Liabilities / Assets
57th percentile
Tied with the lowest-debt nonprofits in its peer group.
990 • Fiscal year 2019 • EIN 81-3669443
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
57th percentile
Tied with the lowest-debt nonprofits in its peer group.
Liabilities / Revenue
57th percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
77th percentile
Higher net margin than 77% of similar nonprofits.
Top Officer Pay
77th percentile
Higher top officer pay than 77% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
75th percentile
Faster asset growth than 75% of similar nonprofits.
Revenue Growth
74th percentile
Faster revenue growth than 74% of similar nonprofits.
Assets
Up$428,052
Up $86,430 (+25%) from 2018
Net Assets
Up$428,052
Up $86,430 (+25%) from 2018
Liabilities
Flat$0
Flat from 2018
Revenue
Up$398,734
Up $73,341 (+23%) from 2018
Expenses
Up$312,304
Up $124,543 (+66%) from 2018
Net Income
Down$86,430
Down $51,202 (-37%) from 2018
Generate awareness and help fund medical and scientific research dedicated to curing multiple sulfatase deficiency (msd)
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Rtn Earn Endowment Incm Other Fnds | $341,622 | $428,052 | ▲ $86,430 |
| Cash and Non-Interest-Bearing Accounts | $317,825 | $406,760 | ▲ $88,935 |
| Land, Buildings, and Equipment, Net | $23,797 | $21,292 | ▼ $2,505 |
| Pd in Cap Srpls Land Bldg Eqp Fund | $0 | $0 | → $0 |
| Cap Stk Tr Prin Current Funds | $0 | $0 | → $0 |
| Total Assets | $341,622 | $428,052 | ▲ $86,430 |
| Liabilities | |||
| Total Liabilities | $0 | $0 | → $0 |
| Net Assets / Fund Balance | |||
| Total Net Assets Fund Balance | $341,622 | $428,052 | ▲ $86,430 |
| Total Liabilities and Net Assets / Fund Balance | $341,622 | $428,052 | ▲ $86,430 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Other Land Buildings | $21,292 | $3,758 | $25,050 |
| Name | Title |
|---|---|
| Gigi Burk | Development Chair |
| Dr Mauricio De Castro | Research Chair |
| Dr Jennifer Frank | President |
| John Ewen | Vice President |
| Amanda Burke | Director |
| Dr George Loukatos | Director |
| Mike Streiff | Director |
| Renee Elliot | Director |
| Richard Schega | Director |
| Sebastian Ballauz | Director |
| Hope Blankenship | Treasurer |
| Contribution Type | Contribution Count | Reported Amount | Valuation Method |
|---|---|---|---|
| Other Non Cash Contri Table | 27 | $58,695 | Estimate of Services |
| Total Noncash Contributions | 27 | $58,695 | - |
| Line Item | Amount |
|---|---|
| Other Expenses | $152,187 |
| Total Fundraising Expense | $148,270 |
| Grants and Similar Amounts Paid | $111,651 |
| Salaries, Compensation, and Employee Benefits | $48,466 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $111,651 | - | - | $111,651 |
| Other Salaries and Wages | $7,348 | $8,309 | $29,438 | $45,095 |
| Fees for Services Other | $5,961 | $858 | $34,054 | $40,873 |
| Advertising | $1,353 | - | $5,688 | $7,041 |
| Other Expenses | $2,148 | $1,869 | $4,222 | $4,222 |
| Payroll Taxes | $549 | $621 | $2,201 | $3,371 |
| All Other Expenses | $473 | - | $2,582 | $3,055 |
| Depreciation Depletion | $2,505 | - | - | $2,505 |
| Travel | $2,123 | - | $11 | $2,134 |
| Insurance | - | $1,228 | - | $1,228 |
| Conferences and Meetings | $440 | - | $634 | $1,074 |
| Total Functional Expenses | $135,471 | $28,563 | $148,270 | $312,304 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Ut Southwestern Medical Center | - | - | Help Fund Medical and Scientific Research Dedicated to Curing Multiple Sulfatase Deficiency (msd) | $110,401 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $0 |
| Fundraising Gross Income | $0 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Various Small Funraising Events | $251,055 | - | - | - |
| Total Events | $251,055 | - | - | - |
“No other committee or board has authority to act on behalf of the governing board”
“The president of the board reviews the form 990 before signing and filing.”
