Liabilities / Assets
19th percentile
Tied with the lowest-debt nonprofits in its peer group.
EIN 82-2661656 • 501(c)3 • Chapel Hill, NC
Profile
To fund pioneering research and compassionately support the batten community. The organization works tirelessly to give children with batten disease the best possible life, to spread awareness of the urgency to fund new treatments, and to help all families affected by batten disease.
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
19th percentile
Tied with the lowest-debt nonprofits in its peer group.
Liabilities / Revenue
20th percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
2nd percentile
Higher net margin than 2% of similar nonprofits.
Top Officer Pay
40th percentile
Higher top officer pay than 40% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
2nd percentile
Faster asset growth than 2% of similar nonprofits.
Revenue Growth
10th percentile
Faster revenue growth than 10% of similar nonprofits.
Assets
Down$383,105
Down $1,614,165 (-81%) from 2023
Liabilities
Flat$0
Flat from 2023
Net Assets
Down$383,105
Down $1,614,165 (-81%) from 2023
Revenue
Down$1,072,285
Down $478,003 (-31%) from 2023
Expenses
Up$2,686,450
Up $960,466 (+56%) from 2023
Net Income
Down-$1,614,165
Down $1,438,469 (-819%) from 2023
Most recent year
2024 • Form 990Detailed filing. Detailed filing data is available for this year.
To fund pioneering research and compassionately support the batten community. The organization works tirelessly to give children with batten disease the best possible life, to spread awareness of the urgency to fund new treatments, and to help all families affected by batten disease.
This organization is organized exclusively for educational and charitable purposes, including to educate the public about and to obtain funding for research to cure rare diseases, including specifically juvenile batten disease.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Rtn Earn Endowment Incm Other Fnds | $1,997,270 | $383,105 | ▼ $1,614,165 |
| Savings and Temporary Cash Investments | $1,332,785 | $208,349 | ▼ $1,124,436 |
| Cash and Non-Interest-Bearing Accounts | $664,485 | $174,756 | ▼ $489,729 |
| Pd in Cap Srpls Land Bldg Eqp Fund | $0 | $0 | → $0 |
| Cap Stk Tr Prin Current Funds | $0 | $0 | → $0 |
| Total Assets | $1,997,270 | $383,105 | ▼ $1,614,165 |
| Liabilities | |||
| Total Liabilities | $0 | $0 | → $0 |
| Net Assets / Fund Balance | |||
| Total Net Assets Fund Balance | $1,997,270 | $383,105 | ▼ $1,614,165 |
| Total Liabilities and Net Assets / Fund Balance | $1,997,270 | $383,105 | ▼ $1,614,165 |
| Name | Title |
|---|---|
| Karen Kahn | President/CEO |
| David Kahn | Director |
| Jennifer Mcginn | Director |
| Kathryn Niederer | Director |
| Marlena Kahn | Secretary |
| Contribution Type | Contribution Count | Reported Amount | Valuation Method |
|---|---|---|---|
| Securities Publicly Traded | 300 | $48,990 | Fair Market Value |
| Other Non Cash Contri Table | 1 | $2,000 | Retail Price |
| Total Noncash Contributions | 301 | $50,990 | - |
| Line Item | Amount |
|---|---|
| Other Expenses | $2,330,680 |
| Grants and Similar Amounts Paid | $284,579 |
| Salaries, Compensation, and Employee Benefits | $71,191 |
| Total Fundraising Expense | $18,224 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Fees for Services Other | $1,997,562 | $426 | $426 | $1,998,414 |
| Fees for Services Legal | $289,567 | $9,093 | - | $298,660 |
| Grants to Domestic Orgs | $244,579 | - | - | $244,579 |
| Other Salaries and Wages | $33,000 | $16,500 | $16,500 | $66,000 |
| Foreign Grants | $40,000 | - | - | $40,000 |
| Insurance | $19,038 | - | - | $19,038 |
| Office Expenses | - | $5,495 | - | $5,495 |
| Payroll Taxes | $2,595 | $1,298 | $1,298 | $5,191 |
| Travel | $4,174 | - | - | $4,174 |
| Fees for Services Accounting | $1,919 | $1,919 | - | $3,838 |
| Other Expenses | - | $1,061 | - | $1,061 |
| Total Functional Expenses | $2,632,434 | $35,792 | $18,224 | $2,686,450 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Sanford Research | Sioux Falls, SD | 501(c)(3) | To Support and Promote the Pursuit of the Highest Caliber, Publishable Research (1) Relating to the Development/delivery of Quality Medical and Health Care Services, (2) Advancing Medical or Scientific Knowledge and Skills, And/or (3) Benefiting the Education of Health Science Students, Residents, Health Professionals and the General Public | $225,666 |
| Bdsra | Columbus, OH | 501(c)(3) | To Fund Research for a Cure for and to Promote Awareness of Batten Disease. | $8,913 |
| Region | Activity | Services | Offices | Employees | Spending |
|---|---|---|---|---|---|
| North America - Canada and Mexico, But Not the United States | Grantmaking | - | - | - | $40,000 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $54,884 |
| Fundraising Gross Income | $10,650 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Golf Fundraiser | $1,116,571 | $10,650 | $20,206 | $-9,556 |
| Total Events | $1,116,571 | $10,650 | $54,884 | $-44,234 |
“David kahn, director karen kahn, president family marlena kahn, secretary david kahn, director jennifer mcginn, director family kathryn niederer, director karen kahn, president family”
“The organization has one class of members who have the right to elect the board of directors of the organization. The members have no right to receive any share of the organization's profits or net assets upon the organization's dissolution.”
