Liabilities / Assets
73rd percentile
Higher debt load relative to assets than 73% of similar nonprofits.
990 • Fiscal year 2021 • EIN 82-2417010
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
73rd percentile
Higher debt load relative to assets than 73% of similar nonprofits.
Liabilities / Revenue
73rd percentile
Higher debt load relative to revenue than 73% of similar nonprofits.
Net Margin
82nd percentile
Higher net margin than 82% of similar nonprofits.
Top Officer Pay
97th percentile
Higher top officer pay than 97% of similar nonprofits.
Top officer pay equals 26.2% of source-year revenue.
Asset Growth
35th percentile
Faster asset growth than 35% of similar nonprofits.
Revenue Growth
71st percentile
Faster revenue growth than 71% of similar nonprofits.
Assets
Down$256,282
Down $7,723 (-2.9%) from 2020
Net Assets
Up$244,498
Up $4,324 (+1.8%) from 2020
Liabilities
Down$11,784
Down $12,047 (-51%) from 2020
Revenue
Up$294,152
Up $81,616 (+38%) from 2020
Expenses
Up$171,231
Up $16,012 (+10%) from 2020
Net Income
Up$122,921
Up $65,604 (+114%) from 2020
The corporation's mission is to serve the bleeding disorder community, focusing on those affected by severe von willbrand disease. The corporation's goals are to provide support, education and connection for these patients and families, along with supporting research endeavors to benefit this community.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $231,747 | $140,532 | ▼ $91,215 |
| Investments in Publicly Traded Securities | - | $54,820 | - |
| Savings and Temporary Cash Investments | $26,064 | $41,267 | ▲ $15,203 |
| Accounts Receivable | $380 | $11,941 | ▲ $11,561 |
| Prepaid Expenses and Deferred Charges | $2,943 | $3,676 | ▲ $733 |
| Land, Buildings, and Equipment, Net | - | $2,235 | - |
| Intangible Assets | $2,871 | $1,811 | ▼ $1,060 |
| Total Assets | $264,005 | $256,282 | ▼ $7,723 |
| Liabilities | |||
| Other Liabilities | $14,978 | - | - |
| Accounts Payable and Accrued Expenses | $8,853 | $11,784 | ▲ $2,931 |
| Total Liabilities | $23,831 | $11,784 | ▼ $12,047 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $107,674 | $189,508 | ▲ $81,834 |
| Net Assets With Donor Restrictions | $132,500 | $54,990 | ▼ $77,510 |
| Total Net Assets Fund Balance | $240,174 | $244,498 | ▲ $4,324 |
| Total Liabilities and Net Assets / Fund Balance | $264,005 | $256,282 | ▼ $7,723 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Other Land Buildings | $2,235 | $97 | $2,332 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Jeanette Cesta | President/ D | FT | $77,000 | $77,000 |
| Edward Kuebler | Sec/treas/di | PT | $7,500 | $7,500 |
| Name | Title |
|---|---|
| Christopher Walsh | Director |
| Julian Friedman | Director |
| Kari Gregory | Director |
| Line Item | Amount |
|---|---|
| Other Expenses | $88,340 |
| Salaries, Compensation, and Employee Benefits | $82,891 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Total Fundraising Expense | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | - | $77,000 | - | $77,000 |
| Conferences and Meetings | $43,763 | - | - | $43,763 |
| Fees for Services Other | $21,770 | $1,235 | - | $23,005 |
| Information Technology | $8,516 | $4,009 | - | $12,525 |
| Payroll Taxes | - | $5,891 | - | $5,891 |
| Advertising | - | $5,000 | - | $5,000 |
| Depreciation Depletion | $3,392 | - | - | $3,392 |
| Office Expenses | - | $585 | - | $585 |
| Fees for Services Legal | - | $70 | - | $70 |
| Total Functional Expenses | $77,441 | $93,790 | $0 | $171,231 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“President/director review.”
“Board members report any conflicts that arise.”
