Cure Rare Foundation

Cure Rare Foundation, established in Spring 2022, is a nonprofit organization devoted to funding the research and development of treatments and cures for rare genetic diseases. In the United States, diseases are considered rare when a single condition affects fewer than 200,000 individuals. However, these diseases arent rare at all because over 7,000 rare diseases have been identified and there are over 25,000,000 people living with rare diseases in the US alone! Yet because each individual disease impacts a small population, research and development for treatments and cures are largely underfunded, resulting in less than 5% of rare disease having effective treatments.