Civic Intelligence

Cacna1A Foundation Inc.

990 • Fiscal year 2023 • EIN 84-4985747

Jan 01, 2023 to Dec 31, 2023 • Filed on Jul 02, 2024

Organization Profilewww.cacna1a.org
31 Point RoadNorwalk, CT 06854

(203) 969-6552

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

76th percentile

0.21x

Higher debt load relative to assets than 76% of similar nonprofits.

2023 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2023

Liabilities / Revenue

86th percentile

0.46x

Higher debt load relative to revenue than 86% of similar nonprofits.

2023 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2023

Net Margin

18th percentile

-18%

Higher net margin than 18% of similar nonprofits.

2023 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2023

Top Officer Pay

54th percentile

$0

Higher top officer pay than 54% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2023 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2023

Asset Growth

35th percentile

-1.5%

Faster asset growth than 35% of similar nonprofits.

2023 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2022 to 2023

Revenue Growth

56th percentile

12%

Faster revenue growth than 56% of similar nonprofits.

2023 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2022 to 2023

Balance Sheet
Liabilities / Assets76th percentile

Assets

Down

$863,328

Down $13,209 (-1.5%) from 2022

Net Assets

Down

$685,133

Down $67,843 (-9.0%) from 2022

Liabilities

Up

$178,195

Up $54,634 (+44%) from 2022

Revenue And Expenses
Liabilities / Revenue86th percentileNet Margin18th percentile

Revenue

Up

$385,860

Up $42,561 (+12%) from 2022

Expenses

Up

$453,703

Up $50,298 (+12%) from 2022

Net Income

Down

-$67,843

Down $7,737 (-13%) from 2022

Historical Trend

Balance Sheet Trend

Asset Growth35th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.0M$500K$0Assets 2020: $172,018Net Assets 2020: $172,0182020Assets 2021: $488,082Liabilities 2021: $0Net Assets 2021: $488,0822021Assets 2022: $876,537Liabilities 2022: $123,561Net Assets 2022: $752,9762022Assets 2023: $863,328Liabilities 2023: $178,195Net Assets 2023: $685,1332023Assets 2024: $726,400Liabilities 2024: $115,810Net Assets 2024: $610,5902024

Highlighted filing

2023

Assets$863,328
Liabilities$178,195
Net Assets$685,133
Open 2023 Filing

Operations Trend

Revenue Growth56th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$600K$400K$200K$0-$200KRevenue 2020: $193,025Expenses 2020: $21,007Net Income 2020: $172,0182020Revenue 2021: $484,663Expenses 2021: $168,599Net Income 2021: $316,0642021Revenue 2022: $343,299Expenses 2022: $403,405Net Income 2022: -$60,1062022Revenue 2023: $385,860Expenses 2023: $453,703Net Income 2023: -$67,8432023Revenue 2024: $465,614Expenses 2024: $540,157Net Income 2024: -$74,5432024

Highlighted filing

2023

Revenue$385,860
Expenses$453,703
Net Income-$67,843
Open 2023 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2023 to Dec 31, 2023
Signed
Jul 2, 2024
Return Version
2023v5.1
Gross Receipts
$385,860
Mission and Program Overview

Mission

Support for Individuals Living with CACNA1A Genetic Variants

To find specific treatment options and a cure for CACNA1A patients. (See Schedule O for full mission)

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$654,290$842,640▲ $188,350
Pledges and Grants Receivable$222,247$20,688▼ $201,559
Total Assets$876,537$863,328▼ $13,209
Liabilities
Grants Payable-$152,500-
Accounts Payable and Accrued Expenses$123,561$25,695▼ $97,866
Total Liabilities$123,561$178,195▲ $54,634
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$365,516$512,627▲ $147,111
Net Assets With Donor Restrictions$387,460$172,506▼ $214,954
Total Net Assets Fund Balance$752,976$685,133▼ $67,843
Total Liabilities and Net Assets / Fund Balance$876,537$863,328▼ $13,209
Compensation and Service Providers
Top Officer Pay54th percentile

Board Members and Trustees

NameTitle
Lisa ManasterPresident
Sunitha MalepatiVice President & Treasurer
Allison BuchnerDirector
Deborah Ondrasik MDDirector
Hala MirzaDirector
Sarah GreathouseDirector
Amy JungeSecretary
Revenue and Support

Revenue Composition

Contributions and Grants
$385,860
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$385,860
Change in Net Assets
$-67,843
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$278,707
Grants and Similar Amounts Paid$174,996
Total Fundraising Expense$48,429
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$105,085-$39,285$144,370
Grants to Domestic Orgs$124,996--$124,996
Conferences and Meetings$89,349--$89,349
Foreign Grants$50,000--$50,000
Information Technology$1,167$5,491$4,354$11,012
Office Expenses$289$4,254$4,640$9,183
Advertising$7,222$235$150$7,607
Fees for Services Accounting-$7,200-$7,200
Travel$5,765--$5,765
Insurance-$2,192-$2,192
Other Expenses$1,714--$1,714
Fees for Services Legal-$315-$315
Total Functional Expenses$385,587$19,687$48,429$453,703
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Columbia University Board of TrusteNew York, NY501c3Research$75,000
University of IowaIowa City, IA501c3Research$50,000

International Summary

Spending
$50,000

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe including Iceland and GreenlandGrant makingResearch--$50,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990 governing body review Part VI line 11

“The form 990 is submitted in draft form to The Board of Directors for review and the form 990 is approved by the vice president and treasurer prior to submission.”

