Civic Intelligence

Rarerising

990 • Fiscal year 2024 • EIN 85-3253125

Jan 01, 2024 to Dec 31, 2024 • Filed on May 29, 2025

Organization ProfileRARERISING.ORG
N85w16110 Appleton Ave Unit 158Menomonee Falls, WI 53052-5206

(414) 405-7042

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

68th percentile

0.02x

Higher debt load relative to assets than 68% of similar nonprofits.

2024 filings • 501(c)3 • <$500k nonprofits • Source year 2024

Liabilities / Revenue

66th percentile

0.01x

Higher debt load relative to revenue than 66% of similar nonprofits.

2024 filings • 501(c)3 • <$500k nonprofits • Source year 2024

Net Margin

13th percentile

-34%

Higher net margin than 13% of similar nonprofits.

2024 filings • 501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

79th percentile

$0

Higher top officer pay than 79% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2024 filings • 501(c)3 • <$500k nonprofits • Source year 2024

Asset Growth

15th percentile

-38%

Faster asset growth than 15% of similar nonprofits.

2024 filings • 501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Revenue Growth

11th percentile

-51%

Faster revenue growth than 11% of similar nonprofits.

2024 filings • 501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets68th percentile

Assets

Down

$97,406

Down $60,433 (-38%) from 2023

Net Assets

Down

$95,594

Down $62,245 (-39%) from 2023

Liabilities

Up

$1,812

Up $1,812 from 2023

Revenue And Expenses
Liabilities / Revenue66th percentileNet Margin13th percentile

Revenue

Down

$182,325

Down $188,005 (-51%) from 2023

Expenses

Down

$244,571

Down $32,301 (-12%) from 2023

Net Income

Down

-$62,246

Down $155,704 (-167%) from 2023

Historical Trend

Balance Sheet Trend

Asset Growth15th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$200K$150K$100K$50K$0Assets 2022: $64,381Net Assets 2022: $64,3812022Assets 2023: $157,839Liabilities 2023: $0Net Assets 2023: $157,8392023Assets 2024: $97,406Liabilities 2024: $1,812Net Assets 2024: $95,5942024

Highlighted filing

2024

Assets$97,406
Liabilities$1,812
Net Assets$95,594
Open 2024 Filing

Operations Trend

Revenue Growth11th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$400K$200K$0-$200KRevenue 2022: $185,392Expenses 2022: $124,337Net Income 2022: $61,0552022Revenue 2023: $370,330Expenses 2023: $276,872Net Income 2023: $93,4582023Revenue 2024: $182,325Expenses 2024: $244,571Net Income 2024: -$62,2462024

Highlighted filing

2024

Revenue$182,325
Expenses$244,571
Net Income-$62,246
Open 2024 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
May 29, 2025
Return Version
2024v5.0
Gross Receipts
$182,325
Mission and Program Overview

Mission

Deliver patient-centered, evidence-based research, incubate emerging rare disease entities on their journey, and explore novel solutions to positively impact rare disease communities.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$155,383$96,608▼ $58,775
Prepaid Expenses and Deferred Charges$1,127--
Land, Buildings, and Equipment, Net$1,329$798▼ $531
Total Assets$157,839$97,406▼ $60,433
Liabilities
Accounts Payable and Accrued Expenses-$1,812-
Total Liabilities$0$1,812▲ $1,812
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$157,839$95,594▼ $62,245
Total Net Assets Fund Balance$157,839$95,594▼ $62,245
Total Liabilities and Net Assets / Fund Balance$157,839$97,406▼ $60,433

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$798$1,971$2,769
Compensation and Service Providers
Top Officer Pay79th percentile

Board Members and Trustees

NameTitle
Fernando SanchezBoard Member
Gabriela PrudencioBoard Member
Kimberly Ramseur Jd MphBoard Member
Mousumi BoseBoard Member
Kimberly K HaugstadCEO, Directo
Revenue and Support

