Liabilities / Assets
55th percentile
Tied with the lowest-debt nonprofits in its peer group.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
55th percentile
Tied with the lowest-debt nonprofits in its peer group.
Liabilities / Revenue
55th percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
53rd percentile
Higher net margin than 53% of similar nonprofits.
Top Officer Pay
76th percentile
Higher top officer pay than 76% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
53rd percentile
Faster asset growth than 53% of similar nonprofits.
Revenue Growth
44th percentile
Faster revenue growth than 44% of similar nonprofits.
Assets
Up$161,539
Up $8,701 (+5.7%) from 2019
Net Assets
Up$161,539
Up $8,701 (+5.7%) from 2019
Liabilities
Flat$0
Flat from 2019
Revenue
Down$118,936
Down $30,485 (-20%) from 2019
Expenses
Up$110,235
Up $76,991 (+232%) from 2019
Net Income
Down$8,701
Down $107,476 (-93%) from 2019
Our mission is to enrich the lives of individuals affected by SATB2-Associated Syndrome, including those diagnosed with the condition and their families, through support, research, and education.
| Description | Grants | Expenses |
|---|---|---|
| Research: Completed funding to develop Induced Pluripotent Stem Cells (iPSC's) and oversaw coordination of project in conjunction with the Medical and Scientific Advisory Board. Awarded 2nd year of annual Research Grant Program to further the science and knowledge of SATB2-associated syndrome. | $0 | $62,163 |
| Family Support: Provided travel grants to 10 families to enable them to attend the SATB2-associated syndrome multidisciplinary clinic at Arkansas Children's Hospital. Provided direct financial assistance to families facing hardship due to COVID-19 pandemic. | $0 | $29,535 |
| Education: Produced a total of 18 education webinars on topics ranging from AAC, Toilet Training, Estate Planning, Advocacy, and more. Continued to raise awareness of SATB2-associated syndrome year round through educational materials to caregivers and medical professionals. | $0 | $5,803 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Allison Kaczenski | President | FT | $0 | - | - |
| Aisling Caffrey | Vice President | PT | $0 | - | - |
| Adrienne Waddey | Treasurer | PT | $0 | - | - |
| Nicole Johnson | Director | PT | $0 | - | - |
| Casey Edwards | Director | PT | $0 | - | - |
| Bill Regan | Director | PT | $0 | - | - |
“Description: Office Expenses. Amount: 1,248. Description: Insurance. Amount: 1,214. Description: Conferences. Amount: 2,561. Description: Clinic/Travel Assistance. Amount: 6,064. Description: Regional Meet Ups. Amount: 1,421. Description: Awareness Day. Amount: 1,301. Description: Research. Amount: 62,163. Description: Bank and CC Fees. Amount: 650. Description: Taxes and Licenses. Amount: 107. Description: Website Domain & Hosting. Amount: 316. Description: Family Support. Amount: 19,489. Description: Training & Education. Amount: 799. Total to Form 990-EZ, line 16: 97,333.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990EZ/ActivitiesNotPreviouslyRptInd | 0 | 0 |
| IRS990EZ/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | Allison Kaczenski |
| IRS990EZ/BooksInCareOfDetail/PhoneNum | 0 | 6788329133 |
| IRS990EZ/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 3050 Five Forks Trickum Rd Ste D524 |
| IRS990EZ/BooksInCareOfDetail/USAddress/CityNm | 0 | Lilburn |
| IRS990EZ/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | GA |
| IRS990EZ/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 30047 |
| IRS990EZ/CashSavingsAndInvestmentsGrp/BOYAmt | 0 | 152838 |
| IRS990EZ/CashSavingsAndInvestmentsGrp/EOYAmt | 0 | 161539 |
| IRS990EZ/ChgMadeToOrgnzngDocNotRptInd | 0 | 0 |
| IRS990EZ/ContributionsGiftsGrantsEtcAmt | 0 | 116632 |
| IRS990EZ/DirectIndirectPltclExpendAmt | 0 | 0 |
| IRS990EZ/DonorAdvisedFndsInd | 0 | 0 |
| IRS990EZ/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990EZ/ExcessOrDeficitForYearAmt | 0 | 8701 |
| IRS990EZ/FeesAndOtherPymtToIndCntrctAmt | 0 | 12801 |
| IRS990EZ/FiledScheduleAInd | 0 | 1 |
| IRS990EZ/ForeignFinancialAccountInd | 0 | 0 |
| IRS990EZ/ForeignOfficeInd | 0 | 0 |
| IRS990EZ/Form990TotalAssetsGrp/BOYAmt | 0 | 152838 |
| IRS990EZ/Form990TotalAssetsGrp/EOYAmt | 0 | 161539 |
| IRS990EZ/GrossReceiptsAmt | 0 | 118936 |
| IRS990EZ/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990EZ/InfoInScheduleOPartIInd | 0 | X |
| IRS990EZ/InfoInScheduleOPartVInd | 0 | X |
| IRS990EZ/LobbyingActivitiesInd | 0 | 0 |
| IRS990EZ/MadeLoansToFromOfficersInd | 0 | 0 |
| IRS990EZ/MethodOfAccountingCashInd | 0 | X |
| IRS990EZ/NetAssetsOrFundBalancesBOYAmt | 0 | 152838 |
| IRS990EZ/NetAssetsOrFundBalancesEOYAmt | 0 | 161539 |
| IRS990EZ/NetAssetsOrFundBalancesGrp/BOYAmt | 0 | 152838 |
