Liabilities / Assets
30th percentile
Higher debt load relative to assets than 30% of similar nonprofits.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
30th percentile
Higher debt load relative to assets than 30% of similar nonprofits.
Liabilities / Revenue
30th percentile
Higher debt load relative to revenue than 30% of similar nonprofits.
Net Margin
63rd percentile
Higher net margin than 63% of similar nonprofits.
Top Officer Pay
40th percentile
Higher top officer pay than 40% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
58th percentile
Faster asset growth than 58% of similar nonprofits.
Revenue Growth
73rd percentile
Faster revenue growth than 73% of similar nonprofits.
Assets
Up$1,118,841
Up $76,456 (+7.3%) from 2023
Net Assets
Up$1,111,679
Up $69,656 (+6.7%) from 2023
Liabilities
Up$7,162
Up $6,800 (+1878%) from 2023
Revenue
Up$597,811
Up $132,839 (+29%) from 2023
Expenses
Up$528,155
Up $240,187 (+83%) from 2023
Net Income
Down$69,656
Down $107,348 (-61%) from 2023
The specific purpose of this corporation is to foster the development of treatments and cures for SHANK-related disorders.
CureSHANK has a singular purpose: To accelerate the development of treatments for Phelan-McDermid Syndrome and SHANK-related disorders. Our approach is to identify and fund projects that overcome critical barriers to successful drug development and to coordinate scientific efforts to improve efficiency and speed in the field.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | - | $661,543 | - |
| Cash and Non-Interest-Bearing Accounts | $1,038,385 | $347,286 | ▼ $691,099 |
| Prepaid Expenses and Deferred Charges | $4,000 | $79,585 | ▲ $75,585 |
| Investments in Publicly Traded Securities | - | $24,541 | - |
| Land, Buildings, and Equipment, Net | - | $5,886 | - |
| Accounts Receivable | - | $0 | - |
| Other Notes and Loans Receivable, Net | - | $0 | - |
| Pledges and Grants Receivable | - | $0 | - |
| Receivable From Disqualified Prsn | - | $0 | - |
| Receivables From Officers Etc | - | $0 | - |
| Investments Other Securities | - | $0 | - |
| Investments Program Related | - | $0 | - |
| Intangible Assets | - | $0 | - |
| Inventories for Sale or Use | - | $0 | - |
| Total Assets | $1,042,385 | $1,118,841 | ▲ $76,456 |
| Other Assets Total | - | $0 | - |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $362 | $7,162 | ▲ $6,800 |
| Total Liabilities | $362 | $7,162 | ▲ $6,800 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $1,042,023 | $1,111,679 | ▲ $69,656 |
| Total Net Assets Fund Balance | $1,042,023 | $1,111,679 | ▲ $69,656 |
| Total Liabilities and Net Assets / Fund Balance | $1,042,385 | $1,118,841 | ▲ $76,456 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $5,886 | - | $5,886 |
| Name | Title |
|---|---|
| Geraldine Bliss | President |
| Talya Emery Silva | Vice President |
| Grace Li | Director |
| Jenny Graham Beeson | Director |
| Laura Hinrichsen | Director |
| Paulina Rychenkova | Director |
| Laura Hinrichsen | Secretary |
| Abby Lievense | Treasurer |
| Contractor | Services | Location | Compensation |
|---|---|---|---|
| Trish Davidson Consulting LLC | Consortium Consulting | 2225 Primrose Drive, Falls Church, VA 22046 | $107,288 |
| Line Item | Amount |
|---|---|
| Other Expenses | $444,427 |
| Grants and Similar Amounts Paid | $83,728 |
| Total Fundraising Expense | $33,973 |
| Professional Fundraising Fees | $0 |
| Salaries, Compensation, and Employee Benefits | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Fees for Services Other | $258,724 | $7,750 | $7,750 | $274,224 |
| Grants to Domestic Orgs | $83,728 | - | - | $83,728 |
| Conferences and Meetings | $62,807 | $5,963 | - | $68,770 |
| Advertising | $19,063 | $720 | $13,537 | $33,320 |
| Fees for Services Legal | $32,448 | - | - | $32,448 |
| Fees for Services Accounting | - | $10,789 | - | $10,789 |
| Other Expenses | - | $2,815 | $12,337 | $2,815 |
| Insurance | - | $1,292 | - | $1,292 |
| Office Expenses | - | $197 | $349 | $546 |
| Total Functional Expenses | $456,770 | $37,412 | $33,973 | $528,155 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $528,155 |
| Total Expenses per Audited Statements | $528,155 |
| Total Expenses per Form 990 | $528,155 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| University of Utah | Salt Lake City, UT | - | - | $62,474 |
| Icahn School of Medicine | New York, NY | 501(c)(3) | - | $10,000 |
| Region | Activity | Services | Offices | Employees | Spending |
|---|---|---|---|---|---|
| Europe | Confernce | Conference Sponsorship | 0 | 0 | $5,000 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Receivables from Disqualified Persons | - | $0 | - |
| Receivables from Officers, Directors, Trustees, and Key Employees | - | $0 | - |
“A copy of Form 990 is provided to the governing body via email before it is filed.”
“Upon request.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 362 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 7162 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | CureSHANK has a singular purpose: To accelerate the development of treatments for Phelan-McDermid Syndrome and SHANK-related disorders. Our approach is to identify and fund projects that overcome critical barriers to successful drug development and to coordinate scientific efforts to improve efficiency and speed in the field. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 13537 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 720 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 19063 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 33320 |
| IRS990/AllOtherContributionsAmt | 0 | 586766 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 0 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BenefitsToMembersGrp/TotalAmt | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | Abby Lievense |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 3104098060 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 11777 San Vicente Blvd 500 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | Los Angeles |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | CA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 90049 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 1038385 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 347286 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 0 |
