Civic Intelligence

National Psoriasis Foundation

990 • Fiscal year 2021 • EIN 93-0571472

Jul 01, 2020 to Jun 30, 2021 • Filed on Nov 09, 2021

Organization ProfileWWW.PSORIASIS.ORG

View Organization Page

6600 SW 92nd Avenue No 300Portland, OR 97223

(503) 244-7404

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

64th percentile

0.32x

Higher debt load relative to assets than 64% of similar nonprofits.

2021 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2021

Liabilities / Revenue

65th percentile

0.40x

Higher debt load relative to revenue than 65% of similar nonprofits.

2021 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2021

Net Margin

50th percentile

12%

Higher net margin than 50% of similar nonprofits.

2021 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2021

Top Officer Pay

93rd percentile

$587,406

Higher top officer pay than 93% of similar nonprofits.

Top officer pay equals 4.6% of source-year revenue.

2021 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2021

Asset Growth

52nd percentile

11%

Faster asset growth than 52% of similar nonprofits.

2021 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2020 to 2021

Revenue Growth

17th percentile

-11%

Faster revenue growth than 17% of similar nonprofits.

2021 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2020 to 2021

Balance Sheet
Liabilities / Assets64th percentile

Assets

Up

$15,989,040

Up $1,554,035 (+11%) from 2020

Net Assets

Up

$10,936,037

Up $2,211,765 (+25%) from 2020

Liabilities

Down

$5,053,003

Down $657,730 (-12%) from 2020

Revenue And Expenses
Liabilities / Revenue65th percentileNet Margin50th percentile

Revenue

Down

$12,657,666

Down $1,578,984 (-11%) from 2020

Expenses

Down

$11,129,734

Down $2,774,944 (-20%) from 2020

Net Income

Up

$1,527,932

Up $1,195,960 (+360%) from 2020

Historical Trend

Balance Sheet Trend

Asset Growth52nd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$20M$15M$10M$5.0M$0Assets 2011: $6,276,884Liabilities 2011: $500,879Net Assets 2011: $5,776,0052011Assets 2012: $7,453,451Liabilities 2012: $367,661Net Assets 2012: $7,085,7902012Assets 2013: $7,393,252Liabilities 2013: $499,099Net Assets 2013: $6,894,1532013Assets 2014: $7,766,193Liabilities 2014: $538,338Net Assets 2014: $7,227,8552014Assets 2015: $7,578,099Liabilities 2015: $694,185Net Assets 2015: $6,883,9142015Assets 2016: $6,546,778Liabilities 2016: $1,368,180Net Assets 2016: $5,178,5982016Assets 2017: $9,454,231Liabilities 2017: $2,686,484Net Assets 2017: $6,767,7472017Assets 2018: $10,616,789Liabilities 2018: $2,918,675Net Assets 2018: $7,698,1142018Assets 2019: $12,437,744Liabilities 2019: $3,903,740Net Assets 2019: $8,534,0042019Assets 2020: $14,435,005Liabilities 2020: $5,710,733Net Assets 2020: $8,724,2722020Assets 2021: $15,989,040Liabilities 2021: $5,053,003Net Assets 2021: $10,936,0372021Assets 2022: $13,977,875Liabilities 2022: $3,425,275Net Assets 2022: $10,552,6002022Assets 2023: $13,817,026Liabilities 2023: $4,798,376Net Assets 2023: $9,018,6502023Assets 2025: $14,911,131Liabilities 2025: $4,949,799Net Assets 2025: $9,961,3322025

