Civic Intelligence

Celiac Disease Foundation

990 • Fiscal year 2023 • EIN 95-4310830

Jan 01, 2023 to Dec 31, 2023 • Filed on Jun 24, 2024

Organization ProfileWWW.CELIAC.ORG

View Organization Page

5850 Canoga Ave 4th FloorWoodland Hills, CA 91367

(818) 716-1513

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Balance Sheet

Assets

Flat

$5,959,854

Flat from 2023

Net Assets

Flat

$5,326,064

Flat from 2023

Liabilities

Flat

$633,790

Flat from 2023

Revenue And Expenses

Revenue

Flat

$4,203,443

Flat from 2023

Expenses

Flat

$2,975,235

Flat from 2023

Net Income

Flat

$1,228,208

Flat from 2023

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$8.0M$6.0M$4.0M$2.0M$0Assets 2010: $454,085Liabilities 2010: $52,895Net Assets 2010: $401,1902010Assets 2011: $530,622Liabilities 2011: $45,860Net Assets 2011: $484,7622011Assets 2012: $905,994Liabilities 2012: $47,825Net Assets 2012: $858,1692012Assets 2013: $799,368Liabilities 2013: $125,398Net Assets 2013: $673,9702013Assets 2014: $1,039,245Liabilities 2014: $154,553Net Assets 2014: $884,6922014Assets 2015: $1,091,594Liabilities 2015: $168,076Net Assets 2015: $923,5182015Assets 2016: $1,106,113Liabilities 2016: $214,809Net Assets 2016: $891,3042016Assets 2017: $1,515,625Liabilities 2017: $353,978Net Assets 2017: $1,161,6472017Assets 2018: $2,081,044Liabilities 2018: $218,870Net Assets 2018: $1,862,1742018Assets 2019: $2,326,347Liabilities 2019: $277,663Net Assets 2019: $2,048,6842019Assets 2020: $2,936,533Liabilities 2020: $757,290Net Assets 2020: $2,179,2432020Assets 2021: $4,098,155Liabilities 2021: $915,780Net Assets 2021: $3,182,3752021Assets 2022: $4,468,403Liabilities 2022: $595,648Net Assets 2022: $3,872,7552022Assets 2023: $5,959,854Liabilities 2023: $633,790Net Assets 2023: $5,326,0642023Assets 2023: $5,959,854Liabilities 2023: $633,790Net Assets 2023: $5,326,0642023Assets 2024: $7,559,145Liabilities 2024: $2,000,126Net Assets 2024: $5,559,0192024

Highlighted filing

2023

Assets$5,959,854
Liabilities$633,790
Net Assets$5,326,064
Open 2023 Filing

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2010: $529,3192010Expenses 2011: $570,8422011Expenses 2012: $674,7772012Revenue 2013: $692,193Expenses 2013: $837,892Net Income 2013: -$145,6992013Revenue 2014: $952,962Expenses 2014: $742,240Net Income 2014: $210,7222014Revenue 2015: $993,170Expenses 2015: $954,344Net Income 2015: $38,8262015Revenue 2016: $1,173,287Expenses 2016: $1,225,457Net Income 2016: -$52,1702016Revenue 2017: $1,346,529Expenses 2017: $976,186Net Income 2017: $370,3432017Revenue 2018: $1,762,571Expenses 2018: $1,062,044Net Income 2018: $700,5272018Revenue 2019: $1,652,676Expenses 2019: $1,466,166Net Income 2019: $186,5102019Revenue 2020: $1,888,616Expenses 2020: $1,396,407Net Income 2020: $492,2092020Revenue 2021: $3,008,388Expenses 2021: $2,060,664Net Income 2021: $947,7242021Revenue 2022: $3,118,626Expenses 2022: $2,177,592Net Income 2022: $941,0342022Revenue 2023: $4,203,443Expenses 2023: $2,975,235Net Income 2023: $1,228,2082023Revenue 2023: $4,203,443Expenses 2023: $2,975,235Net Income 2023: $1,228,2082023Revenue 2024: $4,294,353Expenses 2024: $4,336,074Net Income 2024: -$41,7212024

Highlighted filing

2023

Revenue$4,203,443
Expenses$2,975,235
Net Income$1,228,208
Open 2023 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2023 to Dec 31, 2023
Signed
Jun 24, 2024
Return Version
2023v5.1
Gross Receipts
$6,458,284
Mission and Program Overview

Mission

Celiac disease foundation drives diagnosis, treatment, and a cure through research, education and advocacy to improve the quality of life for all people affected by celiac disease and non-celiac wheat/gluten sensitivity.

