Civic Intelligence

Northwest Rett Syndrome Association

990EZ • Fiscal year 2017 • EIN 93-0979668

Jul 01, 2016 to Jun 30, 2017 • Filed on Jun 27, 2018

Refreshing map…

119 239th Way SESammamish, WA 98074

(907) 789-2875

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

56th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Liabilities / Revenue

56th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Net Margin

4th percentile

-120%

Higher net margin than 4% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Top Officer Pay

76th percentile

$0

Higher top officer pay than 76% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Asset Growth

18th percentile

-24%

Faster asset growth than 18% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Annualized from 2016 to 2017

Revenue Growth

14th percentile

-36%

Faster revenue growth than 14% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Annualized from 2016 to 2017

Assets

Down

$52,517

Down $16,343 (-24%) from 2016

Net Assets

Down

$52,517

Down $16,343 (-24%) from 2016

Liabilities

Flat

$0

Flat from 2016

Revenue

Down

$13,621

Down $7,797 (-36%) from 2016

Expenses

Up

$29,964

Up $16,192 (+118%) from 2016

Net Income

Down

-$16,343

Down $23,989 (-314%) from 2016

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$80K$60K$40K$20K$0Assets 2011: $13,104Liabilities 2011: $0Net Assets 2011: $13,1042011Assets 2012: $37,535Liabilities 2012: $0Net Assets 2012: $37,5352012Assets 2013: $48,156Liabilities 2013: $0Net Assets 2013: $48,1562013Assets 2014: $57,434Liabilities 2014: $0Net Assets 2014: $57,4342014Assets 2015: $61,214Liabilities 2015: $0Net Assets 2015: $61,2142015Assets 2016: $68,860Liabilities 2016: $0Net Assets 2016: $68,8602016Assets 2017: $52,517Liabilities 2017: $0Net Assets 2017: $52,5172017Assets 2018: $25,856Liabilities 2018: $02018Assets 2019: $30,817Liabilities 2019: $02019Assets 2020: $43,325Liabilities 2020: $0Net Assets 2020: $43,3252020Assets 2021: $51,513Liabilities 2021: $0Net Assets 2021: $51,5132021

Highlighted filing

2017

Assets$52,517
Liabilities$0
Net Assets$52,517

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$60K$40K$20K$0-$20KRevenue 2011: $28,411Expenses 2011: $38,159Net Income 2011: -$9,7482011Revenue 2012: $32,601Expenses 2012: $8,170Net Income 2012: $24,4312012Revenue 2013: $47,783Expenses 2013: $37,162Net Income 2013: $10,6212013Revenue 2014: $28,972Expenses 2014: $19,694Net Income 2014: $9,2782014Revenue 2015: $31,345Expenses 2015: $27,565Net Income 2015: $3,7802015Revenue 2016: $21,418Expenses 2016: $13,772Net Income 2016: $7,6462016Revenue 2017: $13,621Expenses 2017: $29,964Net Income 2017: -$16,3432017Revenue 2018: $18,110Expenses 2018: $28,697Net Income 2018: -$10,5872018Revenue 2019: $39,366Expenses 2019: $34,405Net Income 2019: $4,9612019Revenue 2020: $18,716Expenses 2020: $6,208Net Income 2020: $12,5082020Revenue 2021: $17,856Expenses 2021: $9,668Net Income 2021: $8,1882021

Highlighted filing

2017

Revenue$13,621
Expenses$29,964
Net Income-$16,343
Jump To
Filing Snapshot
Filing Period
Jul 1, 2016 to Jun 30, 2017
Signed
Jun 27, 2018
Return Version
2016v3.0
Gross Receipts
$20,195
Mission and Program Overview

Mission

Provide information & referral service, offer parent support, and support research for prevention, control, & cure

Provide information & referral service, offer parent support, and support research for prevention, control, and cure

