Civic Intelligence

Krabbeconnect

EIN 82-2964680 • 501(c)3 • Rosemount, MN

Profile

Krabbeconnect will be the source of comprehensive information and access to resources for families with krabbe disease.

PO Box 264Rosemount, MN 55068

www.krabbeconnect.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

47th percentile

0.01x

Higher debt load relative to assets than 47% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Liabilities / Revenue

51st percentile

0.02x

Higher debt load relative to revenue than 51% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Net Margin

86th percentile

40%

Higher net margin than 86% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

84th percentile

35%

Faster asset growth than 84% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2022 to 2024

Revenue Growth

72nd percentile

25%

Faster revenue growth than 72% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2022 to 2024

Balance Sheet
Liabilities / Assets47th percentile

Assets

Up

$507,394

Up $128,924 (+34%) from 2023

Liabilities

Up

$5,782

Up $4,335 (+300%) from 2023

Net Assets

Up

$501,612

Up $124,589 (+33%) from 2023

Operations
Liabilities / Revenue51st percentileNet Margin86th percentile

Revenue

Up

$314,070

Up $19,006 (+6.4%) from 2023

Expenses

Down

$189,329

Down $2,895 (-1.5%) from 2023

Net Income

Up

$124,741

Up $21,901 (+21%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth84th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$600K$400K$200K$0Assets 2019: $78,158Liabilities 2019: $3,361Net Assets 2019: $74,7972019Assets 2020: $102,299Liabilities 2020: $1,407Net Assets 2020: $100,8922020Assets 2021: $182,188Liabilities 2021: $2,667Net Assets 2021: $179,5212021Assets 2022: $280,117Liabilities 2022: $5,934Net Assets 2022: $274,1832022Assets 2023: $378,470Liabilities 2023: $1,447Net Assets 2023: $377,0232023Assets 2024: $507,394Liabilities 2024: $5,782Net Assets 2024: $501,6122024

Highlighted filing

2024

Assets$507,394
Liabilities$5,782
Net Assets$501,612
Open 2024 Filing

Operations Trend

Revenue Growth72nd percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$400K$300K$200K$100K$0Revenue 2019: $134,092Expenses 2019: $73,281Net Income 2019: $60,8112019Revenue 2020: $100,987Expenses 2020: $74,892Net Income 2020: $26,0952020Revenue 2021: $149,464Expenses 2021: $70,835Net Income 2021: $78,6292021Revenue 2022: $201,297Expenses 2022: $106,635Net Income 2022: $94,6622022Revenue 2023: $295,064Expenses 2023: $192,224Net Income 2023: $102,8402023Revenue 2024: $314,070Expenses 2024: $189,329Net Income 2024: $124,7412024

Highlighted filing

2024

Revenue$314,070
Expenses$189,329
Net Income$124,741
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$507,394
Liabilities
$5,782
Net assets
$501,612
Revenue
$314,070
Expenses
$189,329
Net income
$124,741
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.07$0.06$5.02$3.14$1.89$1.25
2023Detailed filing. Detailed filing data is available for this year.$3.78$0.01$3.77$2.95$1.92$1.03
2022Detailed filing. Detailed filing data is available for this year.$2.80$0.06$2.74$2.01$1.07$0.95
2021Detailed filing. Detailed filing data is available for this year.$1.82$0.03$1.80$1.49$0.71$0.79
2020Detailed filing. Detailed filing data is available for this year.$1.02$0.01$1.01$1.01$0.75$0.26
2019Summary only. Only limited summary data is available for this year.$0.78$0.03$0.75$1.34$0.73$0.61
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Oct 23, 2025
Return Version
2024v5.0
Gross Receipts
$349,388
Mission and Program Overview

Mission

Krabbeconnect will be the source of comprehensive information and access to resources for families with krabbe disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$378,470$507,394▲ $128,924
Total Assets$378,470$507,394▲ $128,924
Liabilities
Accounts Payable and Accrued Expenses$1,447$5,782▲ $4,335
Total Liabilities$1,447$5,782▲ $4,335
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$150,641$332,392▲ $181,751
Net Assets With Donor Restrictions$226,382$169,220▼ $57,162
Total Net Assets Fund Balance$377,023$501,612▲ $124,589
Total Liabilities and Net Assets / Fund Balance$378,470$507,394▲ $128,924
Compensation and Service Providers
Top Officer PayScore unavailable