“The organization has one class of members who have the right to elect the board of directors of the organizaion.”
“The organization has no committees with authority to act on behalf of the board.”
“The organization's return preparer (an outside accounting firm) emails form 990 to the organization's foundation director, who reviews and emails the form 990 to each director and officer of the organization for review before filing.”
“The organization periodically reviews (a) whether compensation arrangements and benefits (if any) are reasonable, based on competent survey information, and are the result of arm's length bargaining; and (b) whether partnerships, joint ventures, and arrangements with management organizations (if any) conform to the organization's written policies, are properly recorded, reflect reasonable investment or payments for goods and services, further charitable purposes and do not result in inurement, impermissible private benefit or in an excess benefit transaction. No such arrangements exist as of the filing of this form 990. Additionally, each director and officer of the organization is required to annually sign a statement which affirm that such person (a) has received a copy of the conflicts of interest policy; (b) has read and understands the policy; (c) has agreed to comply with the policy; and (d) understands the organization is charitable and in order to maintain its federal tax exemption it must engage primarily in activities which accomplish one or more of its tax-exempt purposes.”
“The organization periodically reviews whether any compensation arrangements and benefits are reasonable, based on competent survey information, and are the result of arm's length bargaining.”
“The organization makes its governing documents, conflict of interest policy and financial statements available to the public upon request.”
“Payroll processing: program service expenses 852. Management and general expenses 426. Fundraising expenses 426. Total expenses 1,704. Medical research: program service expenses 1,996,710. Management and general expenses 0. Fundraising expenses 0. Total expenses 1,996,710.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | THIS ORGANIZATION IS ORGANIZED EXCLUSIVELY FOR EDUCATIONAL AND CHARITABLE PURPOSES, INCLUDING TO EDUCATE THE PUBLIC ABOUT AND TO OBTAIN FUNDING FOR RESEARCH TO CURE RARE DISEASES, INCLUDING SPECIFICALLY JUVENILE BATTEN DISEASE. |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | KAREN KAHN |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 4407086008 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 11312 US 15-501 NORTH 107-117 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | CHAPEL HILL |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | NC |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 27517 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CapStkTrPrinCurrentFundsGrp/BOYAmt | 0 | 0 |
| IRS990/CapStkTrPrinCurrentFundsGrp/EOYAmt | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 664485 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 174756 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 0 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 1105921 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1105921 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 284579 |
| IRS990/CYInvestmentIncomeAmt | 0 | 10598 |
| IRS990/CYOtherExpensesAmt | 0 | 2330680 |
| IRS990/CYOtherRevenueAmt | 0 | -44234 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -1614165 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 71191 |
| IRS990/CYTotalExpensesAmt | 0 | 2686450 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 18224 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 1072285 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 1 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/Desc | 0 | THIS ORGANIZATION MADE GRANTS TO SEVERAL TAX-EXEMPT 501(C)(3) ORGANIZATIONS THAT ADVANCE THE OBJECTIVES OF THIS ORGANIZATION TO PROMOTE AWARENESS OF BATTEN DISEASE AS WELL AS TO PROMOTE OPPORTUNITIES FOR SCIENTISTS TO COME TOGETHER TO CREATE AND FUND INNOVATIVE RESEARCH PROPOSALS TO WORK TOWARD A CURE FOR BATTEN DISEASE. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 0 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 1 |
| IRS990/EmployeeCnt | 0 | 1 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 346157 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 1 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 1919 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 1919 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 3838 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 9093 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 289567 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 298660 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 426 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 426 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 1997562 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 1998414 |
