Civic Intelligence

Alstrom Syndrome International

990 • Fiscal year 2016 • EIN 01-0515187

Jan 01, 2016 to Dec 31, 2016 • Filed on Dec 15, 2017

Organization Profilewww.alstrom.org
14 Whitney Farm RdMount Desert, ME 04660

(207) 288-6385

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

56th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Liabilities / Revenue

55th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Net Margin

40th percentile

-0.2%

Higher net margin than 40% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Top Officer Pay

75th percentile

$0

Higher top officer pay than 75% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Asset Growth

43rd percentile

-0.8%

Faster asset growth than 43% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Annualized from 2015 to 2016

Revenue Growth

95th percentile

146%

Faster revenue growth than 95% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Annualized from 2015 to 2016

Balance Sheet
Liabilities / Assets56th percentile

Assets

Down

$118,868

Down $1,007 (-0.8%) from 2015

Net Assets

Down

$118,868

Down $1,007 (-0.8%) from 2015

Liabilities

Flat

$0

Flat from 2015

Revenue And Expenses
Liabilities / Revenue55th percentileNet Margin40th percentile

Revenue

Up

$453,823

Up $269,586 (+146%) from 2015

Expenses

Up

$454,830

Up $256,636 (+129%) from 2015

Net Income

Up

-$1,007

Up $12,950 (+93%) from 2015

Historical Trend

Balance Sheet Trend

Asset Growth43rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$200K$150K$100K$50K$0Assets 2011: $53,757Net Assets 2011: $53,7572011Assets 2012: $123,243Net Assets 2012: $123,2432012Assets 2013: $85,920Liabilities 2013: $0Net Assets 2013: $85,9202013Assets 2014: $133,832Liabilities 2014: $0Net Assets 2014: $133,8322014Assets 2015: $119,875Liabilities 2015: $0Net Assets 2015: $119,8752015Assets 2016: $118,868Liabilities 2016: $0Net Assets 2016: $118,8682016Assets 2017: $86,268Liabilities 2017: $0Net Assets 2017: $86,2682017Assets 2018: $49,620Liabilities 2018: $0Net Assets 2018: $49,6202018Assets 2019: $56,207Liabilities 2019: $0Net Assets 2019: $56,2072019Assets 2020: $50,271Liabilities 2020: $0Net Assets 2020: $50,2712020Assets 2021: $105,964Liabilities 2021: $0Net Assets 2021: $105,9642021Assets 2022: $79,072Liabilities 2022: $0Net Assets 2022: $79,0722022Assets 2023: $98,408Liabilities 2023: $0Net Assets 2023: $98,4082023Assets 2024: $180,966Liabilities 2024: $0Net Assets 2024: $180,9662024

Highlighted filing

2016

Assets$118,868
Liabilities$0
Net Assets$118,868
Open 2016 Filing

Operations Trend

Revenue Growth95th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$600K$400K$200K$0-$200KRevenue 2011: $106,153Expenses 2011: $98,180Net Income 2011: $7,9732011Revenue 2012: $169,671Expenses 2012: $100,185Net Income 2012: $69,4862012Revenue 2013: $245,260Expenses 2013: $282,583Net Income 2013: -$37,3232013Revenue 2014: $161,371Expenses 2014: $113,459Net Income 2014: $47,9122014Revenue 2015: $184,237Expenses 2015: $198,194Net Income 2015: -$13,9572015Revenue 2016: $453,823Expenses 2016: $454,830Net Income 2016: -$1,0072016Revenue 2017: $140,803Expenses 2017: $173,403Net Income 2017: -$32,6002017Revenue 2018: $137,191Expenses 2018: $173,839Net Income 2018: -$36,6482018Revenue 2019: $366,678Expenses 2019: $360,091Net Income 2019: $6,5872019Revenue 2020: $143,848Expenses 2020: $149,784Net Income 2020: -$5,9362020Revenue 2021: $137,391Expenses 2021: $81,698Net Income 2021: $55,6932021Revenue 2022: $167,917Expenses 2022: $194,809Net Income 2022: -$26,8922022Revenue 2023: $253,997Expenses 2023: $234,661Net Income 2023: $19,3362023Revenue 2024: $256,802Expenses 2024: $174,244Net Income 2024: $82,5582024

Highlighted filing

2016

Revenue$453,823
Expenses$454,830
Net Income-$1,007
Open 2016 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2016 to Dec 31, 2016
Signed
Dec 15, 2017
Return Version
2016v3.0
Gross Receipts
$453,823
Mission and Program Overview

