Civic Intelligence

Runx1 Foundation

990 • Fiscal year 2023 • EIN 81-3557785

Jan 01, 2023 to Dec 31, 2023 • Filed on Aug 02, 2024

Organization Profilewww.runx1-fpd.org

View Organization Page

1482 E Valley Rd Ste 137Santa Barbara, CA 93108

(805) 880-4105

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

92nd percentile

0.90x

Higher debt load relative to assets than 92% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Liabilities / Revenue

82nd percentile

0.60x

Higher debt load relative to revenue than 82% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Net Margin

10th percentile

-34%

Higher net margin than 10% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Top Officer Pay

97th percentile

$448,059

Higher top officer pay than 97% of similar nonprofits.

Top officer pay equals 28.9% of source-year revenue.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Asset Growth

81st percentile

28%

Faster asset growth than 81% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2023

Revenue Growth

93rd percentile

131%

Faster revenue growth than 93% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2023

Balance Sheet
Liabilities / Assets92nd percentile

Assets

Up

$1,031,227

Up $223,846 (+28%) from 2022

Net Assets

Down

$104,979

Down $520,734 (-83%) from 2022

Liabilities

Up

$926,248

Up $744,580 (+410%) from 2022

Revenue And Expenses
Liabilities / Revenue82nd percentileNet Margin10th percentile

Revenue

Up

$1,549,012

Up $878,293 (+131%) from 2022

Expenses

Down

$2,069,746

Down $810,686 (-28%) from 2022

Net Income

Up

-$520,734

Up $1,688,979 (+76%) from 2022

Historical Trend

Balance Sheet Trend

Asset Growth81st percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$4.0M$3.0M$2.0M$1.0M$0Assets 2018: $108,792Liabilities 2018: $12,957Net Assets 2018: $95,8352018Assets 2019: $328,583Liabilities 2019: $3,752Net Assets 2019: $324,8312019Assets 2020: $310,712Liabilities 2020: $202,610Net Assets 2020: $108,1022020Assets 2021: $3,085,064Liabilities 2021: $249,640Net Assets 2021: $2,835,4242021Assets 2022: $807,381Liabilities 2022: $181,668Net Assets 2022: $625,7132022Assets 2023: $1,031,227Liabilities 2023: $926,248Net Assets 2023: $104,9792023Assets 2024: $319,651Liabilities 2024: $164,817Net Assets 2024: $154,8342024

Highlighted filing

2023

Assets$1,031,227
Liabilities$926,248
Net Assets$104,979
Open 2023 Filing

Operations Trend

Revenue Growth93rd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0M-$4.0MRevenue 2018: $1,543,801Expenses 2018: $1,554,445Net Income 2018: -$10,6442018Revenue 2019: $2,367,314Expenses 2019: $2,138,318Net Income 2019: $228,9962019Revenue 2020: $1,432,405Expenses 2020: $1,649,134Net Income 2020: -$216,7292020Revenue 2021: $5,336,089Expenses 2021: $2,608,769Net Income 2021: $2,727,3202021Revenue 2022: $670,719Expenses 2022: $2,880,432Net Income 2022: -$2,209,7132022Revenue 2023: $1,549,012Expenses 2023: $2,069,746Net Income 2023: -$520,7342023Revenue 2024: $2,402,192Expenses 2024: $2,352,337Net Income 2024: $49,8552024

Highlighted filing

2023

Revenue$1,549,012
Expenses$2,069,746
Net Income-$520,734
Open 2023 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2023 to Dec 31, 2023
Signed
Aug 2, 2024
Return Version
2023v5.1
Gross Receipts
$1,549,012
Mission and Program Overview

Mission

Runx1 foundation's mission statement is to provide grants for relevant research projects in finding a cure for fpd/aml, along with supporting patients in the fpd/aml community by providing a forum in which to help connect, inform and educate patients and raise public awareness regarding the disorder.

See Schedule O.

