Liabilities / Assets
70th percentile
Higher debt load relative to assets than 70% of similar nonprofits.
990 • Fiscal year 2020 • EIN 94-3124732
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
70th percentile
Higher debt load relative to assets than 70% of similar nonprofits.
Liabilities / Revenue
56th percentile
Higher debt load relative to revenue than 56% of similar nonprofits.
Net Margin
20th percentile
Higher net margin than 20% of similar nonprofits.
Top Officer Pay
66th percentile
Higher top officer pay than 66% of similar nonprofits.
Top officer pay equals 4.9% of source-year revenue.
Asset Growth
4th percentile
Faster asset growth than 4% of similar nonprofits.
Revenue Growth
26th percentile
Faster revenue growth than 26% of similar nonprofits.
Assets
Down$1,150,493
Down $377,364 (-25%) from 2019
Net Assets
Down$813,216
Down $237,798 (-23%) from 2019
Liabilities
Down$337,277
Down $139,566 (-29%) from 2019
Revenue
Down$1,883,335
Down $386,124 (-17%) from 2019
Expenses
Down$2,121,133
Down $374,121 (-15%) from 2019
Net Income
Down-$237,798
Down $12,003 (-5.3%) from 2019
Leading the fight to treat and cure als through global research and nationwide advocacy while also empowering people with lou gehrig's disease and their families to live fuller lives by providing them with compassionate care and support.
Improving the lives of people living with als, raising programs funds & participating in advocacy.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Land, Buildings, and Equipment, Net | $555,727 | $540,303 | ▼ $15,424 |
| Savings and Temporary Cash Investments | $727,647 | $422,258 | ▼ $305,389 |
| Pledges and Grants Receivable | $173,365 | $96,335 | ▼ $77,030 |
| Cash and Non-Interest-Bearing Accounts | $62,102 | $81,007 | ▲ $18,905 |
| Investments in Publicly Traded Securities | $5,150 | $6,037 | ▲ $887 |
| Prepaid Expenses and Deferred Charges | $3,394 | $4,145 | ▲ $751 |
| Total Assets | $1,527,857 | $1,150,493 | ▼ $377,364 |
| Other Assets Total | $472 | $408 | ▼ $64 |
| Liabilities | |||
| Mortgage Notes Payable Secured by Investment Property | $200,735 | $177,491 | ▼ $23,244 |
| Accounts Payable and Accrued Expenses | $58,221 | $73,007 | ▲ $14,786 |
| Other Liabilities | $142,226 | $56,311 | ▼ $85,915 |
| Grants Payable | $75,661 | $30,468 | ▼ $45,193 |
| Total Liabilities | $476,843 | $337,277 | ▼ $139,566 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $987,320 | $755,525 | ▼ $231,795 |
| Net Assets With Donor Restrictions | $63,694 | $57,691 | ▼ $6,003 |
| Total Net Assets Fund Balance | $1,051,014 | $813,216 | ▼ $237,798 |
| Total Liabilities and Net Assets / Fund Balance | $1,527,857 | $1,150,493 | ▼ $377,364 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Buildings | $314,711 | $170,898 | $485,609 |
| Equipment | $592 | $425,746 | $426,338 |
| Land | $225,000 | - | $225,000 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Ray Carson | President/CEO (4/8/19-1/31/20) | FT | $92,516 | - | $92,516 |
| Gabby Harrison | Director of Operations (2/1/19-7/18/19) | FT | $59,880 | $798 | $60,678 |
| Name | Title |
|---|---|
| John Cannistra | Chairman |
| Alecia Jones Bailey | Trustee |
| Jo-ann Clynch | Trustee |
| John Collins | Trustee |
| Kevin Conn | Trustee |
| Tim Cummings | Trustee |
| Wendy Bitner Rodin | Trustee (2/1/19-08/28/19) |
| Melissa Spring | Trustee (3/14/19-1/31/20) |
| Troy Fields | Trustee (3/14/19-1/31/20) |
| Sharon Maybrook | Secretary |
| Glenn Stambaugh | Treasurer |
| Hampton Graham | Vice Chariman |
| Contribution Type | Contribution Count | Reported Amount | Valuation Method |
|---|---|---|---|
| Other Non Cash Contri Table | 69 | $67,400 | Fair Market Value |
| Securities Publicly Traded | 1 | $436 | Stock Quote |
| Total Noncash Contributions | 70 | $67,836 | - |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $1,141,838 |
| Other Expenses | $668,431 |
| Grants and Similar Amounts Paid | $310,864 |
| Total Fundraising Expense | $283,221 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $610,166 | $21,286 | $189,841 | $821,293 |