“AVAILABLE UPON REQUEST”
“Other professional fees: program service expenses 5,961. Management and general expenses 858. Fundraising expenses 34,054. Total expenses 40,873.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 1 |
| IRS990/AcctCompileOrReviewBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | GENERATE AWARENESS AND HELP FUND MEDICAL AND SCIENTIFIC RESEARCH DEDICATED TO CURING MULTIPLE SULFATASE DEFICIENCY (MSD) |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 5688 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 1353 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 7041 |
| IRS990/AllOtherContributionsAmt | 0 | 147321 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 2582 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 473 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 3055 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 0 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | AMBER OLSEN |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 2284474820 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 7600 LAKERIDGE DRIVE |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | OCEAN SPRINGS |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | MS |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 39564 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CapStkTrPrinCurrentFundsGrp/BOYAmt | 0 | 0 |
| IRS990/CapStkTrPrinCurrentFundsGrp/EOYAmt | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 317825 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 406760 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 0 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 634 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 440 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 1074 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 251055 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 398376 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 111651 |
| IRS990/CYInvestmentIncomeAmt | 0 | 358 |
| IRS990/CYOtherExpensesAmt | 0 | 152187 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 86430 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 48466 |
| IRS990/CYTotalExpensesAmt | 0 | 312304 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 148270 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 398734 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 1 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 2505 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 2505 |
| IRS990/Desc | 0 | GENERATING FUNDS TO PROVIDE AWARENESS AND REASEARCH A CURE FOR MSD |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 0 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 135471 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 34054 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 858 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 5961 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 40873 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | JOHN EWEN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | DR MAURICIO DE CASTRO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | DR JENNIFER FRANK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | SEBASTIAN BALLAUZ |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | MIKE STREIFF |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | GIGI BURK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | RICHARD SCHEGA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | HOPE BLANKENSHIP |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | RENEE ELLIOT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | AMANDA BURKE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | DR GEORGE LOUKATOS |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | VICE PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | RESEARCH CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DEVELOPMENT CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2016 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedInd | 0 | 0 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 251055 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 0 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 0 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 11 |
| IRS990/GrantAmt | 0 | 111651 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 111651 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 111651 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 398734 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 0 |
| IRS990/IndependentVotingMemberCnt | 0 | 11 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 1228 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 1228 |
| IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt | 0 | 358 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 358 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 4 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 3758 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 23797 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 21292 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 25050 |
| IRS990/LegalDomicileStateCd | 0 | MS |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingCashInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 0 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | GENERATE AWARENESS AND HELP FUND MEDICAL AND SCIENTIFIC RESEARCH DEDICATED TO CURING MULTIPLE SULFATASE DEFICIENCY (MSD) |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 341622 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 428052 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NoncashContributionsAmt | 0 | 58695 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrgDoesNotFollowFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | IN KIND EXPENSE |
| IRS990/OtherExpensesGrp/Desc | 1 | OTHER EXPENSES |
| IRS990/OtherExpensesGrp/Desc | 2 | OFFICE EXPENSE |
| IRS990/OtherExpensesGrp/Desc | 3 | DUES AND SUBSCRIPTIONS |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 43017 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 17282 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 9141 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 3 | 4222 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 15678 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 1869 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 920 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 2148 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 58695 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 18202 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 13158 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 4222 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 29438 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 8309 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 7348 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 45095 |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 2201 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 621 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 549 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 3371 |
| IRS990/PdInCapSrplsLandBldgEqpFundGrp/BOYAmt | 0 | 0 |
