Liabilities / Assets
82nd percentile
Higher debt load relative to assets than 82% of similar nonprofits.
990 • Fiscal year 2021 • EIN 94-3124732
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
82nd percentile
Higher debt load relative to assets than 82% of similar nonprofits.
Liabilities / Revenue
73rd percentile
Higher debt load relative to revenue than 73% of similar nonprofits.
Net Margin
41st percentile
Higher net margin than 41% of similar nonprofits.
Top Officer Pay
81st percentile
Higher top officer pay than 81% of similar nonprofits.
Top officer pay equals 5.0% of source-year revenue.
Asset Growth
89th percentile
Faster asset growth than 89% of similar nonprofits.
Revenue Growth
72nd percentile
Faster revenue growth than 72% of similar nonprofits.
Assets
Up$1,859,209
Up $708,716 (+62%) from 2020
Net Assets
Up$1,014,022
Up $200,806 (+25%) from 2020
Liabilities
Up$845,187
Up $507,910 (+151%) from 2020
Revenue
Up$2,660,252
Up $776,917 (+41%) from 2020
Expenses
Up$2,454,446
Up $333,313 (+16%) from 2020
Net Income
Up$205,806
Up $443,604 (+187%) from 2020
Leading the fight to treat and cure als through global research and nationwide advocacy while also empowering people with lou gehrig's disease and their families to live fuller lives by providing them with compassionate care and support.
Improving the lives of people living with als, raising programs funds & participating in advocacy.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $422,258 | $579,198 | ▲ $156,940 |
| Land, Buildings, and Equipment, Net | $540,303 | $526,442 | ▼ $13,861 |
| Pledges and Grants Receivable | $96,335 | $395,609 | ▲ $299,274 |
| Cash and Non-Interest-Bearing Accounts | $81,007 | $344,353 | ▲ $263,346 |
| Prepaid Expenses and Deferred Charges | $4,145 | $13,262 | ▲ $9,117 |
| Investments in Publicly Traded Securities | $6,037 | $0 | ▼ $6,037 |
| Total Assets | $1,150,493 | $1,859,209 | ▲ $708,716 |
| Other Assets Total | $408 | $345 | ▼ $63 |
| Liabilities | |||
| Grants Payable | $30,468 | $232,777 | ▲ $202,309 |
| Unsecured Notes Loans Payable | - | $190,600 | - |
| Other Liabilities | $56,311 | $183,014 | ▲ $126,703 |
| Mortgage Notes Payable Secured by Investment Property | $177,491 | $161,496 | ▼ $15,995 |
| Accounts Payable and Accrued Expenses | $73,007 | $77,300 | ▲ $4,293 |
| Total Liabilities | $337,277 | $845,187 | ▲ $507,910 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $755,525 | $931,329 | ▲ $175,804 |
| Net Assets With Donor Restrictions | $57,691 | $82,693 | ▲ $25,002 |
| Total Net Assets Fund Balance | $813,216 | $1,014,022 | ▲ $200,806 |
| Total Liabilities and Net Assets / Fund Balance | $1,150,493 | $1,859,209 | ▲ $708,716 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Buildings | $301,442 | $184,167 | $485,609 |
| Equipment | $0 | $426,338 | $426,338 |
| Land | $225,000 | - | $225,000 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Ray Carson | President/CEO | FT | $130,000 | $3,900 | $133,900 |
| Name | Title |
|---|---|
| John Cannistra | Chairman |
| Alecia Jones Bailey | Trustee |
| Christine Hopkins | Trustee |
| Jeff Ebert | Trustee |
| Jo-ann Clynch | Trustee |
| John Collins | Trustee |
| Kevin Conn | Trustee |
| Melissa Spring | Trustee |
| Troy Fields | Trustee |
| Sharon Sam Maybrook | Secretary |
| Glenn Stambaugh | Treasurer |
| Hampton Graham | Vice Chariman |
| Contractor | Services | Location | Compensation |
|---|---|---|---|
| Mayo Clinic Jacksonville | Center Support | 4500 SAN PABLO RD, Jacksonville, FL 32224 | $147,802 |
| University Of Miami | Center Support | 1150 NW 14TH ST STE 609, Miami, FL 33136 | $139,848 |
