Civic Intelligence

Amyotrophic Lateral Sclerosis Association

990 • Fiscal year 2022 • EIN 94-3124732

Feb 01, 2021 to Jan 31, 2022 • Filed on Nov 11, 2022

3244 Parkside Center CircleTampa, FL 33619

(813) 637-9000

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

68th percentile

0.20x

Higher debt load relative to assets than 68% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Liabilities / Revenue

57th percentile

0.12x

Higher debt load relative to revenue than 57% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Net Margin

77th percentile

27%

Higher net margin than 77% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Top Officer Pay

85th percentile

$154,509

Higher top officer pay than 85% of similar nonprofits.

Top officer pay equals 3.7% of source-year revenue.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Asset Growth

87th percentile

43%

Faster asset growth than 87% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Revenue Growth

84th percentile

58%

Faster revenue growth than 84% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Assets

Up

$2,655,654

Up $796,445 (+43%) from 2021

Net Assets

Up

$2,134,430

Up $1,120,408 (+110%) from 2021

Liabilities

Down

$521,224

Down $323,963 (-38%) from 2021

Revenue

Up

$4,199,844

Up $1,539,592 (+58%) from 2021

Expenses

Up

$3,074,863

Up $620,417 (+25%) from 2021

Net Income

Up

$1,124,981

Up $919,175 (+447%) from 2021

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$3.0M$2.0M$1.0M$0Assets 2012: $1,043,908Liabilities 2012: $465,612Net Assets 2012: $578,2962012Assets 2013: $851,531Liabilities 2013: $489,945Net Assets 2013: $361,5862013Assets 2014: $1,494,759Liabilities 2014: $857,609Net Assets 2014: $637,1502014Assets 2015: $2,856,705Liabilities 2015: $829,215Net Assets 2015: $2,027,4902015Assets 2016: $2,379,043Liabilities 2016: $583,999Net Assets 2016: $1,795,0442016Assets 2017: $1,997,871Liabilities 2017: $533,988Net Assets 2017: $1,463,8832017Assets 2018: $1,833,809Liabilities 2018: $557,000Net Assets 2018: $1,276,8092018Assets 2019: $1,527,857Liabilities 2019: $476,843Net Assets 2019: $1,051,0142019Assets 2020: $1,150,493Liabilities 2020: $337,277Net Assets 2020: $813,2162020Assets 2021: $1,859,209Liabilities 2021: $845,187Net Assets 2021: $1,014,0222021Assets 2022: $2,655,654Liabilities 2022: $521,224Net Assets 2022: $2,134,4302022Assets 2023: $2,179,124Liabilities 2023: $401,939Net Assets 2023: $1,777,1852023

Highlighted filing

2022

Assets$2,655,654
Liabilities$521,224
Net Assets$2,134,430

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MRevenue 2012: $1,744,789Expenses 2012: $1,851,866Net Income 2012: -$107,0772012Revenue 2013: $1,655,148Expenses 2013: $1,871,858Net Income 2013: -$216,7102013Revenue 2014: $2,338,295Expenses 2014: $2,062,731Net Income 2014: $275,5642014Revenue 2015: $4,335,905Expenses 2015: $2,922,894Net Income 2015: $1,413,0112015Revenue 2016: $2,811,703Expenses 2016: $3,044,149Net Income 2016: -$232,4462016Revenue 2017: $2,489,184Expenses 2017: $2,820,345Net Income 2017: -$331,1612017Revenue 2018: $2,552,098Expenses 2018: $2,739,172Net Income 2018: -$187,0742018Revenue 2019: $2,269,459Expenses 2019: $2,495,254Net Income 2019: -$225,7952019Revenue 2020: $1,883,335Expenses 2020: $2,121,133Net Income 2020: -$237,7982020Revenue 2021: $2,660,252Expenses 2021: $2,454,446Net Income 2021: $205,8062021Revenue 2022: $4,199,844Expenses 2022: $3,074,863Net Income 2022: $1,124,9812022Revenue 2023: $3,983,976Expenses 2023: $4,341,253Net Income 2023: -$357,2772023

Highlighted filing

2022

Revenue$4,199,844
Expenses$3,074,863
Net Income$1,124,981
Jump To
Filing Snapshot
Filing Period
Feb 1, 2021 to Jan 31, 2022
Signed
Nov 11, 2022
Return Version
2021v4.2
Gross Receipts
$4,401,527
Mission and Program Overview

Mission

Leading the fight to treat and cure als through global research and nationwide advocacy while also empowering people with lou gehrig's disease and their families to live fuller lives by providing them with compassionate care and support.

