Civic Intelligence

Alstrom Syndrome International

EIN 01-0515187 • 501(c)3 • Mount Desert, ME

Profile

To provide support, information, and coordination world-wide to families and professionals in order to treat and cure Alstrom Syndrome.

14 Whitney Farm RoadMount Desert, ME 04660-6302

www.alstrom.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

59th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2024

Liabilities / Revenue

61st percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2024

Net Margin

83rd percentile

32%

Higher net margin than 83% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

99th percentile

$71,320

Higher top officer pay than 99% of similar nonprofits.

Top officer pay equals 49.6% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2020

Asset Growth

91st percentile

84%

Faster asset growth than 91% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Revenue Growth

53rd percentile

1.1%

Faster revenue growth than 53% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets59th percentile

Assets

Up

$180,966

Up $82,558 (+84%) from 2023

Liabilities

Flat

$0

Flat from 2023

Net Assets

Up

$180,966

Up $82,558 (+84%) from 2023

Operations
Liabilities / Revenue61st percentileNet Margin83rd percentile

Revenue

Up

$256,802

Up $2,805 (+1.1%) from 2023

Expenses

Down

$174,244

Down $60,417 (-26%) from 2023

Net Income

Up

$82,558

Up $63,222 (+327%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth91st percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$200K$150K$100K$50K$0Assets 2011: $53,757Net Assets 2011: $53,7572011Assets 2012: $123,243Net Assets 2012: $123,2432012Assets 2013: $85,920Liabilities 2013: $0Net Assets 2013: $85,9202013Assets 2014: $133,832Liabilities 2014: $0Net Assets 2014: $133,8322014Assets 2015: $119,875Liabilities 2015: $0Net Assets 2015: $119,8752015Assets 2016: $118,868Liabilities 2016: $0Net Assets 2016: $118,8682016Assets 2017: $86,268Liabilities 2017: $0Net Assets 2017: $86,2682017Assets 2018: $49,620Liabilities 2018: $0Net Assets 2018: $49,6202018Assets 2019: $56,207Liabilities 2019: $0Net Assets 2019: $56,2072019Assets 2020: $50,271Liabilities 2020: $0Net Assets 2020: $50,2712020Assets 2021: $105,964Liabilities 2021: $0Net Assets 2021: $105,9642021Assets 2022: $79,072Liabilities 2022: $0Net Assets 2022: $79,0722022Assets 2023: $98,408Liabilities 2023: $0Net Assets 2023: $98,4082023Assets 2024: $180,966Liabilities 2024: $0Net Assets 2024: $180,9662024

Highlighted filing

2024

Assets$180,966
Liabilities$0
Net Assets$180,966
Open 2024 Filing

Operations Trend

Revenue Growth53rd percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$600K$400K$200K$0-$200KRevenue 2011: $106,153Expenses 2011: $98,180Net Income 2011: $7,9732011Revenue 2012: $169,671Expenses 2012: $100,185Net Income 2012: $69,4862012Revenue 2013: $245,260Expenses 2013: $282,583Net Income 2013: -$37,3232013Revenue 2014: $161,371Expenses 2014: $113,459Net Income 2014: $47,9122014Revenue 2015: $184,237Expenses 2015: $198,194Net Income 2015: -$13,9572015Revenue 2016: $453,823Expenses 2016: $454,830Net Income 2016: -$1,0072016Revenue 2017: $140,803Expenses 2017: $173,403Net Income 2017: -$32,6002017Revenue 2018: $137,191Expenses 2018: $173,839Net Income 2018: -$36,6482018Revenue 2019: $366,678Expenses 2019: $360,091Net Income 2019: $6,5872019Revenue 2020: $143,848Expenses 2020: $149,784Net Income 2020: -$5,9362020Revenue 2021: $137,391Expenses 2021: $81,698Net Income 2021: $55,6932021Revenue 2022: $167,917Expenses 2022: $194,809Net Income 2022: -$26,8922022Revenue 2023: $253,997Expenses 2023: $234,661Net Income 2023: $19,3362023Revenue 2024: $256,802Expenses 2024: $174,244Net Income 2024: $82,5582024