| IRS990EZ/NetAssetsOrFundBalancesGrp/EOYAmt | 0 | 161539 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt | 0 | 40.00 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt | 1 | 5.00 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt | 2 | 5.00 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt | 3 | 7.00 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt | 4 | 10.00 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt | 5 | 10.00 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt | 0 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt | 1 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt | 2 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt | 3 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt | 4 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt | 5 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt | 0 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt | 1 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt | 2 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt | 3 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt | 4 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt | 5 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt | 0 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt | 1 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt | 2 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt | 3 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt | 4 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt | 5 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 0 | Allison Kaczenski |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 1 | Aisling Caffrey |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 2 | Adrienne Waddey |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 3 | Nicole Johnson |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 4 | Casey Edwards |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 5 | Bill Regan |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 0 | President |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 1 | Vice President |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 2 | Treasurer |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 3 | Director |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 4 | Director |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 5 | Director |
| IRS990EZ/OperateHospitalInd | 0 | 0 |
| IRS990EZ/Organization501c3Ind | 0 | X |
| IRS990EZ/OrganizationDissolvedEtcInd | 0 | 0 |
| IRS990EZ/OrganizationHadUBIInd | 0 | 0 |
| IRS990EZ/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990EZ/OtherExpensesTotalAmt | 0 | 97333 |
| IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt | 0 | NONE |
| IRS990EZ/PartVIOfCompOfHghstPdEmplTxt | 0 | NONE |
| IRS990EZ/PoliticalCampaignActyInd | 0 | 0 |
| IRS990EZ/PrimaryExemptPurposeTxt | 0 | Our mission is to enrich the lives of individuals affected by SATB2-Associated Syndrome, including those diagnosed with the condition and their families, through support, research, and education. |
| IRS990EZ/PrintingPublicationsPostageAmt | 0 | 101 |
| IRS990EZ/ProgramServiceRevenueAmt | 0 | 2304 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 0 | Family Support: Provided travel grants to 10 families to enable them to attend the SATB2-associated syndrome multidisciplinary clinic at Arkansas Children's Hospital. Provided direct financial assistance to families facing hardship due to COVID-19 pandemic. |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 1 | Education: Produced a total of 18 education webinars on topics ranging from AAC, Toilet Training, Estate Planning, Advocacy, and more. Continued to raise awareness of SATB2-associated syndrome year round through educational materials to caregivers and medical professionals. |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 2 | Research: Completed funding to develop Induced Pluripotent Stem Cells (iPSC's) and oversaw coordination of project in conjunction with the Medical and Scientific Advisory Board. Awarded 2nd year of annual Research Grant Program to further the science and knowledge of SATB2-associated syndrome. |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt | 0 | 0 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt | 1 | 0 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt | 2 | 0 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt | 0 | 29535 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt | 1 | 5803 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt | 2 | 62163 |
| IRS990EZ/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990EZ/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990EZ/SchoolOperatingInd | 0 | 0 |
| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 0 | GA |
| IRS990EZ/SubjectToProxyTaxInd | 0 | 0 |
| IRS990EZ/SumOfTotalLiabilitiesGrp/BOYAmt | 0 | 0 |
| IRS990EZ/SumOfTotalLiabilitiesGrp/EOYAmt | 0 | 0 |
| IRS990EZ/TanningServicesProvidedInd | 0 | 0 |
| IRS990EZ/TaxImposedOnOrganizationMgrAmt | 0 | 0 |
| IRS990EZ/TaxImposedUnderIRC4911Amt | 0 | 0 |
| IRS990EZ/TaxImposedUnderIRC4912Amt | 0 | 0 |
| IRS990EZ/TaxImposedUnderIRC4955Amt | 0 | 0 |
| IRS990EZ/TaxReimbursedByOrganizationAmt | 0 | 0 |
| IRS990EZ/TotalExpensesAmt | 0 | 110235 |
| IRS990EZ/TotalProgramServiceExpensesAmt | 0 | 97501 |
| IRS990EZ/TotalRevenueAmt | 0 | 118936 |
| IRS990EZ/TransactionWithControlEntInd | 0 | 0 |
