Pmg Awareness Organization Inc.

“CASH CONTRIBUTION: 9,400”

“Expenses office expense 1,529 information technology 8,476 travel 973 convention 32,939 insurance 1,976 bank and merchant fees 1,008 gifts 399 licenses & fees 35 meals 67 supplies 110 total 47,512”

“To build a community of support to enhance the lives of those affected by polymicrogyria, through education, advocacy and promoting awareness.”

“Pmg awareness organization inc. Supported the families affected by polymicrogyria through a 2 day convention held to bring those families together to offer support to each other and to learn about therapy options, current research in the field and known causes of the disease. The convention had approximately 100 attendees.”

“Global genes grant: the pmg awareness organization (pmga) was a recipient of the continuity of care rare patient impact grant, made possible by global genes. Applicants were families who are affected by polymicrogyria (pmg) and who have found themselves struggling with loss of wages, educational aspects such as issues with internet capabilities, homeschooling, technology, telehealth, etc. Due to the covid-19 pandemic. Eight recipients received 1,175. Pmga retained 600 which was allowed for administrative expenses. Foundation source grant: an employee of isec inc., entered pmga in for the opportunity to be awarded a grant through foundation source. With this grant, pmga had "grant-giving". Applicants were families who are affected by polymicrogyria (pmg) and we awarded three winners 500 each on november 27th. Applicants had to tell us what they were thankful for to be entered into the drawing. Then week of thanksgiving, we shared what our community is thankful for through our online and social media outlets to spread positivity and encouragement.”