Board Members and Trustees

NameTitle
Stacy Pike-langenfeldPresident
Amy WhiteDirector
David CooperDirector
Hina MalikDirector
Lesa BrackbillDirector
Tammy WilsonDirector
Megan RenzeLegal Adviso
Wendy ZielenSecretary
Carlyle KirboTreasurer
Donna SchroederVice Preside
Revenue and Support

Revenue Composition

Contributions and Grants
$145,026
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$169,044
All Other Contributions
$145,026
Change in Net Assets
$124,741
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$189,329
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Information Technology-$25,873-$25,873
Conferences and Meetings$25,505$258-$25,763
Office Expenses-$2,226-$2,226
Fees for Services Management-$1,550-$1,550
Advertising-$987-$987
Travel-$545-$545
Interest-$293-$293
Fees for Services Accounting-$275-$275
Other Expenses$17,211$200-$200
Total Functional Expenses$157,122$32,207$0$189,329
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$204,362
Fundraising Direct Expenses$35,318
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Fundraising$204,362$204,362$35,318$169,044
Total Events$204,362$204,362$35,318$169,044
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“Form 990 tax return is prepared by the organization's professional tax accountant, and reviewed by a designated board member. Upon approval by the designated board member, the return is filed. The as-filed form 990 is presented to the board and discussed at the first board meeting after filing.”

Form 990, Page 6, Part VI, Line 12C

“Krabbeconnect governence documents, which includes a conflict of interest policy, are reviewed at an annual board meeting and retreat. Each member is required to sign an agreement that they will disclose any perceived, real, or potential conflicts that occur during the year to the board.”

Form 990, Page 6, Part VI, Line 19

“Krabbeconnect's governing documents are made available to the general public and may be obtained by wrtitten request.”

Filing and Contact Details

Filer

Filer Name
Krabbeconnect
EIN
82-2964680
Phone
6123873424
Address
PO BOX 264, ROSEMOUNT, MN 55068

Signing Officer

Name
Stacy Pike-langenfeld
Title
President
Phone
6123873424
Signed
2025-10-23
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Stacy Pike-langenfeld
Formed
2017
Legal Domicile
Mn
Voting Board Members
10
Independent Board Members
10
Employees
0

Preparer

Firm
Bennett & Company Pc
Address
3459 WASHINGTON DR STE 204, EAGAN, MN 55122
Preparer
Allan G Quist CPA
Phone
6516888604
Supplemental Narrative

Additional Explanations

Form 990, Page 2, Part III, Line 4D

“OTHER PROGRAM SERVICES”

Form 990, Part XI, Line 9

“MISC ADJUSTMENT -152”

