Liabilities / Assets
68th percentile
Higher debt load relative to assets than 68% of similar nonprofits.
990 • Fiscal year 2017 • EIN 94-3124732
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
68th percentile
Higher debt load relative to assets than 68% of similar nonprofits.
Liabilities / Revenue
65th percentile
Higher debt load relative to revenue than 65% of similar nonprofits.
Net Margin
18th percentile
Higher net margin than 18% of similar nonprofits.
Top Officer Pay
75th percentile
Higher top officer pay than 75% of similar nonprofits.
Top officer pay equals 4.6% of source-year revenue.
Asset Growth
8th percentile
Faster asset growth than 8% of similar nonprofits.
Revenue Growth
19th percentile
Faster revenue growth than 19% of similar nonprofits.
Assets
Down$1,997,871
Down $381,172 (-16%) from 2016
Net Assets
Down$1,463,883
Down $331,161 (-18%) from 2016
Liabilities
Down$533,988
Down $50,011 (-8.6%) from 2016
Revenue
Down$2,489,184
Down $322,519 (-11%) from 2016
Expenses
Down$2,820,345
Down $223,804 (-7.4%) from 2016
Net Income
Down-$331,161
Down $98,715 (-42%) from 2016
Leading the fight to treat and cure als through global research and nationwide advocacy while also empowering people with lou gehrig's disease and their families to live fuller lives by providing them with compassionate care and support.
Improving the lives of people living with als, raising research funds & participating in advocacy.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $1,381,410 | $1,098,236 | ▼ $283,174 |
| Land, Buildings, and Equipment, Net | $653,510 | $593,825 | ▼ $59,685 |
| Pledges and Grants Receivable | $214,315 | $213,969 | ▼ $346 |
| Cash and Non-Interest-Bearing Accounts | $127,130 | $80,271 | ▼ $46,859 |
| Investments in Publicly Traded Securities | $0 | $4,876 | ▲ $4,876 |
| Prepaid Expenses and Deferred Charges | $2,015 | $4,055 | ▲ $2,040 |
| Accounts Receivable | $0 | $2,040 | ▲ $2,040 |
| Total Assets | $2,379,043 | $1,997,871 | ▼ $381,172 |
| Other Assets Total | $663 | $599 | ▼ $64 |
| Liabilities | |||
| Mortgage Notes Payable Secured by Investment Property | $269,873 | $244,259 | ▼ $25,614 |
| Grants Payable | $133,128 | $133,128 | → $0 |
| Other Liabilities | $84,310 | $83,674 | ▼ $636 |
| Accounts Payable and Accrued Expenses | $93,988 | $72,927 | ▼ $21,061 |
| Deferred Revenue | $2,700 | - | - |
| Total Liabilities | $583,999 | $533,988 | ▼ $50,011 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $1,605,590 | $1,369,280 | ▼ $236,310 |
| Temporarily Rstr Net Assets | $189,454 | $94,603 | ▼ $94,851 |
| Total Net Assets Fund Balance | $1,795,044 | $1,463,883 | ▼ $331,161 |
| Total Liabilities and Net Assets / Fund Balance | $2,379,043 | $1,997,871 | ▼ $381,172 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Buildings | $354,522 | $131,087 | $485,609 |
| Equipment | $14,303 | $414,335 | $428,638 |
| Land | $225,000 | - | $225,000 |
| Period | Beginning | Contrib. | Gain/Loss | Other Uses | End |
|---|---|---|---|---|---|
| 2016 | $189,454 | $22,958 | - | - | $94,603 |
| 2015 | $276,068 | $105,560 | - | - | $189,454 |
| 2014 | $195,908 | $212,777 | - | - | $276,068 |
| 2013 | $105,422 | $204,090 | - | - | $195,908 |
| 2012 | $92,841 | $159,402 | - | - | $105,422 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Kimberley Hanna | President/CEO | FT | $105,011 | $9,680 | $114,691 |
| Name | Title |
|---|---|
| Tim Cummings | Chairman |
| Hiram Green | Immediate Past Chairman |
| Sandra Torres | Vice Chairman |
| Dewayne Standifer | Trustee |
| Hampton Graham | Trustee |
