
Total Fundraising Expense$250,532
Grants and Similar Amounts Paid$26,834
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$522,463$76,037$84,129$682,629
Payments to Affiliates$245,424$31,461$59,223$336,108
Current Officers, Directors, Trustees, and Key Employees$70,226$42,135$28,090$140,451
Payroll Taxes$55,986$11,154$10,596$77,736
Occupancy$55,130$9,488$10,634$75,252
Depreciation Depletion$62,069$1,400$1,400$64,869
Fees for Services Other$32,608$22,386$6,521$61,515
Information Technology$35,554$6,119$6,858$48,531
Other Employee Benefits$27,949$5,478$5,242$38,669
Fees for Services Accounting$12,900$14,020$2,580$29,500
Grants to Domestic Individuals$26,834--$26,834
Travel$14,277$1,149$1,359$16,785
Office Expenses$9,545$1,182$1,327$12,054
Insurance$3,754$682$727$5,163
Advertising$2,401$325$1,138$3,864
Conferences and Meetings$2,121$308$356$2,785
Other Expenses$1,823$314$352$2,489
Total Functional Expenses$1,305,901$233,978$250,532$1,790,411

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,868,524
Expenses per Audited Statements$1,790,411
Total Expenses per Form 990$1,790,411
Expenses Not Reported on Form 990$78,113
Expenses Not Reported on Financial Statements$0
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$78,113
Fundraising Gross Income$78,113
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Walk to Defeat Als$416,561$50,408$50,408$0
Ride to Defeat Als$241,671$23,097$23,097$0
Total Events$930,863$78,113$78,113$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Amounts Due to National$203,803
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 6

“Members include those with voting power on the board of directors.”

Form 990, Part VI, Section A, Line 7A

“Members govern actions through board meetings. At these meeting significant decisions are discussed, debated and voted upon.”

Form 990, Part VI, Section B, Line 11B

“President and finance manager review along with the board treasurer. The board treasurer makes a formal report to the board of directors fielding all questions and concerns. Board approval is required prior to filing.”

Form 990, Part VI, Section B, Line 12C

“The board of directors review and approve policies on an annual basis.”

Form 990, Part VI, Section B, Line 15

“The organization's board of directors determines the compensation of the executive director. At the current time, there are no other key executives.”

Form 990, Part VI, Section C, Line 19

“The financial statements and conflict of interest policy are available upon request.”

Filing and Contact Details

Filer

Filer Name
Amyotrophic Lateral Sclerosis Assn
EIN
04-3085718
Phone
7812558884
Address
200 FRIBERG PKWY 1000, WESTBOROUGH, MA 01581
Doing Business As
The Als Association Massachusetts Chapter

Signing Officer

Name
Gary Scheid
Title
Chair, Als Assoc Ma Chapter
Phone
7812558884
Signed
2022-12-15
Discuss with paid preparer
Yes

Organization Details

Principal Officer
John E Hedstrom Jd
Formed
1999
Legal Domicile
Ma
Voting Board Members
8
Independent Board Members
8
Employees
13
Volunteers
150

Preparer

Firm
Baker Tilly US Llp
Address
1 HIGHWOOD DRIVE, TEWKSBURY, MA 01876
Preparer
Matthew Kalil CPA Mba
Phone
9785575300
Supplemental Narrative

Additional Explanations

FORM 990; PART XII; LINE 2C

“The organization has a committee that assumes responsibility for oversight of the audit of its finanicial statements and the selection of its independent accountant. This process has not changed during the year.”

Financial Statement Notes

PART X, LINE 2:

“The organization is a nonprofit organization as described in section 501(c)(3) of the internal revenue code and is exempt from federal and state income taxes on trade or business profits generated by activities related to the organization's exempt function. The organization may be subject to federal and state income taxes for profits generated from trade or business activities unrelated to the organization's exempt function. As of january 31, 2022, management believes that the organization has not generated any unrelated business taxable income. The organization assesses the recording of uncertain tax positions by evaluating the minimum recognition threshold and measurement requirements a tax position must meet before being recognized as a benefit in the financial statements. The organization's policy is to recognize interest and penalties accrued on any uncertain tax positions as a component of income tax expense, if any, in its statement of activities. The organization has not recognized any liabilities for uncertain tax positions or unrecognized benefits as of january 31, 2022. The organization does not expect any material change in uncertain tax benefits within the next 12 months.”

