Civic Intelligence

Runx1 Foundation

990 • Fiscal year 2022 • EIN 81-3557785

Jan 01, 2022 to Dec 31, 2022 • Filed on May 04, 2023

Organization Profilewww.runx1-fpd.org

View Organization Page

1482 E Valley Rd Ste 137Santa Barbara, CA 93108

(805) 880-4105

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

77th percentile

0.23x

Higher debt load relative to assets than 77% of similar nonprofits.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2022

Liabilities / Revenue

79th percentile

0.27x

Higher debt load relative to revenue than 79% of similar nonprofits.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2022

Net Margin

2nd percentile

-329%

Higher net margin than 2% of similar nonprofits.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2022

Top Officer Pay

99th percentile

$428,985

Higher top officer pay than 99% of similar nonprofits.

Top officer pay equals 64.0% of source-year revenue.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2022

Asset Growth

1st percentile

-74%

Faster asset growth than 1% of similar nonprofits.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2021 to 2022

Revenue Growth

1st percentile

-87%

Faster revenue growth than 1% of similar nonprofits.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets77th percentile

Assets

Down

$807,381

Down $2,277,683 (-74%) from 2021

Net Assets

Down

$625,713

Down $2,209,711 (-78%) from 2021

Liabilities

Down

$181,668

Down $67,972 (-27%) from 2021

Revenue And Expenses
Liabilities / Revenue79th percentileNet Margin2nd percentile

Revenue

Down

$670,719

Down $4,665,370 (-87%) from 2021

Expenses

Up

$2,880,432

Up $271,663 (+10%) from 2021

Net Income

Down

-$2,209,713

Down $4,937,033 (-181%) from 2021

Historical Trend

Balance Sheet Trend

Asset Growth1st percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$4.0M$3.0M$2.0M$1.0M$0Assets 2018: $108,792Liabilities 2018: $12,957Net Assets 2018: $95,8352018Assets 2019: $328,583Liabilities 2019: $3,752Net Assets 2019: $324,8312019Assets 2020: $310,712Liabilities 2020: $202,610Net Assets 2020: $108,1022020Assets 2021: $3,085,064Liabilities 2021: $249,640Net Assets 2021: $2,835,4242021Assets 2022: $807,381Liabilities 2022: $181,668Net Assets 2022: $625,7132022Assets 2023: $1,031,227Liabilities 2023: $926,248Net Assets 2023: $104,9792023Assets 2024: $319,651Liabilities 2024: $164,817Net Assets 2024: $154,8342024

Highlighted filing

2022

Assets$807,381
Liabilities$181,668
Net Assets$625,713
Open 2022 Filing

Operations Trend

Revenue Growth1st percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0M-$4.0MRevenue 2018: $1,543,801Expenses 2018: $1,554,445Net Income 2018: -$10,6442018Revenue 2019: $2,367,314Expenses 2019: $2,138,318Net Income 2019: $228,9962019Revenue 2020: $1,432,405Expenses 2020: $1,649,134Net Income 2020: -$216,7292020Revenue 2021: $5,336,089Expenses 2021: $2,608,769Net Income 2021: $2,727,3202021Revenue 2022: $670,719Expenses 2022: $2,880,432Net Income 2022: -$2,209,7132022Revenue 2023: $1,549,012Expenses 2023: $2,069,746Net Income 2023: -$520,7342023Revenue 2024: $2,402,192Expenses 2024: $2,352,337Net Income 2024: $49,8552024

Highlighted filing

2022

Revenue$670,719
Expenses$2,880,432
Net Income-$2,209,713
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
May 4, 2023
Return Version
2022v5.0
Gross Receipts
$670,719
Mission and Program Overview

Mission

Runx1 foundation's mission statement is to provide grants for relevant research projects in finding a cure for fpd/aml, along with supporting patients in the fpd/aml community by providing a forum in which to help connect, inform and educate patients and raise public awareness regarding the disorder.

