Liabilities / Assets
87th percentile
Higher debt load relative to assets than 87% of similar nonprofits.
990 • Fiscal year 2020 • EIN 82-1199380
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
87th percentile
Higher debt load relative to assets than 87% of similar nonprofits.
Liabilities / Revenue
81st percentile
Higher debt load relative to revenue than 81% of similar nonprofits.
Net Margin
86th percentile
Higher net margin than 86% of similar nonprofits.
Top Officer Pay
81st percentile
Higher top officer pay than 81% of similar nonprofits.
Top officer pay equals 2.9% of source-year revenue.
Asset Growth
99th percentile
Faster asset growth than 99% of similar nonprofits.
Revenue Growth
85th percentile
Faster revenue growth than 85% of similar nonprofits.
Assets
Up$28,309,589
Up $20,914,465 (+283%) from 2019
Net Assets
Down$5,277,257
Down $1,362,465 (-21%) from 2019
Liabilities
Up$23,032,332
Up $22,276,930 (+2949%) from 2019
Revenue
Up$15,863,066
Up $3,947,906 (+33%) from 2019
Expenses
Up$10,452,245
Up $5,225,334 (+100%) from 2019
Net Income
Down$5,410,821
Down $1,277,428 (-19%) from 2019
Our mission is to lead the development and ongoing management of clinical trial platforms to accelerate the discovery and development of cures for patients with rare and deadly diseases.
To promote and advance scientific research for platform clinical trials for rare diseases.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $122,821 | $28,140,238 | ▲ $28,017,417 |
| Savings and Temporary Cash Investments | $7,272,303 | $127,365 | ▼ $7,144,938 |
| Prepaid Expenses and Deferred Charges | $0 | $41,986 | ▲ $41,986 |
| Total Assets | $7,395,124 | $28,309,589 | ▲ $20,914,465 |
| Liabilities | |||
| Deferred Revenue | $0 | $20,190,909 | ▲ $20,190,909 |
| Other Liabilities | $750,000 | $1,500,000 | ▲ $750,000 |
| Accounts Payable and Accrued Expenses | $5,402 | $1,341,423 | ▲ $1,336,021 |
| Total Liabilities | $755,402 | $23,032,332 | ▲ $22,276,930 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $6,639,722 | $5,277,257 | ▼ $1,362,465 |
| Total Net Assets Fund Balance | $6,639,722 | $5,277,257 | ▼ $1,362,465 |
| Total Liabilities and Net Assets / Fund Balance | $7,395,124 | $28,309,589 | ▲ $20,914,465 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Meredith Buxton | CEO | FT | $334,750 | $124,662 | $459,412 |
| Ashley Powell | Senior Director of Trial Operations | FT | $157,500 | $16,500 | $174,000 |
| Robert Murray | Chief Business Officer | FT | $130,277 | - | $130,277 |
| Gary Gordon | President | - | $65,000 | - | $65,000 |
| Timothy Cloughesy Md | Director | - | $60,000 | - | $60,000 |
| Name | Title |
|---|---|
| Alfred Wk Yung Md | Director |
| Brian Alexander Md | Director |
| Faramarz Yousefzadeh | Director |
| John Firshkopf | Director |
| Webster Cavenee Md | Director |
| Sujan Ba Phd | Secretary |
| Contractor | Services | Location | Compensation |
|---|---|---|---|
| Iqvia | Clinical Research | 1700 PERIMETER PARK DR, Morrisville, NC 27560 | $6,912,811 |
| Berry Consultants | Clinical Research | 3345 BEE CAVES RD STE 201, Austin, TX 78746 | $646,050 |
| Medidata | Clinical Research | 350 HUDSON ST 9TH FLOOR, New York, NY 10014 | $417,880 |
| Line Item | Amount |
|---|---|
| Other Expenses | $8,715,223 |
| Salaries, Compensation, and Employee Benefits | $1,487,022 |
| Grants and Similar Amounts Paid | $250,000 |
| Professional Fundraising Fees | $0 |
| Total Fundraising Expense | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Fees for Services Other | $7,971,720 | $67,933 | - | $8,039,653 |
| Other Salaries and Wages | $574,103 | $205,965 | - | $780,068 |
| Current Officers, Directors, Trustees, and Key Employees | $430,106 | $154,306 | - | $584,412 |
| Grants to Domestic Orgs | $250,000 | - | - | $250,000 |
| Other Expenses | $226,217 | - | - | $226,217 |
| Fees for Services Legal | $162,297 | $54,681 | - | $216,978 |
| Payroll Taxes | $60,516 | $21,711 | - | $82,227 |
| Insurance | $77,659 | $3,764 | - | $81,423 |
| Office Expenses | $18,471 | $43,969 | - | $62,440 |
| Fees for Services Accounting | - | $55,864 | - | $55,864 |
| Other Employee Benefits | $29,670 | $10,645 | - | $40,315 |
| Travel | $32,648 | - | - | $32,648 |
| Total Functional Expenses | $9,833,407 | $618,838 | $0 | $10,452,245 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $10,803,174 |
| Expenses per Audited Statements | $10,452,245 |
| Total Expenses per Form 990 | $10,452,245 |
| Expenses Not Reported on Form 990 | $350,929 |
| Expenses Not Reported on Financial Statements | $0 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| National Brain Tumor Society | Newton, MA | 501(c)(3) | General Assistance | $250,000 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
| Liability | Amount |
|---|---|
| Refundable Advance | $1,500,000 |
“Chairman of the board reviews with accounting firm. Once form is complete, form is reviewed with the entire board.”