| IRS990EZ/TrnsfrExmptNonChrtblRltdOrgInd | 0 | 0 |
| IRS990EZ/TypeOfOrganizationCorpInd | 0 | X |
| IRS990EZ/WebsiteAddressTxt | 0 | N/A |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearAmt | 0 | 46904 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus1YearAmt | 0 | 47481 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus2YearsAmt | 0 | 647 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 95032 |
| IRS990ScheduleA/First5Years509Ind | 0 | X |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 116632 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 149421 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 40318 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 5573 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 311944 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 216912 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearAmt | 0 | 46904 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus1YearAmt | 0 | 47481 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus2YearsAmt | 0 | 647 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt | 0 | 95032 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 116632 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 149421 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 40318 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 5573 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 311944 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 116632 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 149421 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 40318 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 5573 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 311944 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | Description: Office Expenses. Amount: 1,248. Description: Insurance. Amount: 1,214. Description: Conferences. Amount: 2,561. Description: Clinic/Travel Assistance. Amount: 6,064. Description: Regional Meet Ups. Amount: 1,421. Description: Awareness Day. Amount: 1,301. Description: Research. Amount: 62,163. Description: Bank and CC Fees. Amount: 650. Description: Taxes and Licenses. Amount: 107. Description: Website Domain & Hosting. Amount: 316. Description: Family Support. Amount: 19,489. Description: Training & Education. Amount: 799. Total to Form 990-EZ, line 16: 97,333. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Form 990-EZ, Part I, Line 16 - Other Expenses |
| TransferPrsnlBnftContractsDecl/DeclarationDesc | 0 | The organization did not, during the year, receive any funds, directly,or indirectly, to pay premiums on a personal benefit contract.The organization, did not, during the year, pay any premiums, directly,or indirectly, on a personal benefit contract. |
| ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/AuthenticationAssuranceLevelCd | 0 | AAL1 |
| ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/IdentityAssuranceLevelCd | 0 | IAL1 |
| ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/TrustedCustomerCd | 0 | 2 |
| ReturnHeader/BuildTS | 0 | 2022-09-23 18:48:47Z |
| ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd | 0 | 1 |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | Allison Kaczenski |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | President |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 6788329133 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2021-05-08 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | SATB2 Gene Foundation Inc |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | SATB |
| ReturnHeader/Filer/EIN | 0 | 823474637 |
| ReturnHeader/Filer/PhoneNum | 0 | 6788329133 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | 3050 Five Forks Trickum Rd No D52 |
| ReturnHeader/Filer/USAddress/CityNm | 0 | Lilburn |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | GA |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 30047 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmEIN | 0 | 581763570 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt | 0 | JONES AND KOLB |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt | 0 | 3475 PIEDMONT ROAD NE SUITE 1500 |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm | 0 | ATLANTA |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd | 0 | GA |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd | 0 | 30305 |
| ReturnHeader/PreparerPersonGrp/PhoneNum | 0 | 4042627920 |
| ReturnHeader/PreparerPersonGrp/PreparerPersonNm | 0 | ANN M THOMPSON |
| ReturnHeader/ReturnTs | 0 | 2021-05-11T16:23:59-05:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990EZ |
| ReturnHeader/SigningOfficerGrp/PersonFullName/PersonFirstNm | 0 | Allison |
| ReturnHeader/SigningOfficerGrp/PersonFullName/PersonLastNm | 0 | Kaczenski |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2020-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2020-12-31 |
| ReturnHeader/TaxYr | 0 | 2020 |
No mirrored PDF or thumbnail assets are attached yet.
Displayed year
2020 • Form 990EZDetailed filing. Detailed filing data is available for this year.