Revenue Composition

Contributions and Grants
$182,325
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$182,325
Change in Net Assets
$-62,246
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$162,199
Salaries, Compensation, and Employee Benefits$62,372
Grants and Similar Amounts Paid$20,000
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$119,245--$119,245
Other Salaries and Wages$56,135$6,237-$62,372
Grants to Domestic Orgs$20,000--$20,000
Office Expenses$14,789$1,588-$16,377
Travel$10,767--$10,767
Fees for Services Accounting-$5,557-$5,557
Information Technology$3,044--$3,044
Insurance-$1,969-$1,969
Advertising$728--$728
Depreciation Depletion$478$53-$531
Conferences and Meetings$350--$350
Other Expenses$157$335-$157
Total Functional Expenses$228,832$15,739$0$244,571
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Hemophilia Found of N CaliforniaMartinez, CA-Aligned Project$20,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“Ceo will review and then board of directors will review.”

Form 990, Page 6, Part VI, Line 12C

“If issues of policy variance are identified, a review process is implemented and appropriate action is taken.”

Form 990, Page 6, Part VI, Line 19

“Documents are made available upon request.”

Filing and Contact Details

Filer

Filer Name
Rarerising
EIN
85-3253125
Phone
4144057042
Address
N85W16110 APPLETON AVE UNIT 158, MENOMONEE FALLS, WI 53052-5206

Signing Officer

Name
Kimberly K Haugstad
Title
CEO, Director
Phone
4144057042
Signed
2025-05-29
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Kimberly K Haugstad
Formed
2020
Legal Domicile
Az
Voting Board Members
5
Independent Board Members
5
Employees
1
Volunteers
10

Preparer

Firm
Betters & Associates Sc
Address
21095 WATERTOWN RD, WAUKESHA, WI 53186-1806
Preparer
Michael P Betters
Phone
2627988160
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“Consulting 2,000 0 0 contract labor 117,245 0 0 total 119,245 0 0”

Form 990, Part XI, Line 9

“ROUNDING ADJUSTMENT 1”

Raw XML Appendix334 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/WebsiteAddressTxt0HTTPS://RARERISING.ORG/
IRS990/WhistleblowerPolicyInd0true
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0KIMBERLY K HAUGSTAD
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0CEO, DIRECTOR
ReturnHeader/BusinessOfficerGrp/PhoneNum04144057042
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-05-29
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0RARERISING
ReturnHeader/Filer/BusinessNameControlTxt0RARE
ReturnHeader/Filer/EIN0853253125
ReturnHeader/Filer/PhoneNum04144057042
ReturnHeader/Filer/USAddress/AddressLine1Txt0N85W16110 APPLETON AVE UNIT 158
ReturnHeader/Filer/USAddress/CityNm0MENOMONEE FALLS
ReturnHeader/Filer/USAddress/StateAbbreviationCd0WI
ReturnHeader/Filer/USAddress/ZIPCd0530525206
ReturnHeader/IRSResponsiblePrtyInfoCurrInd0true
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0391783820
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0BETTERS & ASSOCIATES SC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt021095 WATERTOWN RD
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0WAUKESHA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0WI
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd0531861806
ReturnHeader/PreparerPersonGrp/PhoneNum02627988160
ReturnHeader/PreparerPersonGrp/PreparationDt02025-05-29
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0MICHAEL P BETTERS
ReturnHeader/ReturnTs02025-06-19T10:48:05-04:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02024-01-01
ReturnHeader/TaxPeriodEndDt02024-12-31
ReturnHeader/TaxYr02024

Document Assets

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Filings

Displayed year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$97,406
Liabilities
$1,812
Net assets
$95,594
Revenue
$182,325
Expenses
$244,571
Net income
-$62,246
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$0.97$0.02$0.96$1.82$2.45$0.62
2023Detailed filing. Detailed filing data is available for this year.$1.58$0.00$1.58$3.70$2.77$0.93
2022Detailed filing. Detailed filing data is available for this year.$0.64$0.64$1.85$1.24$0.61