See Schedule O.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$3,051,996$771,163▼ $2,280,833
Prepaid Expenses and Deferred Charges$28,852$32,000▲ $3,148
Total Assets$3,085,066$807,381▼ $2,277,685
Other Assets Total$4,218$4,218→ $0
Liabilities
Other Liabilities$206,145$147,821▼ $58,324
Accounts Payable and Accrued Expenses$43,495$33,847▼ $9,648
Total Liabilities$249,640$181,668▼ $67,972
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$2,835,426$625,713▼ $2,209,713
Total Net Assets Fund Balance$2,835,426$625,713▼ $2,209,713
Total Liabilities and Net Assets / Fund Balance$3,085,066$807,381▼ $2,277,685
Compensation and Service Providers
Top Officer Pay99th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Katrin EricsonPresident Executive DirectoFT$408,485$20,500$428,985
Katrin EricsonPresident Executive Director-$292,722$136,263$428,985

Board Members and Trustees

NameTitle
Timothy BabichChairperson
Monica BabichSecretary Treasurer CFO
Revenue and Support

Revenue Composition

Contributions and Grants
$670,719
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$614,574
Change in Net Assets
$-2,209,713

Audited Revenue Reconciliation

Revenue per Audited Statements
$670,719
Total Revenue per Audited Statements
$670,719
Total Revenue per Form 990
$670,719
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,477,750
Salaries, Compensation, and Employee Benefits$929,656
Other Expenses$473,026
Total Fundraising Expense$214,638
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,340,000--$1,340,000
Current Officers, Directors, Trustees, and Key Employees$347,212$40,849$20,424$408,485
Other Salaries and Wages$231,267-$134,604$365,871
Foreign Grants$137,750--$137,750
Conferences and Meetings$136,399--$136,399
Fees for Services Other$55,363$44,637-$100,000
Other Employee Benefits$46,063$3,253$12,344$61,660
Other Expenses$59,637--$59,637
Occupancy$41,208$2,910$11,043$55,161
Pension Plan Contributions$36,432$2,573$9,763$48,768
Payroll Taxes$33,521$2,367$8,984$44,872
Fees for Services Accounting-$44,407-$44,407
Office Expenses$25,636$1,811$2,716$30,163
Fees for Services Management-$14,192-$14,192
Advertising--$12,401$12,401
Travel$8,803$622$2,359$11,784
Information Technology$4,870--$4,870
Insurance-$4,012-$4,012
Total Functional Expenses$2,504,161$161,633$214,638$2,880,432

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$2,880,432
Total Expenses per Audited Statements$2,880,432
Total Expenses per Form 990$2,880,432
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Boston Childrens HospitalBoston, MA501c3Research partnered with NIH$250,000
University of PennsylvaniaPhiladelphia, PA501c3Independent Research$200,000
Oregon Health & Science Univ FoundaPortland, OR501c3Research pship with ALSFEP Evans$150,000
Leland Stanford Junior UniversityStanford, CA501c3Research partnered with MFCR$125,000
University of ChicagoChicago, IL501c3Research in partnership with MFCR$125,000
University of Massachusetts MedicalWorcester, MA501c3Research partnered with MFCR$125,000
Vanderbilt University School of MedNashville, TN501c3Research pship with EP Evans$100,000
Boston Childrens HospitalBoston, MA501c3Research in partnership with ALSF$80,000
Childrens Hospital of PhiladelphiaPhiladelphia, PA501c3Research partnered with ALSF$50,000
Dana Farber Cancer InstituteBoston, MA501c3Research partnered with ALSF$45,000
Albert Einstein College of MedicineBronx, NY501c3Research partnered with ALSF$30,000
Memorial Sloan Kettering Cancer CtrNew York, NY501c3Research in partnership with ALSF$30,000
Univ of Washington School of MediciSeattle, WA501c3Research partnered with ALSF$30,000

International Summary

Spending
$137,500

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
East Asia and the PacificProgram servicesResearch--$87,500
Europe including Iceland and GreenlandProgram servicesResearch--$50,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
EIDL Note Payable$147,821
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Officer directors etc family relationship Part VI line 2

“Timothy and Monica Babich, the two co-directors, are married.”

Form 990 governing body review Part VI line 11

“The Voting Members of the Organization have reviewed the form 990 and all schedules and have unanimously agreed on its accuracy. All members have received a copy for their records.”

Governing documents etc available to public Part VI line 19

“The Organization will publish financial information, governing documents and conflict of interest policy on the Organizations website.”

