Liabilities / Assets
61st percentile
Higher debt load relative to assets than 61% of similar nonprofits.
EIN 93-4558784 • 501(c)3 • Cambridge, MA
Profile
To understand and account for heterogeneity in longitudinal progression of disease by engaging regulators, clinical experts, drug developers and patient groups in collaborative learning from patient data, creating tools and insights for drug development and evaluation, sharing broadly with the entire duchenne community, and delivering near-term impact for clinical trials.
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
61st percentile
Higher debt load relative to assets than 61% of similar nonprofits.
Liabilities / Revenue
49th percentile
Higher debt load relative to revenue than 49% of similar nonprofits.
Net Margin
87th percentile
Higher net margin than 87% of similar nonprofits.
Top Officer Pay
94th percentile
Higher top officer pay than 94% of similar nonprofits.
Top officer pay equals 15.1% of source-year revenue.
Asset Growth
Score unavailable
No earlier valid filing was available within the previous three public years.
Revenue Growth
Score unavailable
No earlier valid filing was available within the previous three public years.
Assets
$952,371
No earlier filing loaded for comparison.
Liabilities
$134,195
No earlier filing loaded for comparison.
Net Assets
$818,176
No earlier filing loaded for comparison.
Revenue
$1,887,913
No earlier filing loaded for comparison.
Expenses
$1,069,737
No earlier filing loaded for comparison.
Net Income
$818,176
No earlier filing loaded for comparison.
Most recent year
2024 • Form 990Detailed filing. Detailed filing data is available for this year.
To understand and account for heterogeneity in longitudinal progression of disease by engaging regulators, clinical experts, drug developers and patient groups in collaborative learning from patient data, creating tools and insights for drug development and evaluation, sharing broadly with the entire duchenne community, and delivering near-term impact for clinical trials.
To advance understanding of disease progression in duchenne muscular dystrophy by fostering collaboration among regulators, clinical experts, drug developers, and patient groups. The organization develops data-driven tools and insights to support drug development, shares findings broadly across the duchenne community, and works to accelerate clinical research and deliver improved therapies to patients sooner.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Rtn Earn Endowment Incm Other Fnds | $0 | $818,176 | ▲ $818,176 |
| Cash and Non-Interest-Bearing Accounts | - | $710,038 | - |
| Accounts Receivable | - | $242,333 | - |
| Pd in Cap Srpls Land Bldg Eqp Fund | $0 | $0 | → $0 |
| Cap Stk Tr Prin Current Funds | $0 | $0 | → $0 |
| Total Assets | $0 | $952,371 | ▲ $952,371 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | - | $134,195 | - |
| Total Liabilities | $0 | $134,195 | ▲ $134,195 |
| Net Assets / Fund Balance | |||
| Total Net Assets Fund Balance | $0 | $818,176 | ▲ $818,176 |
| Total Liabilities and Net Assets / Fund Balance | $0 | $952,371 | ▲ $952,371 |
| Name | Title | Base | Total |
|---|---|---|---|
| Susan Ward | Executive Director & Co-founder | $285,000 | $285,000 |
| Name | Title |
|---|---|
| Debra Miller | Board Member |
| Joanne Donovan | Board Member |
| Laura Dalle Pazze | Board Member |
| Mark Stahl | Board Member |
| Naotoshi Kanemitsu | Board Member |
| Nerissa Kreher | Board Member |
| James Signorovitch | Co-founder & Managing Principal, Analysis Group |
| Contractor | Services | Location | Compensation |
|---|---|---|---|
| Analysis Group INC | Consulting | 111 HUNTINGTON AVENUE 14TH FLOOR, Boston, MA 02199 | $400,000 |
| Rdn Strategies LLC - Laura Dalle Pazze | Consulting | 33 ROGERS STREET 303, Cambridge, MA 02142 | $285,000 |
| - | Consulting | 301 E TREMONT AVE APT 103, Charlotte, NC 28203 | $129,300 |
| Line Item | Amount |
|---|---|
| Other Expenses | $1,069,737 |
| Total Fundraising Expense | $117,431 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Salaries, Compensation, and Employee Benefits | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Fees for Services Other | $723,927 | $151,371 | $88,435 | $963,733 |
| Travel | $21,034 | $6,389 | $26,752 | $54,175 |
| Fees for Services Legal | $1,301 | $18,963 | - | $20,264 |
| Fees for Services Accounting | - | $8,480 | - | $8,480 |
| Advertising | $6,977 | $860 | - | $7,837 |
| Occupancy | - | $4,500 | - | $4,500 |
| Other Expenses | $1,823 | $1,178 | $2,045 | $1,178 |
| All Other Expenses | $455 | $255 | $45 | $755 |
| Office Expenses | $102 | $15 | $154 | $271 |
| Total Functional Expenses | $755,619 | $196,687 | $117,431 | $1,069,737 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“A complete copy of form 990 is provided to the board for review and approval prior to being filed.”
