Liabilities / Assets
56th percentile
Higher debt load relative to assets than 56% of similar nonprofits.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
56th percentile
Higher debt load relative to assets than 56% of similar nonprofits.
Liabilities / Revenue
51st percentile
Higher debt load relative to revenue than 51% of similar nonprofits.
Net Margin
65th percentile
Higher net margin than 65% of similar nonprofits.
Top Officer Pay
77th percentile
Higher top officer pay than 77% of similar nonprofits.
Top officer pay equals 10.6% of source-year revenue.
Asset Growth
77th percentile
Faster asset growth than 77% of similar nonprofits.
Revenue Growth
74th percentile
Faster revenue growth than 74% of similar nonprofits.
Assets
Up$429,249
Up $74,406 (+21%) from 2018
Net Assets
Up$407,179
Up $73,895 (+22%) from 2018
Liabilities
Up$22,070
Up $511 (+2.4%) from 2018
Revenue
Up$679,385
Up $124,285 (+22%) from 2018
Expenses
Up$605,490
Up $85,653 (+16%) from 2018
Net Income
Up$73,895
Up $38,632 (+110%) from 2018
To inform and support individuals affected by cerebral cavernous malformations while facilitating improved diagnosis and management of the illness through education & support. The organization also promotes research into a cure and prevention of the disease.
The mission of angioma alliance is to inform and support individuals affected by cerebral cavernous malformations while facilitating improved diagnosis and management of the illness through education & support. The organization also promotes research into a cure and prevention of the disease.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $287,381 | $366,750 | ▲ $79,369 |
| Land, Buildings, and Equipment, Net | $9,100 | $35,792 | ▲ $26,692 |
| Accounts Receivable | $58,362 | $24,707 | ▼ $33,655 |
| Prepaid Expenses and Deferred Charges | - | $1,750 | - |
| Total Assets | $354,843 | $429,249 | ▲ $74,406 |
| Other Assets Total | $0 | $250 | ▲ $250 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $10,219 | $13,589 | ▲ $3,370 |
| Other Liabilities | $11,340 | $8,481 | ▼ $2,859 |
| Total Liabilities | $21,559 | $22,070 | ▲ $511 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $320,784 | $407,179 | ▲ $86,395 |
| Temporarily Rstr Net Assets | $12,500 | $0 | ▼ $12,500 |
| Total Net Assets Fund Balance | $333,284 | $407,179 | ▲ $73,895 |
| Total Liabilities and Net Assets / Fund Balance | $354,843 | $429,249 | ▲ $74,406 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Other Land Buildings | $29,492 | $16,041 | $45,533 |
| Equipment | $6,300 | $28,901 | $35,201 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Amy L Akers | Chief Scientific Officer | FT | $72,069 | $72,069 |
| Name | Title |
|---|---|
| Anthony Mayer | Chair |
| Cornelia Lee Psyd | President |
| Isaac Babbs | Director |
| Julia Demichiel | Director |
| Kimberly Foley Md | Director |
| Liz Neuman | Director |
| Rona Gomel Ashe | Director |
| Tim Gallegos | Director |
| Tyler Fairbank | Director |
| Karen Buck | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $342,338 |
| Salaries, Compensation, and Employee Benefits | $263,152 |
| Total Fundraising Expense | $71,891 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $198,816 | - | $44,171 | $242,987 |
| Fees for Services Other | $96,754 | $25,493 | $8,671 | $130,918 |
| Conferences and Meetings | $65,107 | - | - | $65,107 |
| Travel | $16,730 | - | $4,133 | $20,863 |
| Payroll Taxes | $16,738 | - | $3,427 | $20,165 |
| Office Expenses | $13,691 | $1,009 | $3,098 | $17,798 |
| Information Technology | $11,796 | $843 | $1,775 | $14,414 |
| Insurance | $6,022 | $131 | $1,145 | $7,298 |
| Fees for Services Accounting | $3,008 | $1,855 | $2,134 | $6,997 |
| Depreciation Depletion | $6,458 | - | - | $6,458 |
| Fees for Services Legal | $2,111 | $1,314 | $1,506 | $4,931 |
| Other Expenses | $2,017 | $75 | - | $2,092 |
| All Other Expenses | $99 | $59 | $1,831 | $1,989 |
| Occupancy | $960 | - | - | $960 |
| Advertising | $232 | $535 | - | $767 |
| Total Functional Expenses | $502,285 | $31,314 | $71,891 | $605,490 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $653,317 |
| Expenses per Audited Statements | $605,490 |
| Total Expenses per Form 990 | $605,490 |
| Expenses Not Reported on Form 990 | $47,827 |
| Expenses Not Reported on Financial Statements | $0 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $47,827 |
| Fundraising Gross Income | $47,827 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Auction Event | $201,612 | $47,827 | - | $47,827 |
| Total Events | $201,612 | $47,827 | $47,827 | $0 |
| Liability | Amount |
|---|---|
| Prepaid Conference Registration Fees | $8,481 |
“Form 990 is reviewed by the treasurer who reports the results of this review to the board.”