Raw XML Appendix364 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0false
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt01447
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt05782
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0KRABBECONNECT WILL BE THE SOURCE OF COMPREHENSIVE INFORMATION AND ACCESS TO RESOURCES FOR FAMILIES WITH KRABBE DISEASE.
IRS990/AdvertisingGrp/ManagementAndGeneralAmt0987
IRS990/AdvertisingGrp/TotalAmt0987
IRS990/AllOtherContributionsAmt0145026
IRS990/AnnualDisclosureCoveredPrsnInd0true
IRS990/BooksInCareOfDetail/PersonNm0STACY PIKE-LANGENFELD
IRS990/BooksInCareOfDetail/PhoneNum06123873424
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt0PO BOX 264
IRS990/BooksInCareOfDetail/USAddress/CityNm0ROSEMOUNT
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0MN
IRS990/BooksInCareOfDetail/USAddress/ZIPCd055068
IRS990/BusinessRlnWith35CtrlEntInd0false
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOrgMemInd0false
IRS990/CashNonInterestBearingGrp/BOYAmt0378470
IRS990/CashNonInterestBearingGrp/EOYAmt0507394
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CollectionsOfArtInd0false
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0false
IRS990/CompensationProcessOtherInd0false
IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt0258
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt025505
IRS990/ConferencesMeetingsGrp/TotalAmt025763
IRS990/ConflictOfInterestPolicyInd0true
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0145026
IRS990/CYGrantsAndSimilarPaidAmt00
IRS990/CYInvestmentIncomeAmt00
IRS990/CYOtherExpensesAmt0189329
IRS990/CYOtherRevenueAmt0169044
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0124741
IRS990/CYSalariesCompEmpBnftPaidAmt00
IRS990/CYTotalExpensesAmt0189329
IRS990/CYTotalFundraisingExpenseAmt00
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0314070
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0false
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/Desc0PATIENT ENGAGEMENT: PROVIDING INFORMATION AND RESOURCES FOR KRABBE DESEASE THROUGH KRABBECONNECT WEBSITE, FACEBOOK, AND SOCAL MEDIA CHANNELS. ENGAGEMENT WITH FAMILIES AFFECTED BY THE DIESASE BY OFFERING SUPPORT AND CONNECTIONS FOR MANAGING CARE OF THE PATIENTS. RESOURCES INCLUDE CONTACT INFORMATION FOR CLINICAL EXPERTS, EXPERTS IN RESEARCH, CURRENT RESEARCH LITERATURE VIA THE RESOURCE LIBRARY, AND OPPORTUNITIES FOR CLINICAL TRIALS IN THE DISEASE SPACE. KRABBECONNECT ALSO INTERACTS WITH THE COMMUNITY THROUGH OUR INTERNATIONAL LIAISON, OUTREACH DIRECTOR AND PATIENT ENGAGEMENT MANAGER.
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DocumentRetentionPolicyInd0false
IRS990/DonorAdvisedFundInd0false
IRS990/DonorRestrictionNetAssetsGrp/BOYAmt0226382
IRS990/DonorRestrictionNetAssetsGrp/EOYAmt0169220
IRS990/DonorRstrOrQuasiEndowmentsInd0false
IRS990/ElectionOfBoardMembersInd0false
IRS990/EmployeeCnt00
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/ExpenseAmt017211
IRS990/FamilyOrBusinessRlnInd0false
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt0275
IRS990/FeesForServicesAccountingGrp/TotalAmt0275
IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt01550
IRS990/FeesForServicesManagementGrp/TotalAmt01550
IRS990/ForeignActivitiesInd0false
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignOfficeInd0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt014.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt13.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt29.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt32.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt42.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt53.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt62.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt72.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt82.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt92.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/PersonNm0STACY PIKE-LANGENFELD
IRS990/Form990PartVIISectionAGrp/PersonNm1DONNA SCHROEDER
IRS990/Form990PartVIISectionAGrp/PersonNm2CARLYLE KIRBO
IRS990/Form990PartVIISectionAGrp/PersonNm3WENDY ZIELEN
IRS990/Form990PartVIISectionAGrp/PersonNm4MEGAN RENZE
IRS990/Form990PartVIISectionAGrp/PersonNm5DAVID COOPER
IRS990/Form990PartVIISectionAGrp/PersonNm6TAMMY WILSON
IRS990/Form990PartVIISectionAGrp/PersonNm7HINA MALIK
IRS990/Form990PartVIISectionAGrp/PersonNm8AMY WHITE
IRS990/Form990PartVIISectionAGrp/PersonNm9LESA BRACKBILL
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE PRESIDE
IRS990/Form990PartVIISectionAGrp/TitleTxt2TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt3SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt4LEGAL ADVISO
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd0true
IRS990/FormationYr02017
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedInd0false
IRS990/FundraisingActivitiesInd0true
IRS990/FundraisingDirectExpensesAmt035318
IRS990/FundraisingGrossIncomeAmt0204362
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt010