| Grants to Domestic Orgs | $251,337 | - | - | $251,337 |
| Office Expenses | $222,013 | $7,117 | $12,698 | $241,828 |
| Fees for Services Other | $210,457 | $3,897 | $5,187 | $219,541 |
| Current Officers, Directors, Trustees, and Key Employees | $127,929 | $16,740 | $22,728 | $167,397 |
| Payroll Taxes | $61,424 | $3,165 | $17,690 | $82,279 |
| Other Employee Benefits | $52,906 | $2,726 | $15,237 | $70,869 |
| Grants to Domestic Individuals | $59,527 | - | - | $59,527 |
| Fees for Services Accounting | $10,058 | $40,233 | - | $50,291 |
| Travel | $43,518 | $507 | $3,126 | $47,151 |
| Information Technology | $35,328 | $4,416 | $4,416 | $44,160 |
| Conferences and Meetings | $17,267 | $1,170 | $8,901 | $27,338 |
| Occupancy | $16,629 | $2,079 | $2,079 | $20,787 |
| Depreciation Depletion | $6,153 | $535 | $743 | $7,431 |
| Insurance | $4,124 | $515 | $515 | $5,154 |
| Fees for Services Legal | $627 | $2,508 | - | $3,135 |
| All Other Expenses | $479 | $391 | $60 | $930 |
| Other Expenses | - | $685 | - | $685 |
| Total Functional Expenses | $871 | $0 | $4,357 | $5,228 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $2,231,214 |
| Expenses per Audited Statements | $2,121,133 |
| Total Expenses per Form 990 | $2,121,133 |
| Expenses Not Reported on Form 990 | $110,081 |
| Expenses Not Reported on Financial Statements | $0 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| The Als Association | Washington, DC | 501(c)(3) | Advocacy, Awareness, Care Services, Etc. | $212,306 |
| The Als Association | Washington, DC | 501(c)(3) | Research | $39,031 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $93,280 |
| Fundraising Gross Income | $5,500 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Walk to Defeat Als Events | $1,129,472 | - | $42,831 | - |
| Ride to Defeat Als Events | $145,567 | $5,500 | $6,515 | $-1,015 |
| Total Events | $1,275,039 | $5,500 | $93,280 | $-87,780 |
| Liability | Amount |
|---|---|
| Due to National Als | $56,311 |
“The audit report and form 990 is first reviewed and discussed with the finance committee and the accountant. Once any questions or concerns have been addressed, the finance committee votes to accept the audit report and form 990. Once this is complete, both are presented to the entire board of directors for vote and approval.”
“Board members and key employees are asked to sign a conflict of interest policy annually. Any conflicts are discussed with the executive committee of the board for appropriate action, if necessary. Board members with a conflict on any voting matters recuse themselves from the vote.”
“The process for determining the president/ceo's salary is as follows: (1) the president/ceo's performance is reviewed by the chairman and a written evaluation is provided to the president/ceo and to the executive committee; (2) salary is determined and documented by using comparable data from nonprofits of similar mission, budget size, and geographic region, including sister als chapters, with allowances made for differences in size and location; (3) the executive committee makes a recommendation to the board for approval; and (4) the board's consideration and approval of the compensation is documented in the boards minutes. The process for determining key employee's salary is as follows: (1) the employee's performance is reviewed by the president/ceo; and (2) salary is determined and documented by using comparable data from nonprofits of similar mission, budget size, and geographic region.”
“The chapter makes its governing documents, conflict of interest policy, and financial statements available to the public upon request.”
“Clinical services: program service expenses 149,598. Management and general expenses 0. Fundraising expenses 0. Total expenses 149,598. Payroll administration: program service expenses 17,891. Management and general expenses 922. Fundraising expenses 5,152. Total expenses 23,965. Other professional fees: program service expenses 42,968. Management and general expenses 2,975. Fundraising expenses 35. Total expenses 45,978.”
