Civic Intelligence

Hae Global Registry Foundation

990EZ • Fiscal year 2019 • EIN 82-3878232

Jan 01, 2019 to Dec 31, 2019 • Filed on Nov 08, 2020

Organization Profile
10560 Main Street Ste PS40Fairfax, VA 22030

(866) 798-5598

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

57th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2019 filings • 501(c)3 • <$500k nonprofits • Source year 2019

Liabilities / Revenue

57th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2019 filings • 501(c)3 • <$500k nonprofits • Source year 2019

Net Margin

16th percentile

-20%

Higher net margin than 16% of similar nonprofits.

2019 filings • 501(c)3 • <$500k nonprofits • Source year 2019

Top Officer Pay

77th percentile

$0

Higher top officer pay than 77% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2019 filings • 501(c)3 • <$500k nonprofits • Source year 2019

Asset Growth

10th percentile

-45%

Faster asset growth than 10% of similar nonprofits.

2019 filings • 501(c)3 • <$500k nonprofits • Annualized from 2018 to 2019

Revenue Growth

49th percentile

0.2%

Faster revenue growth than 49% of similar nonprofits.

2019 filings • 501(c)3 • <$500k nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets57th percentile

Assets

Down

$19,723

Down $16,074 (-45%) from 2018

Net Assets

Down

$19,723

Down $16,074 (-45%) from 2018

Liabilities

Flat

$0

Flat from 2018

Revenue And Expenses
Liabilities / Revenue57th percentileNet Margin16th percentile

Revenue

Up

$80,160

Up $160 (+0.2%) from 2018

Expenses

Up

$96,234

Up $52,031 (+118%) from 2018

Net Income

Down

-$16,074

Down $51,871 (-145%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth10th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$40K$30K$20K$10K$0Assets 2018: $35,797Liabilities 2018: $0Net Assets 2018: $35,7972018Assets 2019: $19,723Liabilities 2019: $0Net Assets 2019: $19,7232019Assets 2020: $57Liabilities 2020: $0Net Assets 2020: $572020Assets 2021: $0Liabilities 2021: $0Net Assets 2021: $02021

Highlighted filing

2019

Assets$19,723
Liabilities$0
Net Assets$19,723
Open 2019 Filing

Operations Trend

Revenue Growth49th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$150K$100K$50K$0-$50KRevenue 2018: $80,000Expenses 2018: $44,203Net Income 2018: $35,7972018Revenue 2019: $80,160Expenses 2019: $96,234Net Income 2019: -$16,0742019Revenue 2020: $99,981Expenses 2020: $119,647Net Income 2020: -$19,6662020Expenses 2021: $572021

Highlighted filing

2019

Revenue$80,160
Expenses$96,234
Net Income-$16,074
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Nov 8, 2020
Return Version
2019v5.1
Gross Receipts
$80,160
Mission and Program Overview

Mission

Secure centralized patient database HAE

Program Services

DescriptionGrantsExpenses
Patient global registry for Hereditary Angioedema patients and physicians.$80,000$95,548
Compensation and Service Providers
Top Officer Pay77th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Anthony CastaldoPresidentPT$0--
Henrik Balle BoysenDirector-$0--
Pietro MantovanoDirector-$0--
Filing and Contact Details

Filer

Filer Name
HAE Global Registry Foundation
EIN
82-3878232
Address
10560 Main Street Ste PS40, Fairfax, VA 22030

Signing Officer

Name
Anthony Castaldo
Title
President
Phone
2022973409
Signed
2020-11-08
Discuss with paid preparer
Yes

Preparer

Firm
Allan Smith and Company CPAs PC
Address
Two Cabot Place Suite 8, Stoughton, MA 02072
Preparer
Allan Smith CPA
Phone
7742065553
Supplemental Narrative

Additional Explanations

General explanation attachment

“The Organization provides a secure, centralized database for Hereditary Angioedema built on input from a network of HAE expert physicians and patient reported outcomes.”