| Jo-ann Clynch | Trustee |
| John Cannistra | Trustee |
| Ken Griffin | Trustee |
| Kevin Conn | Trustee |
| Renate Armitage | Trustee |
| Robert Miller | Trustee |
| Warren Nelson | Trustee |
| Wendy Bitner | Trustee |
| Jan Berger | Secretary |
| Glenn Stambaugh | Treasurer |
| Contractor | Services | Location | Compensation |
|---|---|---|---|
| Mayo Clinic In Florida | Clinical Services | 4500 SAN PABLO RD S, Jacksonville, FL 32224-1865 | $234,636 |
| University Of Miami | Clinical Services | 1120 NW 14TH ST STE 1315, Miami, FL 33136 | $212,057 |
| University Medical Services Association | Clinical Services | 12901 BRUCE B DOWNS BLVD MDC 55, Tampa, FL 33612 | $184,636 |
| Contribution Type | Contribution Count | Reported Amount | Valuation Method |
|---|---|---|---|
| Other Non Cash Contri Table | 53 | $49,400 | Fair Market Value |
| Securities Publicly Traded | 1 | $4,876 | Stock Quote |
| Total Noncash Contributions | 54 | $54,276 | - |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $1,287,101 |
| Other Expenses | $1,068,289 |
| Grants and Similar Amounts Paid | $464,955 |
| Total Fundraising Expense | $257,098 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $773,325 | $38,056 | $166,861 | $978,242 |
| Fees for Services Other | $452,732 | $966 | $7,869 | $461,567 |
| Grants to Domestic Orgs | $390,736 | - | - | $390,736 |
| Office Expenses | $282,988 | $12,131 | $13,418 | $308,537 |
| Current Officers, Directors, Trustees, and Key Employees | $92,622 | $11,578 | $11,578 | $115,778 |
| Other Employee Benefits | $79,580 | $3,391 | $16,111 | $99,082 |
| Payroll Taxes | $74,338 | $4,213 | $15,448 | $93,999 |
| Grants to Domestic Individuals | $74,219 | - | - | $74,219 |
| Travel | $63,040 | $283 | $2,436 | $65,759 |
| Depreciation Depletion | $53,229 | $4,620 | $6,428 | $64,277 |
| Conferences and Meetings | $32,493 | $8,852 | $8,954 | $50,299 |
| Information Technology | $37,533 | $4,691 | $5,168 | $47,392 |
| Fees for Services Accounting | $8,301 | $33,204 | - | $41,505 |
| Occupancy | $17,105 | $2,141 | $2,141 | $21,387 |
| Insurance | $4,660 | $582 | $582 | $5,824 |
| Other Expenses | $612 | $77 | $77 | $766 |
| Fees for Services Legal | $140 | $560 | - | $700 |
| All Other Expenses | $223 | $26 | $27 | $276 |
| Total Functional Expenses | $2,037 | $0 | $8,149 | $10,186 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $2,875,269 |
| Expenses per Audited Statements | $2,820,345 |
| Total Expenses per Form 990 | $2,820,345 |
| Expenses Not Reported on Form 990 | $54,924 |
| Expenses Not Reported on Financial Statements | $0 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| The Als Association | Washington, DC | 501(c)(3) | Research | $331,436 |
| Usf Foundation Inc | Tampa, FL | 501(c)(3) | Center Support | $33,100 |
| Mayo Clinic | Jacksonville, FL | 501(c)(3) | Center Support | $13,100 |
| University of Miami | Coral Gables, FL | 501(c)(3) | Center Support | $13,100 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $41,720 |
| Fundraising Gross Income | $5,845 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Walk to Defeat Als Events | $1,332,514 | - | $10,685 | - |
| Ride to Defeat Als Events | $162,883 | $5,845 | $22,544 | $-16,699 |
| Total Events | $1,495,397 | $5,845 | $41,720 | $-35,875 |
| Liability | Amount |
|---|---|
| Due to National Als | $83,674 |
“The 990 is reviewed by the finance committee of the board prior to filing with the irs. The finance committee presents the 990 to the full board. The 990 is then provided to the full board prior to filing.”
