Liabilities / Assets
56th percentile
Tied with the lowest-debt nonprofits in its peer group.
990 • Fiscal year 2021 • EIN 82-2564392
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
56th percentile
Tied with the lowest-debt nonprofits in its peer group.
Liabilities / Revenue
56th percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
4th percentile
Higher net margin than 4% of similar nonprofits.
Top Officer Pay
77th percentile
Higher top officer pay than 77% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
10th percentile
Faster asset growth than 10% of similar nonprofits.
Revenue Growth
5th percentile
Faster revenue growth than 5% of similar nonprofits.
Assets
Down$269,815
Down $183,108 (-40%) from 2020
Net Assets
Down$269,815
Down $183,073 (-40%) from 2020
Liabilities
Down$0
Down $35 (-100%) from 2020
Revenue
Down$61,501
Down $618,191 (-91%) from 2020
Expenses
Down$244,574
Down $26,318 (-9.7%) from 2020
Net Income
Down-$183,073
Down $591,873 (-145%) from 2020
1. To support research relating to treatments and cure of systemic juvenile idiopathic arthritis (sjia); 2. Promote increased awareness, knowledge and understanding of sjia by medical professionals, the general public and families affected by sjia; 3. Promote mutual support through building and maintaining an extensive web-based or other network of information and resources for the general public and families.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $452,923 | $269,815 | ▼ $183,108 |
| Rtn Earn Endowment Incm Other Fnds | $452,888 | $269,815 | ▼ $183,073 |
| Pd in Cap Srpls Land Bldg Eqp Fund | $0 | $0 | → $0 |
| Cap Stk Tr Prin Current Funds | $0 | $0 | → $0 |
| Total Assets | $452,923 | $269,815 | ▼ $183,108 |
| Liabilities | |||
| Other Liabilities | $35 | $0 | ▼ $35 |
| Total Liabilities | $35 | $0 | ▼ $35 |
| Net Assets / Fund Balance | |||
| Total Net Assets Fund Balance | $452,888 | $269,815 | ▼ $183,073 |
| Total Liabilities and Net Assets / Fund Balance | $452,923 | $269,815 | ▼ $183,108 |
| Name | Title |
|---|---|
| Jonathan Boutelle | Director |
| Matthew Might | Director |
| Rashmi Sinha | Director |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $182,800 |
| Other Expenses | $61,774 |
| Professional Fundraising Fees | $0 |
| Salaries, Compensation, and Employee Benefits | $0 |
| Total Fundraising Expense | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $182,800 | - | - | $182,800 |
| Fees for Services Legal | - | $24,150 | - | $24,150 |
| Conferences and Meetings | $20,312 | - | - | $20,312 |
| Fees for Services Accounting | - | $3,063 | - | $3,063 |
| Advertising | - | $400 | - | $400 |
| Other Expenses | - | $136 | - | $136 |
| Fees for Services Other | - | $134 | - | $134 |
| Office Expenses | - | $112 | - | $112 |
| Total Functional Expenses | $203,112 | $41,462 | $0 | $244,574 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Presidents and Fellows of Harvard College | Cambridge, MA | Section 501(c)(3) | To Help Fund Further Research and Investigation of Rna Expression Data to Find New Pathways to Target for Sjia Drugs. | $120,000 |
| Rarebase Pbc | Palo Alto, CA | - | This Grant Is Made to a Public Benefit Precision Medicine Company. the Company Leverages Cutting Edge Technology and Biology to Discover and Develop Treatment for Millions of People Worldwide Living With a Rare Disease. the Grant Helps Fund Research Into Using Analysis of Messenger Rna Data to Identify Novel Treatments for Sjia. | $62,800 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“Jonathan boutelle, director - husband of rashmi sinha rashmi sinha, director - wife of jonathan boutelle”
“The signing board member will review the form 990 before it is released to the taxing authorities. The other board members will receive the final copy of the filed tax return.”