“The organization's officers, directors and key employees are required to sign an annual certification related to the conflict of interest policy.”
“The organization's audited financial statements are available on certain public and regulatory agency websites and upon request.”
“Consulting : program service expenses 723,927. Management and general expenses 151,371. Fundraising expenses 88,435. Total expenses 963,733.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 134195 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 242333 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | TO ADVANCE UNDERSTANDING OF DISEASE PROGRESSION IN DUCHENNE MUSCULAR DYSTROPHY BY FOSTERING COLLABORATION AMONG REGULATORS, CLINICAL EXPERTS, DRUG DEVELOPERS, AND PATIENT GROUPS. THE ORGANIZATION DEVELOPS DATA-DRIVEN TOOLS AND INSIGHTS TO SUPPORT DRUG DEVELOPMENT, SHARES FINDINGS BROADLY ACROSS THE DUCHENNE COMMUNITY, AND WORKS TO ACCELERATE CLINICAL RESEARCH AND DELIVER IMPROVED THERAPIES TO PATIENTS SOONER. |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 860 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 6977 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 7837 |
| IRS990/AllOtherContributionsAmt | 0 | 1155000 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 45 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 255 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 455 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 755 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/ApplicationPendingInd | 0 | X |
| IRS990/AuditCommitteeInd | 0 | 0 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | SUSAN WARD |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 6174482617 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | ONE BROADWAY SUITE C5 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | CAMBRIDGE |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | MA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 02142 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CapStkTrPrinCurrentFundsGrp/BOYAmt | 0 | 0 |
| IRS990/CapStkTrPrinCurrentFundsGrp/EOYAmt | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 710038 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 3 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 0 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 0 | 400000 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 1 | 285000 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 2 | 129300 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 0 | 111 HUNTINGTON AVENUE 14TH FLOOR |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 1 | 33 ROGERS STREET 303 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 2 | 301 E TREMONT AVE APT 103 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 0 | BOSTON |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 1 | CAMBRIDGE |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 2 | CHARLOTTE |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 0 | MA |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 1 | MA |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 2 | NC |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 0 | 02199 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 1 | 02142 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 2 | 28203 |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 0 | ANALYSIS GROUP INC |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 1 | RDN STRATEGIES LLC - LAURA DALLE PAZZE |
| IRS990/ContractorCompensationGrp/ContractorName/PersonNm | 0 | SUSAN WARD |
| IRS990/ContractorCompensationGrp/ServicesDesc | 0 | CONSULTING |
| IRS990/ContractorCompensationGrp/ServicesDesc | 1 | CONSULTING |
| IRS990/ContractorCompensationGrp/ServicesDesc | 2 | CONSULTING |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1879167 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 8746 |
| IRS990/CYOtherExpensesAmt | 0 | 1069737 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 818176 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/CYTotalExpensesAmt | 0 | 1069737 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 117431 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 1887913 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/Desc | 0 | CTAP USES THE SCIENTIFIC METHOD TO ENGAGE IN RESEARCH STUDIES TO PRECISELY AND VERIFIABLY CHARACTERIZE PARTICULAR ASPECTS OF THE PROGRESSION OF DMD, AND TO IDENTIFY BROAD RESEARCH PRINCIPLES THAT MERIT ATTENTION BY THE DMD SCIENTIFIC RESEARCH COMMUNITY. CTAP THEN PARTICIPATES IN THE PUBLICATION OF ITS RESULTS TO THE INTERESTED PUBLIC. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 0 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 755619 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 8480 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 8480 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 18963 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 1301 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 20264 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 88435 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 151371 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 723927 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 963733 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | SUSAN WARD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | JAMES SIGNOROVITCH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | NAOTOSHI KANEMITSU |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | MARK STAHL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | LAURA DALLE PAZZE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | DEBRA MILLER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | JOANNE DONOVAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | NERISSA KREHER |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 285000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | EXECUTIVE DIRECTOR & CO-FOUNDER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | CO-FOUNDER & MANAGING PRINCIPAL, ANALYSIS GROUP |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | BOARD MEMBER |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 0 |
| IRS990/FormationYr | 0 | 2023 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 0 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 10 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 0 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 1887913 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 0 |