“Board members are asked to sign a conflict of interest policy annually. Board members with a conflict on any voting matters recuse themselves from the vote.”
“The process for determining the executive director's salary is as follows: (1) the ed's performance is reviewed by the chairman and a written evaluation is provided to the ed and to the executive committee; (2) salary is determined and documented by using comparable data from nonprofits of similar mission, budget size, and geographic region, including sister als chapters, with allowances made for differences in size and location; (3) the executive committee makes a recommendation to the board for approval; and (4) the board's consideration and approval of the compensation is documented in the boards minutes. The process for determining key employee's salary is as follows: (1) the employee's performance is reviewed by the executive director; and (2) salary is determined and documented by using comparable data from nonprofits of similar mission, budget size, and geographic region.”
“The chapter makes its governing documents, conflict of interest policy, and financial statements available to the public upon request.”
“Clinical services: program service expenses 407,499. Management and general expenses 0. Fundraising expenses 647. Total expenses 408,146. Payroll administration: program service expenses 3,722. Management and general expenses 212. Fundraising expenses 768. Total expenses 4,702. Other professional fees: program service expenses 41,511. Management and general expenses 754. Fundraising expenses 6,454. Total expenses 48,719.”
“The financial statement audit and selection of the independent cpa firm is managed by the executive director and overseen by the finance committee of the board. The cpa firm presents the audit and 990 to the finance committee. The executive director is excused from part of the meeting to allow the process to be fully independent. The finance comittee then presents the audit and 990 to the full board. The cpa firm is chosen from three (3) independent proposals when a change in firm is made.”
“The chapter's temporarily restricted endowments consist of net assets subject to donor imposed stipulations that may or will be met, either by actions of the association and/or passage of time.”
“The amyotrophic lateral sclerosis association and its affiliated chapters, including the association, have been recognized collectively by the internal revenue service as a tax-exempt organization described in section 501(c)(3) of the internal revenue code of 1986. Income earned in furtherance of the association's tax-exempt purpose is exempt from federal and state income taxes. The association, through the collective exemption described previously, is treated as a publicly supported organization, and not as a private foundation. The association has adopted the provisions of asc topic 740 relating to accounting for uncertainty in income taxes and does not believe it has any material income tax exposure relating to uncertain tax positions. The association's income tax filings for periods after the fiscal year ended january 31, 2013 remain subject to examination. Beginning with the year ended january 31, 2009, the association received rent from a tenant, which is considered unrelated taxable business income. For the year ended january 31, 2017, this activity generated income tax expense of $848. For the year ended january 31, 2016, this activity did not generate an income tax liability.”
“Event expenses deducted on part viii, line 8b 41,720. Rental expenses deducted on part viii, line 6b 13,204.”