“The financial statement audit and selection of the independent cpa firm is managed by the president/ceo and overseen by the finance committee of the board. The cpa firm presents the audit and 990 to the finance committee. The firm meets with the treasurer at least once without staff present to ensure the process is fully independent. The finance committee then presents the audit and 990 to the full board. The cpa firm is chosen from three (3) independent proposals when a change in firm is made. This process has not changed from the prior year.”
“The amyotrophic lateral sclerosis association and its affiliated chapters, including the association, have been recognized collectively by the internal revenue service as a tax-exempt organization described in section 501(c)(3) of the internal revenue code of 1986. Income earned in furtherance of the association's tax-exempt purpose is exempt from federal and state income taxes. The association, through the collective exemption described previously, is treated as a publicly supported organization, and not as a private foundation. The association has adopted the provisions of asc topic 740, income taxes, relating to accounting for uncertainty in income taxes and does not believe it has any material income tax exposure relating to uncertain tax positions. The association's income tax filings for periods after the fiscal year ended january 31, 2017 remain subject to examination. Beginning with the year ended january 31, 2009, the association received rent from a tenant, which is considered unrelated taxable business income. For the year ended january 31, 2020 and 2019, this activity generated a nominal amount of income tax expense in each year.”
“Event expenses deducted on part viii, line 8b 93,280. Rental expenses deducted on part viii, line 6b 17,132. Reclass of negative revenue on part ix, line 24e -331.”
“Event expenses deducted on part viii, line 8b 93,280. Rental expenses deducted on part viii, line 6b 17,132. Reclass of negative revenue on part ix, line 24e -331.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 58221 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 73007 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | IMPROVING THE LIVES OF PEOPLE LIVING WITH ALS, RAISING PROGRAMS FUNDS & PARTICIPATING IN ADVOCACY. |
| IRS990/AllOtherContributionsAmt | 0 | 530310 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 60 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 391 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 479 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 930 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | RAY CARSON |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 8136379000 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 3242 PARKSIDE CENTER CIRCLE |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | TAMPA |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | FL |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 33619 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 62102 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 81007 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 22728 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 16740 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 127929 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 167397 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 8901 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 1170 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 17267 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 27338 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 1269539 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1962348 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 310864 |
| IRS990/CYInvestmentIncomeAmt | 0 | 1419 |
| IRS990/CYOtherExpensesAmt | 0 | 668431 |
| IRS990/CYOtherRevenueAmt | 0 | -80432 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -237798 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 1141838 |
| IRS990/CYTotalExpensesAmt | 0 | 2121133 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 283221 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 1883335 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 1 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 743 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 535 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 6153 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 7431 |