“The organization provides copies of its governing documents and financial statements upon written request without charge.”
“Consulting: program service expenses 96,188. Management and general expenses 25,138. Fundraising expenses 8,255. Total expenses 129,581. Payroll processing: program service expenses 566. Management and general expenses 355. Fundraising expenses 416. Total expenses 1,337.”
“The organization's tax returns are generally subject to examination by authorities for a period of three years from the date they are filed and, consequently, the organization's tax returns filed for the years september 30, 2018, 2017, and 2016 remain subject to examination.”
“Fundraising expenses shown net of revenue on form 990 47,827.”
“Change in temporarily restricted net assets -12,500.”
“Fundraising expenses shown net of revenues on form 990 47,827.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 10219 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 13589 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 58362 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 24707 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | THE MISSION OF ANGIOMA ALLIANCE IS TO INFORM AND SUPPORT INDIVIDUALS AFFECTED BY CEREBRAL CAVERNOUS MALFORMATIONS WHILE FACILITATING IMPROVED DIAGNOSIS AND MANAGEMENT OF THE ILLNESS THROUGH EDUCATION & SUPPORT. THE ORGANIZATION ALSO PROMOTES RESEARCH INTO A CURE AND PREVENTION OF THE DISEASE. |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 535 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 232 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 767 |
| IRS990/AllOtherContributionsAmt | 0 | 503619 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 1831 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 59 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 99 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 1989 |
| IRS990/AuditCommitteeInd | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | THE TREASURER |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 7576811989 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 252 DOWNING DRIVE |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | CHESAPEAKE |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | VA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 23322 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 287381 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 366750 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 0 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 65107 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 65107 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 0 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 153785 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 657404 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 13 |
| IRS990/CYOtherExpensesAmt | 0 | 342338 |
| IRS990/CYOtherRevenueAmt | 0 | 5402 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 16566 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 73895 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 263152 |
| IRS990/CYTotalExpensesAmt | 0 | 605490 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 71891 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 679385 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 6458 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 6458 |
| IRS990/Desc | 0 | FAMILY AND SCIENTIFIC CONFERENCES CONDUCTED TO DISEMINATE INFORMATION ABOUT CCM TO THOSE AFFECTED AND THEIR FAMILIES. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 0 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 4 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 65107 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 2134 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 1855 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 3008 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 6997 |
| IRS990/FeesForServicesLegalGrp/FundraisingAmt | 0 | 1506 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 1314 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 2111 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 4931 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 8671 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 25493 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 96754 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 130918 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | CORNELIA LEE PSYD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | KAREN BUCK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | LIZ NEUMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | TIM GALLEGOS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | ISAAC BABBS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | ANTHONY MAYER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | JULIA DEMICHIEL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | TYLER FAIRBANK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | RONA GOMEL ASHE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | KIMBERLY FOLEY MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | AMY L AKERS |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 72069 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | CHIEF SCIENTIFIC OFFICER |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 0 |
| IRS990/FormationYr | 0 | 2002 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 153785 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 47827 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 47827 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 10 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 0 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 727212 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 0 |
| IRS990/IndependentVotingMemberCnt | 0 | 10 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 1775 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 843 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 11796 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 14414 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 1145 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 131 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 6022 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 7298 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 13 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 13 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 4 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 44942 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 9100 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 35792 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 80734 |
| IRS990/LegalDomicileStateCd | 0 | VA |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | TO INFORM AND SUPPORT INDIVIDUALS AFFECTED BY CEREBRAL CAVERNOUS MALFORMATIONS WHILE FACILITATING IMPROVED DIAGNOSIS AND MANAGEMENT OF THE ILLNESS THROUGH EDUCATION & SUPPORT. THE ORGANIZATION ALSO PROMOTES RESEARCH INTO A CURE AND PREVENTION OF THE DISEASE. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 333284 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 407179 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoncashContributionsAmt | 0 | 19578 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 960 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 960 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 3098 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 1009 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 13691 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 17798 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 0 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 250 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | PATIENT REGISTRY |
| IRS990/OtherExpensesGrp/Desc | 1 | AWARENESS |
| IRS990/OtherExpensesGrp/Desc | 2 | CLINICAL TESTING |
| IRS990/OtherExpensesGrp/Desc | 3 | OTHER EXPENSES |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 75 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 45185 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 13141 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 3420 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 2017 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 45185 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 13141 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 3420 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 2092 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 11340 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 8481 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 900099 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | OTHER INCOME |
| IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt | 0 | 5402 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 5402 |
| IRS990/OtherRevenueTotalAmt | 0 | 5402 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 44171 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 198816 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 242987 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 3427 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 16738 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 20165 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 1750 |
| IRS990/PrincipalOfficerNm | 0 | CORNELIA LEE |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 611710 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | SCIENTIFIC CONFERENCE |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 16566 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 16566 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | CREATION AND MAINTENANCE OF A PATIENT REGISTRY TO ADVOCATE, FACILITATE AND PARTICIPATE IN CCM RESEARCH IN THE PURSUIT OF A GREATER UNDERSTANDING OF THE DISEASE. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 45185 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | PERFORMANCE OF COMMUNITY OUTREACH, PUBLICATION OF NEWSLETTER, AND MAINTENANCE OF WEBSITE TO INCREASE PUBLIC AWARENESS, PROVIDE SUPPORT, AND BUILD A BROAD BASE OF RESEARCH FUNDING RESOURCES. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 391993 |
| IRS990/ProgSrvcAccomActy3Grp/RevenueAmt | 0 | 5402 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 537044 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/PYInvestmentIncomeAmt | 0 | 8 |
| IRS990/PYOtherExpensesAmt | 0 | 288248 |
| IRS990/PYOtherRevenueAmt | 0 | 6068 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 11980 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 35263 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 231589 |
| IRS990/PYTotalExpensesAmt | 0 | 519837 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 555100 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 73895 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 1 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/RevenueAmt | 0 | 16566 |
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| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus1YearAmt | 0 | 15000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus2YearsAmt | 0 | 10000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus3YearsAmt | 0 | 10000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus4YearsAmt | 0 | 15000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 87440 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 503619 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 468967 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 409088 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 263325 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 283521 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 1928520 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt | 0 | 218178 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt | 0 | 145000 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt | 0 | 35997 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt | 0 | 8366 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt | 0 | 8877 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 416418 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.00000 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.71400 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.71690 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 1674364 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearAmt | 0 | 195914 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus1YearAmt | 0 | 118160 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus2YearsAmt | 0 | 125000 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus3YearsAmt | 0 | 75000 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus4YearsAmt | 0 | 156500 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt | 0 | 670574 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearAmt | 0 | 158474 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus1YearAmt | 0 | 103160 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus2YearsAmt | 0 | 115000 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus3YearsAmt | 0 | 65000 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus4YearsAmt | 0 | 141500 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt | 0 | 583134 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 721797 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 613967 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 445085 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 271691 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 292398 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 2344938 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 721797 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 613967 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 445085 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 271691 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 292398 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 2344938 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/EquipmentGrp/BookValueAmt | 0 | 6300 |
| IRS990ScheduleD/EquipmentGrp/DepreciationAmt | 0 | 28901 |
| IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt | 0 | 35201 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 47827 |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 605490 |
| IRS990ScheduleD/FootnoteTextInd | 0 | X |
| IRS990ScheduleD/OtherExpensesIncludedAmt | 0 | 47827 |
| IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt | 0 | 29492 |
| IRS990ScheduleD/OtherLandBuildingsGrp/DepreciationAmt | 0 | 16041 |
| IRS990ScheduleD/OtherLandBuildingsGrp/OtherCostOrOtherBasisAmt | 0 | 45533 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 0 | 8481 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 0 | PREPAID CONFERENCE REGISTRATION FEES |
| IRS990ScheduleD/OtherRevenueAmt | 0 | 47827 |
| IRS990ScheduleD/OtherRevenuesNotIncludedAmt | 0 | -12500 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 47827 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | -12500 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 691885 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | THE ORGANIZATION'S TAX RETURNS ARE GENERALLY SUBJECT TO EXAMINATION BY AUTHORITIES FOR A PERIOD OF THREE YEARS FROM THE DATE THEY ARE FILED AND, CONSEQUENTLY, THE ORGANIZATION'S TAX RETURNS FILED FOR THE YEARS SEPTEMBER 30, 2018, 2017, AND 2016 REMAIN SUBJECT TO EXAMINATION. |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 1 | FUNDRAISING EXPENSES SHOWN NET OF REVENUE ON FORM 990 47,827. |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 2 | CHANGE IN TEMPORARILY RESTRICTED NET ASSETS -12,500. |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 3 | FUNDRAISING EXPENSES SHOWN NET OF REVENUES ON FORM 990 47,827. |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART X, LINE 2: |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | PART XI, LINE 2D - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | PART XI, LINE 4B - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | PART XII, LINE 2D - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 35792 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 605490 |
| IRS990ScheduleD/TotalLiabilityAmt | 0 | 8481 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 679385 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 739712 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 653317 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 153785 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 153785 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 47827 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | AUCTION EVENT |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 201612 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 201612 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 47827 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 47827 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 0 |
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Displayed year
2019 • Form 990Detailed filing. Detailed filing data is available for this year.