Civic Intelligence

Life Raft Group Inc

EIN 82-0547746 • 501(c)3 • Wayne, NJ

View Organization Page

Profile

Enhancing survival and quality of life for people living with gist and other rare cancers through patient-powered research, education, empowerment and global advocacy efforts.

155 US Highway 46 West 202Wayne, NJ 07470

www.liferaftgroup.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

58th percentile

0.08x

Higher debt load relative to assets than 58% of similar nonprofits.

NTEE G • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

63rd percentile

0.14x

Higher debt load relative to revenue than 63% of similar nonprofits.

NTEE G • $1M-$5M nonprofits • Source year 2024

Net Margin

62nd percentile

19%

Higher net margin than 62% of similar nonprofits.

NTEE G • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

74th percentile

$155,246

Higher top officer pay than 74% of similar nonprofits.

Top officer pay equals 7.1% of source-year revenue.

NTEE G • $1M-$5M nonprofits • Source year 2024

Asset Growth

71st percentile

16%

Faster asset growth than 71% of similar nonprofits.

NTEE G • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

55th percentile

17%

Faster revenue growth than 55% of similar nonprofits.

NTEE G • $1M-$5M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets58th percentile

Assets

Up

$3,761,480

Up $517,434 (+16%) from 2023

Liabilities

Up

$301,915

Up $18,392 (+6.5%) from 2023

Net Assets

Up

$3,459,565

Up $499,042 (+17%) from 2023

Operations
Liabilities / Revenue63rd percentileNet Margin62nd percentile

Revenue

Up

$2,179,789

Up $317,823 (+17%) from 2023

Expenses

Up

$1,770,153

Up $57,866 (+3.4%) from 2023

Net Income

Up

$409,636

Up $259,957 (+174%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth71st percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$8.0M$6.0M$4.0M$2.0M$0Assets 2010: $5,898,418Liabilities 2010: $87,790Net Assets 2010: $5,810,6282010Assets 2011: $4,501,557Liabilities 2011: $85,619Net Assets 2011: $4,415,9382011Assets 2012: $3,578,709Liabilities 2012: $130,251Net Assets 2012: $3,448,4582012Assets 2013: $4,264,769Liabilities 2013: $82,290Net Assets 2013: $4,182,4792013Assets 2014: $4,881,275Liabilities 2014: $138,663Net Assets 2014: $4,742,6122014Assets 2015: $6,669,149Liabilities 2015: $117,015Net Assets 2015: $6,552,1342015Assets 2016: $5,244,565Liabilities 2016: $105,048Net Assets 2016: $5,139,5172016Assets 2017: $4,427,396Liabilities 2017: $94,937Net Assets 2017: $4,332,4592017Assets 2018: $3,671,932Liabilities 2018: $93,759Net Assets 2018: $3,578,1732018Assets 2019: $3,281,991Liabilities 2019: $124,441Net Assets 2019: $3,157,5502019Assets 2020: $3,323,199Liabilities 2020: $131,402Net Assets 2020: $3,191,7972020Assets 2021: $3,390,555Liabilities 2021: $209,903Net Assets 2021: $3,180,6522021Assets 2022: $2,905,317Liabilities 2022: $246,223Net Assets 2022: $2,659,0942022Assets 2023: $3,244,046Liabilities 2023: $283,523Net Assets 2023: $2,960,5232023Assets 2024: $3,761,480Liabilities 2024: $301,915Net Assets 2024: $3,459,5652024

