Amyotrophic Lateral Sclerosis Association

“The following trustees have professional business relationships outside of their duties as board members: hampton graham and glenn stambaugh hampton graham and brian chappell”

“The chapter officers will be assisted by a senior staff role from als national, the territory executive or other such named senior staff role as may from time to time be appointed by als national for the chapter. The territory executive and their staff will manage the day-to-day business and affairs of the chapter. The territory executive shall report the business and activities of the chapter to the board chair on a regular basis.”

“Form 990 is reviewed by the president & ceo and als national. Once any questions or concerns have been addressed, the form is presented to the entire board of directors for vote and approval.”

“Board members and key employees are asked to sign a conflict of interest policy annually. Annual inquiries of board members and the ceo are made by the chairman of the board. Any potential conflicts are reviewed by the executive committee of the board and presented to the full board in executive session. Board members with a conflict on any voting matters recuse themselves from the vote.”

“As part of the merger (see schedule o disclosure related to form 990, part iii, line 3), amyotrophic lateral sclerosis association ("alsa or "national") employed ray carson, former president & ceo of the association, as territory executive, southeast territory. The association did not have any employees for the short year period ending on september 30, 2023.”

“The chapter makes its governing documents, conflict of interest policy, and financial statements available to the public upon request.”

“The organization managed reserve funds raised by the florida chapter prior to its unification date, which occurred on november 1, 2022. Additionally, the organization completed its fy 2022-23 contractual obligations with the state of florida related to the bitner plante als initiative of florida.”

“In october 2022, the association entered into a transfer agreement ("agreement") with amyotrophic lateral sclerosis association ("alsa or "national") for the purpose of transferring specified operations, assets, and liabilities to alsa with the goal of achieving a unified structure and unified delivery of program services. The transfer closing date specified in the agreement was november 1, 2022. The association remained an independent legal entity after the closing date and retained certain cash balances as specified in the agreement. Programming previously carried out by the association prior to the closing date is now conducted by alsa. The agreement also specified that, between the closing date and december 31, 2024, the association and alsa will effectuate a legal merger in which alsa or a wholly owned subsidiary of alsa will be the surviving corporation and the association will cease to exist as a separate legal entity. A legal merger was effectuated september 1, 2023 (see schedule n).”