Balance Sheet Detail
LineBeginningEndChange
Assets
Pledges and Grants Receivable-$869,068-
Cash and Non-Interest-Bearing Accounts$771,163$157,941▼ $613,222
Prepaid Expenses and Deferred Charges$32,000--
Total Assets$807,381$1,031,227▲ $223,846
Other Assets Total$4,218$4,218→ $0
Liabilities
Grants Payable-$699,068-
Other Liabilities$147,821$144,148▼ $3,673
Accounts Payable and Accrued Expenses$33,847$83,032▲ $49,185
Total Liabilities$181,668$926,248▲ $744,580
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$625,713$104,979▼ $520,734
Total Net Assets Fund Balance$625,713$104,979▼ $520,734
Total Liabilities and Net Assets / Fund Balance$807,381$1,031,227▲ $223,846
Compensation and Service Providers
Top Officer Pay97th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Katrin EricsonPresident Executive DirectoFT$428,910$19,149$448,059
Katrin EricsonPresident Executive Director-$307,359$140,700$448,059
Alex GonzalezDirector of DevelopmentFT$161,200$12,896$174,096
Amanda EggenDirector of Patient EngagemenFT$141,308$10,505$151,813
Amanda EggenDirector of Patient Engagement-$141,308$10,505$151,813

Board Members and Trustees

NameTitle
Timothy BabichChairperson
Monica BabichSecretary Treasurer CFO
Revenue and Support

Revenue Composition

Contributions and Grants
$1,542,823
Program Service Revenue
$0
Investment Income
$6,189
Other Revenue
$0
All Other Contributions
$1,532,831
Change in Net Assets
$-520,734

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,549,012
Total Revenue per Audited Statements
$1,549,012
Total Revenue per Form 990
$1,549,012
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$971,170
Grants and Similar Amounts Paid$815,318
Other Expenses$283,258
Total Fundraising Expense$221,674
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$815,318--$815,318
Current Officers, Directors, Trustees, and Key Employees$324,020$22,314$82,576$428,910
Other Salaries and Wages$294,301$20,268$75,001$389,570
Other Expenses$93,211--$93,211
Other Employee Benefits$44,915$3,093$11,447$59,455
Occupancy$41,434$2,762$11,049$55,245
Pension Plan Contributions$36,111$2,487$9,203$47,801
Payroll Taxes$34,323$2,364$8,747$45,434
Fees for Services Accounting-$36,138-$36,138
Office Expenses$19,817$1,073$4,292$25,182
Fees for Services Other$20,001-$3,685$23,686
Travel$12,844$856$3,425$17,125
Fees for Services Management-$15,739-$15,739
Advertising--$12,249$12,249
Insurance-$4,683-$4,683
Total Functional Expenses$1,736,295$111,777$221,674$2,069,746

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$2,069,746
Total Expenses per Audited Statements$2,069,746
Total Expenses per Form 990$2,069,746
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Boston Childrens HospitalBoston, MA501c3RiSE Grant Program$250,000
University of PennsylvaniaPhiladelphia, PA501c3RRP Independent Grant$235,000
Edward P Evans FoundationAndover, MA501c3Research pship with EP Evans$50,000
Childrens Hospital of PhiladelphiaPhiladelphia, PA501c3Independent RRP Grant$46,875
Dana Farber Cancer InstituteBoston, MA501c3Research partnered with ALSF$45,000
University of Mass Medical SchoolWorcester, MA501c3Research in partnership with MFCR$38,443
Albert Einstein College of MedicineBronx, NY501c3Research partnered with ALSF$30,000
Memorial Sloan Kettering Cancer CtrNew York, NY501c3Research in partnership with ALSF$30,000
Regents of University of CA Med SchSan Francisco, CA501c3Research in partnership with ALSF$30,000
St Jude Childrens ResearchMemphis, TN501c3Research in partnership with ALSF$30,000
University of Washington MedicineSeattle, WA501c3Research in partnership with ALSF$30,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
EIDL Note Payable$144,148
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Officer directors etc family relationship Part VI line 2

“Timothy and Monica Babich, the two co-directors, are married.”

Form 990 governing body review Part VI line 11

“The Voting Members of the Organization have reviewed the form 990 and all schedules and have unanimously agreed on its accuracy. All members have received a copy for their records.”

Governing documents etc available to public Part VI line 19

“The Organization will publish financial information, governing documents and conflict of interest policy on the Organizations website.”

Filing and Contact Details

Filer

Filer Name
RUNX1 Foundation dba RUNX1 Research Program
EIN
81-3557785
Address
1482 E Valley Rd Ste 137, Santa Barbara, CA 93108

Signing Officer

Name
Katrin Ericson
Title
President Exe
Phone
8058804105
Signed
2024-08-02
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Katrin Ericson
Formed
2016
Legal Domicile
CA
Voting Board Members
3
Independent Board Members
2
Employees
6
Volunteers
34

Preparer

Firm
Mullins PC
Address
7625 Wisconsin Avenue, Bethesda, MD 20814
Preparer
John Mullins
Phone
2027706371
Supplemental Narrative

Additional Explanations

Part III response or note to any other line in Part III

“Part I - Summary and Part III - Organizations Mission StatementTo provide grants for relevant research projects to find a cure for RUNX1-FPD, to raise public awareness, and to strengthen the community by providing a forum to help connect, inform and educate RUNX1-FPD patients and their families.”