Description of other expenses Part I line 16

“Description AmountRegistry Secretariat Fees 40,889Global Registry Running Fee 46,396Travel, Registry Secretary 1,144Web Site Setup and Hosting 5,363Bank Fees 675Conferences and Meetings 1,263Interest Expense 11”

Other changes in net assets or fund balances Part I line 20

“Beginning net assets represent the contribution of residual resources from the predecessor organization.”

Raw XML Appendix140 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990EZ/BooksInCareOfDetail/USAddress/CityNm0Fairfax
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IRS990EZ/OperateHospitalInd0false
IRS990EZ/Organization501c3Ind0X
IRS990EZ/OrganizationDissolvedEtcInd0false
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IRS990EZ/OtherAssetsTotalDetail/BOYAmt00
IRS990EZ/OtherAssetsTotalDetail/EOYAmt00
IRS990EZ/OtherExpensesTotalAmt095741
IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt0NONE
IRS990EZ/PartVIOfCompOfHghstPdEmplTxt0NONE
IRS990EZ/PoliticalCampaignActyInd0false
IRS990EZ/PrimaryExemptPurposeTxt0Secure centralized patient database HAE
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt0Patient global registry for Hereditary Angioedema patients and physicians.
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt080000
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt095548
IRS990EZ/ProhibitedTaxShelterTransInd0false
IRS990EZ/RelatedOrganizationCtrlEntInd0false
IRS990EZ/SchoolOperatingInd0false
IRS990EZ/SubjectToProxyTaxInd0false
IRS990EZ/SumOfTotalLiabilitiesGrp/BOYAmt00
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IRS990EZ/TanningServicesProvidedInd0false
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IRS990EZ/TotalRevenueAmt080160
IRS990EZ/TransactionWithControlEntInd0false
IRS990EZ/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990EZ/TypeOfOrganizationCorpInd0X
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt080000
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt080000
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt0160000
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt0160
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IRS990ScheduleA/PrivateFoundation170Ind0X
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.02000
IRS990ScheduleA/PublicSupportTotal170Amt03203
IRS990ScheduleA/SubstantialContributorsTotAmt0156797
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt080000
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt080000
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt0160000
IRS990ScheduleA/TotalSupportAmt0160160
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
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IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0The Organization provides a secure, centralized database for Hereditary Angioedema built on input from a network of HAE expert physicians and patient reported outcomes.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Description AmountRegistry Secretariat Fees 40,889Global Registry Running Fee 46,396Travel, Registry Secretary 1,144Web Site Setup and Hosting 5,363Bank Fees 675Conferences and Meetings 1,263Interest Expense 11
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2Beginning net assets represent the contribution of residual resources from the predecessor organization.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0General explanation attachment
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Description of other expenses Part I line 16
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Other changes in net assets or fund balances Part I line 20
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ReturnHeader/Filer/USAddress/AddressLine1Txt010560 Main Street Ste PS40
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ReturnHeader/FilingSecurityInformation/IPTm010:04:45
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ReturnHeader/PreparerPersonGrp/PhoneNum07742065553
ReturnHeader/PreparerPersonGrp/PreparationDt02020-11-05
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ReturnHeader/ReturnTs02020-11-05T21:26:32-05:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02019-01-01
ReturnHeader/TaxPeriodEndDt02019-12-31
ReturnHeader/TaxYr02019

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2019 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$19,723
Liabilities
$0
Net assets
$19,723
Revenue
$80,160
Expenses
$96,234
Net income
-$16,074
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2021Detailed filing. Detailed filing data is available for this year.$0.00$0.00$0.00$0.00
2020Detailed filing. Detailed filing data is available for this year.$0.00$0.00$0.00$1.00$1.20$0.20
2019Detailed filing. Detailed filing data is available for this year.$0.20$0.00$0.20$0.80$0.96$0.16
2018Detailed filing. Detailed filing data is available for this year.$0.36$0.00$0.36$0.80$0.44$0.36