Liabilities / Assets
55th percentile
Higher debt load relative to assets than 55% of similar nonprofits.
990 • Fiscal year 2019 • EIN 04-3085718
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
55th percentile
Higher debt load relative to assets than 55% of similar nonprofits.
Liabilities / Revenue
53rd percentile
Higher debt load relative to revenue than 53% of similar nonprofits.
Net Margin
68th percentile
Higher net margin than 68% of similar nonprofits.
Top Officer Pay
81st percentile
Higher top officer pay than 81% of similar nonprofits.
Top officer pay equals 6.7% of source-year revenue.
Asset Growth
65th percentile
Faster asset growth than 65% of similar nonprofits.
Revenue Growth
24th percentile
Faster revenue growth than 24% of similar nonprofits.
Assets
Up$1,854,720
Up $158,952 (+9.4%) from 2018
Net Assets
Up$1,647,035
Up $196,080 (+14%) from 2018
Liabilities
Down$207,685
Down $37,128 (-15%) from 2018
Revenue
Down$2,071,656
Down $199,059 (-8.8%) from 2018
Expenses
Down$1,824,081
Down $326,999 (-15%) from 2018
Net Income
Up$247,575
Up $127,940 (+107%) from 2018
To promote awareness of, support patients, families and caregivers affected by, and raise funds for, research of amyotrophic lateral sclerosis.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $906,462 | $932,502 | ▲ $26,040 |
| Savings and Temporary Cash Investments | $582,846 | $785,128 | ▲ $202,282 |
| Land, Buildings, and Equipment, Net | $88,726 | $84,832 | ▼ $3,894 |
| Cash and Non-Interest-Bearing Accounts | $19,454 | $22,082 | ▲ $2,628 |
| Accounts Receivable | $82,694 | $16,741 | ▼ $65,953 |
| Prepaid Expenses and Deferred Charges | $15,586 | $13,435 | ▼ $2,151 |
| Total Assets | $1,695,768 | $1,854,720 | ▲ $158,952 |
| Liabilities | |||
| Other Liabilities | $157,797 | $156,815 | ▼ $982 |
| Accounts Payable and Accrued Expenses | $87,016 | $50,870 | ▼ $36,146 |
| Total Liabilities | $244,813 | $207,685 | ▼ $37,128 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $1,314,593 | $1,487,304 | ▲ $172,711 |
| Temporarily Rstr Net Assets | $136,362 | $159,731 | ▲ $23,369 |
| Total Net Assets Fund Balance | $1,450,955 | $1,647,035 | ▲ $196,080 |
| Total Liabilities and Net Assets / Fund Balance | $1,695,768 | $1,854,720 | ▲ $158,952 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $80,458 | $181,994 | $262,452 |
| Leasehold Improvements | $4,374 | $146 | $4,520 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Lynn Aaronson | Executive Director | FT | $127,940 | $11,796 | $139,736 |
| Name | Title |
|---|---|
| Kris Moussette | Chairman |
| Michael Miller | Immediate Past Chairman |
| Gary Scheid | Vice Chairman |
| Brody Gilbert | Director |
| Debra Bulkeley | Director |
| Doreen Ho | Director |
| Jeffrey Anderson | Director |
| Kelley Warner | Director |
| Kimsu Marder | Director |
| Stephen Mcdonough | Director |
| Susan Martini | Secretary |
| Robert Bloomberg | Treasurer |
| Contribution Type | Contribution Count | Reported Amount | Valuation Method |
|---|---|---|---|
| Other Non Cash Contri Table | 5 | $33,000 | Fair Market Value (FMV) |
| Drugs and Medical Supplies | 1 | $1,308 | Fair Market Value (FMV) |
| Total Noncash Contributions | 6 | $34,308 | - |
| Line Item | Amount |
|---|---|
| Other Expenses | $1,040,784 |
| Salaries, Compensation, and Employee Benefits | $783,297 |
| Total Fundraising Expense | $192,084 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $401,967 | $54,083 | $72,056 | $528,106 |
| Payments to Affiliates | $214,811 | $12,689 | $22,340 | $249,840 |
| Current Officers, Directors, Trustees, and Key Employees | $73,429 | $44,057 | $29,371 | $146,857 |