| Usf Foundation INC | Center Support | 4202 E FOWLER AVE ALC 100, Tampa, FL 33620 | $123,395 |
| Contribution Type | Contribution Count | Reported Amount | Valuation Method |
|---|---|---|---|
| Securities Publicly Traded | 17 | $104,895 | Stock Quote |
| Other Non Cash Contri Table | 103 | $96,600 | Fair Market Value |
| Total Noncash Contributions | 120 | $201,495 | - |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $1,219,290 |
| Other Expenses | $922,772 |
| Total Fundraising Expense | $321,972 |
| Grants and Similar Amounts Paid | $312,384 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $668,438 | $13,167 | $235,059 | $916,664 |
| Fees for Services Other | $528,383 | $540 | $5,124 | $534,047 |
| Grants to Domestic Orgs | $251,853 | - | - | $251,853 |
| Current Officers, Directors, Trustees, and Key Employees | $107,120 | $13,390 | $13,390 | $133,900 |
| Payroll Taxes | $59,313 | $2,009 | $19,048 | $80,370 |
| Other Employee Benefits | $54,433 | $1,844 | $17,481 | $73,758 |
| Office Expenses | $54,180 | $7,468 | $6,770 | $68,418 |
| Information Technology | $52,554 | $6,569 | $6,569 | $65,692 |
| Fees for Services Accounting | $11,633 | $42,142 | $6,835 | $60,610 |
| Grants to Domestic Individuals | $60,531 | - | - | $60,531 |
| Fees for Services Lobbying | $37,270 | - | - | $37,270 |
| Occupancy | $24,818 | $3,102 | $3,103 | $31,023 |
| Pension Plan Contributions | $10,532 | $72 | $3,994 | $14,598 |
| Conferences and Meetings | $6,460 | $441 | $3,310 | $10,211 |
| Depreciation Depletion | $8,319 | $722 | $1,005 | $10,046 |
| Travel | - | $5,731 | - | $5,731 |
| Insurance | $2,107 | $263 | $263 | $2,633 |
| Other Expenses | $96,600 | $215 | - | $215 |
| All Other Expenses | $169 | $21 | $21 | $211 |
| Fees for Services Legal | $65 | - | - | $65 |
| Total Functional Expenses | $982 | $0 | $13,391 | $14,373 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $2,529,432 |
| Expenses per Audited Statements | $2,454,446 |
| Total Expenses per Form 990 | $2,454,446 |
| Expenses Not Reported on Form 990 | $74,986 |
| Expenses Not Reported on Financial Statements | $0 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| The Als Association | Washington, DC | 501(c)(3) | Advocacy, Awareness, Care Services, Etc. | $241,269 |
| The Als Association | Washington, DC | 501(c)(3) | Research | $10,584 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $57,800 |
| Fundraising Gross Income | $1,435 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Walk to Defeat Als Events | $659,425 | - | $36,952 | - |
| Ride to Defeat Als Events | $114,268 | $1,435 | $4,200 | $-2,765 |
| Total Events | $811,431 | $1,435 | $57,800 | $-56,365 |
| Liability | Amount |
|---|---|
| Due to National Als | $183,014 |
“Trustees hampton graham and glenn stambaugh have a professional business relationship outside of their duties as board members.”
“The bylaws were amended during the year. The first change created a new class of board member known as honorary life member. The new class was recommended so that the chapter board could have the option of retaining the institutional knowledge of valued board members after they have completed their three, 3-year terms. Approved honorary life members would be invited to all board meetings but would not have the ability to vote so they would not be counted toward a meeting quorum. The second bylaw change automatically extended the term of an outgoing chairman by two years, even if that means that the individual would exceed his/her three, 3-year terms to ensure that an incoming chairman would have the benefit and support of having the immediate past chairman on the board.”