“To ensure the foundation operates in a manner consistent with charitable purposes and does not engage in activities that could jeopardize its tax-exempt status, a periodic review shall be conducted and will include the following: 1. Assess whether compensation arrangements and benefits are reasonable, based on competent survey information, and the result of arm's length bargaining. 2. Assess whether partnerships, joint ventures, and arrangements with management organizations conform to the foundation's written policies, are properly recorded, reflect reasonable investment or payments for goods and services, further charitable purposes and do not result in inurement, impermissible private benefit or in an excess benefit transaction.”
“The documents are available for public inspection via the state of california registry of charitable trusts website. Www.rct.doj.ca.gov the foundation intends to publish the information in their website in the near future.”
“Jonathan boutelle - 3584 outlook ave, cincinnati, oh 45208. Rashmi sinha - 3584 outlook ave, cincinnati, oh 45208. Matthew might - 510 20th st. S, birmingham, al 35210.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | 1. TO SUPPORT RESEARCH RELATING TO TREATMENTS AND CURE OF SYSTEMIC JUVENILE IDIOPATHIC ARTHRITIS (SJIA); 2. PROMOTE INCREASED AWARENESS, KNOWLEDGE AND UNDERSTANDING OF SJIA BY MEDICAL PROFESSIONALS, THE GENERAL PUBLIC AND FAMILIES AFFECTED BY SJIA; 3. PROMOTE MUTUAL SUPPORT THROUGH BUILDING AND MAINTAINING AN EXTENSIVE WEB-BASED OR OTHER NETWORK OF INFORMATION AND RESOURCES FOR THE GENERAL PUBLIC AND FAMILIES. |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 400 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 400 |
| IRS990/AllOtherContributionsAmt | 0 | 61501 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | JOHN ADVANI CO ALTUM LLP |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 4083200260 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 1225 PONCE DE LEON AVENUE SUITE |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | SAN JUAN |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | PR |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 00907 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CapStkTrPrinCurrentFundsGrp/BOYAmt | 0 | 0 |
| IRS990/CapStkTrPrinCurrentFundsGrp/EOYAmt | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 452923 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 269815 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 0 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 20312 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 20312 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 61501 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 182800 |
| IRS990/CYInvestmentIncomeAmt | 0 | 0 |
| IRS990/CYOtherExpensesAmt | 0 | 61774 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -183073 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/CYTotalExpensesAmt | 0 | 244574 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 0 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 61501 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/Desc | 0 | SYSTEMIC JIA FOUNDATION PLANS SEVERAL TYPES OF FUNDRAISING: 1) DONATIONS FROM FAMILIES WITH SJIA: THE SYSTEMIC JIA FOUNDATION WILL REACH OUT TO FAMILIES WITH SJIA TO BOTH CONTRIBUTE AND RAISE FUNDS FOR THE BENEFIT OF THE SYSTEMIC JIA FOUNDATION. THE SYSTEMIC JIA FOUNDATION WILL RAISE FUNDS ONLINE, USING FUNDRAISING SITES SUCH AS CROWDRISE, STRIPE, FACEBOOK OR FUNDRAISING FUNCTIONALITY ON OUR OWN WEBSITE.2) EVENT SPONSORSHIPS FROM PHARMA COMPANIES: FOR ANY EVENTS THE SYSTEMIC JIA FOUNDATION ORGANIZE, THE SYSTEMIC JIA FOUNDATION WILL REACH OUT TO PHARMA COMPANIES WHO ARE INTERESTED IN SJIA TO GIVE SPONSORSHIPS AT DIFFERENT LEVELS TO SUPPORT THE EVENT.3) GENERAL: THE SYSTEMIC JIA FOUNDATION WILL UNDERTAKE ADDITIONAL FUNDRAISING FROM A VARIETY OF SOURCES INCLUDING MAIL, EMAIL, PERSONAL AND PHONE SOLICITATIONS. THE ORGANIZATION WILL CREATE PROPOSALS AND OTHER MATERIALS THAT WILL BE NECESSARY TO SUBMIT IN ORDER FOR THE ORGANIZATION TO RECEIVE GRANTS AND DONATIONS.4) GRANTS FROM OTHER CHARITABLE ORGANIZATIONS. THE SYSTEMIC JIA FOUNDATION WILL RAISE ADDITIONAL FUNDS FROM OTHER CHARITABLE FOUNDATIONS. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 0 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 0 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 1 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 3063 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 3063 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 24150 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 24150 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 134 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 134 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | JONATHAN BOUTELLE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | RASHMI SINHA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | MATTHEW MIGHT |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 0 |
| IRS990/FormationYr | 0 | 2017 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedInd | 0 | 0 |
| IRS990/FundraisingActivitiesInd | 0 | 0 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 3 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 182800 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 182800 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 61501 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 0 |
| IRS990/IndependentVotingMemberCnt | 0 | 1 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 0 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | CA |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingCashInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | 1. TO SUPPORT RESEARCH RELATING TO TREATMENTS AND CURE OF SYSTEMIC JUVENILE IDIOPATHIC ARTHRITIS (SJIA); 2. PROMOTE INCREASED AWARENESS, KNOWLEDGE AND UNDERSTANDING OF SJIA BY MEDICAL PROFESSIONALS, THE GENERAL PUBLIC AND FAMILIES AFFECTED BY SJIA; 3. PROMOTE MUTUAL SUPPORT THROUGH BUILDING AND MAINTAINING AN EXTENSIVE WEB-BASED OR OTHER NETWORK OF INFORMATION AND RESOURCES FOR THE GENERAL PUBLIC AND FAMILIES. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 452888 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 269815 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 112 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 112 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrgDoesNotFollowFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | SOFTWARE |
| IRS990/OtherExpensesGrp/Desc | 1 | WEB HOSTING |
| IRS990/OtherExpensesGrp/Desc | 2 | FILING FEES |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 10467 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 3000 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 136 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 10467 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 3000 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 136 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 35 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 0 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PdInCapSrplsLandBldgEqpFundGrp/BOYAmt | 0 | 0 |
| IRS990/PdInCapSrplsLandBldgEqpFundGrp/EOYAmt | 0 | 0 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrincipalOfficerNm | 0 | JONATHAN BOUTELLE |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | GRANT TO HARVARD UNIVERSITYTHE GRANT HAS BEEN PROVIDED TO FUND RESEARCH IN INVESTIGATION OF RNA EXPRESSION DATA TO FIND NEW PATHWAYS TO TARGET FOR SJIA DRUGS. THIS GRANT IS IN LINE WITH THE FOUNDATION'S GOAL TO ACCELERATE AND FIND CURE FOR SJIA. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 120000 |
| IRS990/ProgSrvcAccomActy2Grp/GrantAmt | 0 | 120000 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | GRANT TO RAREBASE PBCRAREBASE IS A PUBLIC BENEFIT PRECISION MEDICINE COMPANY THAT LEVERAGES CUTTING-EDGE TECHNOLOGY AND BIOLOGY TO DISCOVER AND DEVELOP TREATMENTS FOR THE MILLIONSOF PEOPLE WORLDWIDE LIVING WITH A RARE DISEASE. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 62800 |
| IRS990/ProgSrvcAccomActy3Grp/GrantAmt | 0 | 62800 |
| IRS990/ProgSrvcAccomActyOtherGrp/Desc | 0 | CONFERENCES: MCI CONFERENCES ATTENDED TO IDENTIFY NOVEL TREATMENTS FOR SJIACOMMUNITY BUILDING:CONNECTING PATIENTS, RESEARCHERS, AND CLINICIANS SO THAT PATIENTS GETTREATMENT AND RESEARCHERS GET THE SAMPLES THEY NEED TO DO THEIR RESEARCH. |
| IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt | 0 | 20312 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 679692 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 245000 |
| IRS990/PYInvestmentIncomeAmt | 0 | 0 |
| IRS990/PYOtherExpensesAmt | 0 | 25892 |
| IRS990/PYOtherRevenueAmt | 0 | 0 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 408800 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/PYTotalExpensesAmt | 0 | 270892 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 679692 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -183073 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 1 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 0 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/RevenueAmt | 0 | 61501 |
| IRS990/RtnEarnEndowmentIncmOthFndsGrp/BOYAmt | 0 | 452888 |
| IRS990/RtnEarnEndowmentIncmOthFndsGrp/EOYAmt | 0 | 269815 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 61501 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 679692 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 90432 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 5000 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 836625 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 1.00000 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 836625 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 61501 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 679692 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 90432 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 5000 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 836625 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 836625 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | 1 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 120000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 62800 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 0 | SECTION 501(C)(3) |
| IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt | 0 | 0 |
| IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt | 1 | 0 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | TO HELP FUND FURTHER RESEARCH AND INVESTIGATION OF RNA EXPRESSION DATA TO FIND NEW PATHWAYS TO TARGET FOR SJIA DRUGS. |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | THIS GRANT IS MADE TO A PUBLIC BENEFIT PRECISION MEDICINE COMPANY. THE COMPANY LEVERAGES CUTTING EDGE TECHNOLOGY AND BIOLOGY TO DISCOVER AND DEVELOP TREATMENT FOR MILLIONS OF PEOPLE WORLDWIDE LIVING WITH A RARE DISEASE. THE GRANT HELPS FUND RESEARCH INTO USING ANALYSIS OF MESSENGER RNA DATA TO IDENTIFY NOVEL TREATMENTS FOR SJIA. |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | PRESIDENTS AND FELLOWS OF HARVARD COLLEGE |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | RAREBASE PBC |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 042103580 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | MASSACHUSETTS HALL |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | 1804 EMBARCADERO RD SUITE 201 |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | CAMBRIDGE |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 1 | PALO ALTO |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | MA |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 1 | CA |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 02138 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 1 | 94303 |
| IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt | 0 | THE FOUNDATION WILL BE MONITORING ALL INTERIM REPORTS AND PROGRESS OF THE RESEARCH TO ENSURE THE GRANT HAS BEEN USED TO FURTHER THE FOUNDATION GOALS IN FINDING CURE FOR SJIA. |
| IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | SCHEDULE I, PART I, 1 |
| IRS990ScheduleI/Total501c3OrgCnt | 0 | 1 |
| IRS990ScheduleI/TotalOtherOrgCnt | 0 | 1 |
| IRS990/ScheduleJRequiredInd | 0 | 0 |