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0false
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt0349388
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
IRS990/IndependentAuditFinclStmtInd0false
IRS990/IndependentVotingMemberCnt010
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIInd0X
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt025873
IRS990/InformationTechnologyGrp/TotalAmt025873
IRS990/InterestGrp/ManagementAndGeneralAmt0293
IRS990/InterestGrp/TotalAmt0293
IRS990/InvestmentInJointVentureInd0false
IRS990/IRPDocumentCnt00
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0MN
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingCashInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0KRABBECONNECT WILL BE THE SOURCE OF COMPREHENSIVE INFORMATION AND ACCESS TO RESOURCES FOR FAMILIES WITH KRABBE DISEASE.
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0false
IRS990/NetAssetsOrFundBalancesBOYAmt0377023
IRS990/NetAssetsOrFundBalancesEOYAmt0501612
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0169044
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0169044
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0150641
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0332392
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NondeductibleContributionsInd0false
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt02226
IRS990/OfficeExpensesGrp/TotalAmt02226
IRS990/OfficerMailingAddressInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt0-152
IRS990/OtherExpensesGrp/Desc0RESEARCH
IRS990/OtherExpensesGrp/Desc1PATIENT ENGAGEMENT
IRS990/OtherExpensesGrp/Desc2DUES
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0200
IRS990/OtherExpensesGrp/ProgramServicesAmt0114406
IRS990/OtherExpensesGrp/ProgramServicesAmt117211
IRS990/OtherExpensesGrp/TotalAmt0114406
IRS990/OtherExpensesGrp/TotalAmt117211
IRS990/OtherExpensesGrp/TotalAmt2200
IRS990/PartialLiquidationInd0false
IRS990/PoliticalCampaignActyInd0false
IRS990/PrincipalOfficerNm0STACY PIKE-LANGENFELD
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgSrvcAccomActy2Grp/Desc0PATIENT ADVOCACY AND ADVANCEMENT: BOARD MEMBERS ROUTINELY ATTEND CONFERENCES AND MEETINGS THAT INVOLVE THE RATE DISEASE COMMUNITY TO SUPPORT THE NEEDS OF THE KRABBE PATIENTS AND THEIR FAMILIES. KRABBECONNECT ALSO PARTICIPATES IN NETWORKING OPPORTUNITIES WITH OTHER ADVOCACY FOUNDATIONS JOINING TOGETHER TO HAVE A VOICE FOR THE PATIENTS. KRABBECONNECT MAINTAINS MEMBERSHIP WITH SERVERAL LARGE ORGANIZATIONS, I.E. NORD, GLOBAL GENES, ULF, WORLD LYSOSOMAL STORAGE DISEASE TO ENHANCE THE ADVOCACY AND EDUCATION OF KRABBE DISEASE.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt01332
IRS990/ProgSrvcAccomActy3Grp/Desc0RESEARCH AND DEVELOPMENT: KRABBECONNECT PRODUCED A POSTER TO DISCUSS THE PATIENT BURDEN OF KRABBE DISEASE. RESEARCH CONDUCTED TO COLLECT DATA FROM PATIENTS TO CAPTURE THE UNMET NEEDS IN THE KRABBE COMMUNITY. THE RESEARCH WILL SERVE AS A TOOL TO CLINICIANS, SCIENTISTS, RESEARCHERS, AND INDUSTRY TO HELP WITH THE ADVANCEMENT OF NEW NOVEL TREATMENTS IN THE KRABBE DISEASE SPACE. KRABBECONNECT IS WORKING TO CREATE A PATIENT REGISTRY AND PATIENT FOCUSED DRUG DEVELOPMENT MEETING WITH THE FDA TO SUPPORT RESEARCH AND ADVANCEMENTS IN TREATING KRABBE DISEASE.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0114406
IRS990/ProgSrvcAccomActyOtherGrp/Desc0OTHER PROGRAM SERVICES
IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt024173
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0137026
IRS990/PYExcessBenefitTransInd0false
IRS990/PYOtherExpensesAmt0192224
IRS990/PYOtherRevenueAmt0158038
IRS990/PYRevenuesLessExpensesAmt0102840
IRS990/PYTotalExpensesAmt0192224
IRS990/PYTotalRevenueAmt0295064
IRS990/ReconcilationRevenueExpnssAmt0124741
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0145026
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0358029
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0285202
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0202896
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0122050
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt01113203
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/CurrentTaxYearAmt0204362
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt0204362
IRS990ScheduleA/InvestmentIncomeCYPct00.00000
IRS990ScheduleA/InvestmentIncomePYPct00.00000
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct01.00000
IRS990ScheduleA/PublicSupportPY509Pct01.00000
IRS990ScheduleA/PublicSupportTotal509Amt01317565
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0349388
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0358029
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0285202
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0202896
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0122050
IRS990ScheduleA/Total509Grp/TotalAmt01317565
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0349388
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0358029
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0285202