Filing and Contact Details

Filer

Filer Name
RUNX1 Foundation dba RUNX1 Research Program
EIN
81-3557785
Address
1482 E Valley Rd Ste 137, Santa Barbara, CA 93108

Signing Officer

Name
Katrin Ericson
Title
President Exe
Phone
8058804105
Signed
2023-05-04
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Katrin Ericson
Formed
2016
Legal Domicile
CA
Voting Board Members
3
Independent Board Members
3
Employees
6
Volunteers
23

Preparer

Firm
Mullins PC
Address
7625 Wisconsin Avenue, Bethesda, MD 20814
Preparer
John Mullins
Phone
2027706371
Supplemental Narrative

Additional Explanations

Part III response or note to any other line in Part III

“Part I - Summary and Part III - Organizations Mission StatementTo provide grants for relevant research projects to find a cure for RUNX1-FPD, to raise public awareness, and to strengthen the community by providing a forum to help connect, inform and educate RUNX1-FPD patients and their families.”

Financial Statement Notes

Footnote for uncertain tax position under FIN 48 (Part X)

“The Organization has adopted the Financial Accounting Standards Board (FASB) Accounting Standards Codification (ASC) FASB ASC 740-10, Income Taxes, which prescribes measurement and disclosure requirements for current and deferred income tax provisions. The interpretation provides for a consistent approach in identifying and reporting uncertain tax provisions. It is managements belief that the Organization does not hold any uncertain tax positions.”