“AVAILABLE UPON REQUEST”
“The corporation's mission is to serve the bleeding disorder community, focusing on those affected by severe von willbrand disease. The corporation's goals are to provide support, education and connection for these patients and families, along with supporting research endeavors to benefit this community.”
“Nonprofit was founded, website with information resources for patients was successfully launched, conference held.”
“Bank fees 0 199 0 paypal fees 0 143 0 faculty meetings 2,823 0 0 conference fees 84 0 0 contract labor 0 893 0 research - patient registry 11,592 0 0 patient registry irb fees 2,125 0 0 patient registry expenses 5,146 0 0 total 21,770 1,235 0”
“Book / tax depreciation difference 2,235 donor funds w/restrictions 0 rounding 0 donor funds with restrictions -120,832 total -118,597”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 8853 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 11784 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 380 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 11941 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | THE CORPORATION'S MISSION IS TO SERVE THE BLEEDING DISORDER COMMUNITY, FOCUSING ON THOSE AFFECTED BY SEVERE VON WILLBRAND DISEASE. THE CORPORATION'S GOALS ARE TO PROVIDE SUPPORT, EDUCATION AND CONNECTION FOR THESE PATIENTS AND FAMILIES, ALONG WITH SUPPORTING RESEARCH ENDEAVORS TO BENEFIT THIS COMMUNITY. |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 5000 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 5000 |
| IRS990/AllOtherContributionsAmt | 0 | 272940 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | JEANETTE CESTA |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 5613733889 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 13710 CARLTON STREET |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | WELLINGTON |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | FL |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 33414 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 231747 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 140532 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | false |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 43763 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 43763 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 294003 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 149 |
| IRS990/CYOtherExpensesAmt | 0 | 88340 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 122921 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 82891 |
| IRS990/CYTotalExpensesAmt | 0 | 171231 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 0 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 294152 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 3392 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 3392 |
| IRS990/Desc | 0 | PROVIDED SUPPORT, EDUCATION AND CONNECTION FOR BLEEDING DISORDER PATIENTS AND THEIR FAMILIES |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 132500 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 54990 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 1 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 70 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 70 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 1235 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 21770 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 23005 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | JEANETTE CESTA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | EDWARD KUEBLER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | JULIAN FRIEDMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | KARI GREGORY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | CHRISTOPHER WALSH |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 77000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 7500 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | PRESIDENT/ D |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | SEC/TREAS/DI |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | false |
| IRS990/FormationYr | 0 | 2017 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedInd | 0 | false |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 5 |
| IRS990/GovernmentGrantsAmt | 0 | 21063 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | false |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 294152 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 3 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIInd | 0 | X |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 4009 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 8516 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 12525 |
| IRS990/IntangibleAssetsGrp/BOYAmt | 0 | 2871 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 1811 |
| IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt | 0 | 149 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 149 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 54820 |