“The audit report and form 990 is first reviewed and discussed with the finance committee and the accountant. Once any questions or concerns have been addressed, the finance committee votes to accept the audit report and form 990. Once this is complete, both are presented to the entire board of directors for vote and approval.”
“Board members and key employees are asked to sign a conflict of interest policy annually. Any conflicts are discussed with the executive committee of the board for appropriate action, if necessary. Board members with a conflict on any voting matters recuse themselves from the vote.”
“The process for determining the president/ceo's salary is as follows: (1) the president/ceo's performance is reviewed by the chairman and a written evaluation is provided to the president/ceo and to the executive committee; (2) salary is determined and documented by using comparable data from nonprofits of similar mission, budget size, and geographic region, including sister als chapters, with allowances made for differences in size and location; (3) the executive committee makes a recommendation to the board for approval; and (4) the board's consideration and approval of the compensation is documented in the boards minutes. The process for determining key employee's salary is as follows: (1) the employee's performance is reviewed by the president/ceo; and (2) salary is determined and documented by using comparable data from nonprofits of similar mission, budget size, and geographic region.”
“The chapter makes its governing documents, conflict of interest policy, and financial statements available to the public upon request.”
“Payroll administration: program service expenses 15,955. Management and general expenses 540. Fundraising expenses 5,124. Total expenses 21,619. Other professional fees: program service expenses 52,319. Management and general expenses 0. Fundraising expenses 0. Total expenses 52,319. Contractor fees: program service expenses 18,900. Management and general expenses 0. Fundraising expenses 0. Total expenses 18,900. Subcontractor fees-center support: program service expenses 441,209. Management and general expenses 0. Fundraising expenses 0. Total expenses 441,209.”
“Write off of uncollectable pledges -5,000.”
“The financial statement audit and selection of the independent cpa firm is managed by the president/ceo and overseen by the finance committee of the board. The cpa firm presents the audit and 990 to the finance committee. The firm meets with the treasurer at least once without staff present to ensure the process is fully independent. The finance committee then presents the audit and 990 to the full board. The cpa firm is chosen from three (3) independent proposals when a change in firm is made. This process has not changed from the prior year.”
“The amyotrophic lateral sclerosis association and its affiliated chapters, including the association, have been recognized collectively by the internal revenue service as tax-exempt organizations described in section 501(c)(3) of the internal revenue code of 1986. Income earned in furtherance of the association's tax-exempt purpose is exempt from federal and state income taxes. The association, through the collective exemption described previously, is treated as a publicly supported organization, and not as a private foundation. The association has adopted the provisions of asc topic 740, income taxes, relating to accounting for uncertainty in income taxes and does not believe it has any material income tax exposure relating to uncertain tax positions. The association's income tax filings for periods after the fiscal year ended january 31, 2018 remain subject to examination. Beginning with the year ended january 31, 2009, the association received rent from a tenant, which is considered unrelated taxable business income. For the years ended january 31, 2021 and 2020, this activity generated a nominal amount of income tax expense in each year.”
“Event expenses deducted on part viii, line 8b 57,800. Rental expenses deducted on part viii, line 6b 12,186.”
