Civic Intelligence

Tatton Brown Rahman Syndrome Community Inc.

990 • Fiscal year 2021 • EIN 81-2216511

Jan 01, 2021 to Dec 31, 2021 • Filed on Apr 25, 2022

Organization ProfileTBRSYNDROME.ORG
122 Hunns Lake RoadStanfordville, NY 12581

(845) 264-3016

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

69th percentile

0.02x

Higher debt load relative to assets than 69% of similar nonprofits.

2021 filings • NTEE G • <$500k nonprofits • Source year 2021

Liabilities / Revenue

68th percentile

0.02x

Higher debt load relative to revenue than 68% of similar nonprofits.

2021 filings • NTEE G • <$500k nonprofits • Source year 2021

Net Margin

91st percentile

82%

Higher net margin than 91% of similar nonprofits.

2021 filings • NTEE G • <$500k nonprofits • Source year 2021

Top Officer Pay

90th percentile

$23,750

Higher top officer pay than 90% of similar nonprofits.

Top officer pay equals 7.0% of source-year revenue.

2021 filings • NTEE G • <$500k nonprofits • Source year 2021

Asset Growth

94th percentile

200%

Faster asset growth than 94% of similar nonprofits.

2021 filings • NTEE G • <$500k nonprofits • Annualized from 2020 to 2021

Revenue Growth

91st percentile

245%

Faster revenue growth than 91% of similar nonprofits.

2021 filings • NTEE G • <$500k nonprofits • Annualized from 2020 to 2021

Balance Sheet
Liabilities / Assets69th percentile

Assets

Up

$422,765

Up $282,051 (+200%) from 2020

Net Assets

Up

$415,934

Up $275,220 (+196%) from 2020

Liabilities

Up

$6,831

Up $6,831 from 2020

Revenue And Expenses
Liabilities / Revenue68th percentileNet Margin91st percentile

Revenue

Up

$337,246

Up $239,591 (+245%) from 2020

Expenses

Up

$62,026

Up $37,629 (+154%) from 2020

Net Income

Up

$275,220

Up $201,962 (+276%) from 2020

Historical Trend

Balance Sheet Trend

Asset Growth94th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.0M$500K$0Assets 2020: $140,714Liabilities 2020: $0Net Assets 2020: $140,7142020Assets 2021: $422,765Liabilities 2021: $6,831Net Assets 2021: $415,9342021Assets 2022: $832,865Liabilities 2022: $8,658Net Assets 2022: $824,2072022Assets 2023: $868,444Liabilities 2023: $68,979Net Assets 2023: $799,4652023Assets 2024: $691,528Liabilities 2024: $20,956Net Assets 2024: $670,5722024

Highlighted filing

2021

Assets$422,765
Liabilities$6,831
Net Assets$415,934
Open 2021 Filing

Operations Trend

Revenue Growth91st percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$400K$200K$0-$200KRevenue 2020: $97,655Expenses 2020: $24,397Net Income 2020: $73,2582020Revenue 2021: $337,246Expenses 2021: $62,026Net Income 2021: $275,2202021Revenue 2022: $165,360Expenses 2022: $157,087Net Income 2022: $8,2732022Revenue 2023: $309,002Expenses 2023: $333,744Net Income 2023: -$24,7422023Revenue 2024: $270,669Expenses 2024: $399,562Net Income 2024: -$128,8932024

Highlighted filing

2021

Revenue$337,246
Expenses$62,026
Net Income$275,220
Open 2021 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2021 to Dec 31, 2021
Signed
Apr 25, 2022
Return Version
2021v4.2
Gross Receipts
$337,588
Mission and Program Overview

Mission

The tatton brown rahman syndrome community aims to support all families affected by tbrs and advance research toward interventions.

Expanded research and developes new website to deciminate new informations and research on the tatton brown rahman syndrome.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$140,714$422,765▲ $282,051
Rtn Earn Endowment Incm Other Fnds$140,714$415,934▲ $275,220
Pd in Cap Srpls Land Bldg Eqp Fund$0$0→ $0
Cap Stk Tr Prin Current Funds$0$0→ $0
Total Assets$140,714$422,765▲ $282,051
Liabilities
Other Liabilities$0$6,831▲ $6,831
Total Liabilities$0$6,831▲ $6,831
Net Assets / Fund Balance
Total Net Assets Fund Balance$140,714$415,934▲ $275,220
Total Liabilities and Net Assets / Fund Balance$140,714$422,765▲ $282,051
Compensation and Service Providers
Top Officer Pay90th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Jill KiernanExecutive DirectorFT$23,750$23,750