“Each director and officer is required to submit an updated conflict of interest statement on an annual basis. To the extent that relationships are identified via these statements and other information, the individual's constituent record in the company database is updated to include this information, facilitating periodic queries, as necessary. Any board member with a conflict must identify the conflict at any board meeting where the conflict is relevant. The member cannot be present at any part of the meeting where the relevant topic is discussed or voted on. The member cannot be counted for a quorum.”
“The board of directors is responsible for the review and approval of top level executive management compensation annually. Independent professional experts are called upon for higherlevel positions and assist in establishing executive salaries in the competitive marketplace. Salaries in both for profit and not for profit organizations are evaluated in order to attract the most talented personnel. Information is gathered, analyzed and discussed with the intent on ensuring that the executive compensation program falls within a reasonable range of competitive practices for comparable positions among similarly situated organizations. The review includes incentive plans and all fringe benefits as well as base salary arrangements.”
“The organization makes its governing documents, conflict of interest policy, and financial statements available to the public upon request.”
“The objective of remap-covid is to reduce mortality and morbidity in patients hospitalized with covid-19 infection.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 5402 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 1341423 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | TO PROMOTE AND ADVANCE SCIENTIFIC RESEARCH FOR PLATFORM CLINICAL TRIALS FOR RARE DISEASES. |
| IRS990/AddressChangeInd | 0 | X |
| IRS990/AllOtherContributionsAmt | 0 | 289935 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | JENNIFER HOFFMAN |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 6617144010 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 700 LARKSPUR LANDING CIRCLE STE 199 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | LARKSPUR |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | CA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 949391715 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 122821 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 28140238 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 3 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 154306 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 430106 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 584412 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 0 | 6912811 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 1 | 646050 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 2 | 417880 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 0 | 1700 PERIMETER PARK DR |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 1 | 3345 BEE CAVES RD STE 201 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 2 | 350 HUDSON ST 9TH FLOOR |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 0 | MORRISVILLE |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 1 | AUSTIN |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 2 | NEW YORK |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 0 | NC |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 1 | TX |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 2 | NY |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 0 | 27560 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 1 | 78746 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 2 | 10014 |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 0 | IQVIA |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 1 | BERRY CONSULTANTS |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 2 | MEDIDATA |
| IRS990/ContractorCompensationGrp/ServicesDesc | 0 | CLINICAL RESEARCH |
| IRS990/ContractorCompensationGrp/ServicesDesc | 1 | CLINICAL RESEARCH |
| IRS990/ContractorCompensationGrp/ServicesDesc | 2 | CLINICAL RESEARCH |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 365772 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 250000 |
| IRS990/CYInvestmentIncomeAmt | 0 | 5866 |
| IRS990/CYOtherExpensesAmt | 0 | 8715223 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 15491428 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 5410821 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 1487022 |
| IRS990/CYTotalExpensesAmt | 0 | 10452245 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 0 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 15863066 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 0 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 20190909 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/Desc | 0 | GBM AGILE (GLIOBLASTOMA ADAPTIVE GLOBAL INNOVATIVE LEARNING ENVIRONMENT) IS UNIQUELY DESIGNED AS A LONG-STANDING PLATFORM WITH THE ABILITY TO TEST MULTIPLE THERAPIES AT THE SAME TIME AGAINST A COMMON CONTROL (OR STANDARD OF CARE). THE PURPOSE IS TO EVALUATE MULTIPLE INVESTIGATIONAL TREATMENTS FOR EITHER NEWLY DIAGNOSED OR RECURRENT GLIOBLASTOMA TO DETERMINE IF ANY OF THESE STUDY TREATMENT(S) IMPROVE OVERALL SURVIVAL AS COMPARED TO STANDARD TREATMENTS. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 13 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 8399645 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 55864 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 55864 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 54681 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 162297 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 216978 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 67933 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 7971720 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 8039653 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 24662 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | GARY GORDON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | SUJAN BA PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | TIMOTHY CLOUGHESY MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | FARAMARZ YOUSEFZADEH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | JOHN FIRSHKOPF |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | BRIAN ALEXANDER MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | ALFRED WK YUNG MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | WEBSTER CAVENEE MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | MEREDITH BUXTON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | ROBERT MURRAY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | ASHLEY POWELL |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 65000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 60000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 434750 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 130277 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 174000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | CEO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | CHIEF BUSINESS OFFICER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | SENIOR DIRECTOR OF TRIAL OPERATIONS |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2017 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 0 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 8 |
| IRS990/GovernmentGrantsAmt | 0 | 75837 |
| IRS990/GrantAmt | 0 | 250000 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 250000 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 250000 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 15863066 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 8 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 3 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 3764 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 77659 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 81423 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 5866 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 5866 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 0 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | MD |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | OUR MISSION IS TO ACCELERATE THE DISCOVERY AND DEVELOPMENT OF CURES FOR PATIENTS WITH RARE AND DEADLY DISEASES. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 6639722 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 5277257 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 6639722 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 5277257 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 43969 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 18471 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 62440 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 10645 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 29670 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 40315 |
| IRS990/OtherExpensesGrp/Desc | 0 | PROGRAM SUPPLIES |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 226217 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 226217 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 750000 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 1500000 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 205965 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 574103 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 780068 |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 21711 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 60516 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 82227 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 41986 |
| IRS990/PrincipalOfficerNm | 0 | MEREDITH BUXTON |
| IRS990/PriorPeriodAdjustmentsAmt | 0 | -6773286 |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 541700 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | TRIAL REVENUE |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 15491428 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 15491428 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | REMAP-COVID THE OBJECTIVE OF REMAP-COVID IS TO REDUCE MORTALITY AND MORBIDITY IN PATIENTS HOSPITALIZED WITH COVID-19 INFECTION BY QUICKLY GENERATING NEW EVIDENCE ON AVAILABLE AND NOVEL TREATMENTS. THROUGH PARTNERSHIPS WITH ACADEMIA, INDUSTRY AND MULTIPLE HEALTHCARE SYSTEMS, GCAR IS SPONSORING REMAP-COVID IN THE US WITH THE UNIVERSITY OF PITTSBURGH SERVING AS THE US REGIONAL COORDINATING CENTER FOR REMAP-CAP. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 1248619 |
| IRS990/ProgSrvcAccomActy2Grp/GrantAmt | 0 | 0 |
| IRS990/ProgSrvcAccomActy2Grp/RevenueAmt | 0 | 2700000 |
| IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt | 0 | 185143 |
| IRS990/ProgSrvcAccomActyOtherGrp/GrantAmt | 0 | 0 |
| IRS990/ProgSrvcAccomActyOtherGrp/RevenueAmt | 0 | 150000 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 662857 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/PYInvestmentIncomeAmt | 0 | 2303 |
| IRS990/PYOtherExpensesAmt | 0 | 4397527 |
| IRS990/PYOtherRevenueAmt | 0 | 0 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 11250000 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 6688249 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 829384 |
| IRS990/PYTotalExpensesAmt | 0 | 5226911 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 11915160 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 5410821 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 0 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 1 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/RevenueAmt | 0 | 12641428 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 7272303 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 127365 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearAmt | 0 | 240000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus1YearAmt | 0 | 510000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus2YearsAmt | 0 | 750000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 1500000 |