| Payroll Taxes | $48,917 | $9,857 | $10,322 | $69,096 |
| Occupancy | $50,481 | $7,591 | $10,248 | $68,320 |
| Information Technology | $39,131 | $5,884 | $7,944 | $52,959 |
| Depreciation Depletion | $40,488 | $1,071 | $1,072 | $42,631 |
| Other Employee Benefits | $30,233 | $3,741 | $5,264 | $39,238 |
| Travel | $25,970 | $3,120 | $3,579 | $32,669 |
| Fees for Services Other | $13,930 | $8,413 | $4,299 | $26,642 |
| Fees for Services Accounting | $11,790 | $7,121 | $3,639 | $22,550 |
| Office Expenses | $13,560 | $1,826 | $2,146 | $17,532 |
| Insurance | $3,383 | $569 | $698 | $4,650 |
| Other Expenses | $3,232 | $486 | $656 | $4,374 |
| Conferences and Meetings | $1,552 | $174 | $231 | $1,957 |
| Advertising | $763 | $139 | $351 | $1,253 |
| Total Functional Expenses | $1,464,800 | $167,197 | $192,084 | $1,824,081 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $1,868,211 |
| Expenses per Audited Statements | $1,824,081 |
| Total Expenses per Form 990 | $1,824,081 |
| Expenses Not Reported on Form 990 | $44,130 |
| Expenses Not Reported on Financial Statements | $0 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $44,130 |
| Fundraising Gross Income | $44,130 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Walk to Defeat Als | $821,110 | $29,628 | $29,628 | $0 |
| Ride to Defeat Als | $257,298 | $12,267 | $12,267 | $0 |
| Total Events | $1,217,320 | $44,130 | $44,130 | $0 |
| Liability | Amount |
|---|---|
| Note Payable to National | $117,512 |
| Amounts Due to National | $39,303 |
“Members include those with voting power on the board of directors.”
“Members govern actions through board meetings. At these meeting significant decisions are discussed, debated and voted upon.”
“President and finance manager review along with the board treasurer. The board treasurer makes a formal report to the board of directors fielding all questions and concerns. Board approval is required prior to filing.”
“The board of directors review and approve policies on an annual basis.”
“The organization's board of directors determines the compensation of the executive director. At the current time, there are no other key executives.”
“The financial statements and conflict of interest policy are available upon request.”
“Loss on disposal of property and equipment -3,400.”
“The organization has a committee that assumes responsibility for oversight of the audit of its finanicial statements and the selection of its independent accountant. This process has not changed during the year.”
“The organization is a nonprofit corporation as described in section 501(c)(3) of the internal revenue code and is exempt from federal and state income taxes on trade or business profits generated by activities related to the organization's exempt function. The organization may be subject to federal and state income taxes for profits generated from trade or business activities unrelated to the organization's exempt function. As of january 31, 2019, management believes that the organization has not generated any unrelated business taxable income. The organization assesses the recording of uncertain tax positions by evaluating the minimum recognition threshold and measurement requirements a tax position must meet before being recognized as a benefit in the financial statements. The organization's policy is to recognize interest and penalties accrued on any uncertain tax positions as a component of income tax expense, if any, in its statements of activities.”
“Loss on disposal of property and equipment -3,400.”
“Direct fundraising expenses -44,130.”
