Northwest Rett Syndrome Association

990EZ • Fiscal year 2013 • EIN 93-0979668

Jul 01, 2012 to Jun 30, 2013 • Filed on Nov 14, 2013

Organization Profile WWW.NWRETTSYNDROME.ORG

4545 Trenton Loop SESeattle, WA 98501

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2013 filings • 501(c)3 • <$500k nonprofits • Source year 2013

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2013 filings • 501(c)3 • <$500k nonprofits • Source year 2013

22%

Higher net margin than 79% of similar nonprofits.

2013 filings • 501(c)3 • <$500k nonprofits • Source year 2013

No value available

This filing does not contain officer compensation rows.

Source year 2013

28%

Faster asset growth than 77% of similar nonprofits.

2013 filings • 501(c)3 • <$500k nonprofits • Annualized from 2012 to 2013

47%

Faster revenue growth than 84% of similar nonprofits.

2013 filings • 501(c)3 • <$500k nonprofits • Annualized from 2012 to 2013

Balance Sheet

Liabilities / Assets55th percentile

Assets

$48,156

Up $10,621 (+28%) from 2012

Net Assets

$48,156

Up $10,621 (+28%) from 2012

Liabilities

Flat

Flat from 2012

Revenue And Expenses

Liabilities / Revenue56th percentile Net Margin79th percentile

Revenue

$47,783

Up $15,182 (+47%) from 2012

Expenses

$37,162

Up $28,992 (+355%) from 2012

Net Income

Down

$10,621

Down $13,810 (-57%) from 2012

Historical Trend

Balance Sheet Trend

Asset Growth77th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

Highlighted filing

2013

Assets$48,156

Liabilities$0

Net Assets$48,156

Open 2013 Filing

Operations Trend

Revenue Growth84th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

Highlighted filing

2013

Revenue$47,783

Expenses$37,162

Net Income$10,621

Open 2013 Filing

Jump To

Filing Snapshot

Filing Period: Jul 1, 2012 to Jun 30, 2013
Signed: Nov 14, 2013
Return Version: 2012v2.1

Mission and Program Overview

Mission

Provide information & referral service, offer parent support, and support research for prevention, control, & cure