Financial Statement Notes

Footnote for uncertain tax position under FIN 48 (Part X)

“The Organization has adopted the Financial Accounting Standards Board (FASB) Accounting Standards Codification (ASC) FASB ASC 740-10, Income Taxes, which prescribes measurement and disclosure requirements for current and deferred income tax provisions. The interpretation provides for a consistent approach in identifying and reporting uncertain tax provisions. It is managements belief that The Organization does not hold any uncertain tax positions.”

Raw XML AppendixShowing 400 of 506 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ProgSrvcAccomActy2Grp/Desc0Sponsored Research. 2023 co-funding partnership with the National Institutes of Health, National Institute of Allergy and Infectious Disease (NIAID) and National Cancer Institute (NCI), this grant mechanism supports 2 projects with scientific investigators Dr. Zon and Dr. Cantor both at Boston Childrens Hospital and their collaborators at NIAID and NCI, respectively. The two projects are entitled, Rescue of RUNX1 deficiency phenotypes in RUNX1-FPD patients treated with imatini and Defining clonal and metabolic alterations in the evolution of RUNX1-FPD.
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IRS990/ProgSrvcAccomActy3Grp/Desc0Sponsored Research. 2023 co-funding partnership with Alexs Lemonade Stand Foundation (ALSF) continued, $195,000 supported a wide array of ground breaking research projects spanning basic science honing in on gene regulatory networks affected by RUNX1 mutations, classification of RUNX1 variants via novel saturation mutagenesis methods, modeling clonal evolution driven by common secondary somatic mutations, development of clinical consensus guidelines for RUNX1-FPD and defining the role of NLRP3 inflammasome in RUNX1 deficiency.
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IRS990/ProgSrvcAccomActyOtherGrp/Desc1Sponsored Research. 2022 Mark Foundation Cancer Research (MFCR) Seeking Transformational Research Venture (STRIVE) - Continued Grant partnership. Sponsoring Institutes include research by Dr. Lucio Castilla, University of Massachusetts Medical School.
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IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0RiSE Grant Program
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1Research in partnership with ALSF
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2Independent RRP Grant
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt3Research partnered with ALSF
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt4Research partnered with ALSF
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt5Research in partnership with ALSF
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt6Research in partnership with ALSF
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt7Research in partnership with ALSF
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt8Research in partnership with MFCR
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt9RRP Independent Grant
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt10Research pship with EP Evans
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0Boston Childrens Hospital
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1University of Washington Medicine
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2Childrens Hospital of Philadelphia
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3Dana Farber Cancer Institute
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt4Albert Einstein College of Medicine
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt5St Jude Childrens Research
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt6Memorial Sloan Kettering Cancer Ctr
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt7Regents of University of CA Med Sch
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt8University of Mass Medical School
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt9University of Pennsylvania
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt10Edward P Evans Foundation
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IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt14333 Brooklyn Ave NE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt23615 Civic Center
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt3450 Brookline Ave
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt41300 Morris Park Ave
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt5262 Danny Thomas Place
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt61275 York Avenue
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt71855 Folsom St Ste 425
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt855 Lake Avenue
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt9338 South 19th Street
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt10300 Brickstone Square Ste 201
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Document Assets

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Filings

Displayed year

2023 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,031,227
Liabilities
$926,248
Net assets
$104,979
Revenue
$1,549,012
Expenses
$2,069,746
Net income
-$520,734
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$0.32$0.16$0.15$2.40$2.35$0.05
2023Detailed filing. Detailed filing data is available for this year.$1.03$0.93$0.10$1.55$2.07$0.52
2022Detailed filing. Detailed filing data is available for this year.$0.81$0.18$0.63$0.67$2.88$2.21
2021Detailed filing. Detailed filing data is available for this year.$3.09$0.25$2.84$5.34$2.61$2.73
2020Detailed filing. Detailed filing data is available for this year.$0.31$0.20$0.11$1.43$1.65$0.22
2019Detailed filing. Detailed filing data is available for this year.$0.33$0.00$0.32$2.37$2.14$0.23
2018Summary only. Only limited summary data is available for this year.$0.11$0.01$0.10$1.54$1.55$0.01