| IRS990/IRPDocumentCnt | 0 | 7 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 97 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 2235 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 2332 |
| IRS990/LegalDomicileStateCd | 0 | FL |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | THE CORPORATION'S MISSION IS TO SERVE THE BLEEDING DISORDER COMMUNITY, FOCUSING ON THOSE AFFECTED BY SEVERE VON WILLBRAND DISEASE. THE CORPORATION'S GOALS ARE TO PROVIDE SUPPORT, EDUCATION AND CONNECTION FOR THESE PATIENTS AND FAMILIES, ALONG WITH SUPPORTING RESEARCH ENDEAVORS TO BENEFIT THIS COMMUNITY. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 240174 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 244498 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 107674 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 189508 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 585 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 585 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | -118597 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 14978 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 77000 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 77000 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 5891 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 5891 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 2943 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 3676 |
| IRS990/PrincipalOfficerNm | 0 | JEANETTE CESTA |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgSrvcAccomActyOtherGrp/Desc | 0 | NONPROFIT WAS FOUNDED, WEBSITE WITH INFORMATION RESOURCES FOR PATIENTS WAS SUCCESSFULLY LAUNCHED, CONFERENCE HELD. |
| IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt | 0 | 77441 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 212531 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYInvestmentIncomeAmt | 0 | 5 |
| IRS990/PYOtherExpensesAmt | 0 | 99241 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 57317 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 55978 |
| IRS990/PYTotalExpensesAmt | 0 | 155219 |
| IRS990/PYTotalRevenueAmt | 0 | 212536 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 122921 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 26064 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 41267 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 294003 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 212531 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 296728 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 442772 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 190000 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 1436034 |
| IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt | 0 | 17387 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 1.00000 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 1.00000 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 1436034 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 294003 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 212531 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 296728 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 442772 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 190000 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 1436034 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 1436034 |
| IRS990/ScheduleBRequiredInd | 0 | false |
| IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt | 0 | 2235 |
| IRS990ScheduleD/OtherLandBuildingsGrp/DepreciationAmt | 0 | 97 |
| IRS990ScheduleD/OtherLandBuildingsGrp/OtherCostOrOtherBasisAmt | 0 | 2332 |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 2235 |
| IRS990/ScheduleJRequiredInd | 0 | false |
| IRS990/ScheduleORequiredInd | 0 | true |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | THE CORPORATION'S MISSION IS TO SERVE THE BLEEDING DISORDER COMMUNITY, FOCUSING ON THOSE AFFECTED BY SEVERE VON WILLBRAND DISEASE. THE CORPORATION'S GOALS ARE TO PROVIDE SUPPORT, EDUCATION AND CONNECTION FOR THESE PATIENTS AND FAMILIES, ALONG WITH SUPPORTING RESEARCH ENDEAVORS TO BENEFIT THIS COMMUNITY. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | NONPROFIT WAS FOUNDED, WEBSITE WITH INFORMATION RESOURCES FOR PATIENTS WAS SUCCESSFULLY LAUNCHED, CONFERENCE HELD. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | PRESIDENT/DIRECTOR REVIEW. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | BOARD MEMBERS REPORT ANY CONFLICTS THAT ARISE. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | AVAILABLE UPON REQUEST |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | BANK FEES 0 199 0 PAYPAL FEES 0 143 0 FACULTY MEETINGS 2,823 0 0 CONFERENCE FEES 84 0 0 CONTRACT LABOR 0 893 0 RESEARCH - PATIENT REGISTRY 11,592 0 0 PATIENT REGISTRY IRB FEES 2,125 0 0 PATIENT REGISTRY EXPENSES 5,146 0 0 TOTAL 21,770 1,235 0 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 6 | BOOK / TAX DEPRECIATION DIFFERENCE 2,235 DONOR FUNDS W/RESTRICTIONS 0 ROUNDING 0 DONOR FUNDS WITH RESTRICTIONS -120,832 TOTAL -118,597 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990 - ORGANIZATION'S MISSION |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PAGE 2, PART III, LINE 4D |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PAGE 6, PART VI, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PAGE 6, PART VI, LINE 12C |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | FORM 990, PAGE 6, PART VI, LINE 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 5 | FORM 990, PART IX, LINE 11G |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 6 | FORM 990, PART XI, LINE 9 |