Highlighted filing

2024

Assets$3,761,480
Liabilities$301,915
Net Assets$3,459,565
Open 2024 Filing

Operations Trend

Revenue Growth55th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2010: $2,835,3172010Expenses 2011: $2,974,3932011Expenses 2012: $2,380,1452012Revenue 2013: $3,145,446Expenses 2013: $2,411,426Net Income 2013: $734,0202013Revenue 2014: $2,837,304Expenses 2014: $2,277,171Net Income 2014: $560,1332014Revenue 2015: $4,188,288Expenses 2015: $2,378,766Net Income 2015: $1,809,5222015Revenue 2016: $954,741Expenses 2016: $2,367,358Net Income 2016: -$1,412,6172016Revenue 2017: $1,094,919Expenses 2017: $1,901,977Net Income 2017: -$807,0582017Revenue 2018: $1,201,324Expenses 2018: $1,955,610Net Income 2018: -$754,2862018Revenue 2019: $1,544,312Expenses 2019: $1,964,935Net Income 2019: -$420,6232019Revenue 2020: $2,030,922Expenses 2020: $1,996,675Net Income 2020: $34,2472020Revenue 2021: $1,973,515Expenses 2021: $1,984,660Net Income 2021: -$11,1452021Revenue 2022: $1,396,538Expenses 2022: $1,918,096Net Income 2022: -$521,5582022Revenue 2023: $1,861,966Expenses 2023: $1,712,287Net Income 2023: $149,6792023Revenue 2024: $2,179,789Expenses 2024: $1,770,153Net Income 2024: $409,6362024

Highlighted filing

2024

Revenue$2,179,789
Expenses$1,770,153
Net Income$409,636
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$3,761,480
Liabilities
$301,915
Net assets
$3,459,565
Revenue
$2,179,789
Expenses
$1,770,153
Net income
$409,636
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$3.76$0.30$3.46$2.18$1.77$0.41
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.24$0.28$2.96$1.86$1.71$0.15
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.91$0.25$2.66$1.40$1.92$0.52
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.39$0.21$3.18$1.97$1.98$0.01
2020Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.32$0.13$3.19$2.03$2.00$0.03
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.28$0.12$3.16$1.54$1.96$0.42
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.67$0.09$3.58$1.20$1.96$0.75
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.43$0.09$4.33$1.09$1.90$0.81
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.24$0.11$5.14$0.95$2.37$1.41
2015Detailed filing. Detailed filing data is available for this year.$6.67$0.12$6.55$4.19$2.38$1.81
2014Detailed filing. Detailed filing data is available for this year.$4.88$0.14$4.74$2.84$2.28$0.56
2013Detailed filing. Detailed filing data is available for this year.$4.26$0.08$4.18$3.15$2.41$0.73
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.58$0.13$3.45$2.38
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.50$0.09$4.42$2.97
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.90$0.09$5.81$2.84
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 17, 2025
Return Version
2024v5.2
Gross Receipts
$2,312,458
Mission and Program Overview

Mission

Enhancing survival and quality of life for people living with gist and other rare cancers through patient-powered research, education, empowerment and global advocacy efforts.

Enhancing survival and quality of life for people living with gist and other rare cancers through patient-powered research, education, empowerment and global advocacy efforts. The vision is to champion patient-powered science and drastically increase long-term survivorship for gist cancer patients.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$2,240,613$2,868,450▲ $627,837
Savings and Temporary Cash Investments$864,659$623,636▼ $241,023
Accounts Receivable$60,910$213,354▲ $152,444
Prepaid Expenses and Deferred Charges$2,382$7,123▲ $4,741
Land, Buildings, and Equipment, Net$410$6,080▲ $5,670
Cash and Non-Interest-Bearing Accounts$-1--
Total Assets$3,244,046$3,761,480▲ $517,434
Other Assets Total$75,073$42,837▼ $32,236
Liabilities
Accounts Payable and Accrued Expenses$212,537$263,119▲ $50,582
Other Liabilities$70,986$38,796▼ $32,190
Total Liabilities$283,523$301,915▲ $18,392
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$2,396,817$2,432,060▲ $35,243
Net Assets With Donor Restrictions$563,706$1,027,505▲ $463,799
Total Net Assets Fund Balance$2,960,523$3,459,565▲ $499,042
Total Liabilities and Net Assets / Fund Balance$3,244,046$3,761,480▲ $517,434