| IRS990/PdInCapSrplsLandBldgEqpFundGrp/EOYAmt | 0 | 0 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrincipalOfficerNm | 0 | AMBER OLSEN |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 325171 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 112798 |
| IRS990/PYInvestmentIncomeAmt | 0 | 222 |
| IRS990/PYOtherExpensesAmt | 0 | 74963 |
| IRS990/PYOtherRevenueAmt | 0 | 0 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 137632 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/PYTotalExpensesAmt | 0 | 187761 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 325393 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 86430 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 0 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/RevenueAmt | 0 | 325393 |
| IRS990/RtnEarnEndowmentIncmOthFndsGrp/BOYAmt | 0 | 341622 |
| IRS990/RtnEarnEndowmentIncmOthFndsGrp/EOYAmt | 0 | 428052 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 339681 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 280122 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 105448 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 725251 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 358 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 222 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 27 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 607 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 358 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 222 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 27 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 607 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.00080 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.99920 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 725251 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 339681 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 280122 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 105448 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 725251 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 340039 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 280344 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 105475 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 725858 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt | 0 | 21292 |
| IRS990ScheduleD/OtherLandBuildingsGrp/DepreciationAmt | 0 | 3758 |
| IRS990ScheduleD/OtherLandBuildingsGrp/OtherCostOrOtherBasisAmt | 0 | 25050 |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 21292 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 251055 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 251055 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | VARIOUS SMALL FUNRAISING EVENTS |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 251055 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 251055 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | 0 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 110401 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | HELP FUND MEDICAL AND SCIENTIFIC RESEARCH DEDICATED TO CURING MULTIPLE SULFATASE DEFICIENCY (MSD) |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | UT SOUTHWESTERN MEDICAL CENTER |
| IRS990/ScheduleJRequiredInd | 0 | 0 |
| IRS990ScheduleM/AnyPropertyThatMustBeHeldInd | 0 | 0 |
| IRS990ScheduleM/OtherNonCashContriTableGrp/ContributionCnt | 0 | 27 |
| IRS990ScheduleM/OtherNonCashContriTableGrp/Desc | 0 | VARIOUS GOODS AND SERVICES |
| IRS990ScheduleM/OtherNonCashContriTableGrp/MethodOfDeterminingRevenuesTxt | 0 | ESTIMATE OF SERVICES |
| IRS990ScheduleM/OtherNonCashContriTableGrp/NonCashCheckboxInd | 0 | X |
| IRS990ScheduleM/OtherNonCashContriTableGrp/NoncashContributionsRptF990Amt | 0 | 58695 |
| IRS990ScheduleM/ReviewProcessUnusualNCGiftsInd | 0 | 0 |
| IRS990ScheduleM/ThirdPartiesUsedInd | 0 | 0 |
| IRS990/ScheduleORequiredInd | 0 | 1 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | NO OTHER COMMITTEE OR BOARD HAS AUTHORITY TO ACT ON BEHALF OF THE GOVERNING BOARD |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | THE PRESIDENT OF THE BOARD REVIEWS THE FORM 990 BEFORE SIGNING AND FILING. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | AVAILABLE UPON REQUEST |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | OTHER PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 5,961. MANAGEMENT AND GENERAL EXPENSES 858. FUNDRAISING EXPENSES 34,054. TOTAL EXPENSES 40,873. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990, PART VI, SECTION A, LINE 8B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PART VI, SECTION B, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PART VI, SECTION C, LINE 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PART IX, LINE 11G |
| IRS990/SchoolOperatingInd | 0 | 0 |
| IRS990/SignificantChangeInd | 0 | 0 |
| IRS990/SignificantNewProgramSrvcInd | 0 | 0 |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 0 | MS |
| IRS990/SubjectToExcsTaxNetInvstIncInd | 0 | 0 |
| IRS990/SubjectToProxyTaxInd | 0 | 0 |
| IRS990/SubjToTaxRmnrtnExPrchtPymtInd | 0 | 0 |
| IRS990/TaxablePartyNotificationInd | 0 | 0 |
| IRS990/TaxExemptBondsInd | 0 | 0 |
| IRS990/TerminateOperationsInd | 0 | 0 |
| IRS990/TotalAssetsBOYAmt | 0 | 341622 |
| IRS990/TotalAssetsEOYAmt | 0 | 428052 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 341622 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 428052 |
| IRS990/TotalCompGreaterThan150KInd | 0 | 0 |
| IRS990/TotalContributionsAmt | 0 | 398376 |
| IRS990/TotalEmployeeCnt | 0 | 0 |
| IRS990/TotalFunctionalExpensesGrp/FundraisingAmt | 0 | 148270 |
| IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt | 0 | 28563 |
| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 135471 |
| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 312304 |
| IRS990/TotalGrossUBIAmt | 0 | 0 |
| IRS990/TotalLiabilitiesBOYAmt | 0 | 0 |
| IRS990/TotalLiabilitiesEOYAmt | 0 | 0 |
| IRS990/TotalLiabilitiesGrp/BOYAmt | 0 | 0 |
| IRS990/TotalLiabilitiesGrp/EOYAmt | 0 | 0 |
| IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt | 0 | 341622 |
| IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt | 0 | 428052 |
| IRS990/TotalOtherCompensationAmt | 0 | 0 |
| IRS990/TotalProgramServiceExpensesAmt | 0 | 135471 |
| IRS990/TotalReportableCompFromOrgAmt | 0 | 0 |
| IRS990/TotalRevenueGrp/ExclusionAmt | 0 | 0 |
| IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 358 |
| IRS990/TotalRevenueGrp/TotalRevenueColumnAmt | 0 | 398734 |
| IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/TotalVolunteersCnt | 0 | 125 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt | 0 | 341622 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt | 0 | 428052 |
| IRS990/TotReportableCompRltdOrgAmt | 0 | 0 |
| IRS990/TravelGrp/FundraisingAmt | 0 | 11 |
| IRS990/TravelGrp/ProgramServicesAmt | 0 | 2123 |
| IRS990/TravelGrp/TotalAmt | 0 | 2134 |
| IRS990/TrnsfrExmptNonChrtblRltdOrgInd | 0 | 0 |
| IRS990/TypeOfOrganizationCorpInd | 0 | X |
| IRS990/UnrelatedBusIncmOverLimitInd | 0 | 0 |
| IRS990/UponRequestInd | 0 | X |
| IRS990/USAddress/AddressLine1Txt | 0 | 7600 LAKERIDGE DRIVE |
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Displayed year
2019 • Form 990Detailed filing. Detailed filing data is available for this year.