Improving the lives of people living with als, raising program funds & participating in advocacy.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$344,353$1,004,107▲ $659,754
Savings and Temporary Cash Investments$579,198$655,529▲ $76,331
Land, Buildings, and Equipment, Net$526,442$520,731▼ $5,711
Pledges and Grants Receivable$395,609$385,398▼ $10,211
Investments in Publicly Traded Securities-$77,691-
Prepaid Expenses and Deferred Charges$13,262$12,198▼ $1,064
Total Assets$1,859,209$2,655,654▲ $796,445
Other Assets Total$345$0▼ $345
Liabilities
Grants Payable$232,777$299,831▲ $67,054
Unsecured Notes Loans Payable$190,600$0▼ $190,600
Mortgage Notes Payable Secured by Investment Property$161,496$0▼ $161,496
Other Liabilities$183,014$129,784▼ $53,230
Accounts Payable and Accrued Expenses$77,300$91,609▲ $14,309
Total Liabilities$845,187$521,224▼ $323,963
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$931,329$2,061,930▲ $1,130,601
Net Assets With Donor Restrictions$82,693$72,500▼ $10,193
Total Net Assets Fund Balance$1,014,022$2,134,430▲ $1,120,408
Total Liabilities and Net Assets / Fund Balance$1,859,209$2,655,654▲ $796,445

Asset Categories

AssetBook ValueDepreciationBasis
Buildings$288,171$197,438$485,609
Equipment$7,560$427,178$434,738
Land$225,000-$225,000
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Ray CarsonPresident/CEOFT$130,000$24,509$154,509

Board Members and Trustees

NameTitle
Hampton GrahamChairman
John CannistraImmediate Past Chairman
Glenn StambaughVice Chairman
Alecia BaileyTrustee
Ashok VermaTrustee
Brian ChappellTrustee
Brittany HarveyTrustee
Christine Hopkins RankinTrustee
Jeff ElbertTrustee
Jo-ann ClynchTrustee
John CollinsTrustee
Kevin ConnTrustee
Melissa SpringTrustee
Sharon Sam MaybrookSecretary
Troy FieldsTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
University Of MiamiCenter Support1150 NW 14TH ST STE 609, Miami, FL 33136$246,908
Usf Foundation INCCenter Support4202 E FOWLER AVE ALC 100, Tampa, FL 33620$215,427
Mayo Clinic JacksonvilleCenter Support4500 SAN PABLO RD, Jacksonville, FL 32224$201,159
Revenue and Support

Revenue Composition

Contributions and Grants
$4,371,316
Program Service Revenue
$0
Investment Income
$1,416
Other Revenue
$-172,888
All Other Contributions
$1,825,134
Change in Net Assets
$1,124,981

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded26$110,721Stock Quote
Other Non Cash Contri Table115$110,200Fair Market Value
Total Noncash Contributions141$220,921-

Audited Revenue Reconciliation

Revenue per Audited Statements
$4,199,844
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$168,315
Total Revenue per Audited Statements
$4,368,159
Total Revenue per Form 990
$4,199,844
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$1,297,830
Other Expenses$1,277,947
Grants and Similar Amounts Paid$479,643
Total Fundraising Expense$369,000
Professional Fundraising Fees$19,443

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$681,504$12,638$261,381$955,523
Fees for Services Other$856,888$1,987$2,944$861,819
Grants to Domestic Orgs$402,945--$402,945
Current Officers, Directors, Trustees, and Key Employees$123,607$15,451$15,451$154,509
Other Expenses$110,200--$110,200
Payroll Taxes$61,957$2,136$21,364$85,457
Other Employee Benefits$56,664$1,954$19,540$78,158
Office Expenses$61,772$7,719$7,720$77,211
Grants to Domestic Individuals$76,698--$76,698
Fees for Services Accounting$18,179$52,734$642$71,555
Information Technology$33,514$4,189$4,189$41,892
Fees for Services Lobbying$36,000--$36,000
Pension Plan Contributions$17,195$266$6,722$24,183
Occupancy$19,218$2,402$2,403$24,023
Conferences and Meetings$13,835$1,217$5,224$20,276
Fees for Services Professional Fundraising--$19,443$19,443
Depreciation Depletion$11,970$1,039$1,446$14,455
Travel-$12,698-$12,698
Insurance$4,251$531$531$5,313
Fees for Services Legal-$2,505-$2,505
Total Functional Expenses$2,575$0$12,874$15,449