“Event expenses deducted on part viii, line 8b 57,800. Rental expenses deducted on part viii, line 6b 12,186. Write off of uncollectable pledges reported on part xi, line 9 5,000.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 73007 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 77300 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | IMPROVING THE LIVES OF PEOPLE LIVING WITH ALS, RAISING PROGRAMS FUNDS & PARTICIPATING IN ADVOCACY. |
| IRS990/AllOtherContributionsAmt | 0 | 1393503 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 21 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 21 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 169 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 211 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | RAY CARSON |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 8136379000 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 3242 PARKSIDE CENTER CIRCLE |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | TAMPA |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | FL |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 33619 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 81007 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 344353 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 1 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 3 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 13390 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 13390 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 107120 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 133900 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 3310 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 441 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 6460 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 10211 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 0 | 147802 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 1 | 139848 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 2 | 123395 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 0 | 4500 SAN PABLO RD |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 1 | 1150 NW 14TH ST STE 609 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 2 | 4202 E FOWLER AVE ALC 100 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 0 | JACKSONVILLE |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 1 | MIAMI |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 2 | TAMPA |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 0 | FL |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 1 | FL |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 2 | FL |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 0 | 32224 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 1 | 33136 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 2 | 33620 |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 0 | MAYO CLINIC JACKSONVILLE |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 1 | UNIVERSITY OF MIAMI |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 2 | USF FOUNDATION INC |
| IRS990/ContractorCompensationGrp/ServicesDesc | 0 | CENTER SUPPORT |
| IRS990/ContractorCompensationGrp/ServicesDesc | 1 | CENTER SUPPORT |
| IRS990/ContractorCompensationGrp/ServicesDesc | 2 | CENTER SUPPORT |
| IRS990/ContriRptFundraisingEventAmt | 0 | 809996 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 2711833 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 312384 |
| IRS990/CYInvestmentIncomeAmt | 0 | 2447 |
| IRS990/CYOtherExpensesAmt | 0 | 922772 |
| IRS990/CYOtherRevenueAmt | 0 | -54028 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 205806 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 1219290 |
