Civic Intelligence

Ctx Alliance Nfp

990EZ • Fiscal year 2024 • EIN 87-1964096

Jan 01, 2024 to Dec 31, 2024 • Filed on May 14, 2025

Organization Profilehttps: ctxalliance.org
454 Printer WayLansdale, PA 19446-4035

(215) 801-0691

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

Score unavailable

No value available

Liabilities-to-assets requires both liabilities and assets on this filing.

Source year 2024

Liabilities / Revenue

Score unavailable

No value available

Liabilities-to-revenue requires both liabilities and revenue on this filing.

Source year 2024

Net Margin

76th percentile

22%

Higher net margin than 76% of similar nonprofits.

2024 filings • 501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

92nd percentile

$51,480

Higher top officer pay than 92% of similar nonprofits.

Top officer pay equals 60.2% of source-year revenue.

2024 filings • 501(c)3 • <$500k nonprofits • Source year 2024

Asset Growth

91st percentile

88%

Faster asset growth than 91% of similar nonprofits.

2024 filings • 501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Revenue Growth

21st percentile

-27%

Faster revenue growth than 21% of similar nonprofits.

2024 filings • 501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / AssetsScore unavailable

Assets

Up

$39,975

Up $18,725 (+88%) from 2023

Net Assets

Up

$39,975

Up $18,725 (+88%) from 2023

Liabilities

-

No earlier filing loaded for comparison.

Revenue And Expenses
Liabilities / RevenueScore unavailableNet Margin76th percentile

Revenue

Down

$85,546

Down $30,889 (-27%) from 2023

Expenses

Down

$66,821

Down $70,508 (-51%) from 2023

Net Income

Up

$18,725

Up $39,619 (+190%) from 2023

Historical Trend

Balance Sheet Trend

Asset Growth91st percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$40K$30K$20K$10K$0Assets 2023: $21,250Liabilities 2023: $0Net Assets 2023: $21,2502023Assets 2024: $39,975Net Assets 2024: $39,9752024

Highlighted filing

2024

Assets$39,975
Liabilities-
Net Assets$39,975
Open 2024 Filing

Operations Trend

Revenue Growth21st percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$150K$100K$50K$0-$50KRevenue 2023: $116,435Expenses 2023: $137,329Net Income 2023: -$20,8942023Revenue 2024: $85,546Expenses 2024: $66,821Net Income 2024: $18,7252024

Highlighted filing

2024

Revenue$85,546
Expenses$66,821
Net Income$18,725
Open 2024 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
May 14, 2025
Return Version
2024v5.1
Gross Receipts
$85,546
Mission and Program Overview

Mission

Education advocacy and promote research for CTX

Program Services

DescriptionGrantsExpenses
Sponsored and organized CTX sessions during the ULF Scientific Symposium and Family Conference in Itasca IL in June 2024. Thirty seven patients caregivers and professionals attended seven remote. The presentations were recorded and are on our website to facilitate patient family professional education efforts.$0$8,782
In 2024 the CTX Alliance conducted the first-ever neuropsychological survey to gather aggregate data from the global CTX patient community to enhance comprehension of the neurologic and psychiatric symptoms associated with CTX. The objective was to pinpoint critical areas requiring attention facilitating the research and implementation of interventions aimed at enhancing patient outcomes. There were 36 respondents which provided results that have been presented in two industry posters and presented for publication to rare disease journals.$0$1,000
Executive Director met with Representative Balderson in Washington DC and attended National Organization of Rare Disease NORD conference. These meetings were to make contacts and raise awareness for the need for newborn screening for CTX.$0$578
Compensation and Service Providers
Top Officer Pay92nd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Jean PickfordExecutive DirectorPT$51,480-$51,480
Bobbi BlanchardCo-President-$0--
George BryceCo-President-$0--
Andrea DeBarber PhDCo-Vice President-$0--
Robert Steiner MDCo-Vice President-$0--
Shawn LaurieTreasurer-$0--
Neel OdedaraSecretary-$0--
Shannon DeLaMarBoard Member-$0--
Hollisa RosengrantBoard Member-$0--
Jennifer RossenBoard Member-$0--
John WolfBoard Member-$0--
Abbey CookBoard Member-$0--
Filing and Contact Details

Filer

Filer Name
Ctx Alliance Nfp
EIN
87-1964096
In Care Of
% JEAN PICKFORD
Address
454 PRINTER WAY, LANSDALE, PA 19446-4035

Signing Officer

Name
Shawn Laurie
Title
Treasurer
Signed
2025-05-14
Supplemental Narrative

Additional Explanations

Part I, line 8

“| Other Revenues:, Amount:| None, $0|”

Part I, line 10

“| Grants And Similar Amounts Paid:, Amount:| None, $0|”

Part I, line 16

“| Other Expenses:, Amount:| Software and Web expenses, $1851| ULF Conference, $8782| Neuropsych Survey, $1000| NORD Conference and meeting with Representative Balderson in D.C., $578| Licenses Fees & Permits, $763|”

Part I, line 20

“| Explanation:, Amount:| None, $0|”

Part II, line 24

“| Explanation:, BOYAmount:, EOYAmount:| None, $0, $0|”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt1In 2024 the CTX Alliance conducted the first-ever neuropsychological survey to gather aggregate data from the global CTX patient community to enhance comprehension of the neurologic and psychiatric symptoms associated with CTX. The objective was to pinpoint critical areas requiring attention facilitating the research and implementation of interventions aimed at enhancing patient outcomes. There were 36 respondents which provided results that have been presented in two industry posters and presented for publication to rare disease journals.
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt2Executive Director met with Representative Balderson in Washington DC and attended National Organization of Rare Disease NORD conference. These meetings were to make contacts and raise awareness for the need for newborn screening for CTX.
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0| Other Revenues:, Amount:| None, $0|
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1| Grants And Similar Amounts Paid:, Amount:| None, $0|
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2| Other Expenses:, Amount:| Software and Web expenses, $1851| ULF Conference, $8782| Neuropsych Survey, $1000| NORD Conference and meeting with Representative Balderson in D.C., $578| Licenses Fees & Permits, $763|
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3| Explanation:, Amount:| None, $0|
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4| Explanation:, BOYAmount:, EOYAmount:| None, $0, $0|
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Part I, line 8
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Part I, line 10
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Part I, line 16
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Part I, line 20
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Part II, line 24
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/PersonNm0Shawn Laurie
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Treasurer
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-05-14
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0CTX ALLIANCE NFP
ReturnHeader/Filer/BusinessNameControlTxt0CTXA
ReturnHeader/Filer/EIN0871964096
ReturnHeader/Filer/ForeignPhoneNum02158010691
ReturnHeader/Filer/InCareOfNm0% JEAN PICKFORD
ReturnHeader/Filer/USAddress/AddressLine1Txt0454 PRINTER WAY
ReturnHeader/Filer/USAddress/CityNm0LANSDALE
ReturnHeader/Filer/USAddress/StateAbbreviationCd0PA
ReturnHeader/Filer/USAddress/ZIPCd0194464035
ReturnHeader/ReturnTs02025-05-13T20:41:55-04:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02024-01-01
ReturnHeader/TaxPeriodEndDt02024-12-31
ReturnHeader/TaxYr02024

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2024 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$39,975
Liabilities
-
Net assets
$39,975
Revenue
$85,546
Expenses
$66,821
Net income
$18,725
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$0.40$0.40$0.86$0.67$0.19
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.21$0.00$0.21$1.16$1.37$0.21
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2024 filings • 501(c)3 • <$500k nonprofits