“NONCASH CONTRIBUTIONS”
“Event expenses deducted on part viii, line 8b 41,720. Rental expenses deducted on part viii, line 6b 13,204.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 93988 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 72927 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 0 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 2040 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | IMPROVING THE LIVES OF PEOPLE LIVING WITH ALS, RAISING RESEARCH FUNDS & PARTICIPATING IN ADVOCACY. |
| IRS990/AllOtherContributionsAmt | 0 | 577394 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 27 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 26 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 223 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 276 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | KIMBERLEY HANNA |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 8136379000 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 3242 PARKSIDE CENTER CIRCLE |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | TAMPA |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | FL |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 33619 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 127130 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 80271 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 3 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 11578 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 11578 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 92622 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 115778 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 8954 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 8852 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 32493 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 50299 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 0 | 234636 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 1 | 212057 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 2 | 184636 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 0 | 4500 SAN PABLO RD S |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 1 | 1120 NW 14TH ST STE 1315 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 2 | 12901 BRUCE B DOWNS BLVD MDC 55 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 0 | JACKSONVILLE |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 1 | MIAMI |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 2 | TAMPA |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 0 | FL |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 1 | FL |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 2 | FL |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 0 | 322241865 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 1 | 33136 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 2 | 33612 |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 0 | MAYO CLINIC IN FLORIDA |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 1 | UNIVERSITY OF MIAMI |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 2 | UNIVERSITY MEDICAL SERVICES ASSOCIATION |
| IRS990/ContractorCompensationGrp/ServicesDesc | 0 | CLINICAL SERVICES |
| IRS990/ContractorCompensationGrp/ServicesDesc | 1 | CLINICAL SERVICES |
| IRS990/ContractorCompensationGrp/ServicesDesc | 2 | CLINICAL SERVICES |