Highlighted filing

2021

Assets$15,989,040
Liabilities$5,053,003
Net Assets$10,936,037
Open 2021 Filing

Operations Trend

Revenue Growth17th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$15M$10M$5.0M$0-$5.0MExpenses 2011: $6,931,0082011Expenses 2012: $7,669,2192012Revenue 2013: $7,559,544Expenses 2013: $7,671,368Net Income 2013: -$111,8242013Revenue 2014: $9,225,611Expenses 2014: $9,092,625Net Income 2014: $132,9862014Revenue 2015: $9,859,476Expenses 2015: $9,559,235Net Income 2015: $300,2412015Revenue 2016: $9,474,656Expenses 2016: $10,971,272Net Income 2016: -$1,496,6162016Revenue 2017: $14,501,404Expenses 2017: $12,666,372Net Income 2017: $1,835,0322017Revenue 2018: $14,522,611Expenses 2018: $13,338,488Net Income 2018: $1,184,1232018Revenue 2019: $14,215,254Expenses 2019: $13,425,637Net Income 2019: $789,6172019Revenue 2020: $14,236,650Expenses 2020: $13,904,678Net Income 2020: $331,9722020Revenue 2021: $12,657,666Expenses 2021: $11,129,734Net Income 2021: $1,527,9322021Revenue 2022: $13,390,353Expenses 2022: $12,538,110Net Income 2022: $852,2432022Revenue 2023: $11,591,439Expenses 2023: $13,763,392Net Income 2023: -$2,171,9532023Revenue 2025: $12,648,481Expenses 2025: $11,737,962Net Income 2025: $910,5192025

Highlighted filing

2021

Revenue$12,657,666
Expenses$11,129,734
Net Income$1,527,932
Open 2021 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2020 to Jun 30, 2021
Signed
Nov 9, 2021
Return Version
2020v4.1
Gross Receipts
$20,088,816
Mission and Program Overview

Mission

The national psoriasis foundation provides people with psoriasis and psoriatic arthritis the services they need to best manage their condition, while promoting research to find a cure.

To drive efforts to cure psoriatic disease and improve the lives of those affected.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$6,265,489$9,084,998▲ $2,819,509
Cash and Non-Interest-Bearing Accounts$4,485,112$4,976,495▲ $491,383
Pledges and Grants Receivable$2,866,371$1,043,672▼ $1,822,699
Accounts Receivable$337,482$470,405▲ $132,923
Prepaid Expenses and Deferred Charges$265,591$239,985▼ $25,606
Land, Buildings, and Equipment, Net$170,343$133,780▼ $36,563
Inventories for Sale or Use$14,453$9,541▼ $4,912
Total Assets$14,435,005$15,989,040▲ $1,554,035
Other Assets Total$30,164$30,164→ $0
Liabilities
Grants Payable$3,270,000$2,861,131▼ $408,869
Other Liabilities$1,228,581$1,136,917▼ $91,664
Accounts Payable and Accrued Expenses$1,029,652$844,518▼ $185,134
Deferred Revenue$182,500$210,437▲ $27,937
Total Liabilities$5,710,733$5,053,003▼ $657,730
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$7,256,310$9,837,008▲ $2,580,698
Net Assets With Donor Restrictions$1,467,962$1,099,029▼ $368,933
Total Net Assets Fund Balance$8,724,272$10,936,037▲ $2,211,765
Total Liabilities and Net Assets / Fund Balance$14,435,005$15,989,040▲ $1,554,035

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$32,788$321,898$354,686
Other Land Buildings$92,541$27,322$119,863
Leasehold Improvements$8,451$23,681$32,132
Compensation and Service Providers
Top Officer Pay93rd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Randy BeranekPresident/CEOFT$320,019$267,387$587,406
Leah HowardChief Operating OfficerFT$202,996$126,346$329,342
Stacy BellChief Scientific and Medical OfficerFT$206,769$38,346$245,115
Emily BoydChief Revenue OfficerFT$197,899$34,838$232,737
John RogackiVice President of Finance & OperationsFT$193,722$15,766$209,488
John RogackiVice President of Finance & Operatio-$176,559$32,929$209,488
Kristine BockmierVice President of Field OperationsFT$126,661$15,584$142,245
Patrick StoneVP of Government Relations & AdvocacyFT$133,652$7,537$141,189

