Civic Intelligence

Cacna1A Foundation

EIN 84-4985747 • 501(c)3 • Norwalk, CT

Profile

To find specific treatment options and a cure for CACNA1A patients. (See Schedule O for full mission)

31 Point RoadNorwalk, CT 06854

www.cacna1a.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

73rd percentile

0.16x

Higher debt load relative to assets than 73% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Liabilities / Revenue

80th percentile

0.25x

Higher debt load relative to revenue than 80% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Net Margin

18th percentile

-16%

Higher net margin than 18% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Top Officer Pay

55th percentile

$0

Higher top officer pay than 55% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Asset Growth

16th percentile

-16%

Faster asset growth than 16% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Revenue Growth

67th percentile

21%

Faster revenue growth than 67% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets73rd percentile

Assets

Down

$726,400

Down $136,928 (-16%) from 2023

Liabilities

Down

$115,810

Down $62,385 (-35%) from 2023

Net Assets

Down

$610,590

Down $74,543 (-11%) from 2023

Operations
Liabilities / Revenue80th percentileNet Margin18th percentile

Revenue

Up

$465,614

Up $79,754 (+21%) from 2023

Expenses

Up

$540,157

Up $86,454 (+19%) from 2023

Net Income

Down

-$74,543

Down $6,700 (-9.9%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth16th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$1.0M$500K$0Assets 2020: $172,018Net Assets 2020: $172,0182020Assets 2021: $488,082Liabilities 2021: $0Net Assets 2021: $488,0822021Assets 2022: $876,537Liabilities 2022: $123,561Net Assets 2022: $752,9762022Assets 2023: $863,328Liabilities 2023: $178,195Net Assets 2023: $685,1332023Assets 2024: $726,400Liabilities 2024: $115,810Net Assets 2024: $610,5902024

Highlighted filing

2024

Assets$726,400
Liabilities$115,810
Net Assets$610,590
Open 2024 Filing

Operations Trend

Revenue Growth67th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$600K$400K$200K$0-$200KRevenue 2020: $193,025Expenses 2020: $21,007Net Income 2020: $172,0182020Revenue 2021: $484,663Expenses 2021: $168,599Net Income 2021: $316,0642021Revenue 2022: $343,299Expenses 2022: $403,405Net Income 2022: -$60,1062022Revenue 2023: $385,860Expenses 2023: $453,703Net Income 2023: -$67,8432023Revenue 2024: $465,614Expenses 2024: $540,157Net Income 2024: -$74,5432024

Highlighted filing

2024

Revenue$465,614
Expenses$540,157
Net Income-$74,543
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$726,400
Liabilities
$115,810
Net assets
$610,590
Revenue
$465,614
Expenses
$540,157
Net income
-$74,543
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$7.26$1.16$6.11$4.66$5.40$0.75
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$8.63$1.78$6.85$3.86$4.54$0.68
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$8.77$1.24$7.53$3.43$4.03$0.60
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.88$0.00$4.88$4.85$1.69$3.16
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.72$1.72$1.93$0.21$1.72
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Jun 27, 2025
Return Version
2024v5.1
Gross Receipts
$465,614
Mission and Program Overview

Mission

Support for Individuals Living with CACNA1A Genetic Variants

To find specific treatment options and a cure for CACNA1A patients. (See Schedule O for full mission)

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$842,640$711,278▼ $131,362
Pledges and Grants Receivable$20,688$15,122▼ $5,566
Total Assets$863,328$726,400▼ $136,928
Liabilities
Grants Payable$152,500$111,951▼ $40,549
Accounts Payable and Accrued Expenses$25,695$3,859▼ $21,836
Total Liabilities$178,195$115,810▼ $62,385
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$512,627$610,590▲ $97,963
Net Assets With Donor Restrictions$172,506--
Total Net Assets Fund Balance$685,133$610,590▼ $74,543
Total Liabilities and Net Assets / Fund Balance$863,328$726,400▼ $136,928
Compensation and Service Providers
Top Officer Pay55th percentile

Board Members and Trustees

NameTitle
Lisa ManasterPresident
Sunitha MalepatiVice President & Treasurer
Allison BuchnerDirector
Deborah Ondrasik MDDirector
Hala MirzaDirector
Michael StruppDirector
Sarah GreathouseDirector
Amy JungeSecretary
Revenue and Support