| IRS990/ContriRptFundraisingEventAmt | 0 | 1489552 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 2516946 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 464955 |
| IRS990/CYInvestmentIncomeAmt | 0 | 1467 |
| IRS990/CYOtherExpensesAmt | 0 | 1068289 |
| IRS990/CYOtherRevenueAmt | 0 | -29229 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -331161 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 1287101 |
| IRS990/CYTotalExpensesAmt | 0 | 2820345 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 257098 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 2489184 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 1 |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 2700 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 6428 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 4620 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 53229 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 64277 |
| IRS990/Desc | 0 | PATIENT SERVICES: THE ALS ASSOCIATION FLORIDA CHAPTER PROVIDED A WIDE RANGE OF SERVICES AND PROGRAMS TO HELP PEOPLE LIVING WITH LOU GEHRIG'S DISEASE. THE CHAPTER SERVED 1,363 PATIENTS. PROGRAMS INCLUDED: 1) SPONSORSHIP OF 5 ALS MULTIDISCIPLINARY CLINICS IN THE STATE OF FLORIDA, WHICH INCLUDED BOTH FINANCIAL SUPPORT AND IN-KIND STAFFING SUPPORT; 2) A NETWORK OF NINE CARE SERVICES STAFF WHO HELPED PATIENTS, FAMILIES, AND CAREGIVERS NAVIGATE THE PHYSICAL, SOCIAL, EMOTIONAL, AND FINANCIAL EFFECTS OF ALS THROUGH CASE MANAGEMENT, SOCIAL WORK SERVICES, REFERRALS, ASSESSMENTS, EDUCATION AND GOVERNMENT/VETERAN BENEFITS/INSURANCE ADVOCACY BY PROVIDING 40,696 PATIENT INTERACTIONS, 36 HOME VISITS, AND 96 PHONE ASSESSMENTS TO PATIENTS AND FAMILIES; 3) SUPPORT/RESOURCE GROUPS IN 19 STATEWIDE LOCATIONS; 4) LOANED MEDICAL EQUIPMENT AND ASSISTIVE TECHNOLOGY PROGRAMS THAT PROVIDED 226 PIECES OF DURABLE MEDICAL EQUIPMENT AND 29 ASSISTIVE AUGMENTED COMMUNICATION DEVICES TO PATIENTS IN NEED; 5) SURVIVING SPOUSES SOCIAL RENEWAL PROGRAMS; 6) ALS SPECIALTY HOME HEALTH COORDINATION; 7) A KIDS CARE PROGRAM, PROVIDING 14 PACKETS AND RESOURCES FOR CHILDREN WITH FAMILY MEMBERS WHO ARE SUFFERING FROM THE DISEASE; 8) FUNDING FOR 124 MONETARY GRANTS TO PATIENTS THAT PROVIDED 2,797 HOURS OF RESPITE CARE, HOME MODIFICATIONS, VAN MODIFICATIONS, TRANSPORTATION, MEDICAL EQUIPMENT NOT COVERED BY INSURANCE, AND OTHER FINANCIAL NEEDS; 9) THE RICK AND SHERRY MURRAY MEDICAL FUTURES SCHOLARSHIP FUND, PROVIDING SCHOLARSHIPS TO 3 STUDENTS; AND 10) ONE HOPE AND HELP SYMPOSIUM, A FULL-DAY EVENT THAT FEATURED INFORMATIVE SESSIONS FOR PATIENTS, CAREGIVERS, AND SUPPORTERS OF PEOPLE WITH ALS AND INCLUDED IMPORTANT KEYNOTE SPEAKERS, A VENDOR FAIR, OPPORTUNITIES TO "ASK THE EXPERTS, AND AN AMBASSADOR OF HOPE AWARDS LUNCHEON ATTENDED BY 233 CONSTITUENTS. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DoingBusinessAsName/BusinessNameLine1Txt | 0 | THE ALS ASSOCIATION FLORIDA CHAPTER INC |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 30 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 1413808 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 33204 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 8301 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 41505 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 560 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 140 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 700 