PART XI, LINE 4B - OTHER ADJUSTMENTS:

“Direct fundraising expenses -78,113.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Direct fundraising expenses 78,113.”

Raw XML AppendixShowing 400 of 572 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt059523
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt0147679
IRS990/AccountsReceivableGrp/BOYAmt020919
IRS990/AccountsReceivableGrp/EOYAmt0288905
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0TO PROMOTE AWARENESS OF, SUPPORT PATIENTS, FAMILIES AND CAREGIVERS AFFECTED BY, AND RAISE FUNDS FOR, RESEARCH OF AMYOTROPHIC LATERAL SCLEROSIS.
IRS990/AddressChangeInd0X
IRS990/AdvertisingGrp/FundraisingAmt01138
IRS990/AdvertisingGrp/ManagementAndGeneralAmt0325
IRS990/AdvertisingGrp/ProgramServicesAmt02401
IRS990/AdvertisingGrp/TotalAmt03864
IRS990/AllOtherContributionsAmt01452652
IRS990/AnnualDisclosureCoveredPrsnInd01
IRS990/AuditCommitteeInd01
IRS990/BackupWthldComplianceInd01
IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt0THE ORGANIZATION
IRS990/BooksInCareOfDetail/PhoneNum07812558884
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt0200 FRIBERG PKWY 1000
IRS990/BooksInCareOfDetail/USAddress/CityNm0WESTBOROUGH
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0MA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd001581
IRS990/BusinessRlnWith35CtrlEntInd00
IRS990/BusinessRlnWithFamMemInd00
IRS990/BusinessRlnWithOrgMemInd00
IRS990/CashNonInterestBearingGrp/BOYAmt021946
IRS990/CashNonInterestBearingGrp/EOYAmt043650
IRS990/ChangeToOrgDocumentsInd00
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd00
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt028090
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt042135
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt070226
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt0140451
IRS990/CompensationFromOtherSrcsInd00
IRS990/CompensationProcessCEOInd01
IRS990/CompensationProcessOtherInd01
IRS990/ConferencesMeetingsGrp/FundraisingAmt0356
IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt0308
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt02121
IRS990/ConferencesMeetingsGrp/TotalAmt02785
IRS990/ConflictOfInterestPolicyInd01
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/ContriRptFundraisingEventAmt0852750
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt02758041
IRS990/CYGrantsAndSimilarPaidAmt026834
IRS990/CYInvestmentIncomeAmt037785
IRS990/CYOtherExpensesAmt0824092
IRS990/CYOtherRevenueAmt00
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt01005415
IRS990/CYSalariesCompEmpBnftPaidAmt0939485
IRS990/CYTotalExpensesAmt01790411
IRS990/CYTotalFundraisingExpenseAmt0250532
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt02795826
IRS990/DecisionsSubjectToApprovaInd00
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd01
IRS990/DeferredRevenueGrp/BOYAmt017500
IRS990/DeferredRevenueGrp/EOYAmt00
IRS990/DelegationOfMgmtDutiesInd00
IRS990/DepreciationDepletionGrp/FundraisingAmt01400
IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt01400
IRS990/DepreciationDepletionGrp/ProgramServicesAmt062069
IRS990/DepreciationDepletionGrp/TotalAmt064869
IRS990/Desc0PATIENT SUPPORT COORDINATE SUPPORT GROUPS AND PROVIDE TELEPHONE SUPPORT FOR FAMILIES AND CAREGIVERS.
IRS990/DescribedInSection501c3Ind01
IRS990/DisregardedEntityInd00
IRS990/DocumentRetentionPolicyInd01
IRS990/DoingBusinessAsName/BusinessNameLine1Txt0THE ALS ASSOCIATION MASSACHUSETTS CHAPTER
IRS990/DonorAdvisedFundInd00
IRS990/DonorRestrictionNetAssetsGrp/BOYAmt0226262
IRS990/DonorRestrictionNetAssetsGrp/EOYAmt00
IRS990/DonorRstrOrQuasiEndowmentsInd00
IRS990/ElectionOfBoardMembersInd01
IRS990/EmployeeCnt013
IRS990/EmploymentTaxReturnsFiledInd01
IRS990/EngagedInExcessBenefitTransInd00
IRS990/ExpenseAmt0206050
IRS990/FamilyOrBusinessRlnInd00
IRS990/FederalGrantAuditRequiredInd00
IRS990/FeesForServicesAccountingGrp/FundraisingAmt02580
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt014020
IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt012900
IRS990/FeesForServicesAccountingGrp/TotalAmt029500
IRS990/FeesForServicesOtherGrp/FundraisingAmt06521