The celiac disease foundation drives diagnosis, treatment and a cure through research, advocacy and education.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments Other Securities$1,440,044$3,352,031▲ $1,911,987
Cash and Non-Interest-Bearing Accounts$2,025,005$1,086,120▼ $938,885
Savings and Temporary Cash Investments$224,220$529,567▲ $305,347
Pledges and Grants Receivable$149,399$343,759▲ $194,360
Accounts Receivable$337,896$334,779▼ $3,117
Land, Buildings, and Equipment, Net$37,241$212,053▲ $174,812
Intangible Assets$28,219--
Prepaid Expenses and Deferred Charges$54,580$21,336▼ $33,244
Total Assets$4,468,403$5,959,854▲ $1,491,451
Other Assets Total$171,799$80,209▼ $91,590
Liabilities
Deferred Revenue$168,582$335,608▲ $167,026
Accounts Payable and Accrued Expenses$118,186$159,090▲ $40,904
Grants Payable$223,025$139,092▼ $83,933
Other Liabilities$85,855$0▼ $85,855
Total Liabilities$595,648$633,790▲ $38,142
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$3,862,755$5,294,564▲ $1,431,809
Net Assets With Donor Restrictions$10,000$31,500▲ $21,500
Total Net Assets Fund Balance$3,872,755$5,326,064▲ $1,453,309
Total Liabilities and Net Assets / Fund Balance$4,468,403$5,959,854▲ $1,491,451

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$212,053$327,878$539,931
Other Securities$3,349,960--
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Marilyn Grunzweig GellerCEOFT$280,800$16,860$297,660
Deborah CeizlerCDOFT$205,271$3,500$208,771

Board Members and Trustees

NameTitle
Adrienne BenderBoard Chair
Lee JonesDevelopment Committee Chair
John WagnerVice Chair
Bradley HerremaBoard Secretary
Casey GuberMember
Dan GibbonsMember
Jamie ResinMember
Kristin YaremaMember
Warren SaftMember
William ThurstonMember
Yasith WeerasuriyaMember
Jordan RamerTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,927,788
Program Service Revenue
$2,154,436
Investment Income
$125,118
Other Revenue
$-3,899
All Other Contributions
$1,927,788
Change in Net Assets
$1,228,208

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeReported AmountValuation Method
Securities Publicly Traded$126,333Fair Market Value (FMV)
Clothing and Household Goods$56,043Fair Market Value (FMV)
Total Noncash Contributions$182,376-

Audited Revenue Reconciliation

Revenue per Audited Statements
$4,186,944
Revenue Not Reported on Financial Statements
$16,499
Revenue Not Reported on Form 990
$572,857
Total Revenue per Audited Statements
$4,759,801
Total Revenue per Form 990
$4,203,443
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$1,561,157
Other Expenses$1,165,078
Total Fundraising Expense$348,409
Grants and Similar Amounts Paid$249,000
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$624,482-$154,671$779,153
Current Officers, Directors, Trustees, and Key Employees$382,025$69,479$34,567$486,071
Grants to Domestic Orgs$249,000--$249,000
Other Employee Benefits$135,720$9,368$25,518$170,606
Payroll Taxes$74,424$5,137$13,993$93,554
Fees for Services Accounting-$85,868-$85,868
Other Expenses$76,205$1,648$106,204$76,205
Conferences and Meetings$72,490--$72,490
All Other Expenses$70,903--$70,903
Information Technology$60,387--$60,387
Occupancy$36,721$1,597$1,597$39,915
Pension Plan Contributions$25,276$1,745$4,752$31,773
Office Expenses$23,677$1,229$1,029$25,935
Depreciation Depletion$23,218$1,009$1,009$25,236
Fees for Service Investment Mgmnt Fees-$16,499-$16,499
Insurance$6,841$3,695$759$11,295
Fees for Services Legal$6,972--$6,972
Total Functional Expenses$2,429,552$197,274$348,409$2,975,235