Board Members and Trustees

NameTitle
Ron GrauChair
Carol OstrowChair-elect
Raymond Chip NewtonImmediate Past Chair
Eyal OfirVice Chair
April Armstrong MdDirector
Elaine Husni MdDirector
Jason Lichten MdDirector
Jerry Bagel MdDirector
Jodi WoodDirector
Jonathan ScottDirector
Larry Green MdDirector
Mark ObermanDirector
Matthew T KiselicaDirector
Michael GraffDirector
Pete MillerDirector
Richard SeidenSecretary
Mike RefermatTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Bentz Whaley Flessner And Associates InFundraising Consulting And Mailings7900 XERXES AVE SOUTH SUITE 980, Minneapolis, MD 55431$241,754
ConveroPublication Development And Distribution835 SHARON DRIVE SUITE 200, Cleveland, DC 44145$194,668
Smith & Connors LLCWebsite Redesign1429 SE 52ND AVE, Portland, OR 97215$173,966
Faegre Drinker Biddle & Reath LLPConsulting1050 K STREET NW SUITE 400, Washington, DC 20001$116,999
Revenue and Support

Revenue Composition

Contributions and Grants
$11,146,561
Program Service Revenue
$1,228,158
Investment Income
$367,378
Other Revenue
$-84,431
All Other Contributions
$8,545,443
Change in Net Assets
$1,527,932

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
Yes

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded2$122,718Fair Market Value (FMV) on the Date Received
Total Noncash Contributions2$122,718-

Audited Revenue Reconciliation

Revenue per Audited Statements
$12,620,520
Revenue Not Reported on Financial Statements
$37,146
Revenue Not Reported on Form 990
$825,521
Total Revenue per Audited Statements
$13,446,041
Total Revenue per Form 990
$12,657,666
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$5,444,914
Grants and Similar Amounts Paid$2,809,557
Other Expenses$2,671,352
Total Fundraising Expense$1,763,556
Professional Fundraising Fees$203,911

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$2,516,204$291,568$766,087$3,573,859
Grants to Domestic Orgs$1,899,557--$1,899,557
Current Officers, Directors, Trustees, and Key Employees$673,496$78,042$205,054$956,592
Foreign Grants$910,000--$910,000
Fees for Services Other$485,763$114,098$64,756$664,617
Office Expenses$232,668$45,701$166,272$444,641
Other Employee Benefits$296,303$34,334$90,213$420,850
Occupancy$224,425$107,503$50,335$382,263
Payroll Taxes$223,596$25,909$68,076$317,581
All Other Expenses$185,356$30,230$12,509$228,095
Fees for Services Professional Fundraising--$203,911$203,911
Fees for Services Lobbying$199,263--$199,263
Pension Plan Contributions$123,937$14,361$37,734$176,032
Conferences and Meetings$124,133$16,402$26,739$167,274
Other Expenses$150,117$101,683$49,828$101,683
Depreciation Depletion$39,526$4,361$11,761$55,648
Fees for Services Legal$37,134$7,245$10,281$54,660
Fees for Service Investment Mgmnt Fees-$37,146-$37,146
Fees for Services Accounting-$19,550-$19,550
Total Functional Expenses$8,321,478$1,044,700$1,763,556$11,129,734

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$11,129,734
Expenses per Audited Statements$11,092,588
Total Expenses per Audited Statements$11,092,588
Expenses Not Reported on Financial Statements$37,146
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Nyu LangoneNew York, NY501 (c)(3)Psa Diagnostic Test Grant$350,000
The Regents of the University of California (university of California DavisWest Sacramento, CA501 (c)(3)Bridge Grant and Translational Research Grant$275,000
The Regents of the University of California San Francisco (contracts & GraSan Francisco, CA501 (c)(3)Psoriatic Disease Research Fellowship$230,000
The Trustees of the University of PennsylvaniaPhiladelphia, PA501 (c)(3)Psoriatic Disease Research Fellowship$155,000
University Hospitals Cleveland Medical CenterCleveland, OH501 (c)(3)Psoriatic Disease Research Fellowship$150,000
Cleveland Clinic FoundationIndependence, OH501 (c)(3)MORE THAN SKIN DEEP: MENTAL HEALTH$100,000
National Institutes of Health NiaidRockville, MD170(c)(1)Translational Research Grant - Year 2$100,000
New York University School of MedicineBoston, MA501 (c)(3)MORE THAN SKIN DEEP: MENTAL HEALTH$100,000
The Regents of the University of MichiganAnn Arbor, MI501 (c)(3)Translational Research Grant - Year 1$100,000
University of RochesterRochester, NY501 (c)(3)Discovery Grant$75,000
Washington University School of MedicineSt Louis, MO501 (c)(3)Discovery Grant$75,000
Beth Israel Deaconess Medical CenterBoston, MA501 (c)(3)Psoriatic Disease Research Fellowship$50,000
Northwestern University Feinberg School of MedicineEvanston, IL501 (c)(3)Psoriatic Disease Research Fellowship$50,000
University of PittsburghPittsburgh, PA501 (c)(3)Early Career Research Grant$50,000
University of Southern CaliforniaLos Angeles, CA501 (c)(3)Psoriatic Disease Research Fellowship$50,000

