Amyotrophic Lateral Sclerosis Association

“The audit report and form 990 is first reviewed and discussed with the finance committee and the accountant. Once any questions or concerns have been addressed, the finance committee votes to accept the audit report and form 990. Once this is complete, both are presented to the entire board of directors for vote and approval.”

“Board members are asked to sign a conflict of interest policy annually. Board members with a conflict on any voting matters recuse themselves from the vote.”

“The process for determining the president/ceo's salary is as follows: (1) the president/ceo's performance is reviewed by the chairman and a written evaluation is provided to the president/ceo and to the executive committee; (2) salary is determined and documented by using comparable data from nonprofits of similar mission, budget size, and geographic region, including sister als chapters, with allowances made for differences in size and location; (3) the executive committee makes a recommendation to the board for approval; and (4) the board's consideration and approval of the compensation is documented in the boards minutes. The process for determining key employee's salary is as follows: (1) the employee's performance is reviewed by the president/ceo; and (2) salary is determined and documented by using comparable data from nonprofits of similar mission, budget size, and geographic region.”

“The chapter makes its governing documents, conflict of interest policy, and financial statements available to the public upon request.”

“The visiting volunteer program matches trained volunteers with people and their families living with als in the home to assist with tasks of daily living, such as laundry, gardening, and meal preparation. The program was piloted in the tampa/st. Petersburg area in summer 2018, and expanded statewide thereafter following positive feedback through data accumulation and process-streamlining. Currently, the chapter has 28 active visiting volunteers, 18 processed or in processing but unmatched, and 12 outstanding constituent requests. Families and volunteers are monitored continually for satisfaction with the program. A hard-data survey will be performed at the close of each year from initial deployment. Volunteers are stewarded through open communication and a rewards program tied to total hours of volunteerism, as well as acknowledgement during national volunteer week.”

“Clinical services: program service expenses 323,389. Management and general expenses 0. Fundraising expenses 0. Total expenses 323,389. Payroll administration: program service expenses 18,500. Management and general expenses 1,247. Fundraising expenses 4,647. Total expenses 24,394. Other professional fees: program service expenses 48,519. Management and general expenses 3,747. Fundraising expenses 81. Total expenses 52,347.”

“The financial statement audit and selection of the independent cpa firm is managed by the president/ceo and overseen by the finance committee of the board. The cpa firm presents the audit and 990 to the finance committee. The president/ceo is excused from part of the meeting to allow the process to be fully independent. The finance committee then presents the audit and 990 to the full board. The cpa firm is chosen from three (3) independent proposals when a change in firm is made. This process has not changed from the prior year.”