Mission

Treat & cure Alstrom Syndrome

To provide support, information, and coordination world-wide to families and professionals in order to treat and cure Alstrom Syndrome.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$102,049$102,107▲ $58
Land, Buildings, and Equipment, Net$9,672$8,780▼ $892
Cash and Non-Interest-Bearing Accounts$8,154$7,981▼ $173
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Prepaid Expenses and Deferred Charges-$0-
Total Assets$119,875$118,868▼ $1,007
Other Assets Total-$0-
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Unrestricted Net Assets$119,875$118,868▼ $1,007
Total Net Assets Fund Balance$119,875$118,868▼ $1,007
Total Liabilities and Net Assets / Fund Balance$119,875$118,868▼ $1,007

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$7,858$8,293$16,151
Other Land Buildings$922$1,061$1,983
Compensation and Service Providers
Top Officer Pay75th percentile

Board Members and Trustees

NameTitle
Phyllis AschenbrennerChair
Brittany M FoorDirector
Cassie JohnstonDirector
Catherine CareyDirector
Clair Francomano MDDirector
Clarissa BronsonJDDirector
Mary SmartDirector
Nevin BengurDirector
Pamela JacksonDirector
Pietro Maffei MdDirector
Sandra M Hubbard-leblancDirector
Selma DuzleniDirector
Tony JacksonDirector
Robert P MarshallExec Director
Jan D MarshallCHR Sci Adv Brd
Revenue and Support

Revenue Composition

Contributions and Grants
$415,327
Program Service Revenue
$38,330
Investment Income
$116
Other Revenue
$50
All Other Contributions
$415,327
Change in Net Assets
$-1,007
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$454,830
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Travel$145,102$25,606-$170,708
Fees for Services Other$12,750$2,250-$15,000
All Other Expenses$11,234$1,983-$13,217
Conferences and Meetings$4,849$856-$5,705
Other Expenses$3,728$658-$4,386
Insurance$2,145$379-$2,524
Depreciation Depletion$2,071$366-$2,437
Fees for Services Accounting$1,190$210-$1,400
Total Functional Expenses$386,604$68,226$0$454,830
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, Et

“Executive Director (non-voting) and Board Member are married.”

Form 990, Part VI, Line 11B: Form 990 Review Process

“Reviewed and approved by Executive Director prior to being filed.”

Form 990, Part VI, Line 15A: Compensation Review & Approval Process - CEO, Top Management

“Subject to approval of the executive committee.”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“Available upon request.”

Filing and Contact Details

Filer

Filer Name
Alstrom Syndrome International
EIN
01-0515187
Phone
2072886385
Address
14 WHITNEY FARM RD, MOUNT DESERT, ME 04660

Signing Officer

Name
Robert P Marshall
Title
Exec Director
Signed
2017-12-15
Discuss with paid preparer
Yes

Organization Details

Formed
1998
Legal Domicile
Me
Voting Board Members
12
Independent Board Members
12
Employees
0

Preparer

Firm
Foster & Company LLP CPAs
Address
78 Main Street PO Box C, Bucksport, ME 04416
Preparer
Thomas R Foster
Phone
2074697364
Supplemental Narrative

Additional Explanations

Form 990, Part III, Line 4D: Other Program Services Description

“OTHER PROGRAM SERVICES 4: ASI created and organizes the first multidisciplinary clinic for Alstrom Syndrom at the Greater Baltimore Medical Center.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ProgSrvcAccomActy3Grp/Desc0Education: ASI produces The Alstrom Syndrome Handbook that covers all topics relative to patients, families, physicians, and research scientists with an interest in Alstrom Syndrome. The Handbook was distributed to 240 families and more than 300 physicians, research scientists, and other professionals.
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Document Assets

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Filings

Displayed year

2016 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$118,868
Liabilities
$0
Net assets
$118,868
Revenue
$453,823
Expenses
$454,830
Net income
-$1,007
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.81$0.00$1.81$2.57$1.74$0.83
2023Detailed filing. Detailed filing data is available for this year.$0.98$0.00$0.98$2.54$2.35$0.19
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.79$0.00$0.79$1.68$1.95$0.27
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.06$0.00$1.06$1.37$0.82$0.56
2020Detailed filing. Detailed filing data is available for this year.$0.50$0.00$0.50$1.44$1.50$0.06
2019Detailed filing. Detailed filing data is available for this year.$0.56$0.00$0.56$3.67$3.60$0.07
2018Detailed filing. Detailed filing data is available for this year.$0.50$0.00$0.50$1.37$1.74$0.37
2017Detailed filing. Detailed filing data is available for this year.$0.86$0.00$0.86$1.41$1.73$0.33
2016Detailed filing. Detailed filing data is available for this year.$1.19$0.00$1.19$4.54$4.55$0.01
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.20$0.00$1.20$1.84$1.98$0.14
2014Detailed filing. Detailed filing data is available for this year.$1.34$0.00$1.34$1.61$1.13$0.48
2013Detailed filing. Detailed filing data is available for this year.$0.86$0.00$0.86$2.45$2.83$0.37
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.23$1.23$1.70$1.00$0.69
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.54$0.54$1.06$0.98$0.08