| IRS990/ForeignActivitiesInd | 0 | 1 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 40000 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 40000 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | DAVID KAHN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | KAREN KAHN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | KATHRYN NIEDERER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | JENNIFER MCGINN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | MARLENA KAHN |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | PRESIDENT/CEO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | SECRETARY |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2017 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedInd | 0 | 0 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 1105921 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 54884 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 10650 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 0 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 4 |
| IRS990/GrantAmt | 0 | 284579 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 244579 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 244579 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 48990 |
| IRS990/GrossReceiptsAmt | 0 | 1176159 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 0 |
| IRS990/IndependentVotingMemberCnt | 0 | 4 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 19038 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 19038 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 10598 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 10598 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 7 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | AZ |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 48990 |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 1 |
| IRS990/MethodOfAccountingCashInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 0 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | TO FUND PIONEERING RESEARCH AND COMPASSIONATELY SUPPORT THE BATTEN COMMUNITY. THE ORGANIZATION WORKS TIRELESSLY TO GIVE CHILDREN WITH BATTEN DISEASE THE BEST POSSIBLE LIFE, TO SPREAD AWARENESS OF THE URGENCY TO FUND NEW TREATMENTS, AND TO HELP ALL FAMILIES AFFECTED BY BATTEN DISEASE. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 1 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1997270 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 383105 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | -44234 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -44234 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NoncashContributionsAmt | 0 | 50990 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 5495 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 5495 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrgDoesNotFollowFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | BANK FEE |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 1061 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 1061 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 16500 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 16500 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 33000 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 66000 |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 1298 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 1298 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 2595 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 5191 |
| IRS990/PdInCapSrplsLandBldgEqpFundGrp/BOYAmt | 0 | 0 |
| IRS990/PdInCapSrplsLandBldgEqpFundGrp/EOYAmt | 0 | 0 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrincipalOfficerNm | 0 | KAREN KAHN |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | THE FOREBATTEN FOUNDATION RECEIVED IND CLEARANCE FROM THE FOOD AND DRUG ADMINISTRATION TO PROCEED WITH THE CLINICAL INVESTIGATION FOR FBF-010 (ZEBRONKYSEN) PAVING THE WAY TO TREAT PATIENTS WITH THE UNIQUE CLN3 C.569DUPG MUTATION. ZEBRONKYSEN IS PAVING A PATH TOWARDS A BETTER FUTURE FOR NEWLY DIAGNOSED CHILDREN AND WILL BE PART OF THE EVOLVING STORY OF PERSONALIZED MEDICINE. THIS EFFORT ALSO PROVIDES PROOF OF CONCEPT TO DEVELOP AN ASO TREATMENT FOR THE COMMON CLN3 MUTATION AND CREATES A ROADMAP TO FUTURE TREATMENTS. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 2286277 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | N/A |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 1598358 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 678091 |
| IRS990/PYInvestmentIncomeAmt | 0 | 48821 |
| IRS990/PYOtherExpensesAmt | 0 | 970706 |