Raw XML AppendixShowing 400 of 526 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ProgSrvcAccomActy2Grp/Desc0Sponsored Research. 2022 co-funding partnership with Alexs Lemonade Stand Foundation (ALSF) continued, RUNX1 Familial Research Program granted $200,000 for research grants and $165,000 to Early Career Investigation (ECI) grants. Research grants were awarded to seven projects entitled Modeling Familial Platelet Disorder Mutations in Mice, Drug Screen for FPD/AML Therapeutics , Role of Inflammatory Microenvironment in Clonal Evolution and Progression from FPD to AML, Characterization of Pre-Leukemia Associated with Familial RUNX1 Mutations, Pharmacologic Enhancement of Residual Wild Type RUNX1 Protein Activity in RUNX1-FPD, and Identifying Therapeutic Targets to Prevent Progression of Familial RUNX1 Disorder to AML using Novel iPSC Models. Four early career investigators were supported.
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IRS990/ProgSrvcAccomActy3Grp/Desc02022 Independent grants include the continued support of researcher Dr. Nancy Speck at the University of Pennsylvania ($200,000) in the optimization of RUNX1-FPD CHIP mouse models. Other independent grants include projects that support an International RUNX1 database to aggregate clinicial and genetic patient data led by University of South Australia (87,750).
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IRS990/ProgSrvcAccomActyOtherGrp/Desc0Sponsored Research. In Partnership with the National Institutes of Health, National Institute of Allergy and Infectious Disease (NIAID) and National Cancer Institute (NCI), this grant mechanism supports a total of 2 projects with scientific investigators at Boston Childrens Hospital and their collaborators at NIAID and NCI. The two projects are entitled, Rescue of RUNX1 deficiency phenotypes in RUNX1-FPD patients treated with imatini and Defining clonal and metabolic alterations in the evolution of RUNX1-FPD.
IRS990/ProgSrvcAccomActyOtherGrp/Desc1Sponsored Research. 2022 Focused Impact Research (FIRE) grant program. Continued co-funding partnership with EP Evans Foundation supported two projects aimed at determining the role of inflammation in the initiation and progression of hematologic malignancies driven by germline RUNX1 mutations.
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IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0The Organization has adopted the Financial Accounting Standards Board (FASB) Accounting Standards Codification (ASC) FASB ASC 740-10, Income Taxes, which prescribes measurement and disclosure requirements for current and deferred income tax provisions. The interpretation provides for a consistent approach in identifying and reporting uncertain tax provisions. It is managements belief that the Organization does not hold any uncertain tax positions.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0Footnote for uncertain tax position under FIN 48 (Part X)
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IRS990ScheduleD/TotalRevenuePerForm990Amt0670719
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IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt087500
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt150000
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt0East Asia and the Pacific
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt1Europe including Iceland and Greenland
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt0Research
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IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0Independent Research
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt1Research partnered with ALSF
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt0East Asia and the Pacific
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt1Europe including Iceland and Greenland
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IRS990ScheduleI/RecipientTable/CashGrantAmt9200000
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IRS990ScheduleI/RecipientTable/CashGrantAmt11100000
IRS990ScheduleI/RecipientTable/CashGrantAmt1230000
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IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0Research partnered with NIH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1Research in partnership with ALSF
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2Research partnered with ALSF
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt3Research partnered with ALSF
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt4Research partnered with ALSF
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt5Research partnered with MFCR
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt6Research in partnership with ALSF
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt7Research pship with ALSFEP Evans
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt8Research partnered with MFCR
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt9Independent Research
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt10Research in partnership with MFCR
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt11Research pship with EP Evans
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt12Research partnered with ALSF
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0BOSTON CHILDRENS HOSPITAL
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1Boston Childrens Hospital
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2CHILDRENS HOSPITAL OF PHILADELPHIA
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3DANA FARBER CANCER INSTITUTE
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt4Albert Einstein College of Medicine
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt5LELAND STANFORD JUNIOR UNIVERSITY
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt6MEMORIAL SLOAN KETTERING CANCER CTR
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt7OREGON HEALTH & SCIENCE UNIV FOUNDA
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt8UNIVERSITY OF MASSACHUSETTS MEDICAL
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt9UNIVERSITY OF PENNSYLVANIA
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt10UNIVERSITY OF CHICAGO
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt11Vanderbilt University School of Med
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt12Univ of Washington School of Medici
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IRS990ScheduleI/RecipientTable/RecipientEIN11621816811
IRS990ScheduleI/RecipientTable/RecipientEIN12431519670
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0300 LONGWOOD AVE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt1300 Longwood Ave
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt23615 CIVIC CENTER
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt3450 BROOKLINE AVE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt41300 Morris Park Ave
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt5215 PANAMA STREET BUILDING D
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt61275 YORK AVENUE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt71121 SW SALMON STREET SUITE 100
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt855 LAKE AVENUE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt9338 SOUTH 19TH STREET
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt105841 S MARYLAND AVE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt111161 21st Ave S D3300
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt121959 NE Pacific S
IRS990ScheduleI/RecipientTable/USAddress/CityNm0Boston
IRS990ScheduleI/RecipientTable/USAddress/CityNm1Boston
IRS990ScheduleI/RecipientTable/USAddress/CityNm2Philadelphia
IRS990ScheduleI/RecipientTable/USAddress/CityNm3Boston
IRS990ScheduleI/RecipientTable/USAddress/CityNm4Bronx
IRS990ScheduleI/RecipientTable/USAddress/CityNm5Stanford
IRS990ScheduleI/RecipientTable/USAddress/CityNm6New York
IRS990ScheduleI/RecipientTable/USAddress/CityNm7Portland
IRS990ScheduleI/RecipientTable/USAddress/CityNm8Worcester
IRS990ScheduleI/RecipientTable/USAddress/CityNm9Philadelphia
IRS990ScheduleI/RecipientTable/USAddress/CityNm10Chicago
IRS990ScheduleI/RecipientTable/USAddress/CityNm11Nashville
IRS990ScheduleI/RecipientTable/USAddress/CityNm12Seattle
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IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd11TN
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd12WA

Document Assets

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Filings

Displayed year

2022 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$807,381
Liabilities
$181,668
Net assets
$625,713
Revenue
$670,719
Expenses
$2,880,432
Net income
-$2,209,713
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$0.32$0.16$0.15$2.40$2.35$0.05
2023Detailed filing. Detailed filing data is available for this year.$1.03$0.93$0.10$1.55$2.07$0.52
2022Detailed filing. Detailed filing data is available for this year.$0.81$0.18$0.63$0.67$2.88$2.21
2021Detailed filing. Detailed filing data is available for this year.$3.09$0.25$2.84$5.34$2.61$2.73
2020Detailed filing. Detailed filing data is available for this year.$0.31$0.20$0.11$1.43$1.65$0.22
2019Detailed filing. Detailed filing data is available for this year.$0.33$0.00$0.32$2.37$2.14$0.23
2018Summary only. Only limited summary data is available for this year.$0.11$0.01$0.10$1.54$1.55$0.01