| IRS990/CYTotalExpensesAmt | 0 | 2454446 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 321972 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 2660252 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 1 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 1005 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 722 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 8319 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 10046 |
| IRS990/Desc | 0 | PATIENT SERVICES: THE ALS ASSOCIATION FLORIDA CHAPTER PROVIDED A WIDE RANGE OF SERVICES AND PROGRAMS TO HELP PEOPLE LIVING WITH LOU GEHRIG'S DISEASE. THE CHAPTER SERVED 1,477 PATIENTS IN 2020. PROGRAMS INCLUDED: 1) PARTNERSHIP WITH 10 MULTIDISCIPLINARY ALS CLINICS IN THE STATE OF FLORIDA, WHICH INCLUDE IN-KIND STAFF SUPPORT, PROVIDING 1,548 CLINIC VISITS; 2) A NETWORK OF TEN CARE SERVICES STAFF WHO HELPED PATIENTS, FAMILIES, AND CAREGIVERS NAVIGATE THE PHYSICAL, SOCIAL, EMOTIONAL, AND FINANCIAL EFFECTS OF ALS THROUGH CASE MANAGEMENT, SOCIAL WORK SERVICES, REFERRALS, ASSESSMENTS, EDUCATION AND GOVERNMENT/VETERAN BENEFITS/INSURANCE ADVOCACY; 3) SUPPORT/RESOURCE GROUPS IN 21 STATEWIDE LOCATIONS, 148 MEETINGS HELD, ATTENDED BY 1,231 PEOPLE OVER THE YEAR; (CONTINUED ON SCHEDULE O)4) LOANED MEDICAL EQUIPMENT AND ASSISTIVE TECHNOLOGY PROGRAMS THAT PROVIDED 275 PIECES OF DURABLE MEDICAL EQUIPMENT AND ASSISTIVE AUGMENTED COMMUNICATION DEVICES TO PATIENTS IN NEED; 5) ALS SPECIALTY HOME HEALTH COORDINATION; 6) A VISITING VOLUNTEERS PROGRAM THAT MATCHED 19 PEOPLE LIVING WITH ALS WITH A VOLUNTEER TO ASSIST IN THE HOME WITH NON-MEDICAL NEEDS SUCH AS YARD WORK, HOME CLEANING, AND OTHER HOME PROJECTS; 7) FUNDING FOR 111 MONETARY GRANTS TO PATIENTS THAT PROVIDED 479 HOURS OF RESPITE CARE, AS WELL AS HOME MODIFICATIONS, VAN MODIFICATIONS, TRANSPORTATION, MEDICAL EQUIPMENT NOT COVERED BY INSURANCE, AND OTHER FINANCIAL NEEDS; 8) THE RICK AND SHERRY MURRAY MEDICAL FUTURES SCHOLARSHIP FUND, PROVIDING SCHOLARSHIPS TO 1 STUDENT; 9) ONE HOPE AND HELP SYMPOSIUM, A FULL-DAY EVENT THAT FEATURED INFORMATIVE SESSIONS FOR PATIENTS, CAREGIVERS, AND SUPPORTERS OF PEOPLE WITH ALS AND INCLUDED IMPORTANT KEYNOTE SPEAKERS, A VENDOR FAIR, OPPORTUNITIES TO "ASK THE EXPERTS, AND AN AMBASSADOR OF HOPE. IN 2020, BECAUSE OF COVID-19 THIS EVENT WAS HELD VIRTUALLY AND ATTENDED BY 252 CONSTITUENTS. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DoingBusinessAsName/BusinessNameLine1Txt | 0 | THE ALS ASSOCIATION FLORIDA CHAPTER INC |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 57691 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 82693 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 20 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 1462652 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 1 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 6835 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 42142 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 11633 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 60610 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 65 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 65 |
| IRS990/FeesForServicesLobbyingGrp/ProgramServicesAmt | 0 | 37270 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 37270 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 5124 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 540 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 528383 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 534047 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 3900 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | JOHN CANNISTRA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | HAMPTON GRAHAM |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | GLENN STAMBAUGH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | SHARON SAM MAYBROOK |