Conflict of interest policy compliance Part VI line 12C

“The Foundation has a conflict-of-interest policy which is consistently reviewed, monitored, and enforced on an annual basis.”

Governing documents etc available to public Part VI line 19

“These documents are available upon request.”

Filing and Contact Details

Filer

Filer Name
CACNA1A Foundation
EIN
84-4985747
Address
31 Point Road, Norwalk, CT 06854

Signing Officer

Name
Sunitha Malepati
Title
Vice President
Phone
2039696552
Signed
2024-07-02
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Sunitha Malepati
Formed
2020
Legal Domicile
Ct
Voting Board Members
7
Independent Board Members
7
Employees
0
Volunteers
10

Preparer

Firm
Mullins PC
Address
7625 Wisconsin Avenue, Bethesda, MD 20814
Preparer
John Mullins
Phone
2027706371
Supplemental Narrative

Additional Explanations

List of other fees for services expenses Part IX line 11G

“Communications: $53,400Science: $60,400Community: $535Fundraising: $30,035”

Part III response or note to any other line in Part III

“(ii) Develop a more comprehensive framework for classifying CACNA1A variants; (iii) Explore new approaches to understand and target the pathophysiology (disease mechanisms) of CACNA1A-related disorders; and (iv) Identify the components needed to build a robust proof-of-concept package to attract industry partnerships.”

General explanation attachment

“Mission Statement:To find specific treatment options and a cure for CACNA1A patients by building a collaborative network of patients, families, clinicians and scientists that will work together to raise awareness and accelerate the understanding, diagnosis and treatment of CACNA1A-linked diseases.”

Raw XML AppendixShowing 400 of 424 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0We were selected to partner with the Orphan Disease Center and the University of Pennsylvania to develop the first-ever disease concept model study for CACNA1A-related disorders. We also awarded three new research grants this year exemplifying our commitment to advancing scientific breakthroughs for the CACNA1A community. We funded: (i) Samuel Young Jr., PhD for Development of novel gene therapy strategies to treat CACNA1A-related disorders; (ii) Henry Colecraft, PhD for Fixing Cav2.1 functional expression to treat CACNA1A disorders and (iii) Bart van de Warrenburg, MD, PhD for Development of an in vitro compound screening assay utilizing an electrophysiological fingerprint in induced pluripotent stem cell-derived neurons carrying a CACNA1A gain-of-function variant. We also formed new working groups in our Research Network to drive progress in natural history study/biomarker development, preclinical-to-clinical research; and variant classification.
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IRS990/ProgSrvcAccomActy2Grp/Desc0The CACNA1A Foundation hosted its second Research Roundtable: Collaborating to Accelerate the Path to CACNA1A Clinical Trials on October 9-10th at the New York Academy of Medicine in New York City. There were over 55 attendees, including 48 researchers, clinicians, trainees, and representatives from industry and the NIH. The overarching purpose was to exchange ideas and build collaborations among the CACNA1A Research Network to develop CACNA1A-specific treatments and push them into clinical trials for FDA approval. The meeting was divided into four sessions, each focused on one of the following goals: (i) Develop strategies for identifying biomarkers and endpoints for CACNA1A-related disorders;Continued on Sch O.
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IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0Columbia University Board of Truste
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1University of Iowa
IRS990ScheduleI/RecipientTable/RecipientEIN0135598093
IRS990ScheduleI/RecipientTable/RecipientEIN1426004813
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IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt1169 Newton Rd
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IRS990ScheduleI/RecipientTable/USAddress/CityNm1Iowa City
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IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1IA
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IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0We require that the principal investigator submit to the CACNA1A Foundation mid-year and final written reports regarding the project and the use of the grant proceeds in accordance with The Foundations policy statement on research support.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0Monitoring procedures (Part I, line 2)
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0The form 990 is submitted in draft form to The Board of Directors for review and the form 990 is approved by the vice president and treasurer prior to submission.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1The Foundation has a conflict-of-interest policy which is consistently reviewed, monitored, and enforced on an annual basis.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2These documents are available upon request.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Communications: $53,400Science: $60,400Community: $535Fundraising: $30,035
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4(ii) Develop a more comprehensive framework for classifying CACNA1A variants; (iii) Explore new approaches to understand and target the pathophysiology (disease mechanisms) of CACNA1A-related disorders; and (iv) Identify the components needed to build a robust proof-of-concept package to attract industry partnerships.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5Mission Statement:To find specific treatment options and a cure for CACNA1A patients by building a collaborative network of patients, families, clinicians and scientists that will work together to raise awareness and accelerate the understanding, diagnosis and treatment of CACNA1A-linked diseases.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990 governing body review Part VI line 11
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Conflict of interest policy compliance Part VI line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Governing documents etc available to public Part VI line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3List of other fees for services expenses Part IX line 11g
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Part III response or note to any other line in Part III
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5General explanation attachment
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Document Assets

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Filings

Displayed year

2023 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$863,328
Liabilities
$178,195
Net assets
$685,133
Revenue
$385,860
Expenses
$453,703
Net income
-$67,843
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$7.26$1.16$6.11$4.66$5.40$0.75
2023Detailed filing. Detailed filing data is available for this year.$8.63$1.78$6.85$3.86$4.54$0.68
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$8.77$1.24$7.53$3.43$4.03$0.60
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.88$0.00$4.88$4.85$1.69$3.16
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.72$1.72$1.93$0.21$1.72