| IRS990/IndependentVotingMemberCnt | 0 | 10 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 8746 |
| IRS990/InvestmentIncomeGrp/UnrelatedBusinessRevenueAmt | 0 | 8746 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 10 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | DE |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembershipDuesAmt | 0 | 724167 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | TO UNDERSTAND AND ACCOUNT FOR HETEROGENEITY IN LONGITUDINAL PROGRESSION OF DISEASE BY ENGAGING REGULATORS, CLINICAL EXPERTS, DRUG DEVELOPERS AND PATIENT GROUPS IN COLLABORATIVE LEARNING FROM PATIENT DATA, CREATING TOOLS AND INSIGHTS FOR DRUG DEVELOPMENT AND EVALUATION, SHARING BROADLY WITH THE ENTIRE DUCHENNE COMMUNITY, AND DELIVERING NEAR-TERM IMPACT FOR CLINICAL TRIALS. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 818176 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 4500 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 4500 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 154 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 15 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 102 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 271 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrgDoesNotFollowFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | DUES & SUBSCRIPTIONS |
| IRS990/OtherExpensesGrp/Desc | 1 | E-SERVICES |
| IRS990/OtherExpensesGrp/Desc | 2 | EVENTS |
| IRS990/OtherExpensesGrp/Desc | 3 | FILING FEES |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 2045 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 2603 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 2073 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 1178 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 1823 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 3868 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 2603 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 2073 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 1178 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PdInCapSrplsLandBldgEqpFundGrp/BOYAmt | 0 | 0 |
| IRS990/PdInCapSrplsLandBldgEqpFundGrp/EOYAmt | 0 | 0 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrincipalOfficerNm | 0 | SUSAN WARD |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 0 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/PYInvestmentIncomeAmt | 0 | 0 |
| IRS990/PYOtherExpensesAmt | 0 | 0 |
| IRS990/PYOtherRevenueAmt | 0 | 0 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 0 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/PYTotalExpensesAmt | 0 | 0 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 0 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 818176 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 0 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/RevenueAmt | 0 | 1879167 |
| IRS990/RtnEarnEndowmentIncmOthFndsGrp/BOYAmt | 0 | 0 |
| IRS990/RtnEarnEndowmentIncmOthFndsGrp/EOYAmt | 0 | 818176 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 1879167 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 1879167 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 1.00000 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 1879167 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 1879167 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 1879167 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 1879167 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | A COMPLETE COPY OF FORM 990 IS PROVIDED TO THE BOARD FOR REVIEW AND APPROVAL PRIOR TO BEING FILED. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | THE ORGANIZATION'S OFFICERS, DIRECTORS AND KEY EMPLOYEES ARE REQUIRED TO SIGN AN ANNUAL CERTIFICATION RELATED TO THE CONFLICT OF INTEREST POLICY. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | THE ORGANIZATION'S AUDITED FINANCIAL STATEMENTS ARE AVAILABLE ON CERTAIN PUBLIC AND REGULATORY AGENCY WEBSITES AND UPON REQUEST. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | CONSULTING : PROGRAM SERVICE EXPENSES 723,927. MANAGEMENT AND GENERAL EXPENSES 151,371. FUNDRAISING EXPENSES 88,435. TOTAL EXPENSES 963,733. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990, PART VI, SECTION B, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PART VI, SECTION B, LINE 12C |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PART VI, SECTION C, LINE 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PART IX, LINE 11G |
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| IRS990/USAddress/CityNm | 0 | CAMBRIDGE |
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| IRS990/WebsiteAddressTxt | 0 | CTAP-NMD.ORG |
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| ReturnHeader/BuildTS | 0 | 2025-03-06 01:10:19Z |
| ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd | 0 | 1 |
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| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | EXECUTIVE DIRECTOR |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 6174482617 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2025-11-14 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | COLLABORATIVE TRAJECTORY ANALYSIS |
| ReturnHeader/Filer/BusinessName/BusinessNameLine2Txt | 0 | PROJECT |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | COLL |
| ReturnHeader/Filer/EIN | 0 | 934558784 |
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| ReturnHeader/Filer/USAddress/CityNm | 0 | CAMBRIDGE |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | MA |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 02142 |
| ReturnHeader/IRSResponsiblePrtyInfoCurrInd | 0 | 1 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmEIN | 0 | 833019782 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt | 0 | STONE & COMPANY LLC |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt | 0 | 57 BEDFORD ST STE 225 |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm | 0 | LEXINGTON |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd | 0 | MA |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd | 0 | 02420 |
| ReturnHeader/PreparerPersonGrp/PhoneNum | 0 | 7818636300 |
| ReturnHeader/PreparerPersonGrp/PreparationDt | 0 | 2025-11-12 |
| ReturnHeader/PreparerPersonGrp/PreparerPersonNm | 0 | DIANE WEST CPA |
| ReturnHeader/ReturnTs | 0 | 2025-11-14T13:55:16-06:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990 |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2024-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2024-12-31 |
| ReturnHeader/TaxYr | 0 | 2024 |
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