Civic Intelligence

Zttk Son-Shine Foundation

EIN 86-1926609 • 501(c)3 • New York, NY

Profile

The zttk son-shine foundation is committed to improving the lives of individuals with zttk by accelerating research to develop accessible and effective treatments and, ultimately, a cure. We focus on funding cutting-edge science, building strong support systems for the global zttk community, and raising awareness about zttk syndrome.

1040 6th Ave FL 3New York, NY 10018

www.zttk.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

33rd percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Liabilities / Revenue

34th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Net Margin

98th percentile

91%

Higher net margin than 98% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2024

Revenue Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2024

Balance Sheet
Liabilities / Assets33rd percentile

Assets

$488,512

No earlier filing loaded for comparison.

Liabilities

$0

No earlier filing loaded for comparison.

Net Assets

$488,512

No earlier filing loaded for comparison.

Operations
Liabilities / Revenue34th percentileNet Margin98th percentile

Revenue

$523,854

No earlier filing loaded for comparison.

Expenses

$46,993

No earlier filing loaded for comparison.

Net Income

$476,861

No earlier filing loaded for comparison.

Trend Graphs

Balance Sheet Trend

Asset GrowthScore unavailable

Grouped bars show assets, liabilities, and net assets across loaded filings.

$600K$400K$200K$0Assets 2024: $488,512Liabilities 2024: $0Net Assets 2024: $488,5122024

Highlighted filing

2024

Assets$488,512
Liabilities$0
Net Assets$488,512
Open 2024 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income by year, with the latest filing highlighted.

$600K$400K$200K$0Revenue 2024: $523,854Expenses 2024: $46,993Net Income 2024: $476,8612024

Highlighted filing

2024

Revenue$523,854
Expenses$46,993
Net Income$476,861
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$488,512
Liabilities
$0
Net assets
$488,512
Revenue
$523,854
Expenses
$46,993
Net income
$476,861
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$4.89$0.00$4.89$5.24$0.47$4.77
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Oct 29, 2025
Return Version
2024v5.2
Gross Receipts
$523,854
Mission and Program Overview

Mission

The zttk son-shine foundation is committed to improving the lives of individuals with zttk by accelerating research to develop accessible and effective treatments and, ultimately, a cure. We focus on funding cutting-edge science, building strong support systems for the global zttk community, and raising awareness about zttk syndrome.

Foundation is committed to improving the lives of individuals with zttk.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$9,201$486,062▲ $476,861
Intangible Assets$2,450$2,450→ $0
Total Assets$11,651$488,512▲ $476,861
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$11,651$398,537▲ $386,886
Net Assets With Donor Restrictions-$89,975-
Total Net Assets Fund Balance$11,651$488,512▲ $476,861
Total Liabilities and Net Assets / Fund Balance$11,651$488,512▲ $476,861
Compensation and Service Providers
Top Officer PayScore unavailable

Board Members and Trustees

NameTitle
Andrea MachadoAmbassador Committee Chair
Dr Erin Eun-young Ahn PhdCo-chair of the Scientific and Clinical Advisory B
Shannon BoylePresident and Chair of the Board of Directors
Nathan GuoScientific Committee Chair
Ada LioSecretary and Fundraising Committee Chair
Kerry TirrellVice President and Vice Chair of the Board of Dire
Casey GanerFoundation Treasurer Finance and Audit Committee C
Francisco RodriguezMarketing Committee
Revenue and Support

Revenue Composition

Contributions and Grants
$523,854
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$523,854
Change in Net Assets
$476,861
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$46,993
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Conferences and Meetings$10,000--$10,000
Information Technology-$816-$816
Insurance-$708-$708
Travel-$600-$600
Other Expenses$33,250$88-$88
All Other Expenses$25$50-$75
Total Functional Expenses$43,275$3,718$0$46,993
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Ada lio, secretary and fundraising committee chair is married to nathan guo, scientific committee chair.”

Form 990, Part VI, Section B, Line 11B

“Copy of tax filings are provided to the board prior to filing.”

Form 990, Part VI, Section B, Line 12C

“Each director, officer, and member of a committee with board-delegated powers shall execute and deliver to the chair an annual statement disclosing the facts relating to any actual or potential financial interest or stating that he or she has no reportable financial interest. The chair shall report the results of the annual disclosure to the board at its annual meeting. If any director or officer of the corporation has a financial interest in any proposed contract or other transaction involving the corporation, the director or officer must disclose the financial interest to the board or committee authorizing the contract or transaction. The board or committee shall determine whether the financial interest constitutes a conflict of interest. A director or officer who has a conflict of interest may answer questions of the board or committee considering the contract or transaction that involves the conflict. However, after answering questions, the director or officer shall leave the meeting during the discussion of the merits of the contract or transaction and shall not vote on the contract or other transaction.”

Form 990, Part VI, Section C, Line 19

“Documents are available to the community based on specific requests.”