Board Members and Trustees

NameTitle
Kacee RichterPresident
Kerry GrensVice-president
Erin RookerMarketing Director
Jennifer York-isaacsSecretary
Tom WatsonTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$305,495
Program Service Revenue
$5,738
Investment Income
$0
Other Revenue
$26,013
All Other Contributions
$305,495
Change in Net Assets
$275,220
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$25,762
Grants and Similar Amounts Paid$21,115
Other Expenses$15,149
Total Fundraising Expense$2,885
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$16,625$4,750$2,375$23,750
Grants to Domestic Orgs$21,115--$21,115
Information Technology$5,400--$5,400
Payroll Taxes$1,409$402$201$2,012
All Other Expenses$300$299$208$807
Other Expenses$790$1,081-$790
Conferences and Meetings$710--$710
Office Expenses-$503$101$604
Total Functional Expenses$50,681$8,460$2,885$62,026
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of MontrealMontreal, QUEBEC, CA-Research$10,558
University of British ColumbiaVancouver, BRITISH COLU, CA-Researchresearchresearch$10,557
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$26,355
Fundraising Direct Expenses$342
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Payroll Taxes Payable$6,079
Payroll Payable$752
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 8B

“Any and all committees are chaired by a board member who reports regularly at the board meetings, disclosing discussions and suggestions for action. No committee currently can act without the board's approval.”

Form 990, Part VI, Section B, Line 11B

“Annual tax returns are offered to each board of director for review and they are give 48 hours from receipt to suggest corrections or changes.”

Form 990, Part VI, Section C, Line 18

“Any tax or financial information must be requested from the organization. The organization will then respond with the information.”

Form 990, Part VI, Section C, Line 19

“The organizations has a conflict of intersest policy which is reviewed by the board and discussed at the annual meeting, any member with a coi submits in a written format for presentation to the board.”

Filing and Contact Details

Filer

Filer Name
Tatton Brown Rahman
EIN
81-2216511
Phone
8452643016
Address
122 HUNNS LAKE ROAD, STANFORDVILLE, NY 12581

Signing Officer

Name
Jill Kiernan
Title
Excutive Director
Phone
8452643016
Signed
2022-04-25
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Jill Kiernan
Formed
2017
Legal Domicile
Ny
Voting Board Members
5
Independent Board Members
5
Employees
1
Volunteers
30

Preparer

Firm
Young Craig Co Llp
Address
2570 W EL CAMINO REAL 150, MOUNTAIN VIEW, CA 94040
Preparer
Raymond H Skitt
Phone
6502091800
Supplemental Narrative

Additional Explanations

Form 990, Part III, Line 2

“Tbrs community collaborative research network (tbrs crn). The members share information and resources to develop a roadmap to treatments for this rare disease.”