Filing and Contact Details

Filer

EIN: 93-0979668

Raw XML Appendix232 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990EZ/AmountOfTaxImposedOnOrgMgr	0	0
IRS990EZ/AmountOfTaxReimbursedByOrg	0	0
IRS990EZ/CashSavingsAndInvestments/BOY	0	37535
IRS990EZ/CashSavingsAndInvestments/EOY	0	48156
IRS990EZ/ContributionsGiftsGrantsEtc	0	27986
IRS990EZ/DirectIndirectPoliticalExpend	0	0
IRS990EZ/DoesOrgHaveHospital	0	0
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IRS990EZ/EngagePoliticalCmpgnActivities	0	0
IRS990EZ/ExcessOrDeficitForYear	0	10621
IRS990EZ/FeesAndOthPymtToIndContractors	0	725
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IRS990EZ/GrossReceipts	0	53204
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IRS990EZ/InfoInScheduleOPartIII	0	X
IRS990EZ/InfoInScheduleOPartV	0	X
IRS990EZ/MadeChangesToOrgnzngEtcDoc	0	0
IRS990EZ/MadeLoansToFromOfficers	0	0
IRS990EZ/MaintainAnyDonorAdvisedFunds	0	0
IRS990EZ/MembershipDues	0	175
IRS990EZ/MethodOfAccountingCash	0	X
IRS990EZ/NetAssetsOrFundBalances/BOY	0	37535
IRS990EZ/NetAssetsOrFundBalancesBOY	0	37535
IRS990EZ/NetAssetsOrFundBalances/EOY	0	48156
IRS990EZ/NetAssetsOrFundBalancesEOY	0	48156
IRS990EZ/OccupancyRentUtilitiesAndMaint	0	182
IRS990EZ/OfficerDirectorTrusteeKeyEmpl/AvgHoursPerWkDevotedToPosition	0	1.00
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IRS990EZ/OfficerDirectorTrusteeKeyEmpl/AvgHoursPerWkDevotedToPosition	3	1.00
IRS990EZ/OfficerDirectorTrusteeKeyEmpl/AvgHoursPerWkDevotedToPosition	4	1.00
IRS990EZ/OfficerDirectorTrusteeKeyEmpl/AvgHoursPerWkDevotedToPosition	5	1.00
IRS990EZ/OfficerDirectorTrusteeKeyEmpl/AvgHoursPerWkDevotedToPosition	6	1.00
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IRS990EZ/OfficerDirectorTrusteeKeyEmpl/Compensation	1	0
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IRS990EZ/OfficerDirectorTrusteeKeyEmpl/Compensation	5	0
IRS990EZ/OfficerDirectorTrusteeKeyEmpl/Compensation	6	0
IRS990EZ/OfficerDirectorTrusteeKeyEmpl/Compensation	7	0
IRS990EZ/OfficerDirectorTrusteeKeyEmpl/Compensation	8	0
IRS990EZ/OfficerDirectorTrusteeKeyEmpl/ContriToEmplBenefitPlansEtc	0	0
IRS990EZ/OfficerDirectorTrusteeKeyEmpl/ContriToEmplBenefitPlansEtc	1	0
IRS990EZ/OfficerDirectorTrusteeKeyEmpl/ContriToEmplBenefitPlansEtc	2	0
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IRS990EZ/OfficerDirectorTrusteeKeyEmpl/ContriToEmplBenefitPlansEtc	4	0
IRS990EZ/OfficerDirectorTrusteeKeyEmpl/ContriToEmplBenefitPlansEtc	5	0
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IRS990EZ/OfficerDirectorTrusteeKeyEmpl/ExpenseAccountOtherAllowances	6	0
IRS990EZ/OfficerDirectorTrusteeKeyEmpl/ExpenseAccountOtherAllowances	7	0
IRS990EZ/OfficerDirectorTrusteeKeyEmpl/ExpenseAccountOtherAllowances	8	0
IRS990EZ/OfficerDirectorTrusteeKeyEmpl/PersonName	0	LAUREN CRAMER
IRS990EZ/OfficerDirectorTrusteeKeyEmpl/PersonName	1	MOLLY BRIGNALL
IRS990EZ/OfficerDirectorTrusteeKeyEmpl/PersonName	2	GARY KOSTENKO
IRS990EZ/OfficerDirectorTrusteeKeyEmpl/PersonName	3	STACI NELSON
IRS990EZ/OfficerDirectorTrusteeKeyEmpl/PersonName	4	GENE VALERIOTRE
IRS990EZ/OfficerDirectorTrusteeKeyEmpl/PersonName	5	JOHN BURR
IRS990EZ/OfficerDirectorTrusteeKeyEmpl/PersonName	6	TROY NELSON
IRS990EZ/OfficerDirectorTrusteeKeyEmpl/PersonName	7	MARIO PETERSEN