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$3,306,492
Total Expenses per Form 990$2,975,235
Expenses per Audited Statements$2,958,736
Expenses Not Reported on Form 990$347,756
Expenses Not Reported on Financial Statements$16,499
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
US DavisDavis, CA-Celiac Disease Research$180,000
Columbia UniversityNew York, NY-Celiac Disease Research$54,000
BOSTON'S CHILDREN'S HOSPITALBoston, MA-Celiac Disease Research$15,000

International Summary

Offices
0
Employees
0
Spending
$0

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
No
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The 990 is reviewed by the ceo and the finance committee before filing.”

Form 990, Part VI, Section B, Line 12

“The foundation has a written conflict of interest policy. Board and staff members sign a conflict of interest policy affirmation and complete a conflict of interest questionnaire.”

Form 990, Part VI, Section B, Line 15

“The board of directors reviews compensation for the ceo annually to determine that the compensation is reasonable.”

Form 990, Part VI, Section C, Line 19

“The 990 is reviewed by the chief executive officer before filing and the finance committee of the board of directors.”

Filing and Contact Details

Filer

Filer Name
Celiac Disease Foundation
EIN
95-4310830
Phone
8187161513
Address
5850 CANOGA AVE 4TH FLOOR, WOODLAND HILLS, CA 91367

Signing Officer

Name
Marilyn Grunzweig Geller
Title
CEO
Phone
8187161513
Signed
2024-06-24
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Marilyn Grunzweig Geller
Formed
1990
Legal Domicile
CA
Voting Board Members
12
Independent Board Members
12
Employees
14
Volunteers
15,582

Preparer

Firm
HENSIEK & CARON CPA'S
Address
650 SIERRA MADRE VILLA 303, PASADENA, CA 91107
Preparer
Susan Caron
Phone
6267929988
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

“The accounting standard on accounting for uncertainty in income taxes provides guidance on how uncertain tax positions should be recognized, measured, presented and disclosed in the financial statements. Examples of tax positions include the tax-exempt status of the foundation and various positions related to the potential sources of unrelated business taxable income (ubit). The foundation believes that it has no uncertain tax positions that impact its financial statements.”