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$3,247,751
Expenses per Audited Statements$3,074,863
Total Expenses per Form 990$3,074,863
Expenses Not Reported on Form 990$172,888
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
The Als AssociationArlington, VA501(c)(3)Advocacy, Awareness, Care Services, Etc.$375,925
The Als AssociationArlington, VA501(c)(3)Research$27,020
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$172,888
Professional Fundraising Fees$19,443
Fundraising Gross Income$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Walk to Defeat Als Events$783,864-$41,507-
CEO Soak/ring of Honor$262,544-$15,589-
Total Events$1,234,476-$172,888$-172,888
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Due to National Als$129,784
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

The following trustees have professional business relationships outside of their duties as board members: hampton graham and glenn stambaugh hampton graham and brian chappell

Form 990, Part VI, Section B, Line 11B

The audit report and form 990 is first reviewed and discussed with the finance committee and the accountant. Once any questions or concerns have been addressed, the finance committee votes to accept the audit report and form 990. Once this is complete, both are presented to the entire board of directors for vote and approval.

Form 990, Part VI, Section B, Line 12C

Board members and key employees are asked to sign a conflict of interest policy annually. Annual inquiries of board members and the ceo are made by the chairman of the board. Any potential conflicts are reviewed by the executive committee of the board and presented to the full board in executive session. Board members with a conflict on any voting matters recuse themselves from the vote. Annual inquiries of employees are made by the ceo. Any potential conflicts are reviewed and addressed by the ceo, as appropriate.

Form 990, Part VI, Section B, Line 15

The process for determining the president/ceo's salary is as follows: (1) the president/ceo's performance is reviewed by the chairman and a written evaluation is provided to the president/ceo and to the executive committee; (2) salary is determined and documented by using comparable data from nonprofits of similar mission, budget size, and geographic region, including sister als chapters, with allowances made for differences in size and location; (3) the executive committee makes a recommendation to the board for approval; and (4) the board's consideration and approval of the compensation is documented in the boards minutes. The process for determining key employee's salary is as follows: (1) the employee's performance is reviewed by the president/ceo; and (2) salary is determined and documented by using comparable data from nonprofits of similar mission, budget size, and geographic region.

Form 990, Part VI, Section C, Line 19

The chapter makes its governing documents, conflict of interest policy, and financial statements available to the public upon request.

Filing and Contact Details

Filer

Filer Name
Amyotrophic Lateral Sclerosis
EIN
94-3124732
Phone
8136379000
Address
3244 PARKSIDE CENTER CIRCLE, TAMPA, FL 33619
Doing Business As
The Als Association Florida Chapter Inc

Signing Officer

Name
Ray Carson
Title
President/CEO
Phone
8136379000
Signed
2022-11-11
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Ray Carson
Formed
1987
Legal Domicile
Fl
Voting Board Members
15
Independent Board Members
15
Employees
21
Volunteers
500

Preparer

Firm
Cbiz Mhm LLC
Address
140 FOUNTAIN PKWY N STE 410, ST PETERSBURG, FL 33716
Preparer
Paul Dunham
Phone
7275721400
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

Payroll administration: program service expenses 3,090. Management and general expenses 107. Fundraising expenses 1,065. Total expenses 4,262. Other professional fees: program service expenses 15,041. Management and general expenses 1,880. Fundraising expenses 1,879. Total expenses 18,800. Contractor fees: program service expenses 32,460. Management and general expenses 0. Fundraising expenses 0. Total expenses 32,460. Subcontractor fees-center support: program service expenses 806,297. Management and general expenses 0. Fundraising expenses 0. Total expenses 806,297.

FORM 990, PART XII, LINE 2C:

The financial statement audit and selection of the independent cpa firm is managed by the president/ceo and overseen by the finance committee of the board. The cpa firm presents the audit and 990 to the finance committee. The firm meets with the treasurer at least once without staff present to ensure the process is fully independent. The finance committee then presents the audit and 990 to the full board. The cpa firm is chosen from three (3) independent proposals when a change in firm is made. This process has not changed from the prior year.

Financial Statement Notes

PART X, LINE 2:

The amyotrophic lateral sclerosis association and its affiliated chapters, including the association, have been recognized collectively by the internal revenue service as tax-exempt organizations described in section 501(c)(3) of the internal revenue code of 1986. Income earned in furtherance of the association's tax-exempt purpose is exempt from federal and state income taxes. The association, through the collective exemption described previously, is treated as a publicly supported organization, and not as a private foundation. The association has adopted the provisions of asc topic 740, income taxes, relating to accounting for uncertainty in income taxes and does not believe it has any material income tax exposure relating to uncertain tax positions. The association's income tax filings for periods after the fiscal year ended january 31, 2019 remain subject to examination. Beginning with the year ended january 31, 2009, the association received rent from a tenant, which is considered unrelated taxable business income. This agreement was terminated during the year ended january 31, 2021 and generated a nominal amount of income tax expense in that year.