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$6,080$36,226$42,306
Compensation and Service Providers
Top Officer Pay74th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Sara RothschildExecutive DirectorFT$144,660$10,586$155,246
Laura OcchiuzziDeputy Executive DirectorFT$131,915$7,021$138,936
Robin EliaControllerPT$73,829$3,947$77,776

Board Members and Trustees

NameTitle
Gary GlasserPresident
Santy DisabatinoBoard Member & Treasurer
Bill BorwegenTrustee
Christa PereiraTrustee
Dr Monica AndersonTrustee
Jim HughesTrustee
John AbramsTrustee
Kay StolzerTrustee
Patricia Bonda-swensonTrustee
Stan BunnTrustee
Steve PontellTrustee
Teena PetersohnTrustee
Revenue and Support

Revenue Composition

Contributions and Grants
$2,089,809
Program Service Revenue
$0
Investment Income
$166,851
Other Revenue
$-76,871
All Other Contributions
$1,949,299
Change in Net Assets
$409,636

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,312,458
Revenue Not Reported on Financial Statements
$-132,669
Revenue Not Reported on Form 990
$-1,565
Other Revenue Adjustments
$-132,669
Total Revenue per Audited Statements
$2,310,893
Total Revenue per Form 990
$2,179,789
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$1,186,153
Other Expenses$559,000
Total Fundraising Expense$69,807
Grants and Similar Amounts Paid$25,000
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$619,916$26,953$26,953$673,822
Current Officers, Directors, Trustees, and Key Employees$342,202$14,878$14,878$371,958
Fees for Services Other$308,938$13,432$13,432$335,802
Payroll Taxes$89,297$3,883$3,883$97,063
Fees for Services Accounting$37,150$1,615$1,615$40,380
Office Expenses$34,676$1,508$1,508$37,692
Other Employee Benefits$32,195$1,399$1,399$34,993
Conferences and Meetings$30,509$1,327$1,327$33,163
Occupancy$26,294$1,143$1,143$28,580
Grants to Domestic Orgs$25,000--$25,000
Information Technology$7,863$342$342$8,547
Pension Plan Contributions$7,651$333$333$8,317
Fees for Services Legal$5,763$251$251$6,265
Advertising$3,345$145$145$3,635
Other Expenses$2,278$99$99$2,476
Insurance$1,561$68$68$1,697
Depreciation Depletion$1,122$49$49$1,220
Total Functional Expenses$1,630,539$69,807$69,807$1,770,153

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,902,822
Expenses per Audited Statements$1,770,153
Total Expenses per Form 990$1,770,153
Expenses Not Reported on Form 990$132,669
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Sarcoma Alliance for Research Through Collaboration (sarc)Ann Arbor, MI501 C 3Research Grant$25,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$132,669
Fundraising Gross Income$46,205
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Water of Life$26,504$26,504$15,249$11,255
Life Fest$157,716$17,206$27,849$-10,643
Total Events$186,715$46,205$132,669$-86,464
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Lease Liability$38,796
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“Form 990 is first reviewed by the controller, then by the executive director after discussion with the controller. It is also sent to the board treasurer and the board president and any questions or comments are discussed with the executive director and controller.”

Form 990, Part VI, Section B, Line 12C

“Potential conflicts are discussed annually at a board meeting.”

Form 990, Part VI, Section B, Line 15A

“At least once a year the executive director meets to review and discuss reports of comparable non-profit salaries prepared by independent organizations. This review provides the guidelines for reviewing and approving any salary recommendations proposed by the executive director.”

Form 990, Part VI, Section C, Line 18

“The organization makes its form 1023 and 990 available for public inspection through the organization's website, upon request and via www.guidestar.org.”

Form 990, Part VI, Section C, Line 19

“All governing documents, including a conflict of interest policy (part of by-laws), and financial statements are posted to the organization's website and are also made available upon request.”