| IRS990/PYOtherRevenueAmt | 0 | -96891 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -175696 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 77187 |
| IRS990/PYTotalExpensesAmt | 0 | 1725984 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 1550288 |
| IRS990/QuidProQuoContributionsInd | 0 | 1 |
| IRS990/QuidProQuoContriDisclInd | 0 | 1 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -1614165 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 0 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/RtnEarnEndowmentIncmOthFndsGrp/BOYAmt | 0 | 1997270 |
| IRS990/RtnEarnEndowmentIncmOthFndsGrp/EOYAmt | 0 | 383105 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 1332785 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 208349 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 1105921 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1598358 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1576666 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1624675 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 964853 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 6870473 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 10598 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 48821 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 2876 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 177 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 11421 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 73893 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 300 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 96 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 120 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 516 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.92340 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.95190 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 6412725 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 457748 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 1105921 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1598358 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1576666 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1624675 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 964853 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 6870473 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 6944882 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt | 0 | 40000 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt | 0 | NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt | 0 | GRANTMAKING |
| IRS990ScheduleF/BoycottCountriesInd | 0 | 0 |
| IRS990ScheduleF/ContinuationSpentAmt | 0 | 0 |
| IRS990ScheduleF/ContinuationTotalEmployeeCnt | 0 | 0 |
| IRS990ScheduleF/ContinuationTotalOfficeCnt | 0 | 0 |
| IRS990ScheduleF/ForeignCorpOwnershipInd | 0 | 0 |
| IRS990ScheduleF/ForeignPartnershipInd | 0 | 0 |
| IRS990ScheduleF/GrantRecordsMaintainedInd | 0 | 1 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 0 | 40000 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt | 0 | ELECTRONIC FUNDS TRANSFER |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/NonCashAssistanceAmt | 0 | 0 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt | 0 | TO SUPPORT INSTITUT NATIONAL DE LA RECHERCHE SCIENTIFIQUE'S RESEARCH FOR THE PURPOSE OF DISCOVERING AND MAKING AVAILABLE TO THE PUBLIC NEW AND IMPROVED MEDICAL PROCEDURES AND INFORMATION. |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt | 0 | NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES |
| IRS990ScheduleF/InterestInForeignTrustInd | 0 | 0 |
| IRS990ScheduleF/PassiveForeignInvestmestCoInd | 0 | 0 |
| IRS990ScheduleF/SubtotalEmployeesCnt | 0 | 0 |
| IRS990ScheduleF/SubtotalOfficesCnt | 0 | 0 |
| IRS990ScheduleF/SubtotalSpentAmt | 0 | 40000 |
| IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt | 0 | IN ORDER TO MONITOR THE USE OF GRANTS, THE FORE BATTEN FOUNDATION REQUIRES THE RESEARCH INSTITUTE TO MAINTAIN A COMPLETE AND ACCURATE RECORD OF THE FUNDS RECEIVED AND EXPENSES INCURRED UNDER THE GRANTS. THE FOUNDATION MAY, AT ITS OWN EXPENSE AND ON REASONABLE NOTICE TO THE RESEARCH INSTITUTE AND DURING NORMAL BUSINESS HOURS, AUDIT OR HAVE AUDITED THE RECORDS OF THE RESEARCH INSTITUTE INSOFAR AS THEY RELATE TO THE ACTIVITIES FUNDED BY THIS GRANT. |
| IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART I, LINE 2: |
| IRS990ScheduleF/Total501c3OrgCnt | 0 | 1 |
| IRS990ScheduleF/TotalEmployeeCnt | 0 | 0 |
| IRS990ScheduleF/TotalOfficeCnt | 0 | 0 |
| IRS990ScheduleF/TotalSpentAmt | 0 | 40000 |
| IRS990ScheduleF/TransferToForeignCorpInd | 0 | 0 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 1105921 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 1105921 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 54884 |
| IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentEvent1Amt | 0 | 34678 |
| IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentTotalEventsAmt | 0 | 34678 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | GOLF FUNDRAISER |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 1116571 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 1116571 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 10650 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 10650 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | -44234 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 20206 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 20206 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | 1 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 225666 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 8913 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 0 | 501(C)(3) |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 1 | 501(C)(3) |
| IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt | 0 | 0 |
| IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt | 1 | 0 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | TO SUPPORT AND PROMOTE THE PURSUIT OF THE HIGHEST CALIBER, PUBLISHABLE RESEARCH (1) RELATING TO THE DEVELOPMENT/DELIVERY OF QUALITY MEDICAL AND HEALTH CARE SERVICES, (2) ADVANCING MEDICAL OR SCIENTIFIC KNOWLEDGE AND SKILLS, AND/OR (3) BENEFITING THE EDUCATION OF HEALTH SCIENCE STUDENTS, RESIDENTS, HEALTH PROFESSIONALS AND THE GENERAL PUBLIC |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | TO FUND RESEARCH FOR A CURE FOR AND TO PROMOTE AWARENESS OF BATTEN DISEASE. |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | SANFORD RESEARCH |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | BDSRA |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 460450378 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 1 | 911397792 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 2301 E 60TH ST N |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | 2780 AIRPORT DRIVE SUITE 342 |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | SIOUX FALLS |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 1 | COLUMBUS |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | SD |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 1 | OH |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 57104 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 1 | 43219 |
| IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt | 0 | THE ORGANIZATION REQUESTS PERIODIC REPORTING FROM GRANT RECIPIENTS TO ENSURE GRANT FUNDS ARE EXPENDED FOR THE PURPOSE THEY WERE ISSUED. |
| IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART I, LINE 2: |
| IRS990ScheduleI/Total501c3OrgCnt | 0 | 2 |
| IRS990ScheduleI/TotalOtherOrgCnt | 0 | 0 |
| IRS990/ScheduleJRequiredInd | 0 | 0 |
| IRS990ScheduleM/AnyPropertyThatMustBeHeldInd | 0 | 0 |
| IRS990ScheduleM/OtherNonCashContriTableGrp/ContributionCnt | 0 | 1 |
| IRS990ScheduleM/OtherNonCashContriTableGrp/Desc | 0 | FAMILY ENTERTAINMENT |
| IRS990ScheduleM/OtherNonCashContriTableGrp/MethodOfDeterminingRevenuesTxt | 0 | RETAIL PRICE |
| IRS990ScheduleM/OtherNonCashContriTableGrp/NonCashCheckboxInd | 0 | X |
| IRS990ScheduleM/OtherNonCashContriTableGrp/NoncashContributionsRptF990Amt | 0 | 2000 |
| IRS990ScheduleM/ReviewProcessUnusualNCGiftsInd | 0 | 0 |
| IRS990ScheduleM/SecuritiesPubliclyTradedGrp/ContributionCnt | 0 | 300 |
| IRS990ScheduleM/SecuritiesPubliclyTradedGrp/MethodOfDeterminingRevenuesTxt | 0 | FAIR MARKET VALUE |
| IRS990ScheduleM/SecuritiesPubliclyTradedGrp/NonCashCheckboxInd | 0 | X |
| IRS990ScheduleM/SecuritiesPubliclyTradedGrp/NoncashContributionsRptF990Amt | 0 | 48990 |
| IRS990ScheduleM/SupplementalInformationDetail/ExplanationTxt | 0 | THE NUMBER IN COLUMN (B) DENOTE THE QUANTITY OF ITEMS RECEIVED |
| IRS990ScheduleM/SupplementalInformationDetail/ExplanationTxt | 1 | FORE BATTEN FOUNDATION RECEIVES A NONCASH CONTRIBUTIONS FOR THEIR FUNDRAISING EVENTS. THE ITEM INCLUDE GOLF CLUB EXPERIENCES |
| IRS990ScheduleM/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART I, COLUMN (B): |
| IRS990ScheduleM/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | LINE 25 |
| IRS990ScheduleM/ThirdPartiesUsedInd | 0 | 0 |