Highlighted filing

2024

Revenue$256,802
Expenses$174,244
Net Income$82,558
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$180,966
Liabilities
$0
Net assets
$180,966
Revenue
$256,802
Expenses
$174,244
Net income
$82,558
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.81$0.00$1.81$2.57$1.74$0.83
2023Detailed filing. Detailed filing data is available for this year.$0.98$0.00$0.98$2.54$2.35$0.19
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.79$0.00$0.79$1.68$1.95$0.27
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.06$0.00$1.06$1.37$0.82$0.56
2020Detailed filing. Detailed filing data is available for this year.$0.50$0.00$0.50$1.44$1.50$0.06
2019Detailed filing. Detailed filing data is available for this year.$0.56$0.00$0.56$3.67$3.60$0.07
2018Detailed filing. Detailed filing data is available for this year.$0.50$0.00$0.50$1.37$1.74$0.37
2017Detailed filing. Detailed filing data is available for this year.$0.86$0.00$0.86$1.41$1.73$0.33
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.19$0.00$1.19$4.54$4.55$0.01
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.20$0.00$1.20$1.84$1.98$0.14
2014Detailed filing. Detailed filing data is available for this year.$1.34$0.00$1.34$1.61$1.13$0.48
2013Detailed filing. Detailed filing data is available for this year.$0.86$0.00$0.86$2.45$2.83$0.37
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.23$1.23$1.70$1.00$0.69
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.54$0.54$1.06$0.98$0.08
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Apr 17, 2025
Return Version
2024v5.1
Gross Receipts
$256,802
Mission and Program Overview

Mission

To provide support, information, and coordination world-wide to families and professionals in order to treat and cure Alstrom Syndrome.

To provide support information and coordination world wide to families & professionals effectively treating Alstrom Syndrome as we work toward a cure

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$98,397$180,966▲ $82,569
Land, Buildings, and Equipment, Net$11--
Total Assets$98,408$180,966▲ $82,558
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$98,408$180,966▲ $82,558
Total Net Assets Fund Balance$98,408$180,966▲ $82,558
Total Liabilities and Net Assets / Fund Balance$98,408$180,966▲ $82,558

Asset Categories

AssetBook ValueDepreciationBasis
Equipment-$17,523$17,523
Compensation and Service Providers
Top Officer Pay99th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Raquel TuckerCEO start 11132024PT$19,545$19,545
Chase A PalmerPresidentPT$18,000$18,000
Gina DenbowChairPT$18,000$18,000
Eric BeresfordCEO end 10242024PT$15,000$15,000

Board Members and Trustees

NameTitle
Jennifer FarleyVice President
Chelsey KostickDirector
Clair FrancomanoDirector
Edward M ConlonDirector
Mary SmartDirector
Michelle MarshallDirector
Pietro MaffeiDirector
Robert MarshallDirector
Sarah DurfeyDirector
Selma DuzleniDirector
Michael J KirbySecretary
Jennifer PotterTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$256,802
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$150,885
Change in Net Assets
$82,558
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$174,244
Total Fundraising Expense$6,390
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Management-$74,270-$74,270
Travel$43,165--$43,165
Information Technology$18,420--$18,420
Advertising$10,087--$10,087
Office Expenses-$4,830-$4,830
Fees for Services Accounting-$1,950-$1,950
Insurance$1,912--$1,912
Other Expenses$988-$6,390$988
Conferences and Meetings$497--$497
All Other Expenses$134--$134
Depreciation Depletion$11--$11
Total Functional Expenses$86,804$81,050$6,390$174,244
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Officer directors etc family relationship Part VI line 2

“Family relation between 2 board members”

Form 990 governing body review Part VI line 11

“Board review before filing”

CEO executive director top management comp Part VI line 15A

“Compensation is determined by approval of the executive committee.”

Other officer or key employee compensation Part VI line 15B

“Compensation is determined by approval of the executive committee.”

Governing documents etc available to public Part VI line 19

“Upon request”

Filing and Contact Details

Filer

Filer Name
Alstrom Syndrome International
EIN
01-0515187
In Care Of
% Raquel Tucker
Phone
8177349721
Address
14 Whitney Farm Road, Mount Desert, ME 04660-6302

Signing Officer

Name
Raquel Tucker
Title
CEO start 11132024
Phone
8177349721
Signed
2025-04-17
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Gina Denbow
Formed
1998
Legal Domicile
Me
Voting Board Members
13
Independent Board Members
11
Employees
0
Volunteers
15

Preparer

Firm
Foster & Company LLC
Address
PO Box C, Bucksport, ME 04416
Preparer
Thomas Foster
Phone
2074697364
Raw XML AppendixShowing 400 of 424 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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ReturnHeader/BuildTS02025-03-06 01:10:19Z
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