Filing and Contact Details

Filer

Filer Name
Life Raft Group Inc
EIN
82-0547746
Phone
9738379092
Address
155 US HIGHWAY 46 WEST 202, WAYNE, NJ 07470

Signing Officer

Name
Sara Rothschild
Title
Exec. Director
Phone
9738379092
Signed
2025-11-17
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Sara Rothschild
Formed
2002
Legal Domicile
Nj
Voting Board Members
12
Independent Board Members
12
Employees
17
Volunteers
215

Preparer

Firm
Cliftonlarsonallen Llp
Address
293 EISENHOWER PARKWAY 2ND FLOOR, LIVINGSTON, NJ 07039
Preparer
Bridget Hartnett
Phone
9739949494
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“Other consulting services: program service expenses 308,938. Management and general expenses 13,432. Fundraising expenses 13,432. Total expenses 335,802.”

FORM 990, PART XII, LINE 2C:

“No change in the oversight or selection process from the prior year.”

Financial Statement Notes

PART X, LINE 2:

“The organization is exempt from federal and state income taxes under section 501 (c)(3) of the internal revenue code. The organiation follows accounting standards that provide clarification on accounting for uncertainty in income taxes recognized in the organization's financial statements. The guidance prescribes a recognition threshold and measurement attribute for the recognition and measurement of a tax position taken or expected to be taken in a tax return, and also provides guidance on de-recognition, classification, interest and penalties, disclosure and transition. The organization's policy is to recognize interest and penalties on unrecognized tax benefits in income tax expense. No interest and penalties were recorded during the year ended december 31, 2024. At december 31, 2024, there are no significant income tax uncertainties.”

PART XI, LINE 4B - OTHER ADJUSTMENTS:

“Special event expense -132,669.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Special event expenses 132,669.”