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt022386
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt032608
IRS990/FeesForServicesOtherGrp/TotalAmt061515
IRS990/ForeignActivitiesInd00
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignOfficeInd00
IRS990/Form8282PropertyDisposedOfInd00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt01.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt11.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt21.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt31.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt41.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt51.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt61.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt71.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt81.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt91.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1040.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OfficerInd5X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10451
IRS990/Form990PartVIISectionAGrp/PersonNm0TYLER KOWALSKI
IRS990/Form990PartVIISectionAGrp/PersonNm1BRAD PRENNEY
IRS990/Form990PartVIISectionAGrp/PersonNm2KIMSU MARDER RN CCM
IRS990/Form990PartVIISectionAGrp/PersonNm3DOREEN HO MD
IRS990/Form990PartVIISectionAGrp/PersonNm4KRIS MOUSSETTE
IRS990/Form990PartVIISectionAGrp/PersonNm5GARY SCHEID
IRS990/Form990PartVIISectionAGrp/PersonNm6ROBERT BLOOMBERG
IRS990/Form990PartVIISectionAGrp/PersonNm7KELLEY WARNER
IRS990/Form990PartVIISectionAGrp/PersonNm8STEVE KOWALSKI
IRS990/Form990PartVIISectionAGrp/PersonNm9DEBRA BULKELEY
IRS990/Form990PartVIISectionAGrp/PersonNm10JOHN E HEDSTROM JD
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10140000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/TitleTxt0DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR (UNTIL 5/1/2021)
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt6TREASURER (UNTIL 6/28/21)
IRS990/Form990PartVIISectionAGrp/TitleTxt7TREASURER (SINCE 6/28/21)
IRS990/Form990PartVIISectionAGrp/TitleTxt8SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt9VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt10EXECUTIVE DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01999
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0852750
IRS990/FundraisingDirectExpensesAmt078113
IRS990/FundraisingGrossIncomeAmt078113
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt08
IRS990/GovernmentGrantsAmt0452639
IRS990/GrantAmt026834
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt026834
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt026834
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt02873939
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt08
IRS990/IndivRcvdGreaterThan100KCnt01
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt06858
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt06119
IRS990/InformationTechnologyGrp/ProgramServicesAmt035554
IRS990/InformationTechnologyGrp/TotalAmt048531
IRS990/InsuranceGrp/FundraisingAmt0727
IRS990/InsuranceGrp/ManagementAndGeneralAmt0682
IRS990/InsuranceGrp/ProgramServicesAmt03754
IRS990/InsuranceGrp/TotalAmt05163
IRS990/InvestmentIncomeGrp/ExclusionAmt037785
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt037785
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt01102851
IRS990/InvestmentsPubTradedSecGrp/EOYAmt01169490
IRS990/IRPDocumentCnt011
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0322524
IRS990/LandBldgEquipBasisNetGrp/BOYAmt0163316
IRS990/LandBldgEquipBasisNetGrp/EOYAmt0294933
IRS990/LandBldgEquipCostOrOtherBssAmt0617457
IRS990/LegalDomicileStateCd0MA
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd01
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO PROMOTE AWARENESS OF, SUPPORT PATIENTS, FAMILIES AND CAREGIVERS AFFECTED BY, AND RAISE FUNDS FOR, RESEARCH OF AMYOTROPHIC LATERAL SCLEROSIS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt01908045
IRS990/NetAssetsOrFundBalancesEOYAmt02951980
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt038520
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt01681783