| IRS990/Desc | 0 | PATIENT SERVICES: THE ALS ASSOCIATION FLORIDA CHAPTER PROVIDED A WIDE RANGE OF SERVICES AND PROGRAMS TO HELP PEOPLE LIVING WITH LOU GEHRIG'S DISEASE. THE CHAPTER SERVED 1,412 PATIENTS IN 2019. PROGRAMS INCLUDED: 1) SPONSORSHIP OF EIGHT ALS MULTIDISCIPLINARY CLINICS IN THE STATE OF FLORIDA, WHICH INCLUDED BOTH FINANCIAL SUPPORT AND IN-KIND STAFFING SUPPORT; 2) A NETWORK OF TEN CARE SERVICES STAFF WHO HELPED PATIENTS, FAMILIES, AND CAREGIVERS NAVIGATE THE PHYSICAL, SOCIAL, EMOTIONAL, AND FINANCIAL EFFECTS OF ALS THROUGH CASE MANAGEMENT, SOCIAL WORK SERVICES, REFERRALS, ASSESSMENTS, EDUCATION AND GOVERNMENT/VETERAN BENEFITS/INSURANCE ADVOCACY; 3) SUPPORT/RESOURCE GROUPS IN 19 STATEWIDE LOCATIONS ATTENDED BY 1,742 PEOPLE OVER THE YEAR;(CONTINUED ON SCHEDULE O)4) LOANED MEDICAL EQUIPMENT AND ASSISTIVE TECHNOLOGY PROGRAMS THAT PROVIDED 383 PIECES OF DURABLE MEDICAL EQUIPMENT AND ASSISTIVE AUGMENTED COMMUNICATION DEVICES TO PATIENTS IN NEED; 5) ALS SPECIALTY HOME HEALTH COORDINATION; 6) A VISITING VOLUNTEERS PROGRAM THAT MATCHED 40 PEOPLE LIVING WITH ALS WITH A VOLUNTEER TO ASSIST IN THE HOME WITH NON-MEDICAL NEEDS SUCH AS YARD WORK, HOME CLEANING, AND OTHER HOME PROJECTS; 7) FUNDING FOR 107 MONETARY GRANTS TO PATIENTS THAT PROVIDED 598 HOURS OF RESPITE CARE, AS WELL AS HOME MODIFICATIONS, VAN MODIFICATIONS, TRANSPORTATION, MEDICAL EQUIPMENT NOT COVERED BY INSURANCE, AND OTHER FINANCIAL NEEDS; 8) THE RICK AND SHERRY MURRAY MEDICAL FUTURES SCHOLARSHIP FUND, PROVIDING SCHOLARSHIPS TO 1 STUDENT; 9) ONE HOPE AND HELP SYMPOSIUM, A FULL-DAY EVENT THAT FEATURED INFORMATIVE SESSIONS FOR PATIENTS, CAREGIVERS, AND SUPPORTERS OF PEOPLE WITH ALS AND INCLUDED IMPORTANT KEYNOTE SPEAKERS, A VENDOR FAIR, OPPORTUNITIES TO "ASK THE EXPERTS, AND AN AMBASSADOR OF HOPE AWARDS LUNCHEON ATTENDED BY 308 CONSTITUENTS; AND 10) SUPPORTED CAMP HLC, A THREE-DAY RETREAT FOR CHILDREN AND YOUNG ADULTS WHO HAVE OR HAD A LOVED ONE DIAGNOSED WITH ALS, WITH A FINANCIAL SPONSORSHIP. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DoingBusinessAsName/BusinessNameLine1Txt | 0 | THE ALS ASSOCIATION FLORIDA CHAPTER INC |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 63694 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 57691 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 28 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 1064334 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 40233 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 10058 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 50291 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 2508 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 627 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 3135 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 5187 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 3897 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 210457 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 219541 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 798 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | RAY CARSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | GABBY HARRISON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | JOHN CANNISTRA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | HAMPTON GRAHAM |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | GLENN STAMBAUGH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | SHARON MAYBROOK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | WENDY BITNER RODIN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | JO-ANN CLYNCH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | JOHN COLLINS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | KEVIN CONN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | TIM CUMMINGS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | ALECIA JONES BAILEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | TROY FIELDS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | MELISSA SPRING |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 92516 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 59880 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | PRESIDENT/CEO (4/8/19-1/31/20) |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | DIRECTOR OF OPERATIONS (2/1/19-7/18/19) |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | CHAIRMAN |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | VICE CHARIMAN |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | TRUSTEE (2/1/19-08/28/19) |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | TRUSTEE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | TRUSTEE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | TRUSTEE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | TRUSTEE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | TRUSTEE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | TRUSTEE (3/14/19-1/31/20) |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | TRUSTEE (3/14/19-1/31/20) |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/Form990TFiledInd | 0 | 1 |
| IRS990/FormationYr | 0 | 1987 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 1269539 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 93280 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 5500 |