IRS990EZ/OfficerDirectorTrusteeKeyEmpl/PersonName	8	PATRICK MACLEOD
IRS990EZ/OfficerDirectorTrusteeKeyEmpl/Title	0	PRESIDENT
IRS990EZ/OfficerDirectorTrusteeKeyEmpl/Title	1	SECRETARY
IRS990EZ/OfficerDirectorTrusteeKeyEmpl/Title	2	VICE PRESIDENT
IRS990EZ/OfficerDirectorTrusteeKeyEmpl/Title	3	TREASURER
IRS990EZ/OfficerDirectorTrusteeKeyEmpl/Title	4	BOARD MEMBER
IRS990EZ/OfficerDirectorTrusteeKeyEmpl/Title	5	BOARD MEMBER
IRS990EZ/OfficerDirectorTrusteeKeyEmpl/Title	6	BOARD MEMBER
IRS990EZ/OfficerDirectorTrusteeKeyEmpl/Title	7	BOARD MEMBER
IRS990EZ/OfficerDirectorTrusteeKeyEmpl/Title	8	BOARD MEMBER
IRS990EZ/OperatingSchool	0	0
IRS990EZ/Organization501c3	0	X
IRS990EZ/OrganizationDissolvedEtc	0	0
IRS990EZ/OrganizationHadUBI	0	0
IRS990EZ/OtherChangesInNetAssets	0	0
IRS990EZ/OtherExpensesTotal	0	36255
IRS990EZ/OtherRevenueTotal	0	21
IRS990EZ/PartVIAHghstPaidCntrctProfSer	0	NONE
IRS990EZ/PartVIOfCompOfHighestPaidEmpl	0	NONE
IRS990EZ/PrimaryExemptPurpose	0	PROVIDE INFORMATIN & REVERRAL SERVICE, OFFER PARENT SUPPORT, AND SUPPORT RESEARCH FOR PREVENTION, CONTROL, & CURE
IRS990EZ/ProgramServiceAccomplishment/DescriptionProgramServiceAccom	0	TWO ANNUAL CONFERENCES WITH INTERNATIONAL, NATIONAL, & LOCAL EXPERTS. CONFERENCES AT LOCAL RESORTS. RESPITE CARE PROVIDED FOR ALL GIRLS WITH RETT SYNDORME IN ATTENDANCE
IRS990EZ/ProgramServiceAccomplishment/DescriptionProgramServiceAccom	1	PROVIDED SEMI-ANNUAL NEWSLETTER TO ALL MEMBERS AND DEVELOPED WEBSITE TO PROVIDE SUPPORT AND INFORMATION. SPONSORED SOCIAL GATHERINGS FOR FAMILIES WITH RETT SYNDROME CHILD. NEWSLETTER AND WEBSITE PROVIDE PROGRAM INFORMATION UPCOMING EVENTS, MEDICAL UPDATES, EQUIPMENT AVAILABLE FOR LOAN & SUPPORT.
IRS990EZ/ProgramServiceAccomplishment/DescriptionProgramServiceAccom	2	RESEARCH ASSISTANCE TO LOCAL PHYSICAN
IRS990EZ/ProgramServiceAccomplishment/GrantsAndAllocations	0	0
IRS990EZ/ProgramServiceAccomplishment/GrantsAndAllocations	1	0
IRS990EZ/ProgramServiceAccomplishment/GrantsAndAllocations	2	0
IRS990EZ/ProgramServiceAccomplishment/ProgramServiceExpenses	0	26078
IRS990EZ/ProgramServiceAccomplishment/ProgramServiceExpenses	1	122
IRS990EZ/ProgramServiceAccomplishment/ProgramServiceExpenses	2	10000
IRS990EZ/ProgramServiceRevenue	0	4303
IRS990EZ/ProhibitedTaxShelterTrans	0	0
IRS990EZ/RelatedOrgControlledEntity	0	0
IRS990EZ/SpecialEventsDirectExpenses	0	5421
IRS990EZ/SpecialEventsNetIncomeLoss	0	15298
IRS990EZ/StatesWhereCopyOfReturnIsFiled	0	OR
IRS990EZ/SubjectToProxyTax	0	0
IRS990EZ/SumOfTotalLiabilities/BOY	0	0
IRS990EZ/SumOfTotalLiabilities/EOY	0	0
IRS990EZ/TanningServicesProvided	0	0
IRS990EZ/TaxImposedUnderIRC4911	0	0
IRS990EZ/TaxImposedUnderIRC4912	0	0
IRS990EZ/TaxImposedUnderIRC4955	0	0
IRS990EZ/TheBooksAreInCareOf/AddressUS/AddressLine1	0	4545 TRENTON LOOP SE
IRS990EZ/TheBooksAreInCareOf/AddressUS/City	0	OLYMPIA
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IRS990EZ/TheBooksAreInCareOf/AddressUS/ZIPCode	0	98501
IRS990EZ/TheBooksAreInCareOf/NameBusiness/BusinessNameLine1	0	LAUREN CRAMER
IRS990EZ/TheBooksAreInCareOf/TelephoneNumber	0	3607040612
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IRS990EZ/TotalAssets/EOY	0	48156
IRS990EZ/TotalExpenses	0	37162
IRS990EZ/TotalProgramServiceExpenses	0	36200
IRS990EZ/TotalRevenue	0	47783
IRS990EZ/TrnsfrsExemptNonCharRelatedOrg	0	0