International Summary

Offices
0
Employees
0
Spending
$0

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$203,911
Fundraising Direct Expenses$87,556
Fundraising Gross Income$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Team Npf$1,273,841-$5,909-
St Louis Gala$337,025-$1,064-
Total Events$1,660,202-$87,556$-87,556
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Refundable Advance$1,030,637
Deferred Rent$72,595
Gift Annuity Liability$33,685
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The form 990 is emailed to all board members for their review prior to its being filed electronically with the irs.”

Form 990, Part VI, Section B, Line 12C

“We have a conflict of interest policy that is signed by all directors anually. All directors and key employees refrain from voting or commenting on anything where there could be a conflict.”

Form 990, Part VI, Section B, Line 15

“The board of directors annually reveiws and approves the ceo's compensation. The foundation utilizes an independent compensation consultant and subscribes to a salary survey for comparable information for salaries.”

Form 990, Part VI, Section C, Line 19

“Governing documents, conflict of interest policy, and financial statements are available upon request. Audtied financial statements are also displayed on the website.”

Filing and Contact Details

Filer

Filer Name
National Psoriasis Foundation
EIN
93-0571472
Phone
5032447404
Address
6600 SW 92ND AVENUE NO 300, PORTLAND, OR 97223

Signing Officer

Name
Randy Beranek
Title
President/CEO
Phone
5032447404
Signed
2021-11-09
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Randy Beranek
Formed
1968
Legal Domicile
Or
Voting Board Members
17
Independent Board Members
17
Employees
71
Volunteers
2,160

Preparer

Firm
Mcdonald Jacobs Pc
Address
520 SW YAMHILL ST STE 500, PORTLAND, OR 97204
Preparer
Sang Ahn
Phone
5032270581
Supplemental Narrative

Additional Explanations

Form 990, Part XII, Line 2C

“The process has not changed from the prior year.”

Financial Statement Notes

PART X, LINE 2:

“The organization follows the provision of fasb asc topic of accounting for uncertainty in income taxes. Management has evaluated the organization's tax positions and concluded that there are no uncertain tax positions that require adjustment to the financial statements to comply with provisions of this topic.”