| IRS990/GainOrLossGrp/OtherAmt | 0 | -407 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 472 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 11 |
| IRS990/GovernmentGrantsAmt | 0 | 162499 |
| IRS990/GrantAmt | 0 | 157400 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 75661 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 30468 |
| IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt | 0 | 59527 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 59527 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 251337 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 251337 |
| IRS990/GrantsToIndividualsInd | 0 | 1 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossAmountSalesAssetsGrp/OtherAmt | 0 | 1000 |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 472 |
| IRS990/GrossReceiptsAmt | 0 | 1995154 |
| IRS990/GrossRentsGrp/RealAmt | 0 | 24480 |
| IRS990/GroupExemptionNum | 0 | 4119 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 11 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 4416 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 4416 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 35328 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 44160 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 515 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 515 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 4124 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 5154 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 1354 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 1354 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 5150 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 6037 |
| IRS990/IRPDocumentCnt | 0 | 7 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/JointCostsInd | 0 | X |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 596644 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 555727 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 540303 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 1136947 |
| IRS990/LegalDomicileStateCd | 0 | FL |
| IRS990/LessCostOthBasisSalesExpnssGrp/OtherAmt | 0 | 1407 |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 0 |
| IRS990/LessRentalExpensesGrp/RealAmt | 0 | 17132 |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 1 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | OUR MISSION IS TO DISCOVER TREATMENTS AND A CURE FOR ALS, AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/MortgNotesPyblScrdInvstPropGrp/BOYAmt | 0 | 200735 |
| IRS990/MortgNotesPyblScrdInvstPropGrp/EOYAmt | 0 | 177491 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1051014 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 813216 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | 65 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 65 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | -87780 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -87780 |
| IRS990/NetRentalIncomeOrLossGrp/ExclusionAmt | 0 | 4799 |
| IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 7348 |
| IRS990/NetRentalIncomeOrLossGrp/UnrelatedBusinessRevenueAmt | 0 | 2549 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 1549 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 987320 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 755525 |
| IRS990/NoncashContributionsAmt | 0 | 67836 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 2079 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 2079 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 16629 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 20787 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 12698 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 7117 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 222013 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 241828 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 472 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 408 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 15237 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 2726 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 52906 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 70869 |
| IRS990/OtherExpensesGrp/Desc | 0 | EXCISE TAX |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 685 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 685 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 142226 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 56311 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 189841 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 21286 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 610166 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 821293 |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 17690 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 3165 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 61424 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 82279 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 173365 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 96335 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 3394 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 4145 |
