Liabilities / Assets
57th percentile
Higher debt load relative to assets than 57% of similar nonprofits.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
57th percentile
Higher debt load relative to assets than 57% of similar nonprofits.
Liabilities / Revenue
54th percentile
Higher debt load relative to revenue than 54% of similar nonprofits.
Net Margin
60th percentile
Higher net margin than 60% of similar nonprofits.
Top Officer Pay
76th percentile
Higher top officer pay than 76% of similar nonprofits.
Top officer pay equals 15.3% of source-year revenue.
Asset Growth
70th percentile
Faster asset growth than 70% of similar nonprofits.
Revenue Growth
85th percentile
Faster revenue growth than 85% of similar nonprofits.
Assets
Up$319,610
Up $36,487 (+13%) from 2016
Net Assets
Up$298,021
Up $34,632 (+13%) from 2016
Liabilities
Up$21,589
Up $1,855 (+9.4%) from 2016
Revenue
Up$454,543
Up $148,493 (+49%) from 2016
Expenses
Up$419,911
Up $99,836 (+31%) from 2016
Net Income
Up$34,632
Up $48,657 (+347%) from 2016
To inform and support individuals affected by cerebral cavernous malformations while facilitating improved diagnosis and management of the illness through education & support. The organization also promotes research into a cure and prevention of the disease.
The mission of angioma alliance is to inform and support individuals affected by cerebral cavernous malformations while facilitating improved diagnosis and management of the illness through education & support. The organization also promotes research into a cure and prevention of the disease.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $283,123 | $245,210 | ▼ $37,913 |
| Land, Buildings, and Equipment, Net | $0 | $11,900 | ▲ $11,900 |
| Prepaid Expenses and Deferred Charges | - | $4,000 | - |
| Total Assets | $283,123 | $319,610 | ▲ $36,487 |
| Other Assets Total | $0 | $58,500 | ▲ $58,500 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $13,984 | $13,739 | ▼ $245 |
| Other Liabilities | $5,750 | $7,850 | ▲ $2,100 |
| Total Liabilities | $19,734 | $21,589 | ▲ $1,855 |
| Net Assets / Fund Balance | |||
| Temporarily Rstr Net Assets | $106,282 | $267,521 | ▲ $161,239 |
| Unrestricted Net Assets | $157,107 | $30,500 | ▼ $126,607 |
| Total Net Assets Fund Balance | $263,389 | $298,021 | ▲ $34,632 |
| Total Liabilities and Net Assets / Fund Balance | $283,123 | $319,610 | ▲ $36,487 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $11,900 | $23,301 | $35,201 |
| Other Land Buildings | $0 | $12,383 | $12,383 |
| Other Assets Org | $58,500 | - | - |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Amy L Akers | Chief Scientific Officer | FT | $69,732 | $69,732 |
| Name | Title |
|---|---|
| Cornelia Lee Psyd | President |
| Anthony Mayer | Director |
| Julie Demichiel | Director |
| Kristen Dahlem | Director |
| Liz Neuman | Director |
| Tim Gallegos | Director |
| Tracy Brown | Director |
| Karen Buck | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $235,284 |
| Salaries, Compensation, and Employee Benefits | $184,627 |
| Total Fundraising Expense | $69,055 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $125,007 | - | $46,273 | $171,280 |
| Fees for Services Other | $50,910 | $14,157 | $7,078 | $72,145 |
| Conferences and Meetings | $47,563 | - | - | $47,563 |
| Occupancy | $14,397 | $3,054 | $5,309 | $22,760 |
| Travel | $10,694 | $2,308 | $2,308 | $15,310 |
| Payroll Taxes | $9,616 | - | $3,731 | $13,347 |
| Fees for Services Accounting | $5,942 | $1,652 | $826 | $8,420 |
| Fees for Services Legal | $3,679 | $1,227 | $1,227 | $6,133 |
| Insurance | $3,407 | $550 | $550 | $4,507 |
| Information Technology | $2,357 | - | $589 | $2,946 |
| Depreciation Depletion | $2,100 | - | - | $2,100 |
| All Other Expenses | $787 | $384 | $819 | $1,990 |
| Other Expenses | $1,035 | $345 | $345 | $1,725 |
| Advertising | $1,475 | - | - | $1,475 |
| Total Functional Expenses | $327,179 | $23,677 | $69,055 | $419,911 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $470,661 |
| Expenses per Audited Statements | $419,910 |
| Total Expenses per Form 990 | $419,910 |
| Expenses Not Reported on Form 990 | $50,751 |
| Expenses Not Reported on Financial Statements | $0 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $50,751 |
| Fundraising Gross Income | $50,751 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Auction Event | $244,295 | $50,751 | - | $50,751 |
| Total Events | $244,295 | $50,751 | $50,751 | $0 |
| Liability | Amount |
|---|---|
| Prepaid Conference Registration Fees | $7,850 |
“Form 990 is reviewed by the treasurer who reports the results of this review to the board.”