Raw XML AppendixShowing 400 of 596 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0ENHANCING SURVIVAL AND QUALITY OF LIFE FOR PEOPLE LIVING WITH GIST AND OTHER RARE CANCERS THROUGH PATIENT-POWERED RESEARCH, EDUCATION, EMPOWERMENT AND GLOBAL ADVOCACY EFFORTS. THE VISION IS TO CHAMPION PATIENT-POWERED SCIENCE AND DRASTICALLY INCREASE LONG-TERM SURVIVORSHIP FOR GIST CANCER PATIENTS.
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IRS990/Desc0RESEARCH: WE FUND AND MANAGE UNIQUELY COORDINATED RESEARCH INITIATIVES THAT ALWAYS KEEP THE NEEDS OF GIST PATIENTS FOREMOST. THE LIFE RAFT GROUP (LRG) CONTINUES TO LEAD A COLLABORATIVE TEAM OF WORLD-RENOWNED SCIENTISTS AND CLINICIANS IN GIST. LRG HAS THE LARGEST GIST PATIENT REGISTRY IN THE WORLD. OUR RESEARCH PARADIGM IS PATIENT-POWERED SCIENCE FOR LIFE. A COMPREHENSIVE APPROACH THAT COMPLIMENTS TRADITIONAL RESEARCH WITH REAL WORLD EVIDENCE SUPPORTED BY DATA.
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt123947
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt137021
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1410586
IRS990/Form990PartVIISectionAGrp/PersonNm0STAN BUNN
IRS990/Form990PartVIISectionAGrp/PersonNm1JIM HUGHES
IRS990/Form990PartVIISectionAGrp/PersonNm2CHRISTA PEREIRA
IRS990/Form990PartVIISectionAGrp/PersonNm3JOHN ABRAMS
IRS990/Form990PartVIISectionAGrp/PersonNm4TEENA PETERSOHN
IRS990/Form990PartVIISectionAGrp/PersonNm5GARY GLASSER
IRS990/Form990PartVIISectionAGrp/PersonNm6STEVE PONTELL
IRS990/Form990PartVIISectionAGrp/PersonNm7KAY STOLZER
IRS990/Form990PartVIISectionAGrp/PersonNm8DR MONICA ANDERSON
IRS990/Form990PartVIISectionAGrp/PersonNm9SANTY DISABATINO
IRS990/Form990PartVIISectionAGrp/PersonNm10PATRICIA BONDA-SWENSON
IRS990/Form990PartVIISectionAGrp/PersonNm11BILL BORWEGEN
IRS990/Form990PartVIISectionAGrp/PersonNm12ROBIN ELIA
IRS990/Form990PartVIISectionAGrp/PersonNm13LAURA OCCHIUZZI
IRS990/Form990PartVIISectionAGrp/PersonNm14SARA ROTHSCHILD
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1273829
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt13131915
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt14144660
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/TitleTxt0TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt1TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt2TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt3TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt4TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt5PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt6TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt7TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt8TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt9BOARD MEMBER & TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt10TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt11TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt12CONTROLLER
IRS990/Form990PartVIISectionAGrp/TitleTxt13DEPUTY EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14EXECUTIVE DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd00
IRS990/FormationYr02002
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0140510
IRS990/FundraisingDirectExpensesAmt0132669
IRS990/FundraisingGrossIncomeAmt046205
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt012
IRS990/GrantAmt025000
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt025000
IRS990/GrantsToDomesticOrgsGrp/TotalAmt025000
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt02312458
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt012
IRS990/IndivRcvdGreaterThan100KCnt02
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIXInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt0342
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt0342
IRS990/InformationTechnologyGrp/ProgramServicesAmt07863
IRS990/InformationTechnologyGrp/TotalAmt08547
IRS990/InsuranceGrp/FundraisingAmt068
IRS990/InsuranceGrp/ManagementAndGeneralAmt068
IRS990/InsuranceGrp/ProgramServicesAmt01561
IRS990/InsuranceGrp/TotalAmt01697
IRS990/InvestmentIncomeGrp/ExclusionAmt0166851
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0166851
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt02240613
IRS990/InvestmentsPubTradedSecGrp/EOYAmt02868450
IRS990/IRPDocumentCnt08
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt036226
IRS990/LandBldgEquipBasisNetGrp/BOYAmt0410
IRS990/LandBldgEquipBasisNetGrp/EOYAmt06080
IRS990/LandBldgEquipCostOrOtherBssAmt042306
IRS990/LegalDomicileStateCd0NJ
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0ENHANCING SURVIVAL AND QUALITY OF LIFE FOR PEOPLE LIVING WITH GIST AND OTHER RARE CANCERS THROUGH PATIENT-POWERED RESEARCH, EDUCATION, EMPOWERMENT AND GLOBAL ADVOCACY EFFORTS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt02960523
IRS990/NetAssetsOrFundBalancesEOYAmt03459565
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-86464
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-86464
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0-1565
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt02396817
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt02432060
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt01143
IRS990/OccupancyGrp/ManagementAndGeneralAmt01143
IRS990/OccupancyGrp/ProgramServicesAmt026294
IRS990/OccupancyGrp/TotalAmt028580
IRS990/OfficeExpensesGrp/FundraisingAmt01508
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt01508
IRS990/OfficeExpensesGrp/ProgramServicesAmt034676
IRS990/OfficeExpensesGrp/TotalAmt037692
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt075073
IRS990/OtherAssetsTotalGrp/EOYAmt042837
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt01399