“Direct fundraising expenses 44,130.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 87016 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 50870 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 82694 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 16741 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | TO PROMOTE AWARENESS OF, SUPPORT PATIENTS, FAMILIES AND CAREGIVERS AFFECTED BY, AND RAISE FUNDS FOR, RESEARCH OF AMYOTROPHIC LATERAL SCLEROSIS. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 351 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 139 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 763 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 1253 |
| IRS990/AllOtherContributionsAmt | 0 | 873228 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | THE ORGANIZATION |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 7812558884 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 685 CANTON STREET NO 103 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | NORWOOD |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | MA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 02062 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 19454 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 22082 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 29371 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 44057 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 73429 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 146857 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 231 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 174 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 1552 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 1957 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 1173190 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 2046418 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 25238 |
| IRS990/CYOtherExpensesAmt | 0 | 1040784 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 247575 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 783297 |
| IRS990/CYTotalExpensesAmt | 0 | 1824081 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 192084 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 2071656 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 1 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 1072 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 1071 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 40488 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 42631 |
| IRS990/Desc | 0 | PATIENT SUPPORT COORDINATE SUPPORT GROUPS AND PROVIDE TELEPHONE SUPPORT FOR FAMILIES AND CAREGIVERS. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 1 |
| IRS990/EmployeeCnt | 0 | 13 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 568664 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 3639 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 7121 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 11790 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 22550 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 4299 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 8413 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 13930 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 26642 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 11796 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | BRODY GILBERT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | JEFFREY ANDERSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | KIMSU MARDER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | STEPHEN MCDONOUGH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | KELLEY WARNER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | DEBRA BULKELEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | DOREEN HO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | MICHAEL MILLER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | KRIS MOUSSETTE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | GARY SCHEID |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | ROBERT BLOOMBERG |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | SUSAN MARTINI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | LYNN AARONSON |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 127940 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | IMMEDIATE PAST CHAIRMAN |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | CHAIRMAN |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | VICE CHAIRMAN |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | EXECUTIVE DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 1999 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 1173190 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 44130 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 44130 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 12 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 0 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 2115786 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 12 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 7944 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 5884 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 39131 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 52959 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 698 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 569 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 3383 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 4650 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 25238 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 25238 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 906462 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 932502 |
| IRS990/IRPDocumentCnt | 0 | 10 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 182140 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 88726 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 84832 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 266972 |
| IRS990/LegalDomicileStateCd | 0 | MA |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 1 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | TO PROMOTE AWARENESS OF, SUPPORT PATIENTS, FAMILIES AND CAREGIVERS AFFECTED BY, AND RAISE FUNDS FOR, RESEARCH OF AMYOTROPHIC LATERAL SCLEROSIS. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1450955 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1647035 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | -48095 |
| IRS990/NoncashContributionsAmt | 0 | 34308 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 10248 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 7591 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 50481 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 68320 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 2146 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 1826 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 13560 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 17532 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | -3400 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 5264 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 3741 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 30233 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 39238 |
| IRS990/OtherExpensesGrp/Desc | 0 | FAMILY ASSISTANCE |
| IRS990/OtherExpensesGrp/Desc | 1 | FEES |