| IRS990/SchoolOperatingInd | 0 | false |
| IRS990/SignificantChangeInd | 0 | false |
| IRS990/SignificantNewProgramSrvcInd | 0 | false |
| IRS990/SubjectToExcsTaxNetInvstIncInd | 0 | false |
| IRS990/SubjectToProxyTaxInd | 0 | false |
| IRS990/SubjToTaxRmnrtnExPrchtPymtInd | 0 | false |
| IRS990/TaxablePartyNotificationInd | 0 | false |
| IRS990/TaxExemptBondsInd | 0 | false |
| IRS990/TerminateOperationsInd | 0 | false |
| IRS990/TotalAssetsBOYAmt | 0 | 264005 |
| IRS990/TotalAssetsEOYAmt | 0 | 256282 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 264005 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 256282 |
| IRS990/TotalCompGreaterThan150KInd | 0 | false |
| IRS990/TotalContributionsAmt | 0 | 294003 |
| IRS990/TotalEmployeeCnt | 0 | 1 |
| IRS990/TotalFunctionalExpensesGrp/FundraisingAmt | 0 | 0 |
| IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt | 0 | 93790 |
| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 77441 |
| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 171231 |
| IRS990/TotalGrossUBIAmt | 0 | 0 |
| IRS990/TotalLiabilitiesBOYAmt | 0 | 23831 |
| IRS990/TotalLiabilitiesEOYAmt | 0 | 11784 |
| IRS990/TotalLiabilitiesGrp/BOYAmt | 0 | 23831 |
| IRS990/TotalLiabilitiesGrp/EOYAmt | 0 | 11784 |
| IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt | 0 | 240174 |
| IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt | 0 | 244498 |
| IRS990/TotalOtherProgSrvcExpenseAmt | 0 | 77441 |
| IRS990/TotalProgramServiceExpensesAmt | 0 | 77441 |
| IRS990/TotalReportableCompFromOrgAmt | 0 | 84500 |
| IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 149 |
| IRS990/TotalRevenueGrp/TotalRevenueColumnAmt | 0 | 294152 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt | 0 | 264005 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt | 0 | 256282 |
| IRS990/TrnsfrExmptNonChrtblRltdOrgInd | 0 | false |
| IRS990/TypeOfOrganizationCorpInd | 0 | X |
| IRS990/UnrelatedBusIncmOverLimitInd | 0 | false |
| IRS990/UponRequestInd | 0 | X |
| IRS990/USAddress/AddressLine1Txt | 0 | 13710 CARLTON STREET |
| IRS990/USAddress/CityNm | 0 | WELLINGTON |
| IRS990/USAddress/StateAbbreviationCd | 0 | FL |
| IRS990/USAddress/ZIPCd | 0 | 33414 |
| IRS990/VotingMembersGoverningBodyCnt | 0 | 5 |
| IRS990/VotingMembersIndependentCnt | 0 | 3 |
| IRS990/WebsiteAddressTxt | 0 | HTTPS://VWDCONNECT.ORG/ |
| IRS990/WhistleblowerPolicyInd | 0 | false |
| ReturnHeader/BuildTS | 0 | 2023-03-07 01:45:13Z |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | JEANETTE CESTA |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | PRESIDENT/ DIRECTOR |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 5613733889 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2023-01-20 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | VWD CONNECT FOUNDATION INC |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | VWDC |
| ReturnHeader/Filer/EIN | 0 | 822417010 |
| ReturnHeader/Filer/PhoneNum | 0 | 5613733889 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | 13710 CARLTON STREET |
| ReturnHeader/Filer/USAddress/CityNm | 0 | WELLINGTON |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | FL |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 33414 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmEIN | 0 | 042628197 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt | 0 | JULIAN B FRIEDMAN CPA |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt | 0 | 580 WASHINGTON ST STE B |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm | 0 | NEWTON |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd | 0 | MA |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd | 0 | 02458 |
| ReturnHeader/PreparerPersonGrp/PhoneNum | 0 | 6172676969 |
| ReturnHeader/PreparerPersonGrp/PreparationDt | 0 | 2023-02-09 |
| ReturnHeader/PreparerPersonGrp/PreparerPersonNm | 0 | JULIAN FRIEDMAN |
| ReturnHeader/ReturnTs | 0 | 2023-02-09T19:21:11-05:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990 |
| ReturnHeader/SigningOfficerGrp/PersonFullName/PersonFirstNm | 0 | JEANETTE |
| ReturnHeader/SigningOfficerGrp/PersonFullName/PersonLastNm | 0 | CESTA |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2021-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2021-12-31 |
| ReturnHeader/TaxYr | 0 | 2021 |
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Displayed year
2021 • Form 990Detailed filing. Detailed filing data is available for this year.