IRS990EZ/WebSite	0	www.nwrettsyndrome.org
IRS990ScheduleA/AmtsFromSubstContributors/Total	0	0
IRS990ScheduleA/AmtsRecdFromDisqualPersons/Total	0	0
IRS990ScheduleA/GiftsGrantsContribReceived509/CurrentTaxYear	0	27986
IRS990ScheduleA/GiftsGrantsContribReceived509/CurrentTaxYearMinus1Year	0	11170
IRS990ScheduleA/GiftsGrantsContribReceived509/CurrentTaxYearMinus2Years	0	10077
IRS990ScheduleA/GiftsGrantsContribReceived509/CurrentTaxYearMinus3Years	0	10527
IRS990ScheduleA/GiftsGrantsContribReceived509/CurrentTaxYearMinus4Years	0	15614
IRS990ScheduleA/GiftsGrantsContribReceived509/Total	0	75374
IRS990ScheduleA/GrossInvestmentIncome509/CurrentTaxYear	0	21
IRS990ScheduleA/GrossInvestmentIncome509/CurrentTaxYearMinus1Year	0	19
IRS990ScheduleA/GrossInvestmentIncome509/CurrentTaxYearMinus2Years	0	3
IRS990ScheduleA/GrossInvestmentIncome509/CurrentTaxYearMinus3Years	0	2
IRS990ScheduleA/GrossInvestmentIncome509/CurrentTaxYearMinus4Years	0	15
IRS990ScheduleA/GrossInvestmentIncome509/Total	0	60
IRS990ScheduleA/InvestmentIncomeAndUBTI/CurrentTaxYear	0	21
IRS990ScheduleA/InvestmentIncomeAndUBTI/CurrentTaxYearMinus1Year	0	19
IRS990ScheduleA/InvestmentIncomeAndUBTI/CurrentTaxYearMinus2Years	0	3
IRS990ScheduleA/InvestmentIncomeAndUBTI/CurrentTaxYearMinus3Years	0	2
IRS990ScheduleA/InvestmentIncomeAndUBTI/CurrentTaxYearMinus4Years	0	15
IRS990ScheduleA/InvestmentIncomeAndUBTI/Total	0	60
IRS990ScheduleA/InvestmentIncomePercentage	0	0.00050
IRS990ScheduleA/OtherIncome509/CurrentTaxYear	0	4303
IRS990ScheduleA/OtherIncome509/CurrentTaxYearMinus1Year	0	4637
IRS990ScheduleA/OtherIncome509/CurrentTaxYearMinus2Years	0	6363
IRS990ScheduleA/OtherIncome509/CurrentTaxYearMinus3Years	0	10422
IRS990ScheduleA/OtherIncome509/CurrentTaxYearMinus4Years	0	9263
IRS990ScheduleA/OtherIncome509/Total	0	34988
IRS990ScheduleA/PriorYearSupportPercentage	0	0.76760
IRS990ScheduleA/PriorYrInvestIncomePercentage	0	0.00040
IRS990ScheduleA/PubliclySupportedOrg509a2	0	X
IRS990ScheduleA/PublicSupportPercentage509	0	0.68260
IRS990ScheduleA/PublicSupportTotal509	0	75374
IRS990ScheduleA/SupportFromDQPsEtc/Total	0	0
IRS990ScheduleA/ThirtyThreePercntTestsCY509	0	X
IRS990ScheduleA/Total509/CurrentTaxYear	0	27986
IRS990ScheduleA/Total509/CurrentTaxYearMinus1Year	0	11170
IRS990ScheduleA/Total509/CurrentTaxYearMinus2Years	0	10077
IRS990ScheduleA/Total509/CurrentTaxYearMinus3Years	0	10527
IRS990ScheduleA/Total509/CurrentTaxYearMinus4Years	0	15614
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IRS990ScheduleA/TotalSupportTotal/CurrentTaxYearMinus1Year	0	15826
IRS990ScheduleA/TotalSupportTotal/CurrentTaxYearMinus2Years	0	16443
IRS990ScheduleA/TotalSupportTotal/CurrentTaxYearMinus3Years	0	20951
IRS990ScheduleA/TotalSupportTotal/CurrentTaxYearMinus4Years	0	24892
IRS990ScheduleA/TotalSupportTotal/Total	0	110422
IRS990ScheduleB/ContributorInfo/AggregateContributions	0	RESTRICTED
IRS990ScheduleB/ContributorInfo/ContributorAddressUS/AddressLine1	0	RESTRICTED
IRS990ScheduleB/ContributorInfo/ContributorAddressUS/AddressLine2	0	RESTRICTED
IRS990ScheduleB/ContributorInfo/ContributorAddressUS/City	0	RESTRICTED
IRS990ScheduleB/ContributorInfo/ContributorAddressUS/State	0	RESTRICTED
IRS990ScheduleB/ContributorInfo/ContributorAddressUS/ZIPCode	0	RESTRICTED