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 7869 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 966 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 452732 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 461567 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 14 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 15 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 12 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 13 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 14 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 0 |
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| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | AWARENESS: THROUGH PUBLIC OUTREACH, MEDIA RELATIONS, ONLINE PLATFORMS, CHAPTER COLLATERAL, AND SOCIAL MEDIA, THE ALS ASSOCIATION FLORIDA CHAPTER CONTINUED TO RAISE AWARENESS ABOUT ALS, THE PEOPLE WE SERVE, OUR PUBLIC POLICY GOALS, AND THE SEARCH FOR A CURE. OUR WEBSITE IS AN INVALUABLE SOURCE OF INFORMATION FOR THOSE LIVING WITH ALS AND PEOPLE LOOKING FOR THE LATEST INFORMATION ABOUT THE DISEASE. CHAPTER COLLATERAL SUCH AS BROCHURES, INFOGRAPHIC HANDOUTS, AND ALS ACCESS, OUR NEWSMAGAZINE, PROVIDED OUR CONSTITUENTS IN THE COMMUNITIES WE SERVE WITH TIMELY INFORMATION ABOUT THE CHAPTER AND THE ACHIEVEMENT OF OUR MISSION PRIORITIES. E-COMMUNICATION CAMPAIGNS SUCH AS OUR MONTHLY EMAIL NEWSLETTERS, END OF YEAR GIVING CAMPAIGN, ALS AWARENESS MONTH CAMPAIGN, AND OTHER FUNDRAISING CAMPAIGNS WERE DEVELOPED TO FURTHER OUR PUBLIC POLICY, CARE SERVICES AND GLOBAL RESEARCH GOALS. STATEWIDE AWARENESS EVENTS SUCH AS OUR PARTNERSHIP WITH BOTH MAJOR LEAGUE BASEBALL TEAMS IN FLORIDA, AS WELL AS NUMEROUS MINOR LEAGUE TEAMS, FILM FESTIVALS AND THEATRICAL EVENTS SPOTLIGHTING ALS, AND HEALTH FAIRS PROVIDED OPPORTUNITIES TO BRING THE ALS COMMUNITY TOGETHER THROUGHOUT THE STATE. MEDIA RELATIONS AND ONGOING COMMUNICATION WITH VARIOUS MEDIA OUTLETS AROUND THE STATE PROVIDED THE LATEST NEWS AND MANY PATIENT STORIES, SPOTLIGHTING THE NEED FOR MORE FUNDING AND CARE AND SUPPORT OF THE ALS COMMUNITY IN FLORIDA. SOCIAL MEDIA CHANNELS INCLUDING FACEBOOK, TWITTER, AND INSTAGRAM, PROVIDED THE CHAPTER THE CHANCE TO SPREAD AWARENESS OF THE LATEST RESEARCH UPDATES, CHAPTER AND STATEWIDE EVENTS, AND BUILD AN ONLINE COMMUNITY WITH THOSE LIVING WITH ALS AND THOSE SUPPORTING THE ALS COMMUNITY STATEWIDE. |
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| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | RESEARCH: THE ALS ASSOCIATION FLORIDA CHAPTER, THROUGH THE ALS ASSOCIATION, CONTRIBUTES TO RESEARCH AND PARTICIPATES IN THE GLOBAL NETWORK. THE ALS ASSOCIATION FUNDS OVER 180 ACTIVE RESEARCH PROJECTS IN 11 COUNTRIES IN A DIVERSE RESEARCH PORTFOLIO. FLORIDA PATIENTS AND RESEARCHERS PARTICIPATE IN A VARIETY OF DIFFERENT TYPES OF STUDIES: GENETICS - THE NUMBER OF GENES IDENTIFIED TO CAUSE FAMILIAL ALS HAS MULTIPLIED SINCE THE DISCOVERY OF SOD1. EFFORTS SUCH AS WHOLE GENOME SEQUENCING ARE UNDERWAY WITH THE AIM TO IDENTIFY MORE ALS GENES AND TARGET THEM FOR THERAPY. DRUG DEVELOPMENT - THE DRUG DEVELOPMENT PROCESS TAKES YEARS TO COMPLETE ITS MANY STEPS AND IS COSTLY $1-3 BILLION DOLLARS TO MOVE A BASIC RESEARCH IDEA ALL THE WAY THROUGH CLINICAL TRIALS AND FDA APPROVAL. COLLABORATION IS ESSENTIAL. RESEARCHERS FROM ALL OVER THE WORLD IN ACADEMIA, GOVERNMENT, NON-PROFIT AND INDUSTRY WORK TOGETHER TO MOVE ALONG THE