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt01399
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt032195
IRS990/OtherEmployeeBenefitsGrp/TotalAmt034993
IRS990/OtherExpensesGrp/Desc0MEETINGS/EDUCATIONAL SE
IRS990/OtherExpensesGrp/Desc1COMMUNICATIONS
IRS990/OtherExpensesGrp/Desc2PRINTING & PUBLICATIONS
IRS990/OtherExpensesGrp/Desc3POSTAGE
IRS990/OtherExpensesGrp/FundraisingAmt01744
IRS990/OtherExpensesGrp/FundraisingAmt1486
IRS990/OtherExpensesGrp/FundraisingAmt2152
IRS990/OtherExpensesGrp/FundraisingAmt399
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt01744
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1486
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt2152
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt399
IRS990/OtherExpensesGrp/ProgramServicesAmt040120
IRS990/OtherExpensesGrp/ProgramServicesAmt111171
IRS990/OtherExpensesGrp/ProgramServicesAmt23488
IRS990/OtherExpensesGrp/ProgramServicesAmt32278
IRS990/OtherExpensesGrp/TotalAmt043608
IRS990/OtherExpensesGrp/TotalAmt112143
IRS990/OtherExpensesGrp/TotalAmt23792
IRS990/OtherExpensesGrp/TotalAmt32476
IRS990/OtherInd0X
IRS990/OtherLiabilitiesGrp/BOYAmt070986
IRS990/OtherLiabilitiesGrp/EOYAmt038796
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0OTHER
IRS990/OtherRevenueMiscGrp/ExclusionAmt09593
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt09593
IRS990/OtherRevenueTotalAmt09593
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt026953
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt026953
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0619916
IRS990/OtherSalariesAndWagesGrp/TotalAmt0673822
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt03883
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt03883
IRS990/PayrollTaxesGrp/ProgramServicesAmt089297
IRS990/PayrollTaxesGrp/TotalAmt097063
IRS990/PensionPlanContributionsGrp/FundraisingAmt0333
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt0333
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt07651
IRS990/PensionPlanContributionsGrp/TotalAmt08317
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt02382
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt07123
IRS990/PrincipalOfficerNm0SARA ROTHSCHILD
IRS990/PriorPeriodAdjustmentsAmt090971
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0INFORMATION, EDUCATION, ADVOCACY, OUTREACH & ENGAGEMENT: THE LRG PROVIDES SUPPORT, INTERVENTION, EDUCATION AND ADVOCACY TO GIST PATIENTS, THEIR FAMILIES, AND CAREGIVERS. LOCAL SUPPORT IS AVAILABLE TO THE GIST COMMUNITY THROUGH A NETWORK OF LRG MENTORS AND VOLUNTEERS. OUR EDUCATION PROGRAMS ARE OFFERED WORLDWIDE. OUR GIST DAYS OF LEARNING ANDOUR BIENNIAL LIFE FEST EVENT GATHER EXPERTS FROM ACROSS THE GLOBE TO BRING THE MOST UP TO DATE INFORMATION ON GIST RESEARCH, EMERGING THERAPIES AND UPDATES ON THE WORLD OF GIST. OUR OUTREACH AND ENGAGEMENT EFFORTS ALSO INCLUDE PATIENT SUPPORT GROUPS, FOCUS GROUPS, MONTHLY WEBCASTS, OUR WEBSITE, ACCESS TO OUR CLINICAL TRIALS DATABASE AND OUR WORLDWIDE GIST SPECIALIST DATABASE. EXPERT PATIENT TRAINING IS OFFERED TO ALL MEMBERS.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0488643
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt01569132
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt020000
IRS990/PYInvestmentIncomeAmt0136128
IRS990/PYOtherExpensesAmt0478566
IRS990/PYOtherRevenueAmt076964
IRS990/PYProgramServiceRevenueAmt079742
IRS990/PYRevenuesLessExpensesAmt0149679
IRS990/PYSalariesCompEmpBnftPaidAmt01213721
IRS990/PYTotalExpensesAmt01712287
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt01861966
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0409636
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0864659
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0623636
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0OTHER INCOME - 2020 AMOUNT: $ 599. 2021 AMOUNT: $ 79. 2022 AMOUNT: $ 667. 2024 AMOUNT: $ 9,593.
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc0SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt02089809
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt01569132
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt01313670
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt01875368
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt01996886
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt08844865
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt0166851
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt0130698
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt041019
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt01027
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt013518
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0353113
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt0533575
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt09593
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt0667
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt079
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt0599
IRS990ScheduleA/OtherIncome170Grp/TotalAmt010938
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.57450
IRS990ScheduleA/PublicSupportPY170Pct00.58790
IRS990ScheduleA/PublicSupportTotal170Amt05290483
IRS990ScheduleA/SubstantialContributorsTotAmt03554382
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt02089809
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt01569132
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt01313670
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt01875368
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt01996886
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt08844865

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