IRS990ScheduleB/ContributorInfo/ContributorNameBusiness/BusinessNameLine1	0	RESTRICTED
IRS990ScheduleB/ContributorInfo/ContributorNumber	0	RESTRICTED
IRS990ScheduleG/EventsInformation/DirectExpenseSummaryEvents	0	5421
IRS990ScheduleG/EventsInformation/GrossReceiptsEvent1	0	17939
IRS990ScheduleG/EventsInformation/GrossReceiptsEvent2	0	2780
IRS990ScheduleG/EventsInformation/GrossReceiptsTotal	0	20719
IRS990ScheduleG/EventsInformation/GrossRevenueEvent1	0	17939
IRS990ScheduleG/EventsInformation/GrossRevenueEvent2	0	2780
IRS990ScheduleG/EventsInformation/GrossRevenueTotalEvents	0	20719
IRS990ScheduleG/EventsInformation/NameOfEvent1	0	RUN FOR RETT
IRS990ScheduleG/EventsInformation/NameOfEvent2	0	CONFERENCE AUCTION
IRS990ScheduleG/EventsInformation/NetIncomeSummary	0	15298
IRS990ScheduleG/EventsInformation/OtherDirectExpensesEvent1	0	4621
IRS990ScheduleG/EventsInformation/OtherDirectExpensesEvent2	0	800
IRS990ScheduleG/EventsInformation/OtherDirectExpensesTotalEvents	0	5421
IRS990ScheduleO/GeneralExplanation/Explanation	0	Description: INTEREST INCOME. Amount: 21.
IRS990ScheduleO/GeneralExplanation/Explanation	1	Description: BANK CHARGES. Amount: 5. Description: FILING FEE. Amount: 50. Description: NEWSLETTER. Amount: 122. Description: CONFERENCES. Amount: 26,078. Description: DONATIONS. Amount: 10,000. Total to Form 990-EZ, line 16: 36,255.
IRS990ScheduleO/GeneralExplanation/Identifier	0	Other Revenue
IRS990ScheduleO/GeneralExplanation/Identifier	1	Other Expenses
IRS990ScheduleO/GeneralExplanation/ReturnReference	0	Form 990-EZ, Part I, Line 8
IRS990ScheduleO/GeneralExplanation/ReturnReference	1	Form 990-EZ, Part I, Line 16
TransferPrsnlBnftContractsDecl/Declaration	0	The organization did not, during the year, receive any funds, directly,or indirectly, to pay premiums on a personal benefit contract.The organization, did not, during the year, pay any premiums, directly,or indirectly, on a personal benefit contract.
ReturnHeader/BuildTS	0	2015-11-30 17:44:51Z
ReturnHeader/Filer/EIN	0	930979668
ReturnHeader/Filer/Name/BusinessNameLine1	0	NORTHWEST RETT SYNDROME FOUNDATION
ReturnHeader/Filer/NameControl	0	NORT
ReturnHeader/Filer/Phone	0	3607040612
ReturnHeader/Filer/USAddress/AddressLine1	0	4545 TRENTON LOOP SE
ReturnHeader/Filer/USAddress/City	0	OLYMPIA
ReturnHeader/Filer/USAddress/State	0	WA
ReturnHeader/Filer/USAddress/ZIPCode	0	98501
ReturnHeader/Officer/AuthorizeThirdParty	0	1
ReturnHeader/Officer/DateSigned	0	2013-11-14
ReturnHeader/Officer/Name	0	LAUREN CRAMER
ReturnHeader/Officer/Phone	0	3607040612
ReturnHeader/Officer/Title	0	TREASURER
ReturnHeader/PreparerFirm/EIN	0	930570615
ReturnHeader/PreparerFirm/PreparerFirmBusinessName/BusinessNameLine1	0	Boldt Carlisle & Smith LLC
ReturnHeader/PreparerFirm/PreparerFirmUSAddress/AddressLine1	0	480 Church Street SE
ReturnHeader/PreparerFirm/PreparerFirmUSAddress/City	0	Salem
ReturnHeader/PreparerFirm/PreparerFirmUSAddress/State	0	OR
ReturnHeader/PreparerFirm/PreparerFirmUSAddress/ZIPCode	0	97301
ReturnHeader/Preparer/Name	0	BRAD BINGENHEIMER
ReturnHeader/Preparer/Phone	0	5035857751
ReturnHeader/Preparer/SelfEmployed	0	X
ReturnHeader/ReturnType	0	990EZ
ReturnHeader/TaxPeriodBeginDate	0	2012-07-01
ReturnHeader/TaxPeriodEndDate	0	2013-06-30
ReturnHeader/TaxYear	0	2012
ReturnHeader/Timestamp	0	2013-12-05T18:36:30-06:00