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt02951980
IRS990/NoncashContributionsAmt092650
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt010634
IRS990/OccupancyGrp/ManagementAndGeneralAmt09488
IRS990/OccupancyGrp/ProgramServicesAmt055130
IRS990/OccupancyGrp/TotalAmt075252
IRS990/OfficeExpensesGrp/FundraisingAmt01327
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt01182
IRS990/OfficeExpensesGrp/ProgramServicesAmt09545
IRS990/OfficeExpensesGrp/TotalAmt012054
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt00
IRS990/OtherAssetsTotalGrp/EOYAmt01844
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt05242
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt05478
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt027949
IRS990/OtherEmployeeBenefitsGrp/TotalAmt038669
IRS990/OtherExpensesGrp/Desc0FAMILY ASSISTANCE
IRS990/OtherExpensesGrp/Desc1FEES
IRS990/OtherExpensesGrp/Desc2REPAIRS AND MAINTENANCE
IRS990/OtherExpensesGrp/FundraisingAmt027340
IRS990/OtherExpensesGrp/FundraisingAmt12660
IRS990/OtherExpensesGrp/FundraisingAmt2352
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt07811
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt12529
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt2314
IRS990/OtherExpensesGrp/ProgramServicesAmt0111056
IRS990/OtherExpensesGrp/ProgramServicesAmt113781
IRS990/OtherExpensesGrp/ProgramServicesAmt21823
IRS990/OtherExpensesGrp/TotalAmt0146207
IRS990/OtherExpensesGrp/TotalAmt118970
IRS990/OtherExpensesGrp/TotalAmt22489
IRS990/OtherLiabilitiesGrp/BOYAmt0232090
IRS990/OtherLiabilitiesGrp/EOYAmt0203803
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt084129
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt076037
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0522463
IRS990/OtherSalariesAndWagesGrp/TotalAmt0682629
IRS990/PartialLiquidationInd00
IRS990/PaymentsToAffiliatesGrp/FundraisingAmt059223
IRS990/PaymentsToAffiliatesGrp/ManagementAndGeneralAmt031461
IRS990/PaymentsToAffiliatesGrp/ProgramServicesAmt0245424
IRS990/PaymentsToAffiliatesGrp/TotalAmt0336108
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt010596
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt011154
IRS990/PayrollTaxesGrp/ProgramServicesAmt055986
IRS990/PayrollTaxesGrp/TotalAmt077736
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt013839
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt025970
IRS990/PrincipalOfficerNm0JOHN E HEDSTROM JD
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0EDUCATION AND AWARENESS PROVIDE NEWSLETTERS TO HUNDREDS OF FAMILIES OF ALS PATIENTS, HOLD SEMINARS ANNUALLY WITH KEY RESEARCHERS AND ALS PATIENT FAMILIES.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0258452
IRS990/ProgSrvcAccomActy3Grp/Desc0FAMILY CARE PROVIDE NURSING AND OTHER PATIENT SUPPORT TO ALS PATIENTS AND THEIR FAMILIES.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0247428
IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt0593971
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt01368792
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt020111
IRS990/PYInvestmentIncomeAmt025440
IRS990/PYOtherExpensesAmt0511800
IRS990/PYOtherRevenueAmt00
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0-37173
IRS990/PYSalariesCompEmpBnftPaidAmt0899494
IRS990/PYTotalExpensesAmt01431405
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt01394232
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt01005415
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd01
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0894287
IRS990/SavingsAndTempCashInvstGrp/EOYAmt01478670
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt02758186
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt01368792
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt02173903
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt02046418
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt02252640
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt010599939
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt037785
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt025440