Raw XML Appendix378 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/TitleTxt1PRESIDENT
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IRS990/Form990PartVIISectionAGrp/TitleTxt3SECRETARY
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IRS990ScheduleI/RecipientTable/ForeignAddress/AddressLine1Txt03175 CHEM DE LA COTE-SAINTE
IRS990ScheduleI/RecipientTable/ForeignAddress/AddressLine1Txt14500 OAK STREET
IRS990ScheduleI/RecipientTable/ForeignAddress/AddressLine2Txt0CATHERINE
IRS990ScheduleI/RecipientTable/ForeignAddress/CityNm0MONTREAL
IRS990ScheduleI/RecipientTable/ForeignAddress/CityNm1VANCOUVER
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IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0UNIVERSITY OF MONTREAL
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0TBRS COMMUNITY COLLABORATIVE RESEARCH NETWORK (TBRS CRN). THE MEMBERS SHARE INFORMATION AND RESOURCES TO DEVELOP A ROADMAP TO TREATMENTS FOR THIS RARE DISEASE.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1ANY AND ALL COMMITTEES ARE CHAIRED BY A BOARD MEMBER WHO REPORTS REGULARLY AT THE BOARD MEETINGS, DISCLOSING DISCUSSIONS AND SUGGESTIONS FOR ACTION. NO COMMITTEE CURRENTLY CAN ACT WITHOUT THE BOARD'S APPROVAL.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2ANNUAL TAX RETURNS ARE OFFERED TO EACH BOARD OF DIRECTOR FOR REVIEW AND THEY ARE GIVE 48 HOURS FROM RECEIPT TO SUGGEST CORRECTIONS OR CHANGES.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3ANY TAX OR FINANCIAL INFORMATION MUST BE REQUESTED FROM THE ORGANIZATION. THE ORGANIZATION WILL THEN RESPOND WITH THE INFORMATION.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4THE ORGANIZATIONS HAS A CONFLICT OF INTERSEST POLICY WHICH IS REVIEWED BY THE BOARD AND DISCUSSED AT THE ANNUAL MEETING, ANY MEMBER WITH A COI SUBMITS IN A WRITTEN FORMAT FOR PRESENTATION TO THE BOARD.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART III, LINE 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION A, LINE 8B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PART VI, SECTION C, LINE 18
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PART VI, SECTION C, LINE 19
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd01
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IRS990/SubjectToExcsTaxNetInvstIncInd00
IRS990/SubjectToProxyTaxInd00
IRS990/SubjToTaxRmnrtnExPrchtPymtInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TerminateOperationsInd00
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IRS990/TotalAssetsEOYAmt0422765
IRS990/TotalAssetsGrp/BOYAmt0140714
IRS990/TotalAssetsGrp/EOYAmt0422765
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt0305495
IRS990/TotalEmployeeCnt01
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt02885
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt08460
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt050681
IRS990/TotalFunctionalExpensesGrp/TotalAmt062026
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt00
IRS990/TotalLiabilitiesEOYAmt06831
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt06831
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0140714
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0415934
IRS990/TotalOtherCompensationAmt00
IRS990/TotalOthProgramServiceRevGrp/RelatedOrExemptFuncIncomeAmt05738
IRS990/TotalOthProgramServiceRevGrp/TotalRevenueColumnAmt05738
IRS990/TotalProgramServiceExpensesAmt050681
IRS990/TotalProgramServiceRevenueAmt05738
IRS990/TotalReportableCompFromOrgAmt023750
IRS990/TotalRevenueGrp/ExclusionAmt026013
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt05738
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0337246
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt030
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0140714
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0422765
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd00
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt0122 HUNNS LAKE ROAD
IRS990/USAddress/CityNm0STANFORDVILLE
IRS990/USAddress/StateAbbreviationCd0NY
IRS990/USAddress/ZIPCd012581
IRS990/VotingMembersGoverningBodyCnt05
IRS990/VotingMembersIndependentCnt05
IRS990/WebsiteAddressTxt0HTTPS://TBRSYNDROME.ORG/
IRS990/WhistleblowerPolicyInd00
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/AuthenticationAssuranceLevelCd0AAL1
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/IdentityAssuranceLevelCd0IAL1
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/TrustedCustomerCd03
ReturnHeader/BuildTS02022-09-23 18:48:47Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0JILL KIERNAN
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0EXCUTIVE DIRECTOR
ReturnHeader/BusinessOfficerGrp/PhoneNum08452643016
ReturnHeader/BusinessOfficerGrp/SignatureDt02022-04-25
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0TATTON BROWN RAHMAN
ReturnHeader/Filer/BusinessName/BusinessNameLine2Txt0SYNDROME COMMUNITY INC
ReturnHeader/Filer/BusinessNameControlTxt0TATT
ReturnHeader/Filer/EIN0812216511
ReturnHeader/Filer/PhoneNum08452643016
ReturnHeader/Filer/USAddress/AddressLine1Txt0122 HUNNS LAKE ROAD
ReturnHeader/Filer/USAddress/CityNm0STANFORDVILLE
ReturnHeader/Filer/USAddress/StateAbbreviationCd0NY
ReturnHeader/Filer/USAddress/ZIPCd012581
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0270995027
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0YOUNG CRAIG CO LLP
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt02570 W EL CAMINO REAL 150
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0MOUNTAIN VIEW
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0CA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd094040
ReturnHeader/PreparerPersonGrp/PhoneNum06502091800
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0RAYMOND H SKITT
ReturnHeader/ReturnTs02022-11-14T17:33:23-06:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonFirstNm0JILL
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonLastNm0KIERNAN
ReturnHeader/TaxPeriodBeginDt02021-01-01
ReturnHeader/TaxPeriodEndDt02021-12-31
ReturnHeader/TaxYr02021

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2021 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$422,765
Liabilities
$6,831
Net assets
$415,934
Revenue
$337,246
Expenses
$62,026
Net income
$275,220
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.92$0.21$6.71$2.71$4.00$1.29
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$8.68$0.69$7.99$3.09$3.34$0.25
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$8.33$0.09$8.24$1.65$1.57$0.08
2021Detailed filing. Detailed filing data is available for this year.$4.23$0.07$4.16$3.37$0.62$2.75
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.41$0.00$1.41$0.98$0.24$0.73
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2021 filings • NTEE G20 • <$500k nonprofits