| IRS990ScheduleA/First5Years509Ind | 0 | X |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 365772 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 662857 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 2687312 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 3715941 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 5866 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 5866 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt | 0 | 15491428 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 15491428 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/CurrentTaxYearMinus1YearAmt | 0 | 11250000 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt | 0 | 11250000 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 5866 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 5866 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 7434643 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearAmt | 0 | 14813273 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus1YearAmt | 0 | 6486326 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus2YearsAmt | 0 | 1723127 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt | 0 | 23022726 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearAmt | 0 | 14573273 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus1YearAmt | 0 | 5976326 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus2YearsAmt | 0 | 973127 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt | 0 | 21522726 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 15857200 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 11912857 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 2687312 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 30457369 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 15863066 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 11912857 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 2687312 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 30463235 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/DonatedServicesAndUseFcltsAmt | 0 | 350929 |
| IRS990ScheduleD/DonatedServicesUseFcltsAmt | 0 | 350929 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 350929 |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 10452245 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 0 | 1500000 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 0 | REFUNDABLE ADVANCE |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 350929 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 15863066 |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 0 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 10452245 |
| IRS990ScheduleD/TotalLiabilityAmt | 0 | 1500000 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 15863066 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 16213995 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 10803174 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | 1 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 250000 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 0 | 501(C)(3) |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | GENERAL ASSISTANCE |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | NATIONAL BRAIN TUMOR SOCIETY |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 043068130 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 55 CHAPEL STREET STE 200 |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | NEWTON |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | MA |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 02458 |
| IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt | 0 | BOARD MEMBERS REVIEW AND APPROVE ANY GRANT REQUESTS. |
| IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART I, LINE 2: |
| IRS990ScheduleI/Total501c3OrgCnt | 0 | 1 |
| IRS990ScheduleI/TotalOtherOrgCnt | 0 | 0 |
| IRS990ScheduleJ/AnyNonFixedPaymentsInd | 0 | 0 |
| IRS990ScheduleJ/BoardOrCommitteeApprovalInd | 0 | X |
| IRS990ScheduleJ/CompBasedOnRevenueOfFlngOrgInd | 0 | 0 |
| IRS990ScheduleJ/CompBsdNetEarnsFlngOrgInd | 0 | 0 |
| IRS990ScheduleJ/CompBsdNetEarnsRltdOrgsInd | 0 | 0 |
| IRS990ScheduleJ/CompBsdOnRevRelatedOrgsInd | 0 | 0 |
| IRS990ScheduleJ/EquityBasedCompArrngmInd | 0 | 0 |
| IRS990ScheduleJ/IndependentConsultantInd | 0 | X |
| IRS990ScheduleJ/InitialContractExceptionInd | 0 | 0 |
| IRS990/ScheduleJRequiredInd | 0 | 1 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/BaseCompensationFilingOrgAmt | 0 | 334750 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/BaseCompensationFilingOrgAmt | 1 | 157500 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/BonusFilingOrganizationAmount | 0 | 100000 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/BonusFilingOrganizationAmount | 1 | 16500 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/BonusRelatedOrganizationsAmt | 0 | 0 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/BonusRelatedOrganizationsAmt | 1 | 0 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/CompensationBasedOnRltdOrgsAmt | 0 | 0 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/CompensationBasedOnRltdOrgsAmt | 1 | 0 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/CompReportPrior990FilingOrgAmt | 0 | 0 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/CompReportPrior990FilingOrgAmt | 1 | 0 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/CompReportPrior990RltdOrgsAmt | 0 | 0 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/CompReportPrior990RltdOrgsAmt | 1 | 0 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/DeferredCompensationFlngOrgAmt | 0 | 0 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/DeferredCompensationFlngOrgAmt | 1 | 0 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/DeferredCompRltdOrgsAmt | 0 | 0 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/DeferredCompRltdOrgsAmt | 1 | 0 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/NontaxableBenefitsFilingOrgAmt | 0 | 24662 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/NontaxableBenefitsFilingOrgAmt | 1 | 0 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/NontaxableBenefitsRltdOrgsAmt | 0 | 0 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/NontaxableBenefitsRltdOrgsAmt | 1 | 0 |
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Displayed year
2020 • Form 990Detailed filing. Detailed filing data is available for this year.
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