Raw XML AppendixShowing 400 of 1,135 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0RESEARCHNPF CONTINUED TO LEAD COLLABORATIVE, TRANSFORMATIONAL RESEARCH BY ENSURING THAT FUNDING EXTRAMURAL RESEARCH REMAINED A PRIORITY. NPF ALSO CONDUCTED RESEARCH FOR THE COMMUNITY IMPACTED BY PSORIATIC DISEASE. PSORIATIC DISEASE RESEARCH ACCOUNTED FOR 34% OF TOTAL NPF EXPENSES IN FY21. THIS INCLUDED THE COMPETITIVE RENEWAL OF THE PSA DIAGNOSTIC TEST GRANT WITH FUNDING DEDICATED TO THE DEVELOPMENT OF A DIAGNOSTIC TEST FOR PSORIATIC ARTHRITIS (PSA), NPF SUCCESSFULLY LAUNCHED THE MORE THAN SKIN DEEP MENTAL HEALTH GRANT, WHICH FUNDS RESEARCH AIMED AT ADDRESSING MENTAL HEALTH ISSUES, A MAJOR PSORIATIC DISEASE COMORBIDITY. COMPETITIVE RENEWAL OF THE PSORIASIS PREVENTION INITIATIVE GRANTS OCCURRED. THESE GRANTS SUPPORT PROJECTS FROM MULTI-INSTITUTIONAL, MULTI-DISCIPLINARY TEAMS WITH THE GOAL OF IDENTIFYING AN INTERVENTION THAT WILL PREVENT THE ONSET OF PSORIATIC DISEASE, DISEASE RELAPSE, OR RELEVANT COMORBIDITIES. THE NPF RESEARCH TEAM PUBLISHED SEVERAL ABSTRACTS AND PAPERS AND BROUGHT THE INTERNALLY GENERATED DATA TO THE COMMUNITY. THEY ALSO LED A SUCCESSFUL EFFORT TO PUBLISH AN INFOGRAPHIC TO EDUCATE OTHERS ABOUT PSORIASIS BEING A SYSTEMIC, IMMUNE-MEDIATED DISEASE WITH SEVERAL COMORBIDITIES IMPACTING OVERALL HEALTH OUTCOMES. NPF HOSTED A RESEARCH SESSION IN CONJUNCTION WITH THE SOCIETY OF INVESTIGATIVE DERMATOLOGY. THE CITIZEN PSCIENTIST, AN ON-LINE PATIENT REGISTRY PLATFORM, WAS VALIDATED, AND THE PEER REVIEWED PUBLICATION THAT NPF OVERSEES, THE JOURNAL OF PSORIASIS AND PSORIATIC ARTHRITIS, DOUBLED THE NUMBER OF ORIGINAL RESEARCH SUBMISSIONS. IN PARTNERSHIP WITH OTHER NPF FUNCTIONAL TEAMS, A GRANT WAS SUBMITTED TO THE CENTERS FOR DISEASE CONTROL WITH THE GOAL OF RAISING AWARENESS AND EDUCATING HEALTHCARE WORKERS ABOUT PSORIATIC DISEASE. IN COLLABORATION WITH THOUGHT LEADERS AND STAKEHOLDERS, NPF WAS INSTRUMENTAL IN THE INCLUSION OF PSORIATIC DISEASE IN THE ACCELERATED MEDICINES PARTNERSHIP FOR AUTOIMMUNE AND IMMUNE-MEDIATED DISEASES, A PUBLIC/PRIVATE PARTNERSHIP WHICH WILL BRING MILLIONS OF DOLLARS TO RESEARCH OVER THE NEXT 5 YEARS.
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IRS990/MissionDesc0THE NATIONAL PSORIASIS FOUNDATION PROVIDES PEOPLE WITH PSORIASIS AND PSORIATIC ARTHRITIS THE SERVICES THEY NEED TO BEST MANAGE THEIR CONDITION, WHILE PROMOTING RESEARCH TO FIND A CURE.
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Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2021 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$15,989,040
Liabilities
$5,053,003
Net assets
$10,936,037
Revenue
$12,657,666
Expenses
$11,129,734
Net income
$1,527,932
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$14.9$4.95$9.96$12.6$11.7$0.91
2023Summary only. Only limited summary data is available for this year.$13.8$4.80$9.02$11.6$13.8$2.17
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$14.0$3.43$10.6$13.4$12.5$0.85
2021Detailed filing. Detailed filing data is available for this year.$16.0$5.05$10.9$12.7$11.1$1.53
2020Summary only. Only limited summary data is available for this year.$14.4$5.71$8.72$14.2$13.9$0.33
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.4$3.90$8.53$14.2$13.4$0.79
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$10.6$2.92$7.70$14.5$13.3$1.18
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$9.45$2.69$6.77$14.5$12.7$1.84
2016Detailed filing. Detailed filing data is available for this year.$6.55$1.37$5.18$9.47$11.0$1.50
2015Detailed filing. Detailed filing data is available for this year.$7.58$0.69$6.88$9.86$9.56$0.30
2014Detailed filing. Detailed filing data is available for this year.$7.77$0.54$7.23$9.23$9.09$0.13
2013Summary only. Only limited summary data is available for this year.$7.39$0.50$6.89$7.56$7.67$0.11
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.45$0.37$7.09$7.67
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$6.28$0.50$5.78$6.93