| IRS990/ScheduleORequiredInd | 0 | 1 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | DAVID KAHN, DIRECTOR KAREN KAHN, PRESIDENT FAMILY MARLENA KAHN, SECRETARY DAVID KAHN, DIRECTOR JENNIFER MCGINN, DIRECTOR FAMILY KATHRYN NIEDERER, DIRECTOR KAREN KAHN, PRESIDENT FAMILY |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | THE ORGANIZATION HAS ONE CLASS OF MEMBERS WHO HAVE THE RIGHT TO ELECT THE BOARD OF DIRECTORS OF THE ORGANIZATION. THE MEMBERS HAVE NO RIGHT TO RECEIVE ANY SHARE OF THE ORGANIZATION'S PROFITS OR NET ASSETS UPON THE ORGANIZATION'S DISSOLUTION. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | THE ORGANIZATION HAS ONE CLASS OF MEMBERS WHO HAVE THE RIGHT TO ELECT THE BOARD OF DIRECTORS OF THE ORGANIZAION. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | THE ORGANIZATION HAS NO COMMITTEES WITH AUTHORITY TO ACT ON BEHALF OF THE BOARD. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | THE ORGANIZATION'S RETURN PREPARER (AN OUTSIDE ACCOUNTING FIRM) EMAILS FORM 990 TO THE ORGANIZATION'S FOUNDATION DIRECTOR, WHO REVIEWS AND EMAILS THE FORM 990 TO EACH DIRECTOR AND OFFICER OF THE ORGANIZATION FOR REVIEW BEFORE FILING. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | THE ORGANIZATION PERIODICALLY REVIEWS (A) WHETHER COMPENSATION ARRANGEMENTS AND BENEFITS (IF ANY) ARE REASONABLE, BASED ON COMPETENT SURVEY INFORMATION, AND ARE THE RESULT OF ARM'S LENGTH BARGAINING; AND (B) WHETHER PARTNERSHIPS, JOINT VENTURES, AND ARRANGEMENTS WITH MANAGEMENT ORGANIZATIONS (IF ANY) CONFORM TO THE ORGANIZATION'S WRITTEN POLICIES, ARE PROPERLY RECORDED, REFLECT REASONABLE INVESTMENT OR PAYMENTS FOR GOODS AND SERVICES, FURTHER CHARITABLE PURPOSES AND DO NOT RESULT IN INUREMENT, IMPERMISSIBLE PRIVATE BENEFIT OR IN AN EXCESS BENEFIT TRANSACTION. NO SUCH ARRANGEMENTS EXIST AS OF THE FILING OF THIS FORM 990. ADDITIONALLY, EACH DIRECTOR AND OFFICER OF THE ORGANIZATION IS REQUIRED TO ANNUALLY SIGN A STATEMENT WHICH AFFIRM THAT SUCH PERSON (A) HAS RECEIVED A COPY OF THE CONFLICTS OF INTEREST POLICY; (B) HAS READ AND UNDERSTANDS THE POLICY; (C) HAS AGREED TO COMPLY WITH THE POLICY; AND (D) UNDERSTANDS THE ORGANIZATION IS CHARITABLE AND IN ORDER TO MAINTAIN ITS FEDERAL TAX EXEMPTION IT MUST ENGAGE PRIMARILY IN ACTIVITIES WHICH ACCOMPLISH ONE OR MORE OF ITS TAX-EXEMPT PURPOSES. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 6 | THE ORGANIZATION PERIODICALLY REVIEWS WHETHER ANY COMPENSATION ARRANGEMENTS AND BENEFITS ARE REASONABLE, BASED ON COMPETENT SURVEY INFORMATION, AND ARE THE RESULT OF ARM'S LENGTH BARGAINING. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 7 | THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 8 | PAYROLL PROCESSING: PROGRAM SERVICE EXPENSES 852. MANAGEMENT AND GENERAL EXPENSES 426. FUNDRAISING EXPENSES 426. TOTAL EXPENSES 1,704. MEDICAL RESEARCH: PROGRAM SERVICE EXPENSES 1,996,710. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 1,996,710. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990, PART VI, SECTION A, LINE 2 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PART VI, SECTION A, LINE 6 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PART VI, SECTION A, LINE 7A |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PART VI, SECTION A, LINE 8B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | FORM 990, PART VI, SECTION B, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 5 | FORM 990, PART VI, SECTION B, LINE 12C |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 6 | FORM 990, PART VI, SECTION B, LINE 15B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 7 | FORM 990, PART VI, SECTION C, LINE 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 8 | FORM 990, PART IX, LINE 11G |
| IRS990/SchoolOperatingInd | 0 | 0 |
| IRS990/SignificantChangeInd | 0 | 0 |
| IRS990/SignificantNewProgramSrvcInd | 0 | 0 |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 0 | NC |
| IRS990/SubjectToExcsTaxNetInvstIncInd | 0 | 0 |
| IRS990/SubjectToProxyTaxInd | 0 | 0 |
| IRS990/SubjToTaxRmnrtnExPrchtPymtInd | 0 | 0 |
| IRS990/TaxablePartyNotificationInd | 0 | 0 |
| IRS990/TaxExemptBondsInd | 0 | 0 |
| IRS990/TerminateOperationsInd | 0 | 0 |
| IRS990/TotalAssetsBOYAmt | 0 | 1997270 |
| IRS990/TotalAssetsEOYAmt | 0 | 383105 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 1997270 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 383105 |
| IRS990/TotalCompGreaterThan150KInd | 0 | 0 |
| IRS990/TotalContributionsAmt | 0 | 1105921 |
| IRS990/TotalEmployeeCnt | 0 | 1 |
| IRS990/TotalFunctionalExpensesGrp/FundraisingAmt | 0 | 18224 |
| IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt | 0 | 35792 |
| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 2632434 |
| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 2686450 |
| IRS990/TotalGrossUBIAmt | 0 | 0 |
| IRS990/TotalLiabilitiesBOYAmt | 0 | 0 |
| IRS990/TotalLiabilitiesEOYAmt | 0 | 0 |
| IRS990/TotalLiabilitiesGrp/BOYAmt | 0 | 0 |
| IRS990/TotalLiabilitiesGrp/EOYAmt | 0 | 0 |
| IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt | 0 | 1997270 |
| IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt | 0 | 383105 |
| IRS990/TotalOtherCompensationAmt | 0 | 0 |
| IRS990/TotalProgramServiceExpensesAmt | 0 | 2632434 |
| IRS990/TotalReportableCompFromOrgAmt | 0 | 0 |
| IRS990/TotalRevenueGrp/ExclusionAmt | 0 | -33636 |
| IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 0 |
| IRS990/TotalRevenueGrp/TotalRevenueColumnAmt | 0 | 1072285 |
| IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
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