Filing and Contact Details

Filer

Filer Name
Zttk Son-shine Foundation
EIN
86-1926609
Phone
2128731472
Address
1040 6TH AVE FL 3, NEW YORK, NY 10018

Signing Officer

Name
Casey Ganer
Title
Treasurer
Phone
2128731472
Signed
2025-10-29
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Casey Ganer
Formed
2021
Legal Domicile
De
Voting Board Members
8
Independent Board Members
8
Employees
0
Volunteers
8

Preparer

Firm
Bonadio & Co Llp
Address
171 SULLYS TRAIL, PITTSFORD, NY 14534
Preparer
Richard Leicht
Phone
5853811000
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IRS990/MissionDesc0THE ZTTK SON-SHINE FOUNDATION IS COMMITTED TO IMPROVING THE LIVES OF INDIVIDUALS WITH ZTTK BY ACCELERATING RESEARCH TO DEVELOP ACCESSIBLE AND EFFECTIVE TREATMENTS AND, ULTIMATELY, A CURE. WE FOCUS ON FUNDING CUTTING-EDGE SCIENCE, BUILDING STRONG SUPPORT SYSTEMS FOR THE GLOBAL ZTTK COMMUNITY, AND RAISING AWARENESS ABOUT ZTTK SYNDROME.
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1COPY OF TAX FILINGS ARE PROVIDED TO THE BOARD PRIOR TO FILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2EACH DIRECTOR, OFFICER, AND MEMBER OF A COMMITTEE WITH BOARD-DELEGATED POWERS SHALL EXECUTE AND DELIVER TO THE CHAIR AN ANNUAL STATEMENT DISCLOSING THE FACTS RELATING TO ANY ACTUAL OR POTENTIAL FINANCIAL INTEREST OR STATING THAT HE OR SHE HAS NO REPORTABLE FINANCIAL INTEREST. THE CHAIR SHALL REPORT THE RESULTS OF THE ANNUAL DISCLOSURE TO THE BOARD AT ITS ANNUAL MEETING. IF ANY DIRECTOR OR OFFICER OF THE CORPORATION HAS A FINANCIAL INTEREST IN ANY PROPOSED CONTRACT OR OTHER TRANSACTION INVOLVING THE CORPORATION, THE DIRECTOR OR OFFICER MUST DISCLOSE THE FINANCIAL INTEREST TO THE BOARD OR COMMITTEE AUTHORIZING THE CONTRACT OR TRANSACTION. THE BOARD OR COMMITTEE SHALL DETERMINE WHETHER THE FINANCIAL INTEREST CONSTITUTES A CONFLICT OF INTEREST. A DIRECTOR OR OFFICER WHO HAS A CONFLICT OF INTEREST MAY ANSWER QUESTIONS OF THE BOARD OR COMMITTEE CONSIDERING THE CONTRACT OR TRANSACTION THAT INVOLVES THE CONFLICT. HOWEVER, AFTER ANSWERING QUESTIONS, THE DIRECTOR OR OFFICER SHALL LEAVE THE MEETING DURING THE DISCUSSION OF THE MERITS OF THE CONTRACT OR TRANSACTION AND SHALL NOT VOTE ON THE CONTRACT OR OTHER TRANSACTION.
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IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt03718
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt043275
IRS990/TotalFunctionalExpensesGrp/TotalAmt046993
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt011651
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0488512
IRS990/TotalOtherCompensationAmt00
IRS990/TotalProgramServiceExpensesAmt043275
IRS990/TotalReportableCompFromOrgAmt00
IRS990/TotalRevenueGrp/ExclusionAmt00
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0523854
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt08
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt011651
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0488512
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TravelGrp/ManagementAndGeneralAmt0600
IRS990/TravelGrp/TotalAmt0600
IRS990/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd00
IRS990/USAddress/AddressLine1Txt01040 6TH AVE FL 3
IRS990/USAddress/CityNm0NEW YORK
IRS990/USAddress/StateAbbreviationCd0NY
IRS990/USAddress/ZIPCd010018
IRS990/VotingMembersGoverningBodyCnt08
IRS990/VotingMembersIndependentCnt08
IRS990/WebsiteAddressTxt0WWW.ZTTK.ORG
IRS990/WhistleblowerPolicyInd00
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0CASEY GANER
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0TREASURER
ReturnHeader/BusinessOfficerGrp/PhoneNum02128731472
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-10-29
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0ZTTK SON-SHINE FOUNDATION
ReturnHeader/Filer/BusinessNameControlTxt0ZTTK
ReturnHeader/Filer/EIN0861926609
ReturnHeader/Filer/PhoneNum02128731472
ReturnHeader/Filer/USAddress/AddressLine1Txt01040 6TH AVE FL 3
ReturnHeader/Filer/USAddress/CityNm0NEW YORK
ReturnHeader/Filer/USAddress/StateAbbreviationCd0NY
ReturnHeader/Filer/USAddress/ZIPCd010018
ReturnHeader/IRSResponsiblePrtyInfoCurrInd01
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0161131146
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0BONADIO & CO LLP
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt0171 SULLYS TRAIL
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0PITTSFORD
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0NY
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd014534
ReturnHeader/PreparerPersonGrp/PhoneNum05853811000
ReturnHeader/PreparerPersonGrp/PreparationDt02025-10-29
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0RICHARD LEICHT
ReturnHeader/ReturnTs02025-11-05T09:37:49-06:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02024-01-01
ReturnHeader/TaxPeriodEndDt02024-12-31
ReturnHeader/TaxYr02024

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