PATHWAY OF DRUG DEVELOPMENT AS RAPIDLY AND EFFICIENTLY AS POSSIBLE. DISEASE MECHANISM - UNDERSTANDING HOW ALS DISEASE WORKS ON MANY BIOLOGICAL LEVELS IS NECESSARY TO IDENTIFY POTENTIAL THERAPEUTIC TARGETS. NANOTECHNOLOGY - STUDIES CONDUCTED AT A VERY SMALL SCALE INCLUDING AT AN ATOMIC AND MOLECULAR LEVEL WILL PROVIDE NEW WAYS TO EVALUATE ALS DISEASE. ANIMAL MODELS - ANIMALS, FROM WORMS TO MICE, THAT MIMIC ALS DISEASE GIVE AN IMPORTANT AVENUE TO EXPLORE BOTH DISEASE MECHANISMS AND TO INVESTIGATE OUTCOME MEASURES OF POTENTIAL THERAPEUTICS FROM A CELLULAR TO A BEHAVIORAL LEVEL BEFORE TESTING IN HUMANS. CLINICAL STUDIES - ESTABLISHING AND ADVANCING STANDARDS IN CARE FOR BOTH PEOPLE LIVING WITH ALS AND THEIR CAREGIVERS IS NECESSARY TO IMPROVE AND ENRICH THEIR LIVES NOW. STUDIES IN THIS CATEGORY INCLUDE TOPICS IN CLINICAL MANAGEMENT GRANTS AND CLINICAL TRIALS. COGNITIVE STUDIES - THERE IS A LARGE BODY OF EVIDENCE DEMONSTRATING THAT COGNITIVE IMPAIRMENT CAN BE INVOLVED IN ALS, INCLUDING EVIDENCE OF OVERLAP WITH OTHER DISORDERS LIKE FRONTOTEMPORAL DEMENTIA (FTD). ASSISTIVE TECHNOLOGY - IMPROVING COMMUNICATION SYSTEMS THROUGH DEVELOPING ACCESSIBLE, PORTABLE DEVICES FOR PEOPLE LIVING WITH ALS IS PARAMOUNT TO MAINTAINING A HIGH QUALITY OF LIFE. BIOMARKERS - A MEASURABLE SUBSTANCE, LIKE CHEMICAL CHANGES IN THE BLOOD OR STRUCTURAL CHANGES IN THE BRAIN, ARE DESPERATELY NEEDED TO IMPROVE DIAGNOSIS, FOLLOW DISEASE PROGRESSION AND TRACK RESPONSE TO THERAPY. ENVIRONMENTAL FACTORS - FEATURES IN A PERSON'S ENVIRONMENT ALONE OR IN COMBINATION WITH GENETIC PREDISPOSITION CAN CONTRIBUTE TO THE DEVELOPMENT OF ALS. PRECISION MEDICINE - EFFECTIVE TREATMENTS WILL TARGET AN INDIVIDUAL PATIENT'S DISEASE PROCESS AND TAKE INTO ACCOUNT INDIVIDUAL VARIABILITY IN GENES, ENVIRONMENT AND LIFESTYLE FOR EACH PERSON. NATURAL HISTORY STUDIES - PROJECTS THAT FOLLOWS PEOPLE LIVING WITH ALS OVER TIME TO TRACK DISEASE WILL HELP IDENTIFY DEMOGRAPHIC, GENETIC AND ENVIRONMENTAL FACTORS THAT CORRELATE WITH DISEASE, ALONG WITH INFORMING DRUG DEVELOPMENT AND PATIENT CARE, AMONG OTHER FACTORS. |
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| IRS990/ProgSrvcAccomActyOtherGrp/Desc | 0 | ADVOCACY: THE ALS ASSOCIATION FLORIDA CHAPTER SUPPORTS THE ALS ASSOCIATION'S ADVOCACY AGENDA INCLUDING APPROPRIATIONS, LEGISLATION, AND REGULATORY AFFAIRS. APPROPRIATIONS: PROVIDE $10 MILLION APPROPRIATION TO CONTINUE THE NATIONAL ALS REGISTRY AT THE CENTERS FOR DISEASE CONTROL AND PREVENTION - CONGRESS AND THE ADMINISTRATION MADE ESTABLISHMENT OF THE NATIONAL ALS REGISTRY A TOP PRIORITY THROUGH THE ENACTMENT AND IMPLEMENTATION OF THE ALS REGISTRY ACT IN 2008 (P.L. 110-373). USING A VARIETY OF ENROLLMENT STRATEGIES, INCLUDING ONLINE SELF-ENROLLMENT, THE REGISTRY IDENTIFIES THE NUMBER OF CASES OF ALS IN THE U.S. AND COLLECTS DATA THAT MAY HELP SCIENTISTS LEARN MORE ABOUT WHAT CAUSES THE DISEASE AND HOW IT CAN BE PREVENTED, TREATED, AND, ULTIMATELY, CURED. CONTINUED FUNDING IS NECESSARY TO MOVE THE REGISTRY FORWARD, SUPPORT RELATED ALS RESEARCH, HELP PEOPLE WITH ALS ENROLL IN THE REGISTRY, CONDUCT OUTREACH ACTIVITIES TO IDENTIFY ALS CASES, ESTABLISH AN ALS BIO-REPOSITORY THAT COLLECTS BLOOD AND TISSUE SAMPLES, AND ENABLE THE REGISTRY TO SUPPORT RECRUITMENT FOR CLINICAL TRIALS TO DEVELOP NEW TREATMENTS FOR THE DISEASE. APPROPRIATIONS: PROVIDE $10 MILLION APPROPRIATION TO CONTINUE THE ALS RESEARCH PROGRAM (ALSRP) AT THE DEPARTMENT OF DEFENSE (DOD) - STUDIES SUPPORTED BY THE DOD, DEPARTMENT OF VETERANS AFFAIRS, NATIONAL INSTITUTES OF HEALTH, HARVARD UNIVERSITY AND THE INSTITUTE OF MEDICINE, AMONG OTHERS, REPEATEDLY HAVE FOUND THAT MILITARY VETERANS --REGARDLESS OF BRANCH OR ERA OF SERVICE-- ARE APPROXIMATELY TWICE AS LIKELY TO DIE FROM LOU GEHRIG'S DISEASE AS THOSE WHO HAVE NOT SERVED IN THE MILITARY. TO SUPPORT MILITARY VETERANS IN THE FIGHT AGAINST ALS, CONGRESS AND THE DOD ESTABLISHED THE ALS RESEARCH PROGRAM (ALSRP) IN FY 2007. THE ALSRP FOCUSES ON PEER-REVIEWED TRANSLATIONAL RESEARCH. LEGISLATION: WAIVE THE FIVE-MONTH WAITING PERIOD FOR SOCIAL SECURITY - LEGISLATION HAS BEEN INTRODUCED IN THE HOUSE AND SENATE TO WAIVE THE FIVE-MONTH WAITING PERIOD FOR SOCIAL SECURITY DISABILITY INSURANCE (SSDI). AFTER A DISABILITY CLAIMANT HAS BEEN APPROVED TO RECEIVE SSDI BENEFITS, THE INDIVIDUAL IS SUBJECT TO A FIVE-MONTH WAITING PERIOD BEFORE THE INDIVIDUAL WILL RECEIVE THE DISABILITY BENEFIT AND ACCESS TO MEDICARE. DURING THIS DEEPLY CHALLENGING TIME, MANY FAMILIES WHO HAVE PAID INTO SOCIAL SECURITY ARE LEFT WITH NO FORM OF INCOME CREATING HARDSHIPS. LEGISLATION: PRESERVE ACCESS TO COMPLEX REHAB TECHNOLOGIES (CRT) - THE ASSOCIATION IS WORKING WITH CONGRESS AND COALITION PARTNERS ON LEGISLATION TO HELP PRESERVE ACCESS TO POWER WHEELCHAIR ACCESSORIES SUCH AS CUSTOM HEAD SUPPORT AND SEATING SYSTEMS, MOUNTING HARDWARE, ADJUSTABLE LEG RESTS, AND SPECIALTY DRIVE CONTROLS AMONG OTHER WHEELCHAIR ACCESSORIES UPON WHICH PEOPLE WITH ALS DEPEND. REGULATORY AFFAIRS: ACCESS TO HOME HEALTH SERVICES - ACCESS TO HOME HEALTH SERVICES IS A FUNDAMENTAL PRIORITY FOR PEOPLE LIVING WITH ALS, THEIR CAREGIVERS AND THE ALS ASSOCIATION. THE ASSOCIATION PLANS TO WORK WITH NEW ADMINISTRATION AND CONGRESSIONAL LEADERS TO ENSURE ACCESS TO HOME HEALTH SERVICES WHICH ENABLE THOSE WITH ALS TO LIVE IN THEIR HOMES AND COMMUNITIES. THIS INCLUDES, BUT IS NOT LIMITED TO, EDUCATING AND ADVOCATING WITH POLICY MAKERS TO ENSURE THAT ANY BARRIERS TO APPROPRIATE ACCESS TO CARE ARE REDUCED OR REMOVED. IT ALSO INCLUDES ADDRESSING PROBLEMS SUCH AS PATIENT AVOIDANCE, DROPPING PATIENTS AND ILLEGALLY LIMITING THE NUMBER OF HOURS SERVICES ARE PROVIDED. ADVOCACY ACTIVITIES:MARCH 2016 - PARTICIPATED IN ""FLY-IN"" ADVOCACY TOP ROOTS EVENT IN WASHINGTON, DC AND VISITED TARGETED FLORIDA REPRESENTATIVES. MAY 2016 - ANNUAL NATIONAL ALS ADVOCACY DAYS AND PUBLIC POLICY CONFERENCE IN WASHINGTON, DC. ADVOCATES MET WITH FLORIDA'S TWO (2) SENATORS AND 27 REPRESENTATIVES IN THEIR WASHINGTON OFFICES. |
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| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 1 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 1381410 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 1098236 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearAmt | 0 | 28675 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus1YearAmt | 0 | 48360 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus2YearsAmt | 0 | 23485 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus3YearsAmt | 0 | 28592 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus4YearsAmt | 0 | 21732 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 150844 |
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Displayed year
2017 • Form 990Detailed filing. Detailed filing data is available for this year.