| IRS990/OtherExpensesGrp/Desc | 2 | REPAIRS AND MAINTENANCE |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 15446 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 2422 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 656 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 4413 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 1963 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 486 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 479228 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 11935 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 3232 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 499087 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 16320 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 4374 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 157797 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 156815 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 72056 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 54083 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 401967 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 528106 |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PaymentsToAffiliatesGrp/FundraisingAmt | 0 | 22340 |
| IRS990/PaymentsToAffiliatesGrp/ManagementAndGeneralAmt | 0 | 12689 |
| IRS990/PaymentsToAffiliatesGrp/ProgramServicesAmt | 0 | 214811 |
| IRS990/PaymentsToAffiliatesGrp/TotalAmt | 0 | 249840 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 10322 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 9857 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 48917 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 69096 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 15586 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 13435 |
| IRS990/PrincipalOfficerNm | 0 | LYNN AARONSON |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | FAMILY CARE PROVIDE NURSING AND OTHER PATIENT SUPPORT TO ALS PATIENTS AND THEIR FAMILIES. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 317210 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | EDUCATION AND AWARENESS PROVIDE NEWSLETTERS TO HUNDREDS OF FAMILIES OF ALS PATIENTS, HOLD SEMINARS ANNUALLY WITH KEY RESEARCHERS AND ALS PATIENT FAMILIES. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 213525 |
| IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt | 0 | 365401 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 2252640 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/PYInvestmentIncomeAmt | 0 | 18075 |
| IRS990/PYOtherExpensesAmt | 0 | 1431266 |
| IRS990/PYOtherRevenueAmt | 0 | 0 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 119635 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 719814 |
| IRS990/PYTotalExpensesAmt | 0 | 2151080 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 2270715 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 247575 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 1 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 1 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 582846 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 785128 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 2046418 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 2252640 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1378091 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1233736 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 2851214 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 9762099 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 25238 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 18075 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 14022 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 10929 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1357 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 69621 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.99290 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.99490 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 9762099 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 2046418 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 2252640 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1378091 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1233736 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 2851214 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 9762099 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 9831720 |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/EquipmentGrp/BookValueAmt | 0 | 80458 |
| IRS990ScheduleD/EquipmentGrp/DepreciationAmt | 0 | 181994 |
| IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt | 0 | 262452 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 44130 |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 1824081 |
| IRS990ScheduleD/FootnoteTextInd | 0 | X |
| IRS990ScheduleD/LeaseholdImprovementsGrp/BookValueAmt | 0 | 4374 |
| IRS990ScheduleD/LeaseholdImprovementsGrp/DepreciationAmt | 0 | 146 |
| IRS990ScheduleD/LeaseholdImprovementsGrp/OtherCostOrOtherBasisAmt | 0 | 4520 |
| IRS990ScheduleD/NetUnrealizedGainsInvstAmt | 0 | -48095 |
| IRS990ScheduleD/OtherExpensesIncludedAmt | 0 | 44130 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 0 | 117512 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 1 | 39303 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 0 | NOTE PAYABLE TO NATIONAL |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 1 | AMOUNTS DUE TO NATIONAL |
| IRS990ScheduleD/OtherRevenueAmt | 0 | -3400 |
| IRS990ScheduleD/OtherRevenuesNotIncludedAmt | 0 | -44130 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | -51495 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | -44130 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 2115786 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | THE ORGANIZATION IS A NONPROFIT CORPORATION AS DESCRIBED IN SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND IS EXEMPT FROM FEDERAL AND STATE INCOME TAXES ON TRADE OR BUSINESS PROFITS GENERATED BY ACTIVITIES RELATED TO THE ORGANIZATION'S EXEMPT FUNCTION. THE ORGANIZATION MAY BE SUBJECT TO FEDERAL AND STATE INCOME TAXES FOR PROFITS GENERATED FROM TRADE OR BUSINESS ACTIVITIES UNRELATED TO THE ORGANIZATION'S EXEMPT FUNCTION. AS OF JANUARY 31, 2019, MANAGEMENT BELIEVES THAT THE ORGANIZATION HAS NOT GENERATED ANY UNRELATED BUSINESS TAXABLE INCOME. THE ORGANIZATION ASSESSES THE RECORDING OF UNCERTAIN TAX POSITIONS BY EVALUATING THE MINIMUM RECOGNITION THRESHOLD AND MEASUREMENT REQUIREMENTS A TAX POSITION MUST MEET BEFORE BEING RECOGNIZED AS A BENEFIT IN THE FINANCIAL STATEMENTS. THE ORGANIZATION'S POLICY IS TO RECOGNIZE INTEREST AND PENALTIES ACCRUED ON ANY UNCERTAIN TAX POSITIONS AS A COMPONENT OF INCOME TAX EXPENSE, IF ANY, IN ITS STATEMENTS OF ACTIVITIES. |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 1 | LOSS ON DISPOSAL OF PROPERTY AND EQUIPMENT -3,400. |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 2 | DIRECT FUNDRAISING EXPENSES -44,130. |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 3 | DIRECT FUNDRAISING EXPENSES 44,130. |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART X, LINE 2: |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | PART XI, LINE 2D - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | PART XI, LINE 4B - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | PART XII, LINE 2D - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 84832 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 1824081 |
| IRS990ScheduleD/TotalLiabilityAmt | 0 | 156815 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 2071656 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 2064291 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 1868211 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 1173190 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 791482 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt | 0 | 245031 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriOtherEventsAmt | 0 | 136677 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 44130 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | WALK TO DEFEAT ALS |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm | 0 | RIDE TO DEFEAT ALS |
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Displayed year
2019 • Form 990Detailed filing. Detailed filing data is available for this year.