Program Services

DescriptionGrantsExpenses
TWO ANNUAL CONFERENCES WITH INTERNATIONAL, NATIONAL, AND LOCAL EXPERTS. CONFERENCES AT LOCAL RESORTS. RESPITE CARE PROVIDED FOR ALL GIRLS WITH RETT SYNDORME IN ATTENDANCE$0$22,337
PROVIDED SEMI-ANNUAL NEWSLETTER TO ALL MEMBERS AND DEVELOPED WEBSITE TO PROVIDE SUPPORT AND INFORMATION. SPONSORED SOCIAL GATHERINGS FOR FAMILIES WITH RETT SYNDROME CHILD. NEWSLETTER AND WEBSITE PROVIDE PROGRAM INFORMATION UPCOMING EVENTS, MEDICAL UPDATES, EQUIPMENT AVAILABLE FOR LOAN & SUPPORT.$0$438
RESEARCH ASSISTANCE TO LOCAL PHYSICIAN$0$0
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
LAUREN CRAMERBoard Member-$0--
MOLLY BRIGNALLVice President-$0--
GARY KOSTENKOFinancial Secretary-$0--
STACI NELSONBoard Member-$0--
GENE VALERIOTEBoard Member-$0--
TROY NELSONPresident-$0--
SHARON NICHOLSBoard Member-$0--
PATRICK MACLEOD MDMedical Advisor-$0--
MARIO PETERSEN MDMedical Advisor-$0--
JULIE PETERSONRecording Secretary-$0--
Filing and Contact Details

Filer

Filer Name
Northwest Rett Syndrome Foundation
EIN
93-0979668
Phone
9077892875
Address
119 239TH WAY SE, SAMMAMISH, WA 98074

Signing Officer

Name
Troy Nelson
Title
President
Phone
3607040612
Signed
2018-06-27
Discuss with paid preparer
Yes

Preparer

Firm
Boldt Carlisle & Smith
Address
408 N THIRD AVE, STAYTON, OR 97383
Preparer
Douglas C Parham
Phone
5037692186
Supplemental Narrative

Additional Explanations

Form 990-EZ, Part I, Line 4 - Other Investment Income

Description: INTEREST INCOME. Amount: 35.

Form 990-EZ, Part I, Line 7 - Sales of Inventory

Income: Gross Receipts: 5,738. Returns and Allowances: 0. Less Cost of Goods Sold: 1,194. Gross Profit: 4,544. Cost of Goods Sold: Inventory at Beginning of Year: 0. Merchandise Purchased: 0. Cost of Labor: 0. Materials and Supplies: 1,194. Other Costs: 0. Inventory at End of Year: 0. Cost of Goods Sold: 1,194.

Form 990-EZ, Part I, Line 10 - Payments to Affiliates

Affiliate Name: RETTSYNDROME.ORG. Affiliate Address: 4600 DEVITT DRIVE CINCINNATI, OH 45246. Amount of Payment: 5,000.

Form 990-EZ, Part I, Line 16 - Other Expenses

Description: OFFICE EXPENSES. Amount: 735. Description: CONFERENCES. Amount: 22,337. Description: MEALS. Amount: 739. Description: MISC. Amount: 15. Total to Form 990-EZ, line 16: 23,826.