| IRS990/CompDisqualPersonsGrp/TotalAmt | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | false |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 5963 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 62807 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 68770 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/ContractorCompensationGrp/CompensationAmt | 0 | 107288 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 0 | 2225 Primrose Drive |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 0 | Falls Church |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 0 | VA |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 0 | 22046 |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 0 | Trish Davidson Consulting LLC |
| IRS990/ContractorCompensationGrp/ServicesDesc | 0 | Consortium Consulting |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 586766 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 83728 |
| IRS990/CYInvestmentIncomeAmt | 0 | 11045 |
| IRS990/CYOtherExpensesAmt | 0 | 444427 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 69656 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/CYTotalExpensesAmt | 0 | 528155 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 33973 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 597811 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 0 |
| IRS990/Desc | 0 | CureSHANK will bring the scientific community together by organizing scientific symposium and other meetings. With our scientific stakeholders, we will develop a research roadmap to a cure for SHANK-related disorders. We will also serve as an honest broker to enable collaboration among SHANK researchers and coordination of their projects to improve the speed and efficiency of research. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 0 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 279862 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 10789 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 10789 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 32448 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 32448 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 7750 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 7750 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 258724 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 274224 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignActivitiesInd | 0 | true |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282FiledCnt | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 50.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 50.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 20.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | Geraldine Bliss |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | Talya Emery Silva |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | Abby Lievense |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | Laura Hinrichsen |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | Grace Li |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | Jenny Graham Beeson |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | Laura Hinrichsen |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | Paulina Rychenkova |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Vice President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Secretary |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Director |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2019 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 8 |
| IRS990/GrantAmt | 0 | 83728 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 83728 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 83728 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 597811 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 8 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 0 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 1292 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 1292 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 0 |
| IRS990/InterestGrp/TotalAmt | 0 | 0 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 11045 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 11045 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 24541 |
| IRS990/IRPDocumentCnt | 0 | 12 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 5886 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 5886 |
| IRS990/LegalDomicileStateCd | 0 | CA |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | CureSHANK has a singular purpose: To accelerate the development of treatments for Phelan-McDermid Syndrome and SHANK-related disorders. Our approach is to identify and fund projects that overcome critical barriers to successful drug development and to coordinate scientific efforts to improve efficiency and speed in the field. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1042023 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1111679 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 1042023 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 1111679 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NoncashContributionsAmt | 0 | 24493 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/TotalAmt | 0 | 0 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 349 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 197 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 546 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | Bank SErvice Charges |
| IRS990/OtherExpensesGrp/Desc | 1 | Subscriptions |