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt034939
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt025238
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt018075
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0141477
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.98680
IRS990ScheduleA/PublicSupportPY170Pct00.98740
IRS990ScheduleA/PublicSupportTotal170Amt010599939
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt02758186
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt01368792
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt02173903
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt02046418
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt02252640
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt010599939
IRS990ScheduleA/TotalSupportAmt010741416
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/EquipmentGrp/BookValueAmt0204586
IRS990ScheduleD/EquipmentGrp/DepreciationAmt0322030
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt0526616
IRS990ScheduleD/ExpensesNotReportedAmt078113
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt01790411
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/LeaseholdImprovementsGrp/BookValueAmt090347
IRS990ScheduleD/LeaseholdImprovementsGrp/DepreciationAmt0494
IRS990ScheduleD/LeaseholdImprovementsGrp/OtherCostOrOtherBasisAmt090841
IRS990ScheduleD/NetUnrealizedGainsInvstAmt038520
IRS990ScheduleD/OtherExpensesIncludedAmt078113
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt0203803
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0AMOUNTS DUE TO NATIONAL
IRS990ScheduleD/OtherRevenuesNotIncludedAmt0-78113
IRS990ScheduleD/RevenueNotReportedAmt038520
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt0-78113
IRS990ScheduleD/RevenueSubtotalAmt02873939
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION IS A NONPROFIT ORGANIZATION AS DESCRIBED IN SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND IS EXEMPT FROM FEDERAL AND STATE INCOME TAXES ON TRADE OR BUSINESS PROFITS GENERATED BY ACTIVITIES RELATED TO THE ORGANIZATION'S EXEMPT FUNCTION. THE ORGANIZATION MAY BE SUBJECT TO FEDERAL AND STATE INCOME TAXES FOR PROFITS GENERATED FROM TRADE OR BUSINESS ACTIVITIES UNRELATED TO THE ORGANIZATION'S EXEMPT FUNCTION. AS OF JANUARY 31, 2022, MANAGEMENT BELIEVES THAT THE ORGANIZATION HAS NOT GENERATED ANY UNRELATED BUSINESS TAXABLE INCOME. THE ORGANIZATION ASSESSES THE RECORDING OF UNCERTAIN TAX POSITIONS BY EVALUATING THE MINIMUM RECOGNITION THRESHOLD AND MEASUREMENT REQUIREMENTS A TAX POSITION MUST MEET BEFORE BEING RECOGNIZED AS A BENEFIT IN THE FINANCIAL STATEMENTS. THE ORGANIZATION'S POLICY IS TO RECOGNIZE INTEREST AND PENALTIES ACCRUED ON ANY UNCERTAIN TAX POSITIONS AS A COMPONENT OF INCOME TAX EXPENSE, IF ANY, IN ITS STATEMENT OF ACTIVITIES. THE ORGANIZATION HAS NOT RECOGNIZED ANY LIABILITIES FOR UNCERTAIN TAX POSITIONS OR UNRECOGNIZED BENEFITS AS OF JANUARY 31, 2022. THE ORGANIZATION DOES NOT EXPECT ANY MATERIAL CHANGE IN UNCERTAIN TAX BENEFITS WITHIN THE NEXT 12 MONTHS.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1DIRECT FUNDRAISING EXPENSES -78,113.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt2DIRECT FUNDRAISING EXPENSES 78,113.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART X, LINE 2:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1PART XI, LINE 4B - OTHER ADJUSTMENTS:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc2PART XII, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/TotalBookValueLandBuildingsAmt0294933
IRS990ScheduleD/TotalExpensesPerForm990Amt01790411
IRS990ScheduleD/TotalLiabilityAmt0203803
IRS990ScheduleD/TotalRevenuePerForm990Amt02795826
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt02912459
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt01868524
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt0852750
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt0366153
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt0218574
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriOtherEventsAmt0268023

Document Assets

No mirrored PDF or thumbnail assets are attached yet.