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2013 • Form 990EZFacts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing

Assets: $48,156
Liabilities: $0
Net assets: $48,156
Revenue: $47,783
Expenses: $37,162
Net income: $10,621

	Balance Sheet			Operations
Year	Assets	Liabilities	Net Assets	Revenue	Expenses	Net Income
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.	$51.5	$0.00	$51.5	$17.9	$9.67	$8.19
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.	$43.3	$0.00	$43.3	$18.7	$6.21	$12.5
2019Summary only. Only limited summary data is available for this year.	$30.8	$0.00		$39.4	$34.4	$4.96
2018Summary only. Only limited summary data is available for this year.	$25.9	$0.00		$18.1	$28.7	$10.6
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.	$52.5	$0.00	$52.5	$13.6	$30.0	$16.3
2016Detailed filing. Detailed filing data is available for this year.	$68.9	$0.00	$68.9	$21.4	$13.8	$7.65
2015Detailed filing. Detailed filing data is available for this year.	$61.2	$0.00	$61.2	$31.3	$27.6	$3.78
2014Detailed filing. Detailed filing data is available for this year.	$57.4	$0.00	$57.4	$29.0	$19.7	$9.28
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.	$48.2	$0.00	$48.2	$47.8	$37.2	$10.6
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.	$37.5	$0.00	$37.5	$32.6	$8.17	$24.4
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.	$13.1	$0.00	$13.1	$28.4	$38.2	$9.75