| IRS990/OtherExpensesGrp/Desc | 2 | Membership Fees |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 12337 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 460 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 7426 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 2815 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 12797 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 7426 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 2815 |
| IRS990/OtherRevenueTotalAmt | 0 | 0 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 0 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 0 |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PaymentsToAffiliatesGrp/TotalAmt | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 0 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 0 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 4000 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 79585 |
| IRS990/PrincipalOfficerNm | 0 | Abby Lievense |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | CureSHANK will fund targeted research studies, including scientific projects that elucidate the underlying disease mechanisms, that identify and validate targets for drug development, and that de-risk promising drug targets. CureSHANK will also fund certain promising clinical trials readiness initiatives. These activities are needed to increase the number of drug targets moving from academic research labs into successful industry-sponsored clinical trials. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 131845 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | CureSHANK will advocate for increased funding of SHANK research by other stakeholders and strategize with researchers on initiatives, such as seed grants, that could help attract research investment by other funders. |
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| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 547552 |
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| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 3 |
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| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.90100 |
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| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 1931454 |
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| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
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| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
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| IRS990/ScheduleBRequiredInd | 0 | true |
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| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 528155 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 597811 |
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| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 528155 |
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| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt | 0 | 5000 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt | 0 | Europe |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt | 0 | Conference Sponsorship |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt | 0 | Confernce |
| IRS990ScheduleF/BoycottCountriesInd | 0 | false |
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| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 10000 |
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| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 0 | 501(C)(3) |
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| IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt | 1 | 0 |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | Icahn School of Medicine |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | University of Utah |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 136171197 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 1 | 876000525 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 1 Gustave L Levy Place |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | 201 S Presidents Circle |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | New York |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 1 | Salt Lake City |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 1 | UT |
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| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 1 | 84112 |
| IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt | 0 | The organization requires final reports from all grantees. |
| IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Grantmaker's Description of How Grants are Used |
| IRS990ScheduleI/Total501c3OrgCnt | 0 | 2 |
| IRS990ScheduleI/TotalOtherOrgCnt | 0 | 0 |
| IRS990/ScheduleJRequiredInd | 0 | false |
| IRS990/ScheduleORequiredInd | 0 | true |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | A copy of Form 990 is provided to the governing body via email before it is filed. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | Upon request. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Form 990, Part VI, Section B, Line 11b |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Form 990, Part VI, Section C, Line 19 |
| IRS990/SchoolOperatingInd | 0 | false |
| IRS990/SignificantChangeInd | 0 | false |
| IRS990/SignificantNewProgramSrvcInd | 0 | false |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 0 | CA |
| IRS990/SubjectToExcsTaxNetInvstIncInd | 0 | false |
| IRS990/SubjectToProxyTaxInd | 0 | false |
| IRS990/SubjToTaxRmnrtnExPrchtPymtInd | 0 | false |
| IRS990/TaxablePartyNotificationInd | 0 | false |
| IRS990/TaxExemptBondsInd | 0 | false |
| IRS990/TerminateOperationsInd | 0 | false |
| IRS990/TotalAssetsBOYAmt | 0 | 1042385 |
| IRS990/TotalAssetsEOYAmt | 0 | 1118841 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 1042385 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 1118841 |
| IRS990/TotalCompGreaterThan150KInd | 0 | false |
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Displayed year
2024 • Form 990Detailed filing. Detailed filing data is available for this year.