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0202896
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt0122050
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt01317565
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt035318
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0FUNDRAISING
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0204362
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0204362
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt0204362
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt0204362
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt0169044
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt035318
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt035318
IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt03
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0OTHER PROGRAM SERVICES
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1FORM 990 TAX RETURN IS PREPARED BY THE ORGANIZATION'S PROFESSIONAL TAX ACCOUNTANT, AND REVIEWED BY A DESIGNATED BOARD MEMBER. UPON APPROVAL BY THE DESIGNATED BOARD MEMBER, THE RETURN IS FILED. THE AS-FILED FORM 990 IS PRESENTED TO THE BOARD AND DISCUSSED AT THE FIRST BOARD MEETING AFTER FILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2KRABBECONNECT GOVERNENCE DOCUMENTS, WHICH INCLUDES A CONFLICT OF INTEREST POLICY, ARE REVIEWED AT AN ANNUAL BOARD MEETING AND RETREAT. EACH MEMBER IS REQUIRED TO SIGN AN AGREEMENT THAT THEY WILL DISCLOSE ANY PERCEIVED, REAL, OR POTENTIAL CONFLICTS THAT OCCUR DURING THE YEAR TO THE BOARD.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3KRABBECONNECT'S GOVERNING DOCUMENTS ARE MADE AVAILABLE TO THE GENERAL PUBLIC AND MAY BE OBTAINED BY WRTITTEN REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4MISC ADJUSTMENT -152
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PAGE 2, PART III, LINE 4D
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PAGE 6, PART VI, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PART XI, LINE 9
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/SubjectToExcsTaxNetInvstIncInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt0378470
IRS990/TotalAssetsEOYAmt0507394
IRS990/TotalAssetsGrp/BOYAmt0378470
IRS990/TotalAssetsGrp/EOYAmt0507394
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt0145026
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt032207
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0157122
IRS990/TotalFunctionalExpensesGrp/TotalAmt0189329
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt01447
IRS990/TotalLiabilitiesEOYAmt05782
IRS990/TotalLiabilitiesGrp/BOYAmt01447
IRS990/TotalLiabilitiesGrp/EOYAmt05782
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0377023
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0501612
IRS990/TotalOtherProgSrvcExpenseAmt024173
IRS990/TotalProgramServiceExpensesAmt0157122
IRS990/TotalRevenueGrp/ExclusionAmt0169044
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0314070
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0378470
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0507394
IRS990/TravelGrp/ManagementAndGeneralAmt0545
IRS990/TravelGrp/TotalAmt0545
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt0PO BOX 264
IRS990/USAddress/CityNm0ROSEMOUNT
IRS990/USAddress/StateAbbreviationCd0MN
IRS990/USAddress/ZIPCd055068
IRS990/VotingMembersGoverningBodyCnt010
IRS990/VotingMembersIndependentCnt010
IRS990/WebsiteAddressTxt0WWW.KRABBECONNECT.ORG
IRS990/WhistleblowerPolicyInd0true
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0STACY PIKE-LANGENFELD
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0PRESIDENT
ReturnHeader/BusinessOfficerGrp/PhoneNum06123873424
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-10-23
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0KRABBECONNECT
ReturnHeader/Filer/BusinessNameControlTxt0KRAB
ReturnHeader/Filer/EIN0822964680
ReturnHeader/Filer/PhoneNum06123873424
ReturnHeader/Filer/USAddress/AddressLine1Txt0PO BOX 264
ReturnHeader/Filer/USAddress/CityNm0ROSEMOUNT
ReturnHeader/Filer/USAddress/StateAbbreviationCd0MN
ReturnHeader/Filer/USAddress/ZIPCd055068
ReturnHeader/IRSResponsiblePrtyInfoCurrInd0false
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0873209470
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0BENNETT & COMPANY PC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt03459 WASHINGTON DR STE 204
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0EAGAN
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0MN
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd055122
ReturnHeader/PreparerPersonGrp/PhoneNum06516888604
ReturnHeader/PreparerPersonGrp/PreparationDt02025-10-23
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0ALLAN G QUIST CPA
ReturnHeader/ReturnTs02025-10-23T11:25:27-04:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02024-01-01
ReturnHeader/TaxPeriodEndDt02024-12-31
ReturnHeader/TaxYr02024

Document Assets

No mirrored PDF or thumbnail assets are attached yet.