“The organization provides copies of its governing documents and financial statements upon written request without charge.”
“Consulting: program service expenses 49,148. Management and general expenses 13,666. Fundraising expenses 6,833. Total expenses 69,647. Payroll processing: program service expenses 686. Management and general expenses 191. Fundraising expenses 95. Total expenses 972. Other: program service expenses 1,076. Management and general expenses 300. Fundraising expenses 150. Total expenses 1,526.”
“The organization's tax returns are generally subject to examination by authorities for a period of three years from the date they are filed and, consequently, the organization's tax returns filed for the years september 30, 2016, 2015, and 2014 remain subject to examination.”
“Fundraising expenses shown net of revenue on form 990 50,751.”
“Change in temporarily restricted net assets -75,783.”
“Fundraising expenses shown net of revenues on form 990 50,751.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 13984 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 13739 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | THE MISSION OF ANGIOMA ALLIANCE IS TO INFORM AND SUPPORT INDIVIDUALS AFFECTED BY CEREBRAL CAVERNOUS MALFORMATIONS WHILE FACILITATING IMPROVED DIAGNOSIS AND MANAGEMENT OF THE ILLNESS THROUGH EDUCATION & SUPPORT. THE ORGANIZATION ALSO PROMOTES RESEARCH INTO A CURE AND PREVENTION OF THE DISEASE. |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 1475 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 1475 |
| IRS990/AllOtherContributionsAmt | 0 | 232548 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 819 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 384 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 787 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 1990 |
| IRS990/AuditCommitteeInd | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | THE TREASURER |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 7576811989 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 252 DOWNING DRIVE |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | CHESAPEAKE |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | VA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 23322 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 283123 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 245210 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 0 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 47563 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 47563 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 0 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 193544 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 426092 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 11 |
| IRS990/CYOtherExpensesAmt | 0 | 235284 |
| IRS990/CYOtherRevenueAmt | 0 | 3628 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 24812 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 34632 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 184627 |
| IRS990/CYTotalExpensesAmt | 0 | 419911 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 69055 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 454543 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 2100 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 2100 |
| IRS990/Desc | 0 | FAMILY AND SCIENTIFIC CONFERENCES CONDUCTED TO DISEMINATE INFORMATION ABOUT CCM TO THOSE AFFECTED AND THEIR FAMILIES. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 0 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 2 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 69055 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 826 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 1652 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 5942 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 8420 |
| IRS990/FeesForServicesLegalGrp/FundraisingAmt | 0 | 1227 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 1227 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 3679 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 6133 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 7078 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 14157 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 50910 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 72145 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | CORNELIA LEE PSYD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | KAREN BUCK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | LIZ NEUMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | TIM GALLEGOS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | TRACY BROWN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | ANTHONY MAYER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | JULIE DEMICHIEL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | KRISTEN DAHLEM |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | AMY L AKERS |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 69732 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | CHIEF SCIENTIFIC OFFICER |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 0 |
| IRS990/FormationYr | 0 | 2002 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 193544 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 50751 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 50751 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 8 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 0 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 505294 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 0 |
| IRS990/IndependentVotingMemberCnt | 0 | 8 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 589 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 2357 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 2946 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 550 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 550 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 3407 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 4507 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 11 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 11 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 0 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 35684 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 0 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 11900 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 47584 |