| IRS990/PrincipalOfficerNm | 0 | RAY CARSON |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | AWARENESS: THROUGH PUBLIC OUTREACH, MEDIA RELATIONS, ONLINE PLATFORMS, CHAPTER COLLATERAL, AND SOCIAL MEDIA, THE ALS ASSOCIATION FLORIDA CHAPTER CONTINUED TO RAISE AWARENESS ABOUT ALS, THE PEOPLE WE SERVE, OUR PUBLIC POLICY GOALS, AND THE SEARCH FOR A TREATMENT AND CURE. OUR WEBSITE IS AN INVALUABLE SOURCE OF INFORMATION FOR THOSE LIVING WITH ALS AND PEOPLE LOOKING FOR THE LATEST INFORMATION ABOUT THE DISEASE. CHAPTER COLLATERAL SUCH AS BROCHURES, INFOGRAPHIC HANDOUTS, AND FLYERS PROVIDED OUR CONSTITUENTS IN THE COMMUNITIES WE SERVE WITH TIMELY INFORMATION ABOUT THE CHAPTER AND THE ACHIEVEMENT OF OUR MISSION PRIORITIES. (CONTINUED ON SCHEDULE O)E-COMMUNICATION CAMPAIGNS SUCH AS OUR MONTHLY EMAIL NEWSLETTERS, END OF YEAR GIVING CAMPAIGN, ALS AWARENESS MONTH CAMPAIGN, AND OTHER FUNDRAISING CAMPAIGNS WERE DEVELOPED TO FURTHER OUR PUBLIC POLICY, CARE SERVICES AND GLOBAL RESEARCH GOALS. STATEWIDE AWARENESS EVENTS SUCH AS OUR PARTNERSHIP WITH VARIOUS SPONSORS AND PARTICIPATION IN HEALTH FAIRS PROVIDED OPPORTUNITIES TO BRING THE ALS COMMUNITY TOGETHER THROUGHOUT THE STATE. MEDIA RELATIONS AND ONGOING COMMUNICATION WITH VARIOUS MEDIA OUTLETS AROUND THE STATE PROVIDED THE LATEST NEWS AND MANY PATIENT STORIES, SPOTLIGHTING THE NEED FOR MORE FUNDING AND CARE AND SUPPORT OF THE ALS COMMUNITY IN FLORIDA. SOCIAL MEDIA CHANNELS INCLUDING FACEBOOK, TWITTER, AND INSTAGRAM, PROVIDED THE CHAPTER THE CHANCE TO SPREAD AWARENESS OF THE LATEST RESEARCH UPDATES, CHAPTER AND STATEWIDE EVENTS, AND BUILD AN ONLINE COMMUNITY WITH THOSE LIVING WITH ALS AND THOSE SUPPORTING THE ALS COMMUNITY STATEWIDE. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 474071 |
| IRS990/ProgSrvcAccomActy2Grp/GrantAmt | 0 | 20806 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | RESEARCH: THE ALS ASSOCIATION FLORIDA CHAPTER, THROUGH THE ALS ASSOCIATION, HAS COMMITTED OVER $2 MILLION TO RESEARCH AT SEVERAL RENOWNED RESEARCH CENTERS IN THE STATE INCLUDING THE MAYO CLINIC IN JACKSONVILLE, THE UNIVERSITY OF SOUTH FLORIDA IN TAMPA, THE UNIVERSITY OF FLORIDA IN GAINESVILLE AND JACKSONVILLE, THE UNIVERSITY OF MIAMI, AND HOLY CROSS. FLORIDA PATIENTS AND RESEARCHERS PARTICIPATE IN A VARIETY OF STUDIES INCLUDING: BIOMARKER, DRUG DEVELOPMENT, GENETICS, DISEASE MECHANISM, OBSERVATIONAL/NATURAL HISTORY, AND SYMPTOM MANAGEMENT. THE CHAPTER ALSO WORK TO ENCOURAGE PEOPLE LIVING WITH ALS TO REGISTER WITH THE NATIONAL ALS REGISTRY THROUGH THE CENTERS FOR DISEASE CONTROL AND PREVENTION. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 132658 |
| IRS990/ProgSrvcAccomActy3Grp/GrantAmt | 0 | 132658 |
| IRS990/ProgSrvcAccomActyOtherGrp/Desc | 0 | ADVOCACY: THE ALS ASSOCIATION FLORIDA CHAPTER SUPPORTS THE ALS ASSOCIATION'S ADVOCACY AGENDA INCLUDING APPROPRIATIONS, LEGISLATION, AND REGULATORY AFFAIRS.FEDERAL PUBLIC POLICY PRIORITIESAPPROPRIATIONS FOR ALS RESEARCH:NATIONAL ALS REGISTRY - PROVIDE $10 MILLION APPROPRIATION TO CONTINUE THE NATIONAL ALS REGISTRY AND BIOREPOSITORY AT THE CENTERS FOR DISEASE CONTROL AND PREVENTION. THE REGISTRY COLLECTS DATA AND DIRECTS A BIOREPOSITORY FOR PEOPLE LIVING WITH ALS AND COLLABORATES WITH THE CENTERS FOR MEDICARE AND MEDICAID SERVICES, THE VETERAN'S ADMINISTRATION AND THE NATIONAL INSTITUTES OF HEALTH (NIH). IT IS A CRITICAL DRIVER OF THE SEARCH TO FIND TREATMENTS AND A CURE BECAUSE IT CONNECTS RESEARCHERS CONDUCTING CLINICAL TRIALS WITH PEOPLE LIVING WITH ALS IN ADDITION TO FUNDING ITS OWN RESEARCH.DEPARTMENT OF DEFENSE - PROVIDE A $10 MILLION APPROPRIATION TO CONTINUE THE ALS RESEARCH PROGRAM (ALSRP) AT THE DEPARTMENT OF DEFENSE (DOD). RESEARCH HAS REPEATEDLY DEMONSTRATED THAT MILITARY VETERANS, REGARDLESS OF BRANCH OR ERA OF SERVICE, ARE APPROXIMATELY TWICE AS LIKELY TO DIE FROM ALS THAN CIVILIANS. THE ALS RESEARCH PROGRAM (ALSRP), FUNDED AS PART OF THE CONGRESSIONAL DIRECTED MEDICAL RESEARCH PROGRAM AT DOD, PROVIDES COMPETITIVE GRANTS THAT ARE AN ESSENTIAL COMPONENT OF EFFORTS TO IDENTIFY TREATMENTS AND A CURE FOR ALS.NATIONAL INSTITUTES OF HEALTH - CONTINUE ALS RESEARCH AT THE NATIONAL INSTITUTE FOR NEUROLOGICAL DISORDERS AND STROKE AND OTHER INSTITUTES AT THE NATIONAL INSTITUTES OF HEALTH (NIH). NIH SPENDS APPROXIMATELY $55 MILLION FOR ALS RESEARCH WITHIN THE NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS AND STROKE (NINDS) AND FOUR OTHER INSTITUTES.LEGISLATION:WAIVE THE FIVE-MONTH WAITING PERIOD FOR SOCIAL SECURITY THE ALS DISABILITY INSURANCE ACCESS ACT (S.379/ H.R.1171) TO ELIMINATE THE