Revenue Composition

Contributions and Grants
$413,016
Program Service Revenue
$15,000
Investment Income
$8,897
Other Revenue
$28,701
All Other Contributions
$413,016
Change in Net Assets
$-74,543
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$449,002
Grants and Similar Amounts Paid$91,155
Total Fundraising Expense$78,327
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$112,422$7,882$48,363$168,667
Conferences and Meetings$166,297--$166,297
Grants to Domestic Orgs$82,885--$82,885
Other Expenses$40,256$75-$40,331
Information Technology$10,577$5,947$4,590$21,114
Office Expenses$1,316$1,689$12,197$15,202
Advertising$3,562-$7,254$10,816
Fees for Services Legal$6,533$458$2,810$9,801
Fees for Services Accounting$5,598$393$2,409$8,400
Foreign Grants$8,270--$8,270
Travel$4,005$371$704$5,080
Insurance-$3,294-$3,294
Total Functional Expenses$441,721$20,109$78,327$540,157
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
The Broad InstituteCambridge, MA501c3Research$50,000
Trustees of the University of PennPhiladelphia, PA501c3Research$16,750
University of Maryland School of MeCollege Park, MD501c3Research$5,000

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990 governing body review Part VI line 11

“The form 990 is submitted in draft form to The Board of Directors for review and the form 990 is approved by the vice president and treasurer prior to submission.”

Conflict of interest policy compliance Part VI line 12C

“The Foundation has a conflict-of-interest policy which is consistently reviewed, monitored, and enforced on an annual basis.”

Governing documents etc available to public Part VI line 19

“These documents are available upon request.”

Filing and Contact Details

Filer

Filer Name
CACNA1A Foundation
EIN
84-4985747
In Care Of
% Sunitha Malepati
Phone
2039696552
Address
31 Point Road, Norwalk, CT 06854

Signing Officer

Name
Sunitha Malepati
Title
Vice President & Treasurer
Phone
2039696552
Signed
2025-06-27
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Sunitha Malepati
Formed
2020
Legal Domicile
Ct
Voting Board Members
8
Independent Board Members
8
Employees
0
Volunteers
18

Preparer

Firm
Mullins PC
Address
7625 Wisconsin Avenue, Bethesda, MD 20814
Preparer
John Mullins
Phone
2027706371
Supplemental Narrative

Additional Explanations

List of other fees for services expenses Part IX line 11G

“Communications: $16,470Science: $107,018Community: $100Fundraising: $43,564Translation: $1,515”

Part III response or note to any other line in Part III

“(ii) Develop a more comprehensive framework for classifying CACNA1A variants; (iii) Explore new approaches to understand and target the pathophysiology (disease mechanisms) of CACNA1A-related disorders; and (iv) Identify the components needed to build a robust proof-of-concept package to attract industry partnerships.”

General explanation attachment

“Mission Statement:To find specific treatment options and a cure for CACNA1A patients by building a collaborative network of patients, families, clinicians and scientists that will work together to raise awareness and accelerate the understanding, diagnosis and treatment of CACNA1A-linked diseases.”

Raw XML AppendixShowing 400 of 458 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ProgSrvcAccomActy3Grp/Desc0The CACNA1A Foundation raised awareness by participating in national and international events, including Global Genes, the American Epilepsy Society, and Rare Disease Day at the Broad Institute. We hosted 22 virtual meetups for families and launched the Cure Club to boost research participation through personalized outreach. Additionally, we advocated for a unique ICD-10 code for CACNA1A-related neurodevelopmental disorders at the ICD-10 Coordination and Maintenance Committee Meeting.
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IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0Trustees of the University of Penn
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1University of Maryland School of Me
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2The Broad Institute
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0The form 990 is submitted in draft form to The Board of Directors for review and the form 990 is approved by the vice president and treasurer prior to submission.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1The Foundation has a conflict-of-interest policy which is consistently reviewed, monitored, and enforced on an annual basis.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2These documents are available upon request.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Communications: $16,470Science: $107,018Community: $100Fundraising: $43,564Translation: $1,515
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4(ii) Develop a more comprehensive framework for classifying CACNA1A variants; (iii) Explore new approaches to understand and target the pathophysiology (disease mechanisms) of CACNA1A-related disorders; and (iv) Identify the components needed to build a robust proof-of-concept package to attract industry partnerships.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5Mission Statement:To find specific treatment options and a cure for CACNA1A patients by building a collaborative network of patients, families, clinicians and scientists that will work together to raise awareness and accelerate the understanding, diagnosis and treatment of CACNA1A-linked diseases.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990 governing body review Part VI line 11
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Conflict of interest policy compliance Part VI line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Governing documents etc available to public Part VI line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3List of other fees for services expenses Part IX line 11g
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Part III response or note to any other line in Part III
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5General explanation attachment
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