| IRS990/LegalDomicileStateCd | 0 | VA |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | TO INFORM AND SUPPORT INDIVIDUALS AFFECTED BY CEREBRAL CAVERNOUS MALFORMATIONS WHILE FACILITATING IMPROVED DIAGNOSIS AND MANAGEMENT OF THE ILLNESS THROUGH EDUCATION & SUPPORT. THE ORGANIZATION ALSO PROMOTES RESEARCH INTO A CURE AND PREVENTION OF THE DISEASE. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 263389 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 298021 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoncashContributionsAmt | 0 | 10573 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 5309 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 3054 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 14397 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 22760 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 0 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 58500 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | PATIENT REGISTRY |
| IRS990/OtherExpensesGrp/Desc | 1 | CLINICAL TESTING |
| IRS990/OtherExpensesGrp/Desc | 2 | AWARENESS |
| IRS990/OtherExpensesGrp/Desc | 3 | LICENSES AND PERMITS |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 345 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 345 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 31678 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 14125 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 2407 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 1035 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 31678 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 14125 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 2407 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 1725 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 5750 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 7850 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 900099 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | OTHER INCOME |
| IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt | 0 | 3628 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 3628 |
| IRS990/OtherRevenueTotalAmt | 0 | 3628 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 46273 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 125007 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 171280 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 3731 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 9616 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 13347 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 4000 |
| IRS990/PrincipalOfficerNm | 0 | CORNELIA LEE |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 611710 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | SCIENTIFIC CONFERENCE |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 24812 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 24812 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | CREATION AND MAINTENANCE OF A PATIENT REGISTRY TO ADVOCATE, FACILITATE AND PARTICIPATE IN CCM RESEARCH IN THE PURSUIT OF A GREATER UNDERSTANDING OF THE DISEASE. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 31678 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | PERFORMANCE OF COMMUNITY OUTREACH, PUBLICATION OF NEWSLETTER, AND MAINTENANCE OF WEBSITE TO INCREASE PUBLIC AWARENESS, PROVIDE SUPPORT, AND BUILD A BROAD BASE OF RESEARCH FUNDING RESOURCES. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 226446 |
| IRS990/ProgSrvcAccomActy3Grp/RevenueAmt | 0 | 3628 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 294033 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 22680 |
| IRS990/PYInvestmentIncomeAmt | 0 | 18 |
| IRS990/PYOtherExpensesAmt | 0 | 193045 |
| IRS990/PYOtherRevenueAmt | 0 | 3633 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 8366 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -14025 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 104350 |
| IRS990/PYTotalExpensesAmt | 0 | 320075 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 306050 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 34632 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 1 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 1 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/RevenueAmt | 0 | 24812 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearAmt | 0 | 10000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus1YearAmt | 0 | 10000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus2YearsAmt | 0 | 15000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus3YearsAmt | 0 | 5000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus4YearsAmt | 0 | 25000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 65000 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 232548 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 263325 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 283521 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 144139 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 260405 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 1183938 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt | 0 | 24812 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt | 0 | 8366 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt | 0 | 8877 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt | 0 | 3013 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt | 0 | 3096 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 48164 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.00000 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.50810 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.52040 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 626092 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearAmt | 0 | 125000 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus1YearAmt | 0 | 75000 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus2YearsAmt | 0 | 156500 