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| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | ALECIA JONES BAILEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | JOHN COLLINS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | KEVIN CONN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | TROY FIELDS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | MELISSA SPRING |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | CHRISTINE HOPKINS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | JEFF EBERT |
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| IRS990/MissionDesc | 0 | OUR MISSION IS TO DISCOVER TREATMENTS AND A CURE FOR ALS, AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST. |
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| IRS990/OtherExpensesGrp/Desc | 0 | MEDICAL EQUIPMENT |
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| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | AWARENESS: THROUGH PUBLIC OUTREACH, MEDIA RELATIONS, ONLINE PLATFORMS, CHAPTER COLLATERAL, AND SOCIAL MEDIA, THE ALS ASSOCIATION FLORIDA CHAPTER CONTINUED TO RAISE AWARENESS ABOUT ALS, THE PEOPLE WE SERVE, OUR PUBLIC POLICY GOALS, AND THE SEARCH FOR A TREATMENT AND CURE. OUR WEBSITE IS AN INVALUABLE SOURCE OF INFORMATION FOR THOSE LIVING WITH ALS AND PEOPLE LOOKING FOR THE LATEST INFORMATION ABOUT THE DISEASE. CHAPTER COLLATERAL SUCH AS BROCHURES, INFOGRAPHIC HANDOUTS, AND FLYERS PROVIDED OUR CONSTITUENTS IN THE COMMUNITIES WE SERVE WITH TIMELY INFORMATION ABOUT THE CHAPTER AND THE ACHIEVEMENT OF OUR MISSION PRIORITIES. (CONTINUED ON SCHEDULE O)E-COMMUNICATION CAMPAIGNS SUCH AS OUR MONTHLY EMAIL NEWSLETTERS, END OF YEAR GIVING CAMPAIGN, ALS AWARENESS MONTH CAMPAIGN, AND OTHER FUNDRAISING CAMPAIGNS WERE DEVELOPED TO FURTHER OUR PUBLIC POLICY, CARE SERVICES AND GLOBAL RESEARCH GOALS. STATEWIDE AWARENESS EVENTS SUCH AS OUR PARTNERSHIP WITH VARIOUS SPONSORS AND PARTICIPATION IN HEALTH FAIRS PROVIDED OPPORTUNITIES TO BRING THE ALS COMMUNITY TOGETHER THROUGHOUT THE STATE. MEDIA RELATIONS AND ONGOING COMMUNICATION WITH VARIOUS MEDIA OUTLETS AROUND THE STATE PROVIDED THE LATEST NEWS AND MANY PATIENT STORIES, SPOTLIGHTING THE NEED FOR MORE FUNDING AND CARE AND SUPPORT OF THE ALS COMMUNITY IN FLORIDA. SOCIAL MEDIA CHANNELS INCLUDING FACEBOOK, TWITTER, AND INSTAGRAM, PROVIDED THE CHAPTER THE CHANCE TO SPREAD AWARENESS OF THE LATEST RESEARCH UPDATES, CHAPTER AND STATEWIDE EVENTS, AND BUILD AN ONLINE COMMUNITY WITH THOSE LIVING WITH ALS AND THOSE SUPPORTING THE ALS COMMUNITY STATEWIDE. |
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| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | RESEARCH: THE ALS ASSOCIATION FLORIDA CHAPTER, THROUGH THE ALS ASSOCIATION, HAS COMMITTED OVER $2 MILLION TO RESEARCH AT SEVERAL RENOWNED RESEARCH CENTERS IN THE STATE INCLUDING THE MAYO CLINIC IN JACKSONVILLE, THE UNIVERSITY OF SOUTH FLORIDA IN TAMPA, THE UNIVERSITY OF FLORIDA IN GAINESVILLE AND JACKSONVILLE, THE UNIVERSITY OF MIAMI, AND HOLY CROSS. FLORIDA PATIENTS AND RESEARCHERS PARTICIPATE IN A VARIETY OF STUDIES INCLUDING: BIOMARKER, DRUG DEVELOPMENT, GENETICS, DISEASE MECHANISM, OBSERVATIONAL/NATURAL HISTORY, AND SYMPTOM MANAGEMENT. THE CHAPTER ALSO WORK TO ENCOURAGE PEOPLE LIVING WITH ALS TO REGISTER WITH THE NATIONAL ALS REGISTRY THROUGH THE CENTERS FOR DISEASE CONTROL AND PREVENTION. |