Raw XML Appendix232 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt0BOARD MEMBER
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt1VICE PRESIDENT
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt2FINANCIAL SECRETARY
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt3BOARD MEMBER
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt4BOARD MEMBER
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt5PRESIDENT
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt6BOARD MEMBER
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt7MEDICAL ADVISOR
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt8MEDICAL ADVISOR
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt9RECORDING SECRETARY
IRS990EZ/OperateHospitalInd00
IRS990EZ/Organization501c3Ind0X
IRS990EZ/OrganizationDissolvedEtcInd00
IRS990EZ/OrganizationHadUBIInd00
IRS990EZ/OtherChangesInNetAssetsAmt00
IRS990EZ/OtherExpensesTotalAmt023826
IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt0NONE
IRS990EZ/PartVIOfCompOfHghstPdEmplTxt0NONE
IRS990EZ/PoliticalCampaignActyInd00
IRS990EZ/PrimaryExemptPurposeTxt0PROVIDE INFORMATION & REFERRAL SERVICE, OFFER PARENT SUPPORT, AND SUPPORT RESEARCH FOR PREVENTION, CONTROL, AND CURE
IRS990EZ/PrintingPublicationsPostageAmt0438
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt0TWO ANNUAL CONFERENCES WITH INTERNATIONAL, NATIONAL, AND LOCAL EXPERTS. CONFERENCES AT LOCAL RESORTS. RESPITE CARE PROVIDED FOR ALL GIRLS WITH RETT SYNDORME IN ATTENDANCE
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt1PROVIDED SEMI-ANNUAL NEWSLETTER TO ALL MEMBERS AND DEVELOPED WEBSITE TO PROVIDE SUPPORT AND INFORMATION. SPONSORED SOCIAL GATHERINGS FOR FAMILIES WITH RETT SYNDROME CHILD. NEWSLETTER AND WEBSITE PROVIDE PROGRAM INFORMATION UPCOMING EVENTS, MEDICAL UPDATES, EQUIPMENT AVAILABLE FOR LOAN & SUPPORT.
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt2RESEARCH ASSISTANCE TO LOCAL PHYSICIAN
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt00
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IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt20
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt022337
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IRS990EZ/SchoolOperatingInd00
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IRS990EZ/SpecialEventsNetIncomeLossAmt08618
IRS990EZ/StatesWhereCopyOfReturnIsFldCd0OR
IRS990EZ/SubjectToProxyTaxInd00
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Description: INTEREST INCOME. Amount: 35.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Income: Gross Receipts: 5,738. Returns and Allowances: 0. Less Cost of Goods Sold: 1,194. Gross Profit: 4,544. Cost of Goods Sold: Inventory at Beginning of Year: 0. Merchandise Purchased: 0. Cost of Labor: 0. Materials and Supplies: 1,194. Other Costs: 0. Inventory at End of Year: 0. Cost of Goods Sold: 1,194.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2Affiliate Name: RETTSYNDROME.ORG. Affiliate Address: 4600 DEVITT DRIVE CINCINNATI, OH 45246. Amount of Payment: 5,000.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Description: OFFICE EXPENSES. Amount: 735. Description: CONFERENCES. Amount: 22,337. Description: MEALS. Amount: 739. Description: MISC. Amount: 15. Total to Form 990-EZ, line 16: 23,826.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990-EZ, Part I, Line 4 - Other Investment Income
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990-EZ, Part I, Line 7 - Sales of Inventory
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990-EZ, Part I, Line 10 - Payments to Affiliates
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990-EZ, Part I, Line 16 - Other Expenses
TransferPrsnlBnftContractsDecl/DeclarationDesc0The organization did not, during the year, receive any funds, directly,or indirectly, to pay premiums on a personal benefit contract.The organization, did not, during the year, pay any premiums, directly,or indirectly, on a personal benefit contract.
ReturnHeader/BuildTS02018-06-14 16:35:46Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0TROY NELSON
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0PRESIDENT
ReturnHeader/BusinessOfficerGrp/PhoneNum03607040612
ReturnHeader/BusinessOfficerGrp/SignatureDt02018-06-27
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0NORTHWEST RETT SYNDROME FOUNDATION
ReturnHeader/Filer/BusinessNameControlTxt0NORT
ReturnHeader/Filer/EIN0930979668
ReturnHeader/Filer/PhoneNum09077892875
ReturnHeader/Filer/USAddress/AddressLine1Txt0119 239TH WAY SE
ReturnHeader/Filer/USAddress/CityNm0SAMMAMISH
ReturnHeader/Filer/USAddress/StateAbbreviationCd0WA
ReturnHeader/Filer/USAddress/ZIPCd098074
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ReturnHeader/FilingSecurityInformation/FilingLicenseTypeCd0P
ReturnHeader/FilingSecurityInformation/IPAddress/IPv4AddressTxt064.88.174.3
ReturnHeader/FilingSecurityInformation/IPDt02018-06-27
ReturnHeader/FilingSecurityInformation/IPTimezoneCd0PD
ReturnHeader/FilingSecurityInformation/IPTm011:43:57
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0930570615
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0BOLDT CARLISLE & SMITH
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt0408 N THIRD AVE
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0STAYTON
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0OR
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd097383
ReturnHeader/PreparerPersonGrp/PhoneNum05037692186
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0DOUGLAS C PARHAM
ReturnHeader/ReturnTs02018-07-25T16:06:00-05:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02016-07-01
ReturnHeader/TaxPeriodEndDt02017-06-30
ReturnHeader/TaxYr02016

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Filings

Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2017 filings • 501(c)3 • <$500k nonprofits