PART XI, LINE 2D - OTHER ADJUSTMENTS:

Event expenses deducted on part viii, line 8b 172,888.

PART XII, LINE 2D - OTHER ADJUSTMENTS:

Event expenses deducted on part viii, line 8b 172,888.

Raw XML AppendixShowing 400 of 758 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0PATIENT SERVICES: THE ALS ASSOCIATION FLORIDA CHAPTER PROVIDED A WIDE RANGE OF SERVICES AND PROGRAMS TO HELP PEOPLE LIVING WITH LOU GEHRIG'S DISEASE. THE CHAPTER SERVED 1,340 PATIENTS IN FISCAL YEAR 2022. PROGRAMS INCLUDED: 1) PARTNERSHIP WITH 10 MULTIDISCIPLINARY ALS CLINICS IN THE STATE OF FLORIDA, WHICH INCLUDE IN-KIND STAFF SUPPORT, PROVIDING 1,736 CLINIC VISITS; 2) A NETWORK OF NINE CARE SERVICES STAFF WHO HELPED PATIENTS, FAMILIES, AND CAREGIVERS NAVIGATE THE PHYSICAL, SOCIAL, EMOTIONAL, AND FINANCIAL EFFECTS OF ALS THROUGH CASE MANAGEMENT, SOCIAL WORK SERVICES, REFERRALS, ASSESSMENTS, EDUCATION AND GOVERNMENT/VETERAN BENEFITS/INSURANCE ADVOCACY; 3) SUPPORT/RESOURCE GROUPS IN 18 STATEWIDE LOCATIONS, 165 MEETINGS HELD, ATTENDED BY 1,233 PEOPLE OVER THE YEAR; (CONTINUED ON SCHEDULE O)4) LOANED MEDICAL EQUIPMENT AND ASSISTIVE TECHNOLOGY PROGRAMS THAT PROVIDED 281 PIECES OF DURABLE MEDICAL EQUIPMENT AND ASSISTIVE AUGMENTED COMMUNICATION DEVICES TO PATIENTS IN NEED; 5) ALS SPECIALTY HOME HEALTH COORDINATION; 6) FUNDING FOR 140 MONETARY GRANTS TO PATIENTS THAT PROVIDED 983 HOURS OF RESPITE CARE, AS WELL AS HOME MODIFICATIONS, VAN MODIFICATIONS, TRANSPORTATION, MEDICAL EQUIPMENT NOT COVERED BY INSURANCE, AND OTHER FINANCIAL NEEDS; 7) THE RICK AND SHERRY MURRAY MEDICAL FUTURES SCHOLARSHIP FUND, PROVIDING SCHOLARSHIPS TO 1 STUDENT; 8) ONE HOPE AND HELP SYMPOSIUM, A FULL-DAY EVENT THAT FEATURED INFORMATIVE SESSIONS FOR PATIENTS, CAREGIVERS, AND SUPPORTERS OF PEOPLE WITH ALS AND INCLUDED IMPORTANT KEYNOTE SPEAKERS, A VENDOR FAIR, OPPORTUNITIES TO "ASK THE DOCS, AND AN AMBASSADOR OF HOPE. IN FISCAL YEAR 2022, BECAUSE OF COVID-19, THIS EVENT WAS HELD VIRTUALLY AND ATTENDED BY 349 CONSTITUENTS.
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IRS990/MissionDesc0OUR MISSION IS TO DISCOVER TREATMENTS AND A CURE FOR ALS, AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST.
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IRS990/ProgSrvcAccomActy2Grp/Desc0AWARENESS: THROUGH PUBLIC OUTREACH, MEDIA RELATIONS, ONLINE PLATFORMS, CHAPTER COLLATERAL, AND SOCIAL MEDIA, THE ALS ASSOCIATION FLORIDA CHAPTER CONTINUED TO RAISE AWARENESS ABOUT ALS, THE PEOPLE WE SERVE, OUR PUBLIC POLICY GOALS, AND THE SEARCH FOR A TREATMENT AND CURE. OUR WEBSITE IS AN INVALUABLE SOURCE OF INFORMATION FOR THOSE LIVING WITH ALS AND PEOPLE LOOKING FOR THE LATEST INFORMATION ABOUT THE DISEASE. CHAPTER COLLATERAL SUCH AS BROCHURES, INFOGRAPHIC HANDOUTS, AND FLYERS PROVIDED OUR CONSTITUENTS IN THE COMMUNITIES WE SERVE WITH TIMELY INFORMATION ABOUT THE CHAPTER AND THE ACHIEVEMENT OF OUR MISSION PRIORITIES.