| IRS990/ScheduleORequiredInd | 0 | 1 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | JONATHAN BOUTELLE, DIRECTOR - HUSBAND OF RASHMI SINHA RASHMI SINHA, DIRECTOR - WIFE OF JONATHAN BOUTELLE |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | THE SIGNING BOARD MEMBER WILL REVIEW THE FORM 990 BEFORE IT IS RELEASED TO THE TAXING AUTHORITIES. THE OTHER BOARD MEMBERS WILL RECEIVE THE FINAL COPY OF THE FILED TAX RETURN. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | TO ENSURE THE FOUNDATION OPERATES IN A MANNER CONSISTENT WITH CHARITABLE PURPOSES AND DOES NOT ENGAGE IN ACTIVITIES THAT COULD JEOPARDIZE ITS TAX-EXEMPT STATUS, A PERIODIC REVIEW SHALL BE CONDUCTED AND WILL INCLUDE THE FOLLOWING: 1. ASSESS WHETHER COMPENSATION ARRANGEMENTS AND BENEFITS ARE REASONABLE, BASED ON COMPETENT SURVEY INFORMATION, AND THE RESULT OF ARM'S LENGTH BARGAINING. 2. ASSESS WHETHER PARTNERSHIPS, JOINT VENTURES, AND ARRANGEMENTS WITH MANAGEMENT ORGANIZATIONS CONFORM TO THE FOUNDATION'S WRITTEN POLICIES, ARE PROPERLY RECORDED, REFLECT REASONABLE INVESTMENT OR PAYMENTS FOR GOODS AND SERVICES, FURTHER CHARITABLE PURPOSES AND DO NOT RESULT IN INUREMENT, IMPERMISSIBLE PRIVATE BENEFIT OR IN AN EXCESS BENEFIT TRANSACTION. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | THE DOCUMENTS ARE AVAILABLE FOR PUBLIC INSPECTION VIA THE STATE OF CALIFORNIA REGISTRY OF CHARITABLE TRUSTS WEBSITE. WWW.RCT.DOJ.CA.GOV THE FOUNDATION INTENDS TO PUBLISH THE INFORMATION IN THEIR WEBSITE IN THE NEAR FUTURE. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | JONATHAN BOUTELLE - 3584 OUTLOOK AVE, CINCINNATI, OH 45208. RASHMI SINHA - 3584 OUTLOOK AVE, CINCINNATI, OH 45208. MATTHEW MIGHT - 510 20TH ST. S, BIRMINGHAM, AL 35210. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990, PART VI, SECTION A, LINE 2 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PART VI, SECTION B, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PART VI, SECTION B, LINE 12C |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PART VI, SECTION C, LINE 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | FORM 990, PART VII CONTACT ADDRESSES FOR OFFICERS, DIRECTORS, ETC |
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| IRS990/TotalLiabilitiesEOYAmt | 0 | 0 |
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| IRS990/UponRequestInd | 0 | X |
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| ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/IdentityAssuranceLevelCd | 0 | IAL1 |
| ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/TrustedCustomerCd | 0 | 3 |
| ReturnHeader/BuildTS | 0 | 2022-09-23 18:48:47Z |
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| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | JONATHAN BOUTELLE |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | DIRECTOR |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 5107039595 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2022-11-15 |
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| ReturnHeader/Filer/PhoneNum | 0 | 5107039595 |
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| ReturnHeader/Filer/USAddress/CityNm | 0 | CINCINNATI |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | OH |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 45208 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmEIN | 0 | 823573719 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt | 0 | ALTUM LLP |
| ReturnHeader/PreparerFirmGrp/PreparerForeignAddress/AddressLine1Txt | 0 | 1225 PONCE DE LEON AVENUE SUITE |
| ReturnHeader/PreparerFirmGrp/PreparerForeignAddress/AddressLine2Txt | 0 | GF-1 |
| ReturnHeader/PreparerFirmGrp/PreparerForeignAddress/CityNm | 0 | SAN JUAN |
| ReturnHeader/PreparerFirmGrp/PreparerForeignAddress/CountryCd | 0 | RQ |
| ReturnHeader/PreparerFirmGrp/PreparerForeignAddress/ForeignPostalCd | 0 | 00907 |
| ReturnHeader/PreparerPersonGrp/PhoneNum | 0 | 4083200260 |
| ReturnHeader/PreparerPersonGrp/PreparerPersonNm | 0 | JOHN T ADVANI |
| ReturnHeader/PreparerPersonGrp/SelfEmployedInd | 0 | X |
| ReturnHeader/ReturnTs | 0 | 2022-11-15T15:45:04-06:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990 |
| ReturnHeader/SigningOfficerGrp/PersonFullName/PersonFirstNm | 0 | JONATHAN |
| ReturnHeader/SigningOfficerGrp/PersonFullName/PersonLastNm | 0 | BOUTELLE |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2021-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2021-12-31 |
| ReturnHeader/TaxYr | 0 | 2021 |
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Displayed year
2021 • Form 990Detailed filing. Detailed filing data is available for this year.