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus3YearsAmt | 0 | 105760 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus4YearsAmt | 0 | 143750 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt | 0 | 606010 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearAmt | 0 | 115000 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus1YearAmt | 0 | 65000 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus2YearsAmt | 0 | 141500 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus3YearsAmt | 0 | 100760 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus4YearsAmt | 0 | 118750 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt | 0 | 541010 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 257360 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 271691 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 292398 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 147152 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 263501 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 1232102 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 257360 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 271691 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 292398 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 147152 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 263501 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 1232102 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/EquipmentGrp/BookValueAmt | 0 | 11900 |
| IRS990ScheduleD/EquipmentGrp/DepreciationAmt | 0 | 23301 |
| IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt | 0 | 35201 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 50751 |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 419910 |
| IRS990ScheduleD/FootnoteTextInd | 0 | X |
| IRS990ScheduleD/OtherAssetsOrgGrp/BookValueAmt | 0 | 58500 |
| IRS990ScheduleD/OtherAssetsOrgGrp/Desc | 0 | ITEMS HELD FOR AUCTION |
| IRS990ScheduleD/OtherExpensesIncludedAmt | 0 | 50751 |
| IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt | 0 | 0 |
| IRS990ScheduleD/OtherLandBuildingsGrp/DepreciationAmt | 0 | 12383 |
| IRS990ScheduleD/OtherLandBuildingsGrp/OtherCostOrOtherBasisAmt | 0 | 12383 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 0 | 7850 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 0 | PREPAID CONFERENCE REGISTRATION FEES |
| IRS990ScheduleD/OtherRevenueAmt | 0 | 50751 |
| IRS990ScheduleD/OtherRevenuesNotIncludedAmt | 0 | -75783 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 50751 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | -75783 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 530326 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | THE ORGANIZATION'S TAX RETURNS ARE GENERALLY SUBJECT TO EXAMINATION BY AUTHORITIES FOR A PERIOD OF THREE YEARS FROM THE DATE THEY ARE FILED AND, CONSEQUENTLY, THE ORGANIZATION'S TAX RETURNS FILED FOR THE YEARS SEPTEMBER 30, 2016, 2015, AND 2014 REMAIN SUBJECT TO EXAMINATION. |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 1 | FUNDRAISING EXPENSES SHOWN NET OF REVENUE ON FORM 990 50,751. |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 2 | CHANGE IN TEMPORARILY RESTRICTED NET ASSETS -75,783. |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 3 | FUNDRAISING EXPENSES SHOWN NET OF REVENUES ON FORM 990 50,751. |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART X, LINE 2: |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | PART XI, LINE 2D - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | PART XI, LINE 4B - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | PART XII, LINE 2D - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 11900 |
| IRS990ScheduleD/TotalBookValueOtherAssetsAmt | 0 | 58500 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 419910 |
| IRS990ScheduleD/TotalLiabilityAmt | 0 | 7850 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 454543 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 581077 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 470661 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 193544 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 193544 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 50751 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | AUCTION EVENT |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 244295 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 244295 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 50751 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 50751 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 0 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt | 0 | 50751 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt | 0 | 50751 |
| IRS990/ScheduleJRequiredInd | 0 | 0 |
| IRS990/ScheduleORequiredInd | 0 | 1 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | FORM 990 IS REVIEWED BY THE TREASURER WHO REPORTS THE RESULTS OF THIS REVIEW TO THE BOARD. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | THE ORGANIZATION PROVIDES COPIES OF ITS GOVERNING DOCUMENTS AND FINANCIAL STATEMENTS UPON WRITTEN REQUEST WITHOUT CHARGE. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | CONSULTING: PROGRAM SERVICE EXPENSES 49,148. MANAGEMENT AND GENERAL EXPENSES 13,666. FUNDRAISING EXPENSES 6,833. TOTAL EXPENSES 69,647. PAYROLL PROCESSING: PROGRAM SERVICE EXPENSES 686. MANAGEMENT AND GENERAL EXPENSES 191. FUNDRAISING EXPENSES 95. TOTAL EXPENSES 972. OTHER: PROGRAM SERVICE EXPENSES 1,076. MANAGEMENT AND GENERAL EXPENSES 300. FUNDRAISING EXPENSES 150. TOTAL EXPENSES 1,526. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990, PART VI, SECTION B, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PART VI, SECTION C, LINE 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PART IX, LINE 11G |
| IRS990/SchoolOperatingInd | 0 | 0 |
| IRS990/SignificantChangeInd | 0 | 0 |
| IRS990/SignificantNewProgramSrvcInd | 0 | 0 |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 0 | AZ |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 1 | CA |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 2 | CO |
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Displayed year
2017 • Form 990Detailed filing. Detailed filing data is available for this year.