As Healthy as Possible

“A family relationship exist between Daniel O'Donnell and other members of the organization. Daniel O'Donnell is the husband of Johanna O'Donnell on the Executive Board. Daniel O'Donnell is also the brother of James O'Donnell serving on the Medical Advisory Board. No business relationships exist between any members of the organization.”

“The Executive Board consist of: Daniel O'Donnell, Johanna O'Donnell, Trine Hestbaek, Michael Wells, and Patrick Yodzis. The Medical Advisory Board consist of: Christine Erdie-Lalena, Marissa Vawter-Lee, and James O'Donnell. This is the full membership of the organization which is organized as a non-stock, nonprofit.”

“Copies of the 2024 tax form with all details and supplemental information were mailed to all members on May 12th, 2025..”

“Annual statements regarding potential conflicts are required. A 2024 Conflict of Interest statement from each member is currently on file.”

“Documentation is available upon request and there was a request to review documentation from NORD. The conflict of interest policy was made available to NORD for review via email. No other requests were received and so the organization did not have any other release of governing documents, conflict of interest policy, and/or financial statements. We have included the following statement on our website based on our financial outlook from the end of 2023. In our formational year of 2023 the majority of our actions centered on forming a strong base for our organization, including the formation of our Executive & Medical Advisory Boards. While our initial cost per dollar raised was 27%, based on our projected budget we believe our three year average through 2026 will be 7% or less due to moving past several one-time startup costs and As Healthy As Possible being a completely volunteer based organization. We will continue to update our financial information publicly as our organization develops. This statement continues to be correct and as such additional updates may be more likely through the middle to the end of 2026.”

“$252.00 was spent on continuing a Post Mail Box to ensure various means of communication are available to share and make the most information available to doctors, caregivers, and those interested in educating themselves about the POLR2A gene.”