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IRS990/Desc0RESEARCHTHE CELIAC DISEASE FOUNDATION MAKES STRATEGIC INVESTMENTS IN CUTTING-EDGE BIOMEDICAL RESEARCH AND PATIENT ENGAGEMENT AND COLLABORATES WITH RESEARCHERS AND CLINICIANS TO ADVANCE UNDERSTANDING OF AND TREATMENTS FOR CELIAC DISEASE. FROM 2019-2023, THE FOUNDATION HAS FUNDED MORE THAN $1,000,000 IN INTERNATIONAL RESEARCH AWARDS AND MEDICAL CONFERENCE GRANTS TO ADVANCE KNOWLEDGE OF THE CAUSES, PROGRESSION, AND CONSEQUENCES OF CELIAC DISEASE. OUR ANNUAL GLOBAL PRIZES RECOGNIZE EXCEPTIONAL INVESTIGATORS AT ALL STAGES OF THEIR CAREER, FROM A LATER-CAREER PRIZE FOR EXCELLENCE TO YOUNG INVESTIGATOR AND STUDENT RESEARCH AWARDS. THE FOUNDATION HOSTS A RESEARCH WORKING GROUP AND RELIES ON KNOWLEDGE AND GUIDANCE FROM OUR INTERNATIONALLY RENOWNED MEDICAL ADVISORY BOARD. THE FOUNDATION ALSO FOCUSES ON IMPROVING PATIENT ENGAGEMENT IN THE RESEARCH PROCESS. WE CONTINUE TO EXPAND OUR PATIENT REGISTRY, ICURECELIAC, THAT PROVIDES RESEARCHERS WORLDWIDE WITH DATA TO ACCELERATE CELIAC DISEASE RESEARCH. THROUGH IQUALIFYCELIAC-THE LARGEST NORTH AMERICAN DATABASE OF HIGHLY MOTIVATED CELIAC DISEASE PATIENTS-AND IRECRUITCELIAC, WE OFFER PATIENT-DRIVEN CLINICAL TRIAL SCREENING PROGRAMS FOR CELIAC DISEASE, LOWERING THE COST OF PATIENT RECRUITMENT AND SPEEDING ELIGIBLE PATIENTS INTO TRIALS AND STUDIES. THE FOUNDATION ALSO PRODUCES ORIGINAL RESEARCH AND SHARES VIA POSTERS AND ABSTRACTS AT GLOBAL CONFERENCES.ADVOCACYFOR 33 YEARS, THE CELIAC DISEASE FOUNDATION AND OUR NATIONAL NETWORK OF ADVOCATES HAVE WORKED DILIGENTLY FOR FEDERAL RECOGNITION OF CELIAC DISEASE AS ONE OF THE WORLD'S MOST PREVALENT, AND LEAST DIAGNOSED, GENETIC AUTOIMMUNE DISEASES. IN 2021, NIH ISSUED ITS FIRST-EVER NOTICE OF SPECIAL INTEREST TO FUND CELIAC DISEASE RESEARCH. THIS MOMENTOUS STEP WAS THE RESULT OF A FOCUSED ADVOCACY EFFORT THAT BEGAN IN APRIL OF 2019, WHEN CEO MARILYN G. GELLER TESTIFIED BEFORE THE HOUSE APPROPRIATIONS SUBCOMMITTEE, WHICH HELPED SECURE FY2020 APPROPRIATIONS REPORT LANGUAGE DIRECTING THE NIH TO DEVOTE SUFFICIENT, FOCUSED RESEARCH TO THE STUDY OF CELIAC DISEASE FOR THE FIRST TIME EVER. EVERY NIH APPROPRIATIONS BILL SINCE FY2020 HAS INCLUDED LANGUAGE SPECIFIC TO CELIAC DISEASE. THROUGH OUR ROBUST, NATIONAL POLICY ADVOCATE TRAINING PROGRAM, THE FOUNDATION RECRUITS AND TRAINS A NETWORK OF PATIENT ADVOCATES TO ENGAGE AS CIVIC PARTNERS IN THE RESEARCH PROCESS AND TO SPEAK TO MEMBERS OF CONGRESS ON BEHALF OF THE MORE THAN THREE MILLION AMERICANS SUFFERING FROM CELIAC DISEASE. THE CONGRESSIONAL CELIAC DISEASE CAUCUS, CHAIRED BY REP. BETTY MCCOLLUM, WAS CREATED AND LAUNCHED IN 2021 IN RESPONSE TO THE FOUNDATION'S WORK. THE CELIAC DISEASE FOUNDATION WAS A FOUNDING MEMBER OF THE AMERICAN CELIAC DISEASE ALLIANCE (ACDA), WHICH ACHIEVED THE 2014 FDA GLUTEN-FREE LABELING RULE, AND IT IS ACTIVELY INVOLVED WITH THE NATIONAL INSTITUTES OF HEALTH (NIH), THE DEPARTMENT OF DEFENSE (DOD), AND THE FOOD & DRUG ADMINISTRATION (FDA) TO ELEVATE THE VOICE OF THE CELIAC PATIENT COMMUNITY. IN ADDITION TO INCREASING THE LEVEL OF NIH FUNDING FOR THE STUDY OF CELIAC DISEASE AND ENSURING THIS DISEASE CONTINUES TO BE INCLUDED IN THE DOD CONGRESSIONALY DIRECTED MEDICAL RESEARCH PROGRAMS-PEER REVIEWED MEDICAL RESEARCH PROGRAM, OUR POLICY PRIORITIES INCLUDE: IMPROVING FOOD LABELING REQUIREMENTS TO MAKE IT SAFER AND EASIER FOR PEOPLE WITH CELIAC DISEASE TO PURCHASE FOOD ITEMS THROUGH THE FOOD LABELING MODERNIZATION ACT OF 2023, EXTENDING MEDICARE AND MEDICAID COVERAGE FOR MEDICAL NUTRITION THERAPY TO BENEFICIARIES WITH CELIAC DISEASE THROUGH THE MEDICAL NUTRITION THERAPY ACT OF 2023, PROTECTING CHRONIC DISEASE PATIENTS FROM DISCRIMINATION AND BOLSTERING PATIENT PROTECTIONS, ADVOCATING FOR CONTINUED FDA FUNDING FOR ENFORCEMENT OF THE GLUTEN-FREE LABELING RULE, AND PROTECTING AND STRENGTHENING SNAP AND OTHER ANTI-HUNGER PROGRAMS. INTERNATIONALLY, THE FOUNDATION IS AN AFFILIATE MEMBER OF THE ASSOCIATION OF EUROPEAN COELIAC SOCIETIES (AOECS), REPRESENTING NORTH AMERICAN INTERESTS THROUGH WORLDWIDE COL
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IRS990/Form990PartVIISectionAGrp/PersonNm9YASITH WEERASURIYA
IRS990/Form990PartVIISectionAGrp/PersonNm10CASEY GUBER
IRS990/Form990PartVIISectionAGrp/PersonNm11WILLIAM THURSTON
IRS990/Form990PartVIISectionAGrp/PersonNm12MARILYN GRUNZWEIG GELLER
IRS990/Form990PartVIISectionAGrp/PersonNm13DEBORAH CEIZLER
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IRS990/Form990PartVIISectionAGrp/TitleTxt6MEMBER
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IRS990/MissionDesc0THE CELIAC DISEASE FOUNDATION IS A LEADING GLOBAL PATIENT ADVOCACY ORGANIZATION COMMITTED TO ACCELERATING DIAGNOSIS, TREATMENTS, AND A CURE FOR CELIAC DISEASE. OUR MISSION IS TO IMPROVE THE HEALTH AND WELL-BEING OF THE MILLIONS OF INDIVIDUALS AROUND THE WORLD AFFECTED BY THIS GENETIC AUTOIMMUNE DISEASE THROUGH OUR STRATEGIC INVESTMENTS IN RESEARCH, ADVOCACY, AND EDUCATION.
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IRS990/OtherExpensesGrp/FundraisingAmt1106204
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IRS990/OtherExpensesGrp/ProgramServicesAmt1168848
IRS990/OtherExpensesGrp/ProgramServicesAmt276205
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IRS990/OtherExpensesGrp/TotalAmt1174806
IRS990/OtherExpensesGrp/TotalAmt2106204
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IRS990ScheduleD/FootnoteTextInd0X

