Liabilities / Assets
Score unavailable
Liabilities-to-assets requires both liabilities and assets on this filing.
Undiagnosed Diseases Network Foundation
990EZ • Fiscal year 2021 • EIN 87-3474254
Siviq Scores
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
No value available
Liabilities / Revenue
Score unavailable
Liabilities-to-revenue requires both liabilities and revenue on this filing.
Net Margin
Score unavailable
Net margin requires both revenue and expenses on this filing.
Top Officer Pay
77th percentile
Higher top officer pay than 77% of similar nonprofits.
Asset Growth
Score unavailable
No earlier valid filing was available within the previous three public years.
Revenue Growth
Score unavailable
No earlier valid filing was available within the previous three public years.
Balance Sheet
Assets
$0
No earlier filing loaded for comparison.
Net Assets
$0
No earlier filing loaded for comparison.
Liabilities
$0
No earlier filing loaded for comparison.
Revenue And Expenses
Revenue
$0
No earlier filing loaded for comparison.
Expenses
$0
No earlier filing loaded for comparison.
Net Income
$0
No earlier filing loaded for comparison.
Historical Trend
Jump To
Filing Snapshot
- Filing Period
- Nov 1, 2021 to Dec 31, 2021
- Signed
- Sep 8, 2022
- Return Version
- 2021v4.0
- Gross Receipts
- $0
Mission and Program Overview
Mission
The UDNF's mission is to improve access to diagnosis, research, and care for all with undiagnosed and ultra-rare conditions.We aim to foster collaboration between patients, clinicians, and scientists to enhance the quality of life of undiagnosed patients. We do this by mitigating barriers to equity and access in healthcare; setting standards for patient management; and bridging diagnosis and therapeutics as well as research and clinical care in undiagnosed and ultra-rare diseases.
Program Services
| Description | Grants | Expenses |
|---|---|---|
| Continuing, strengthening, and expanding the Undiagnosed Diseases Network, a research study backed by the National Institutes of Health Common Fund that seeks to provide answers for patients and families affected by undiagnosed diseases. | $0 | $0 |
| Supporting undiagnosed patients and families with medical care management, access to social services, connections to research opportunities, therapeutic matching, and community building. | $0 | $0 |
| Providing community outreach and education to benefit undiagnosed patients, such as serving as a universal gateway for information about undiagnosed and ultra-rare diseases. Networking with advocacy organizations, researchers, service providers, and funders to expand education and performance of providers. | $0 | $0 |
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Meghan Halley PhD | President | PT | $0 | - | - |
| Helene Cederroth | Vice President | PT | $0 | - | - |
| Kimberly LeBlanc MS CGC | Secretary | PT | $0 | - | - |
| Troy Evans | Treasurer | PT | $0 | - | - |
Filing and Contact Details
Filer
- Filer Name
- Undiagnosed Diseases Network Foundation
- EIN
- 87-3474254
- Phone
- 2025994465
- Address
- 1012 14TH STREET NW SUITE 500, Washington, DC 20005
Signing Officer
- Name
- Troy Evans
- Title
- Treasurer
- Phone
- 8017922697
- Signed
- 2022-09-08
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| IRS990EZ/PrimaryExemptPurposeTxt | 0 | The UDNF's mission is to improve access to diagnosis, research, and care for all with undiagnosed and ultra-rare conditions.We aim to foster collaboration between patients, clinicians, and scientists to enhance the quality of life of undiagnosed patients. We do this by mitigating barriers to equity and access in healthcare; setting standards for patient management; and bridging diagnosis and therapeutics as well as research and clinical care in undiagnosed and ultra-rare diseases. |
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| ReasonableCauseExplanation/ExplanationTxt | 0 | The Undiagnosed Diseases Network Foundation respectfully requests that any late filing penalties be waived regarding the filing of the organization's tax return. The Board of Directors believed that all forms and appropriate extensions had been filed with the IRS by an independent contractor. Therefore, the organization believed that it was filing a timely tax return based on the extended due date. We would hope that the IRS could understand that this situation was an isolated instance and allow for a reduction or waiver of penalties on this issue. |
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| ReturnHeader/BuildTS | 0 | 2023-04-26 12:10:37Z |
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| ReturnHeader/ReturnTs | 0 | 2022-09-09T16:04:26-07:00 |
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| ReturnHeader/TaxPeriodBeginDt | 0 | 2021-11-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2021-12-31 |
| ReturnHeader/TaxYr | 0 | 2021 |
Document Assets
No mirrored PDF or thumbnail assets are attached yet.
Filings
Displayed year
2021 • Form 990EZDetailed filing. Detailed filing data is available for this year.
- Assets
- $0
- Liabilities
- $0
- Net assets
- $0
- Revenue
- $0
- Expenses
- $0
- Net income
- $0
| Balance Sheet | Operations | |||||
|---|---|---|---|---|---|---|
| Year | Assets | Liabilities | Net Assets | Revenue | Expenses | Net Income |
| 2024Detailed filing. Detailed filing data is available for this year. | $1.44 | $0.05 | $1.40 | $0.33 | $1.43 | $1.10 |
| 2023Detailed filing. Detailed filing data is available for this year. | $2.41 | $0.04 | $2.37 | $2.58 | $0.22 | $2.36 |
| 2021Detailed filing. Detailed filing data is available for this year. | $0.00 | $0.00 | $0.00 | $0.00 | $0.00 | $0.00 |