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IRS990/ProgSrvcAccomActy3Grp/Desc0RESEARCH: THE ALS ASSOCIATION FLORIDA CHAPTER, THROUGH THE ALS ASSOCIATION, HAS FUNDED RESEARCH AT SEVERAL RENOWNED RESEARCH CENTERS IN THE STATE INCLUDING THE MAYO CLINIC IN JACKSONVILLE, THE UNIVERSITY OF SOUTH FLORIDA IN TAMPA, THE UNIVERSITY OF FLORIDA IN GAINESVILLE AND JACKSONVILLE, THE UNIVERSITY OF MIAMI, AND HOLY CROSS. FLORIDA PATIENTS AND RESEARCHERS PARTICIPATE IN A VARIETY OF STUDIES INCLUDING BIOMARKER, DRUG DEVELOPMENT, GENETICS, DISEASE MECHANISM, OBSERVATIONAL/NATURAL HISTORY, AND SYMPTOM MANAGEMENT. THE CHAPTER ALSO WORK TO ENCOURAGE PEOPLE LIVING WITH ALS TO REGISTER WITH THE NATIONAL ALS REGISTRY THROUGH THE CENTERS FOR DISEASE CONTROL AND PREVENTION.
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IRS990/ProgSrvcAccomActyOtherGrp/Desc0ADVOCACY: THE ALS ASSOCIATION FLORIDA CHAPTER SUPPORTS THE ALS ASSOCIATION'S ADVOCACY AGENDA INCLUDING APPROPRIATIONS, LEGISLATION, AND REGULATORY AFFAIRS.FEDERAL PUBLIC POLICY PRIORITIES:APPROPRIATIONS FOR ALS RESEARCH, INCLUDING THE CDC NATIONAL ALS REGISTRY, DEPARTMENT OF DEFENSE ALS RESEARCH PROGRAM AND NATIONAL INSTITUTE OF HEALTH PROGRAMS.LEGISLATION:WAIVE THE FIVE-MONTH WAITING PERIOD FOR SOCIAL SECURITY - THE ALS DISABILITY INSURANCE ACCESS ACT (S.379/ H.R.1171) TO ELIMINATE THE FIVE-MONTH WAITING PERIOD FOR SOCIAL SECURITY DISABILITY INSURANCE (SSDI) OR MEDICARE DID NOT PASS IN THE 115TH CONGRESS. UNDER CURRENT LAW, PEOPLE WITH ALS WHO QUALIFY FOR SOCIAL SECURITY DISABILITY INSURANCE (SSDI) MUST WAIT FIVE MONTHS BEFORE RECEIVING SSDI AND ACCESS TO MEDICARE. THE LEGISLATION WOULD ELIMINATE THE FIVE-MONTH WAITING PERIOD FOR PEOPLE WITH ALS. THE BILL WILL BE RE-INTRODUCED IN THE 116TH CONGRESS.REGULATORY AFFAIRS:MEDICARE PROPOSED RULE - THE ALS ASSOCIATION SUBMITTED COMMENTS ON THE CENTERS FOR MEDICARE AND MEDICAID (CMS) PROPOSED RULE 1689-P. THE LETTER FOCUSED ON TWO COMPONENTS OF THE PROPOSED RULE: HOME HEALTH AND HOME INFUSIONS.CHAPTER ADVOCACY ACTIVITIES:MARCH 2021 - PARTICIPATED IN "FLY-IN" ADVOCACY TOP ROOTS (IN WASHINGTON, DC) EVENT VIRTUALLY THIS YEAR BECAUSE OF COVID-19. MET WITH TARGETED FLORIDA REPRESENTATIVES OVER ZOOM VIDEO CALLS.MAY-JUNE 2021 - ANNUAL NATIONAL ALS ADVOCACY DAYS AND PUBLIC POLICY CONFERENCE. ADVOCATES MET WITH MEMBERS OF FLORIDA'S CONGRESSIONAL DELEGATION AND THEIR STAFFS VIA ZOOM CALLS DUE TO TRAVEL RESTRICTIONS RELATED TO COVID-19.OTHER ADVOCACY ACTIVITIES:BOARD OF DIRECTORS COMMITTEE ON ADVOCACY FOCUSED ON ENGAGING BOARD MEMBERS IN FEDERAL ADVOCACY AND DISCUSSED OPTIONS FOR BUILDING A STATE ADVOCACY PROGRAM.
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