Amyotrophic Lateral Sclerosis Association

“Article four, board of trustees, of the organization's bylaws was amended during the year to: (1) separately define the terms "board and "trustee," (2) to place limitations on the delegation to committees, (3) to impose a minimum of 3 directors, (4) to bring in the governance committee, (5) to distinguish between trustees elected to serve a complete term and those elected to fill a vacancy, (6) to clarify that a vote must be a majority of all trustees then in office, not just a majority at the meeting, and (7) to clarify procedures to be followed for removal of a board member.”

“Form 990 is reviewed by the finance committee of the board. The finance committee presents the 990 to the full board prior to filing with the irs.”

“Board members are asked to sign a conflict of interest policy annually. Board members with a conflict on any voting matters recuse themselves from the vote.”

“The process for determining the president/ceo's salary is as follows: (1) the president/ceo's performance is reviewed by the chairman and a written evaluation is provided to the president/ceo and to the executive committee; (2) salary is determined and documented by using comparable data from nonprofits of similar mission, budget size, and geographic region, including sister als chapters, with allowances made for differences in size and location; (3) the executive committee makes a recommendation to the board for approval; and (4) the board's consideration and approval of the compensation is documented in the boards minutes. The process for determining key employee's salary is as follows: (1) the employee's performance is reviewed by the president/ceo; and (2) salary is determined and documented by using comparable data from nonprofits of similar mission, budget size, and geographic region.”

“The chapter makes its governing documents, conflict of interest policy, and financial statements available to the public upon request.”

“To assist people living with als who were affected by hurricane harvey and hurricane irma, the national office fundraised for dollars to help people recover after the storm. We asked our patients to submit an application with their needs, including the dollar amount needed and receipts (if possible). This information was submitted to the national office. We received a check and disbursed the funds in the appropriate amounts to the constituents that requested the assistance. Funds not used by the constituents were returned to the national office.”

“Clinical services: program service expenses 426,665. Management and general expenses 0. Fundraising expenses 10,122. Total expenses 436,787. Payroll administration: program service expenses 20,667. Management and general expenses 1,337. Fundraising expenses 4,160. Total expenses 26,164. Other professional fees: program service expenses 32,123. Management and general expenses 2,341. Fundraising expenses 12,597. Total expenses 47,061.”

“The financial statement audit and selection of the independent cpa firm is managed by the president/ceo and overseen by the finance committee of the board. The cpa firm presents the audit and 990 to the finance committee. The president/ceo is excused from part of the meeting to allow the process to be fully independent. The finance committee then presents the audit and 990 to the full board. The cpa firm is chosen from three (3) independent proposals when a change in firm is made. This process has not changed from the prior year.”