FIVE-MONTH WAITING PERIOD FOR SOCIAL SECURITY DISABILITY INSURANCE (SSDI) OR MEDICARE DID NOT PASS IN THE 115TH CONGRESS. UNDER CURRENT LAW, PEOPLE WITH ALS WHO QUALIFY FOR SOCIAL SECURITY DISABILITY INSURANCE (SSDI) MUST WAIT FIVE MONTHS BEFORE RECEIVING SSDI AND ACCESS TO MEDICARE. THE LEGISLATION WOULD ELIMINATE THE FIVE-MONTH WAITING PERIOD FOR PEOPLE WITH ALS. THE BILL WILL BE RE-INTRODUCED IN THE 116TH CONGRESS.REGULATORY AFFAIRS:MEDICARE PROPOSED RULE - THE ALS ASSOCIATION SUBMITTED COMMENTS ON THE CENTERS FOR MEDICARE AND MEDICAID (CMS) PROPOSED RULE 1689-P. THE LETTER FOCUSED ON TWO COMPONENTS OF THE PROPOSED RULE: HOME HEALTH AND HOME INFUSIONS.CHAPTER ADVOCACY ACTIVITIES:MARCH 2019 - PARTICIPATED IN "FLY-IN" ADVOCACY TOP ROOTS EVENT IN WASHINGTON, DC AND VISITED TARGETED FLORIDA REPRESENTATIVES.MAY 2019 - ANNUAL NATIONAL ALS ADVOCACY DAYS AND PUBLIC POLICY CONFERENCE IN WASHINGTON, DC. ADVOCATES MET WITH FLORIDA'S TWO SENATORS AND 27 REPRESENTATIVES IN THEIR WASHINGTON OFFICES.AUGUST 2019 - MET WITH SENATORS AND REPRESENTATIVES IN FLORIDA DISTRICT OFFICES DURING CONGRESSIONAL RECESS. OTHER ADVOCACY ACTIVITIES:BOARD OF DIRECTORS COMMITTEE ON ADVOCACY FOCUSED ON ENGAGING BOARD MEMBERS IN FEDERAL ADVOCACY AND DISCUSSED OPTIONS FOR BUILDING A STATE ADVOCACY PROGRAM. |
| IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt | 0 | 58879 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 2344722 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 436087 |
| IRS990/PYInvestmentIncomeAmt | 0 | 1333 |
| IRS990/PYOtherExpensesAmt | 0 | 911391 |
| IRS990/PYOtherRevenueAmt | 0 | -76596 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -225795 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 1147776 |
| IRS990/PYTotalExpensesAmt | 0 | 2495254 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 2269459 |
| IRS990/QuidProQuoContributionsInd | 0 | 1 |
| IRS990/QuidProQuoContriDisclInd | 0 | 1 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -237798 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/RentalIncomeOrLossGrp/RealAmt | 0 | 7348 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 1 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 727647 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 422258 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearAmt | 0 | 59373 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus1YearAmt | 0 | 80166 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus2YearsAmt | 0 | 53256 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus3YearsAmt | 0 | 28675 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus4YearsAmt | 0 | 48360 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 269830 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 1962348 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 2344722 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 2579574 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 2516946 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 2857690 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 12261280 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 17343 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 16584 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 4276 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1467 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 2034 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 41704 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt | 0 | 5845 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt | 0 | 5355 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 11200 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/CurrentTaxYearMinus1YearAmt | 0 | 587 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt | 0 | 587 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 18567 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 18517 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 6084 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 4314 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 2097 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 49579 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.00400 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.00270 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 2540 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 830 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 2952 |
| IRS990ScheduleA/OtherIncome509Grp/TotalAmt | 0 | 6322 |
| IRS990ScheduleA/Post1975UBTIGrp/CurrentTaxYearAmt | 0 | 1224 |
| IRS990ScheduleA/Post1975UBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 1933 |
| IRS990ScheduleA/Post1975UBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 1808 |
No mirrored PDF or thumbnail assets are attached yet.
Displayed year
2020 • Form 990Detailed filing. Detailed filing data is available for this year.