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Filings

Displayed year

2023 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$5,959,854
Liabilities
$633,790
Net assets
$5,326,064
Revenue
$4,203,443
Expenses
$2,975,235
Net income
$1,228,208
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.56$2.00$5.56$4.29$4.34$0.04
2023Detailed filing. Detailed filing data is available for this year.$5.96$0.63$5.33$4.20$2.98$1.23
2023Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.96$0.63$5.33$4.20$2.98$1.23
2022Detailed filing. Detailed filing data is available for this year.$4.47$0.60$3.87$3.12$2.18$0.94
2021Detailed filing. Detailed filing data is available for this year.$4.10$0.92$3.18$3.01$2.06$0.95
2020Detailed filing. Detailed filing data is available for this year.$2.94$0.76$2.18$1.89$1.40$0.49
2019Detailed filing. Detailed filing data is available for this year.$2.33$0.28$2.05$1.65$1.47$0.19
2018Detailed filing. Detailed filing data is available for this year.$2.08$0.22$1.86$1.76$1.06$0.70
2017Detailed filing. Detailed filing data is available for this year.$1.52$0.35$1.16$1.35$0.98$0.37
2016Detailed filing. Detailed filing data is available for this year.$1.11$0.21$0.89$1.17$1.23$0.05
2015Detailed filing. Detailed filing data is available for this year.$1.09$0.17$0.92$0.99$0.95$0.04
2014Detailed filing. Detailed filing data is available for this year.$1.04$0.15$0.88$0.95$0.74$0.21
2013Detailed filing. Detailed filing data is available for this year.$0.80$0.13$0.67$0.69$0.84$0.15
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.91$0.05$0.86$0.67
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.53$0.05$0.48$0.57
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.45$0.05$0.40$0.53