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| IRS990/ProgSrvcAccomActyOtherGrp/Desc | 0 | ADVOCACY: THE ALS ASSOCIATION FLORIDA CHAPTER SUPPORTS THE ALS ASSOCIATION'S ADVOCACY AGENDA INCLUDING APPROPRIATIONS, LEGISLATION, AND REGULATORY AFFAIRS.FEDERAL PUBLIC POLICY PRIORITIESAPPROPRIATIONS FOR ALS RESEARCH:NATIONAL ALS REGISTRY - PROVIDE $10 MILLION APPROPRIATION TO CONTINUE THE NATIONAL ALS REGISTRY AND BIOREPOSITORY AT THE CENTERS FOR DISEASE CONTROL AND PREVENTION. THE REGISTRY COLLECTS DATA AND DIRECTS A BIOREPOSITORY FOR PEOPLE LIVING WITH ALS AND COLLABORATES WITH THE CENTERS FOR MEDICARE AND MEDICAID SERVICES, THE VETERAN'S ADMINISTRATION AND THE NATIONAL INSTITUTES OF HEALTH (NIH). IT IS A CRITICAL DRIVER OF THE SEARCH TO FIND TREATMENTS AND A CURE BECAUSE IT CONNECTS RESEARCHERS CONDUCTING CLINICAL TRIALS WITH PEOPLE LIVING WITH ALS IN ADDITION TO FUNDING ITS OWN RESEARCH.DEPARTMENT OF DEFENSE - PROVIDE A $10 MILLION APPROPRIATION TO CONTINUE THE ALS RESEARCH PROGRAM (ALSRP) AT THE DEPARTMENT OF DEFENSE (DOD). RESEARCH HAS REPEATEDLY DEMONSTRATED THAT MILITARY VETERANS, REGARDLESS OF BRANCH OR ERA OF SERVICE, ARE APPROXIMATELY TWICE AS LIKELY TO DIE FROM ALS THAN CIVILIANS. THE ALS RESEARCH PROGRAM (ALSRP), FUNDED AS PART OF THE CONGRESSIONAL DIRECTED MEDICAL RESEARCH PROGRAM AT DOD, PROVIDES COMPETITIVE GRANTS THAT ARE AN ESSENTIAL COMPONENT OF EFFORTS TO IDENTIFY TREATMENTS AND A CURE FOR ALS.NATIONAL INSTITUTES OF HEALTH - CONTINUE ALS RESEARCH AT THE NATIONAL INSTITUTE FOR NEUROLOGICAL DISORDERS AND STROKE AND OTHER INSTITUTES AT THE NATIONAL INSTITUTES OF HEALTH (NIH). NIH SPENDS APPROXIMATELY $55 MILLION FOR ALS RESEARCH WITHIN THE NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS AND STROKE (NINDS) AND FOUR OTHER INSTITUTES.LEGISLATION:WAIVE THE FIVE-MONTH WAITING PERIOD FOR SOCIAL SECURITY - THE ALS DISABILITY INSURANCE ACCESS ACT (S.379/ H.R.1171) TO ELIMINATE THE FIVE-MONTH WAITING PERIOD FOR SOCIAL SECURITY DISABILITY INSURANCE (SSDI) OR MEDICARE DID NOT PASS IN THE 115TH CONGRESS. UNDER CURRENT LAW, PEOPLE WITH ALS WHO QUALIFY FOR SOCIAL SECURITY DISABILITY INSURANCE (SSDI) MUST WAIT FIVE MONTHS BEFORE RECEIVING SSDI AND ACCESS TO MEDICARE. THE LEGISLATION WOULD ELIMINATE THE FIVE-MONTH WAITING PERIOD FOR PEOPLE WITH ALS. THE BILL WILL BE RE-INTRODUCED IN THE 116TH CONGRESS.REGULATORY AFFAIRS:MEDICARE PROPOSED RULE - THE ALS ASSOCIATION SUBMITTED COMMENTS ON THE CENTERS FOR MEDICARE AND MEDICAID (CMS) PROPOSED RULE 1689-P. THE LETTER FOCUSED ON TWO COMPONENTS OF THE PROPOSED RULE: HOME HEALTH AND HOME INFUSIONS.CHAPTER ADVOCACY ACTIVITIES:MARCH 2020 - PARTICIPATED IN "FLY-IN" ADVOCACY TOP ROOTS (IN WASHINGTON, DC) EVENT VIRTUALLY THIS YEAR BECAUSE OF COVID-19. MET WITH TARGETED FLORIDA REPRESENTATIVES OVER ZOOM VIDEO CALLS.MAY 2020 - ANNUAL NATIONAL ALS ADVOCACY DAYS AND PUBLIC POLICY CONFERENCE TYPICALLY ATTENDED IN WASHINGTON, DC WAS ATTENDED VIRTUALLY OVER ZOOM VIDEO CALLS. CHAPTER ADVOCATES MET WITH FLORIDA'S TWO SENATORS AND 27 REPRESENTATIVES VIRTUALLY.OTHER ADVOCACY ACTIVITIES:BOARD OF DIRECTORS COMMITTEE ON ADVOCACY FOCUSED ON ENGAGING BOARD MEMBERS IN FEDERAL ADVOCACY AND DISCUSSED OPTIONS FOR BUILDING A STATE ADVOCACY PROGRAM. |
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| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 579198 |
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| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus1YearAmt | 0 | 59373 |
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| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus3YearsAmt | 0 | 53256 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus4YearsAmt | 0 | 28675 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 240688 |
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| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 2516946 |
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Displayed year
2021 • Form 990Detailed filing. Detailed filing data is available for this year.