National Psoriasis Foundation

Filing Period

Jul 1, 2011 to Jun 30, 2012

Signed

Nov 6, 2012

Return Version

2011v1.2

Gross Receipts

$9,242,617

Mission

Major Activities

Activity 2

Research and professional education:announced 26 grant awards to directly fund cutting-edge research: eight one-year discovery grants; six two-year translational grants; and 12 one-year research fellowships--totaling more than $2 million.saw success from previous years' grants as recipients published ground-breaking results of foundation-funded research and earned grants from the national institutes of health to continue their studies.surpassed a total 2,300 dna samples collected for the national psoriasis victor henschel biobank, the primary source of genetic material for psoriatic disease researchers.published psoriasis forum, a peer-reviewed medical journal, to provide approximately 6,000 rheumatologists, dermatologists and other medical professionals with the latest research and treatment information.hosted a conference to bring leading psoriasis researchers and clinicians together to share their knowledge with more than 100 dermatology residents.

Activity 3

Advocacy and government relations:advocates sent more than 5,000 letters and held close to 200 meetings with elected officials, policy makers and insurance companies.achieved improved access to care for approximately 225,000 health plan subscribers with psoriatic diseases. This work includes the foundations uniquely direct approach with insurance companies. After foundation advocates explained the adverse effects of certain rules, four major insurers voluntarily made suggested changes in 2012.brought nearly 30 advocates and top researchers to the washington, d.c., offices of 25 senators and 34 representatives, achieving bipartisan support and reintroduction of a bill to add psoriatic diseases to those already in the centers for disease control and prevention surveys and data collection.

Filer

EIN

93-0571472